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Newly diagnosed reading

58 REPLIES 58
ZippyZoo
Member

Re: Newly diagnosed reading

Hi Lemonsqueezy, Tricks and Ladies, hope you are all well. Hope you got the results you wanted Lemonsqueezy. Hope you're recovering well Tricks.

I've had quite a few strange down days after my results but better as week has gone on. Whilst of course I am extremely relieved with my results you still have some adjusting to do, to the whole thing. But I've not even started my radiotherapy yet or hormone tabs but will deal with that as it comes. Overall though I'm doing really well, thinking about things I want to change generally going fwds and seeing this as a great reminder to me to do all the things in life I've put on hold. I'm glad it's given me a different perspective, not in the way i would have chosen of course but in many ways this experience is forcing me to get my priorities in life right. 

Love and hugs to everyone whatever stage of the journey you are on xx

Lemonsqueezy
Member

Re: Newly diagnosed reading

Amazing news Catherine, so happy and relieved for you! I'm a few days behind you, got my results coming up on 28th. Praying for the same outcome as you. 

 

Don't underestimate the toll of what you have and are going through. It's a lot. Keep being super kind to yourself x

Tricks24
Member

Re: Newly diagnosed reading

That’s fab news @ZippyZoo 🎉🧸

My SNB was uneventful and recovery is going well, still a little achy 1st thing in the morning but nothing paracetamol isn’t helping.  Waiting for results ahead of main surgery on 3rd.

Luxuries & treats definitely the way to go and embracing that advice when writing my hospital bag lists 🛍 The delivery of body wash and nose cream for surgery prep from Thu makes my next step real-er if that’s even a thing!

I hope we all ride our unique rollercoasters 🎢 with our arms in the air and eyes wide open as much as we can and embrace all the love & support offered to help us through the white knuckle bits 🦹🏼‍♀️🦄💗

lots of togetherness love

Trick xx

robertgsoliz
Member

Re: Newly diagnosed reading

You probably feel overwhelmed and confused. You're asking yourself, “What now?”

Well, the good news is you have a community to fall back on. You don’t have to maneuver this by yourself. You have the support of countless others who have felt the same shock. Your diagnosis is simply the first step. There are ways you can manage your diabetes—through diet, exercise, medical support, and emotional help. Dig in. Take action. And know that we have everything you need to help you live a long, healthy life surrounded by people who know exactly what you’re going through.

Anniej
Community Champion

Re: Newly diagnosed reading

I’m thrilled for you. Such excellent news, and I know it will give others a real boost. Thank you for sharing. Wishing you a happy and fulfilled life. Ann x💐

ZippyZoo
Member

Re: Newly diagnosed reading

Hi Ladies, hope everyone is doing ok. I wanted to share some good news. I had my pathology results today from my lumpectomy on 9th July. Clear margins, tumour was 12mm and no node involvement (snb). It's been a very emotional day from getting quite anxious waiting to find out and them getting the good news. I cried with the anxiety and then cried again with the relief. 

Thought i might have a little celebration but instead fell asleep for a few hours when i got home. When i woke up I felt like what the heck just happened these last 8 weeks!! It felt like I'd woken up from a weird dream and that I'd imagined it all!!  In a strange way I'm actually glad of my scar (again I'm fortunate it is small, healing well and my boob luckily doesn't look much different than before) to remind me this really has all happened but that i have come out the other side. 

Although i feel very fortunate with my results and thankful for screening you can't under estimate the toll it does take having to go through all this even with such good news at the end of it. Still have to have radiotherapy and hormonal tablets but I'm not hugely concerned at moment, just grateful for today's results.

I know everyone has a different journey but i really hope you too will come out the other side soon enough and have your own good news.

