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Newbie

10 REPLIES 10
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Re: Newbie

Mel , thanks for your reply it’s great to be able to talk to people in same situation. It all happens so fast once you get that diagnosis your heads in a whirl . I’ve two daughters and I didn’t tell them I’d found a lump and had biopsy etc so told them on day of diagnosis Blimey what a day .well I’m at first base now . Please keep in touch and good luck with it all  Val x

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Re: Newbie

Stayzen I’m so so pleased your results are good . The waiting is always the hard part . Good luck for the rest of your journey xxxx

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Re: Newbie

Hi Nannyval

yes got my results thanks, and all well. Surgery went well clear margins, and lymph nodes also came back clear. I realise how lucky I am that this has been caught early, although it’s still a mind whammy. So on to the next stage. Have an appointment with the oncologist who will then say when I start the radiology and tamoxifen. I found the waiting and worrying about the results the worst part. The surgery itself I was okay with - they sonk you out on anaesthetic for that bit. Hope all is okay at the pre op today, and wishing you well for surgery on Monday. Let me know how you get on. 

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Re: Newbie

Hi Nannyval,

                I’m almost three weeks post op with similar diagnosis. It will be such a relief to have your surgery and move onto the next stage. Everyone has been so kind and I have found this forum really valuable. My tumour has accrued air miles jetting to California for Oncotype test so oncology appt originally for tomorrow has been put back two weeks. I’m hoping to start radiotherapy in the next month and then tamoxifen.  Breast cancer really is the gift that keeps on giving!! 
wishing you all the best for your surgery, it will be over before you know. 

Mel xx 

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Re: Newbie

Hi stayzen was just wondering if you’ve had your results yet , I have pre op tomorrow and lumpectomy on Monday x hope your ok  and enjoying the nice weather x

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Re: Newbie

hi 

l was advised by my breast cancer nurse to get a non wired front fastening bra, and that I need to wear day and night for a couple of months. They have definitely helped me. I have good movement in my arm but have found it helpful to have the front fastening. Also I wouldn’t want to be twisting my bra around as this would be twisting the bra on the scar. The post op bras you can get also offer more support and comfort. I’m glad I’ve got them.  Have a look on the future dreams website. They have advice on bras and a list of places you can get them on line. They also have a 50% discount code for one of the specialist supppliers amoena.  https://futuredreams.org.uk/user/pages/04.advice/Links%20to%20post%20surgery%20bras%20and%20beyond_v...

There are loads of places you can get them online although some had limited sizes. I ordered some from amoena using the discount and they were delivered quickly.

hope this helps. 

 

 

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Re: Newbie

Thankyou for your lovely reply and very wise words .i wish you well on your journey xx

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Re: Newbie

Hi nannyval

Sorry to hear of your diagnosis. It’s a huge shock and there’s a lot of uncertainty ahead - but it’s all manageable, honestly. There are so many women here, many of whom have already been through it and can be wise with their advice. It’s not nice but everybody responds to treatment in different ways. With that in mind, I really would strongly advise you to save your questions for your breast care nurse or your oncology team. Alternatively you can ask general questions here in the forums and ring the nurses at the number above for anything more significant - they are very knowledgeable and reassuring. It’s a wonderful service. Dr Google is NOT helpful. Google can’t take into account the specifics of your precise diagnosis, nor your emotional state. The information is often out of date or above our pay grade (unless you’re a medical professional) and the result is additional confusion, fear and anxiety. I broke my rule just once and did I regret it! I ended up needing my breasts care nurse to explain things differently so my fears were allayed but I had a horrid few days!

Take good care of yourself and look after your emotional health particularly. Personally, I think it’s at least half of the breast cancer experience! X

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Re: Newbie

Thanks for reply nice to find somebody more or less at same stage . I’m glad you’ve had your surgery , a couple of questions would it be useful to buy some button up tops and front fastening bras . Hope your results are good and please let me know how you get on . I’m meeting my surgeon on Wednesday so glad things are starting to happen xxxx

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Re: Newbie

Hi 

sorry to hear of your diagnosis. I’m at a similar stage. I’ve had my lumpectomy and am waiting to get my results next week. I also have to have radiotherapy and hormone therapy and will find out this week when the start. 

 For me it was a relief to get the lumpectomy out the way. I found the procedure fine, and all has been well since. Some pain early on which is under control and manageable. I find the waiting for the results worse than the treatment. 
 I am trying to keep off google, which i know is easier said than done, and  just try to look at this site to help prepare for questions I want to ask the team when I get my next results.

Covid isn’t helping but I was thankful the surgery was still able to go ahead in good time.

wishing you well, and happy to share experiences. 

 

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Newbie

I have been diagnosed with invasive ductal carcinoma , my lumpectomy is scheduled for the 1 st June followed by radiotherapy . I’m alreAdy taking letrozole . Just wondered if there was anyone else at the same stage . My family are very supportive as are my friends .its the not knowing what’s next that’s hard .ive W obviously googled but now worried about the what ifs