Take care everyone 

Catherine xxx 

Shi
Community Champion
Community Champion

Re: Newly diagnosed reading

Zippy zoo ❤️ Hold on tight as you are doing get your favourite tunes on and you will get to the camera at the end where you can flash your biggest smile at it that you are through. Our oct17 thread was like the naughty st Trinians gang on the train robbery one 🤣 you just do whatever you need to do to get through and if it makes you bit 🤪 for a bit we all have been there 🤪 during this ❤️💕💕Shi xx

ZippyZoo
Member

Re: Newly diagnosed reading

Also just an update ladies on my progress so far. As you know op went extremely well. Feels like it was all dream now a week since has almost past. Apart from tiredness throughout the week, I've had no pain, bit sore though nothing major but everything healing really well. My emotions are seeping out though. I was on focus focus mode before the op as that's all i could think of. Now I've become more emotional over this whirlwind i find myself in but particularly emotional (in a good way) about the care I've received and all the amazing people involved in my care.

Doing lots of nice things this week and treated myself to a pedicure today. Next week my little roller coaster car will be cranking up the slopes again as i wait for my pathology results on the 23rd. I've never liked actual roller-coasters but after this roller coaster ride I'd probably find the real thing easy in comparison! Hope you are all doing ok xx

ZippyZoo
Member

Re: Newly diagnosed reading

Hi Tricks, wanted to wish you all the very best for your op tomorrow. If its anything like mine you will blink then you'll be in recovery. Will be thinking of you but you will be in the best of hands and will be a giant step closer to getting this sorted xx

Tizzy
Member

Re: Newly diagnosed reading

ZippyZoo, I'm so pleased your op went well. It's so good to be able to tell others not to be overwhelmed by everything. We are going through very scary times, but there are lots of ladies here to offer support and advice. Here's to the next part of our journey. Good luck everyone xx

Tricks24
Member

Re: Newly diagnosed reading

Great news ZippyZoo 🌸 Love the hints & tips Shi will defo invest in the dots and de-pine cone stuff 😂

The decision making is sooo personal Corina!  Spoke to my BCN on Wed to talk thro mine before confirming surgery choice (MX and immediate own tissue recon) in case I’d missed any consideration.  Lean on yours for support 💕 Date confirmed for 3 Aug - no time wasted the pace is over whelming, trying to see it as positive- get the fooker out!!

So op 1 still Fri 16, hope it’s as straightforward too 🦹🏼‍♀️🦄💕

We’ve got this girls

Trick

xx

Shi
Community Champion
Community Champion

Re: Newly diagnosed reading

Corina ❤️ No question is silly ❤️ You have made your decision no one but you can say it’s right or wrong and I am sure you thought long snd hard about making your decisions. I was Tnbc in 2017 and for me I just wanted everything throwing at it, I had clear nodes but had vascular involvement, so wanted everything 🥊🥊🥊 anything that fancied it’s chances that might have still been circulating and then had 15 rads and the 5 booster rads too. Hope this helps a bit 💕💕Shi xx

Shi
Community Champion
Community Champion

Re: Newly diagnosed reading

Zippyzoo ❤️❤️❤️ Well done 👍 get some anosol the anesthetic can give you backwards pine cone botty block and green wee 😳 just wanted to warn you so you can prepare 😁 take it steady, do your exercises as instructed so you gain full movement back. I used sticky dots on door so I could mark progress daily and see just that bit further I was reaching, slow and steady but did them as instructed by team ❤️💕💕Shi xx

ZippyZoo
Member

Re: Newly diagnosed reading

Lemonsqueezy and ladies, I've done it!! Op over and done with. From someone who has had huge general anxieties in the past, never ever thought I'd ever manage a general anaesthetic without having an utter meltdown.... Well take it from me, you can do it. It was so undramatic and easy in the end though I did cry when i got onto operating table, not for long though as next thing i was in recovery not quite believing they had finished!! I felt like I'd had such a great sleep. I could never have imagined it would be really be quite so straightforward with what was going on in head. So for any other ladies worried about this, if i can do this you can too and without out being the terror experience you think it might be, quite the opposite in fact. You will be so well looked after. Not had any discomfort or pain as yet.

Hope this helps anyone about to go through the same xx 💪💪☺️

Corina
Member

Re: Newly diagnosed reading

Hello everyone 

I thought I could start a new post on this chain but I didn’t have the option so I’ve used the reply option. 
I have stage 1 TNBC, I have decided to go ahead with chemo and radiotherapy treatment. Deep down I think I’ve made the right decision but I have that nagging question in my head that if they removed the cancer cells and my lymph nodes were clear and there’s still a modest chance that the cancer won’t come back, is it right to put myself through the treatment. Sorry if this is a silly question, I’m having one of those doubtful moments. ☹️
I wondered if you had the same thoughts? I appreciate we are all on a different stage and diagnosis and maybe there was no other option, but I was just wondering about your thought process. 

Many thanks x

ZippyZoo
Member

Newly diagnosed reading

Morning ladies, day of op has arrived. Feeling OK so far. Had my wire insertion, very easy and straightforward so no issues there. Just waiting for the radioactive injection. Will keep u all up dated. All quite calm here at moment xx

Viewpoint
Member

Re: Newly diagnosed reading

Hi Lemonsqueezy - think of it as a huge step forward in recovery and focus on how great it will feel to know the cancer has been removed!  Helped me to think about that. Still had wobbles but the consultant knows exactly what they are doing!   Good luck!

 

Ax

ZippyZoo
Member

Re: Newly diagnosed reading

Hi lemonsqueezy, I wouldn't call myself brave at all lol. Like you i have been bricking it. I decided that as i couldn't change the fact i had to have the op (never had one b4) then i would try to change my mindset so I've spent the last few weeks repeatedly going over positive mantras, researching all the positives and just totally immersing myself in this to stifle my anxieties. I'm amazed I've got this far without having a melt down over it but somehow it's worked. Having said that how well it will all work when I'm faced with everything on Friday, I don't know!!

Just clicked on the link to your blog. Love the way you write and It felt like I was pretty much reading my own road to diagnosis. Also I've never felt why me either as i felt it was as likely to be me as anyone else. The most overwhelming bit for me so far was at the beginning of of diagnosis and thinking i just don't want to have to go through all this -the stress of appointments, op, treatment and so on. I've had to cx various activities planned throughout the summer so i can spend my time sorting this out, no doubt this will be much the same for us all. The upside of course is, there are treatments, ops and people who can help us get it treated.

If I get through my op etc without a melt down I'm changing my name from zippy to Rocky 🥊🤣💪 xx

Lemonsqueezy
Member

Re: Newly diagnosed reading

Zippyzoo, you are so brave. I have my surgery next week and am totally bricking it. I need to find my inner Rocky!! Hope you got the test done ok! x

ZippyZoo
Member

Re: Newly diagnosed reading

Hi ladies, i had a call from hospital today to say I haven't done my covid test and if I don't the op will be delayed. I've never moved so fast in my life!! The thought of a delay would definitely send me into a melt down but all done now. Phew!! There has been a bit of confusion over dates and admin in my situation so I completely missed it. On the positive the chit chat with nurse doing my covid test and visiting the hospital again (my op is in a hosp mostly for private patients but is used as an over flow for NHS patients for breast surgery and so its a very nice hospital too) added to my current calmness.

Tricks, I'm feeling more like Rocky 🥊 😂😂 now and raring to go and fingers crossed 🤞 that feeling will at least get me onto the operating table and then I'll let the experts take care of me. 2 days to go. Will report back as soon as i can xx 

Tricks24
Member

Re: Newly diagnosed reading

Hey Doodlebug - one fact at a time was the tuffest step for me, my natural want is all the options and answers on a timeline I can deal with most things that way.  This.....is nothing like that, it’s taken a couple of weeks to get my head around that, bring your focus to the immediate next thing and focusing on that one step at a time plus getting comfy with ‘it’s OK to not be OK’.  Another alien step however beginning to find it quite liberating and the support from BCN, clinic and friends & family has been amazing xx Sharing is caring and all those cliches are close to true in our situation we’re in it together 🦹🏼‍xx

ZippyZoo my SNB is 16th, eeeek!! Step one on the way forward to better things 💐

 

Viewpoint
Member

Re: Newly diagnosed reading

Hi all

I realise I am a bit late to this party but as these stories reads across to mine I wanted to jump in! 
I had a diagnosis of invasive lobular cancer on 8 April 21. The MRI only confirmed what was identified from the mammogram. I had a 3 lumps (10 and 12o’clock) and had a WLE with reconstruction on 19 May 21 with sentinel lymph node removal too.  I did stay in hospital overnight as although I was first up for surgery at 9 am I needed a second op the same day to remove a haematoma which caused swelling.  No big deal though. 

like you this was picked up on a routine mammogram (I’m 54) which I almost didn’t attend as I didn’t get the booking letter but had a reminder text the day before.  Complete shock at first and couldn’t say the words out loud. I live with my two teenage children ( no partner) and tended to keep busy with work rather than think about it. I only wobbled when telling friends and family. 

I am a way down the track now, the surgery successfully removed all with an acceptable margin, the wound is healing nicely. I think the worst part of the surgery was coming away from hospital with a drain which stayed with me for 2weeks. Lymph nodes are clear.  The affected breast is slightly smaller than the other but not massively. I’m now awaiting the results of the Oncotype test to see if chemo will be of benefit or do I get radiotherapy.  I had from the day of the operation off to two weeks after.  I am lucky enough to be able to work from home which makes life easier and wanted the distraction  

My advice to anyone is take this in small steps, one day/ treatment at a time and don’t google everything!  

good luck to you and all with your treatments.  

Axx

ZippyZoo
Member

Re: Newly diagnosed reading

Hi Doodlebug, sorry u find urself on here. However coming on here i've found it really has been a lifetime not feeling I'm going through it alone. I did go to my appointments on my own but with a friend waiting outside for me but I found the team there were really supportive. I guess they are used to this on a daily basis so should be there to give you any support you need if you're having to go on your own.

As for questions... I tend to want to know every little detail but of course everyone is different and will want to know different things at different times.  I think i like to know everything as it stops my mind imagining all sorts of things. And depends what you want to know. I read on one thread that one woman didn't want to know anything other than the treatment so that obviously worked for her. So I started my questions with - what do i want to know right now as you may not want to know everything in one go as can be too much to take in especially if on your own when going to appointments. As I've gone along a question has popped into my head late at night so I've then emailed my nurse. So maybe don't feel under pressure to ask all your questions in one go and don't worry if you forget things as you should be able to ask later if you think of something else. 

For me, as i was told it was small, grade 1 and caught early I found it easy to ask questions with that in mind without scaring myself too much. I also asked what the likely treatment would be though I've not met with an oncologist as yet just my nurse and consultant so someone who has met with their oncologist may be able to help you with that part.

Most on here say it gets a lot easiest once you have all your results and you have a treatment plan in place. I'm sure others will be along soon to give you their thoughts too. Take care xx

doodlebug
Member

Re: Newly diagnosed reading

Hi everyone, can I join your crew? 
I was diagnosed last week. All I got from the doctor was Lobular and hormones so I really haven’t a clue of what or how much. 
I know there’s 2 areas and they put a clip on one. 
Tomorrow I meet the oncologist so I’m armed with some questions, seeing as you all have got a little further along than me can you recommend some questions to ask? 
I’ve an MRI booked for Friday to see exactly where it is. 
getting nervous now as I’m going to both appointments alone as OH can’t get the time off and can’t come in anyway. 
Help appreciated as even though my outward appearance is saying ‘yeah kids I’m fine’ inside I’m falling apart. 😢

ZippyZoo
Member

Re: Newly diagnosed reading

Hi Trick, that's great that the recon you want is back on. Like you say, we all have to decide what is right for us, that really is so important. In our lives pre BC that's exactly what we would ordinarily do anyway. I think being able to have options, choice and some control over these things in a situation where there is a lot out of our control is really important in so many ways.

So is your op 9th or 16th? If 9th will be same day as me. xx

Tricks24
Member

Re: Newly diagnosed reading

Afternoon Ladies

Great to read your positive experience Tizzy wishing you well xx

Yesterday appt on next steps took a turn for the better, initially own tissue recon had been ruled out but consultant wanted a plastics specialist to absolutely confirm option in or out.  I was squeezed into plastics clinics yesterday aft and it’s back on the list!!  I appreciate everyone’s experience is very different and the surgery choice massively personal - this one feels the right one for me.

I now have my sentinel node op next Fri and MX with immediate recon early Aug.  Found a forum link a couple of years old on TUG recon which has been useful - this is such a support to talk to you ladies on the topic however different our detailed plan.  Going to hopefully use the Someone Like Me to chat more on the TUG experience to help prepare.

Wishing you all happy thoughts

Trick

x

ZippyZoo
Member

Re: Newly diagnosed reading

Hi Tizzy, that's great news that it went well for you and you are now recovering. I i did think of you on Friday hoping it would all go well. I'm up next, this coming Friday, though i actually feel less anxious about it this week generally plus hearing you've come through it as well as can be really helps too so thank you for sharing that. 

I hope to come back after my op next week with a similar experience to report. We are very fortunate given the circumstances that we all have each other to share our experiences with.

Best of luck to you Tizzy with your journey, onwards and upwards xxx

Tizzy
Member

Re: Newly diagnosed reading

Hi ZippyZoo and ladies, it's me again. I know everyone will have different experiences, but I just wanted you to know that I had my operation (dual wire guided excision and sentinel node biopsy) on Friday and it went well and the staff were wonderful. It was much less scary than I was expecting and a lot less painful than I thought it would be. I know there is a long way to go, but I feel much more positive about the help I am going to receive. I slept most of Saturday and am obviously taking it easy and doing the exercises as prescribed, but I just wanted to offer some reassurance if I could. Good luck everyone - we can definitely beat this xx

 

ZippyZoo
Member

Re: Newly diagnosed reading

Hi Trick, will be thinking of you today for your appointment and sending you hugs xx

Tricks24
Member

Re: Newly diagnosed reading

OMG the nice people are the tuffest to deal with!! Like you I’m dealing with the facts ok but as soon as anyone turns their attention to me and my feelings I crumble!! Getting ok with being not ok is a challenge!! Lots of Leeds Love

Regards

Nic

xx

Tricks24
Member

Re: Newly diagnosed reading

Hey Big Hugs xx

 

sorry if I’m missing other replies I totally feel your anxiety 😟 1st attack last Tue after a nurse meet (aren’t the breast care nurses A Mazing !?!) After many years of giving advice taking your own medicine is a totally new experience!!! Outside my comfort zone ... seeing consultant tomorrow to discuss MRI which wasn’t what I wanted down to 2 from 4 options set for surgery on 21st 😬 lots of love to you all on this roller coaster we’ve got this xx

Trick

xx

ZippyZoo
Member

Re: Newly diagnosed reading

Hi Jacaranda and ladies, i totally agree re the care and support on here. It makes a huge difference to know we are in the same boat. Had my first real attack of anxiety today which i knew had to happen seeing I've been very calm since my diagnosis 3 weeks ago. Think it almost worried me thinking how have i been so calm, not that I'm relieved I'm having pre op anxiety now though!! I've still got a week to go b4 op but counting down the days now 🙁. I need to focus on the op being a good thing that's going to get rid of it and remember all the ladies on here who've felt similar and have come out the other side saying there really wasn't anything to worry about. I think just before hand I'll be clutching at my phone re reading all the positive messages between us all and focus on sending a message out afterwards to say I've done it! Feeling a bit better now I've said all that. Xx

Jacaranda
Member

Re: Newly diagnosed reading

Hi again everyone.

I’ve just calmly re-read all of these messages and the care and support is just amazing. We truly are ‘all in the same boat’ at different stages. And the boat is definitely on a giant rollercoaster.
I felt numb when I got my diagnosis on Monday and then completely panic stricken on Tuesday but yesterday and today feeling calmer and stronger. 
There is just so much to process and deal with but I just need to slow down and pace myself. I’m telling myself I’m not preparing to do a 100m sprint - more like a triathlon, so I’m  going to take it slow and remember to breathe!

Good luck Tizzy for tomorrow. And hugs to everyone. 

ZippyZoo
Member

Re: Newly diagnosed reading

Hi Tizzy, good luck with the op. I'm sure it will be over with quickly and at least you'll be over the first hurdle and can get on with the rest of the treatment.

I told friends/family not to be any different to me as i fear i would cry too. I guess I'm trying to keep it up all wrapped up in straightforward matter of fact way, much like yourself but it's just so that i can focus and keep it together and get on with it. When I've got through it all i am expecting my tears will possibly be like a tsunami probably down to the relief I've got through it all. 

Im also trying meditation and also writing down all the positives, like it was caught early, can be treated and so on just so it becomes a mantra. I'll probably be chanting all this in my head on my way to my op but you know whatever works for you, you have to do. 

Take care and let us know how you get on xs

 

Tizzy
Member

Re: Newly diagnosed reading

Hi again ZippoZoo and ladies, well a couple of weeks on and I'm still a bit 'this can't be happening to me'. But my operation is on Friday, so it is happening. I find I'm talking about things in a matter of fact way, but the minute people start to be nice to me I end up in tears. I've also been told I'm Her2 positive, so now I have to have chemo before radiotherapy, so that's daunting, but I see there's thread on this site for ladies starting chemo on a given month, so I'll join that when the time comes, as I'm finding this site really helpful, just knowing there are ladies going through this too. I've started doing some Mindfulness which is helping. Someone recommended the Calm app and I've used that too.  So it's time to pull up my big girl pants and get on with it. Good luck everyone x

cherryblossom
Member

Re: Newly diagnosed reading

Hi ZippyZoo - oh yes, I was so scared too but definitely agree that I'd be more scared not to have it and honestly all the team for your surgery will put your mind at ease - I was blown away by how lovely everyone was and calming too.

That's great to have a project like knitting.  I was doing some crocheting a few months ago so might just pick that up again - could even finish that hat before another winter comes around.  I'm sure my dog just rolled her eyes at me as if to say, that'll be right so I must now prove her wrong lol

That's good news that they don't think your diagnosis will change much after your op - great news in fact!

Totally agree - the waiting is the hardest part - you're nearly there though - not long until your surgery x

ZippyZoo
Member

Re: Newly diagnosed reading

Hi Jacaranda, I can't say enough how glad i am I've found this forum. Really makes a huge difference to know we are not going through this alone and that we can share the ups and downs. Hopefully they will be more ups than downs though xx

ZippyZoo
Member

Re: Newly diagnosed reading

Hi Cherryblossom, that's reassuring to hear especially if like me you've never had an op b4. That's my worst fear at mo but I am more scared of not having it.

I decided to start knitting again recently as felt would be good to have a project to focus my mind on prior to the op but also as it can be so addictive I'll be wanting to get back to it as soon as i can so its a good distraction. Also got some uplifting books starting to read and now you've mentioned the tennis i might start watching that as well. The finals are on over the weekend after my op so that will be another positive thing for me to focus for afterwards. 

I was told that my scans and biopsies are unlikely to drastically change after the op so I'm holding on to that. Hope yours is good news though its the wait that's always the hardest bit xx

cherryblossom
Member

Re: Newly diagnosed reading

Hi - I've just signed up to the forum and reading along and it's good to find other people to talk to about this.  I had similar to you, ZippyZoo - small lump which I felt was a bit weird and was quite shocked when they told me it was cancer.  The surgeon said that it looks like my nodes are clear but I had surgery last week to remove the lump along with a sentinel node. 

I'm sitting on the sofa watching the tennis (great time of year to be signed off work ha ha), trying to take my mind off the fact that I'm still waiting for the node biopsy before I can actually exhale.

I'd never had surgery before so was very nervous about it but aside from being pretty tired the pain has been surprisingly minimal.  Got to look for the positives don't you 🙂

Jacaranda
Member

Re: Newly diagnosed reading

Hi Ladies

Please can I join you? It seems I’ve  been ‘promoted’ from the ‘anxiously waiting biopsy results’ group to the ‘newly diagnosed’ gang. 
I received my diagnosis yesterday - invasive lobular breast cancer, and because it’s in 3 places will need to have a mastectomy. At least I now know what I’m dealing with - and deal with it I will. We all will. 
I’m so grateful for this forum and all the support. 

 

ZippyZoo
Member

Re: Newly diagnosed reading

Hi Tricks24, sorry you find yourself in the same situation as us though I have found this forum very helpful. Definitely makes me feel like I'm not going through it on my own. There is so much to take in, in the beginning and trying to figure out how best to deal with it and who to tell and what to tell them but like you say it's step by step. I'm now just waiting for my lumpectomy on Friday 9th. Calm at moment and feel like I'm on auto pilot and hopefully will stay calm enough to get through the op xx

 

Tricks24
Member

Re: Newly diagnosed reading

Evening 

Got my results on Monday invasive lobular ER+ in 2 maybe 3 sites, MRI tomorrow and a meet with breast care nurse to talk thro surgery options and real life outcomes.  Feels like it’s happening to someone else at the moment, at 47 been relatively fit & healthy.......GP and 1st dr at clinic thought lump was dense tissue, it was but my 1st ever mammogram found the little bleeders!!  Been in a ‘is this is really happening?’ bubble this week with hubby cos been on ‘holiday’ both back to work tomorrow so the whole who and what to tell people building up trying not to pressure myself to do everything quickly - time to reflect!!  Glad I’ve found you guys to take this journey with, one step at a time 👋🏼 xx  I find the Calm app really helpful with anxiety control and sleep 💤 Need to get back into that habit and truly start putting myself at No 1 Priority - not one of my natural strengths!!!

Tricks24_0-1624823459938.png

 

Jukat
Member

Re: Newly diagnosed reading

I totally understand everything you just said!

I haven't spoken to my sister for a couple of years but she turned up on my doorstep crying....really who does that help?....I haven't cried so that wasn't what I needed 🙄

Unfortunately I work in an environment where we deal with medical devices and I used to work in theatre so when it comes to diagnosis and surgery it's sort of run of the mill....though I am not usually on the patient side.

I do apologise...me head is all over the place!

xx

ZippyZoo
Member

Re: Newly diagnosed reading

Sorry, didn't realise how long my reply was! 

ZippyZoo
Member

Re: Newly diagnosed reading

Evening Julia, it really does help when someone is going through same and gets it. Well, i had a dilemma on who to tell. When my friend had cervical cancer last year she wanted to tell everyone then found that quite stressful as lots of people came out of the woodwork and she felt she had to reply to messages and offer reassurance to others which was quite draining. That influenced the decision for me anyway. I know some people like lots of people to know and thrive from that support. So it really is very individual i think.

For me I've only told need to know and close supportive friends/family with strict instructions not to tell anyone else who knows. I don't mind them discussing with people they know (but don't know me directly) or who have had same experience themselves.  I have found explaining quite exhausting after a while (probably cos i go into too much detail!!) but I've also told those that know what support i need from them right now i.e no violins or dramatic reactions and tears. I may need different support as I ride the roller-coaster of course but they know I'll tell them and so far so good.

As for work I've told my direct manager and team leader but no one else. I've had to cx things and just said to colleagues I've got to have an op on my shoulder!! Bad mistake!! I'm not good at lying or not being upfront but think have valid reasons for this. Only problem is colleagues are asking what's up with my shoulder, out of concern, and I've not thought that far ahead 🤣🤣🤣. The friends that do know find this very funny of course!! My cervical cancer friend also joked if people don't know what the real reason is i might not get a collection and card at work 🤣🤣🤣. A collection and card is not top of list it has to be said! 

At moment for me I'm still determined to keep it among the close, supportive and need to know. That works for me at moment. I'll just have to do some research on some convincing shoulder problem 🤣🤣

Catherine xx

Jukat
Member

Re: Newly diagnosed reading

ZippyZoo it's like you are in my head!! It's so good to hear from someone who is going through the same thing at the same time!

I have been fine for the last couple of days then the dreaded letter landed this morning with the details of what they found and since then I have had about 3 crying outbursts!

But I refuse to let this push me down! That's it...no more tears!

Can I ask have you told many people and what you have done about work?

I didn't tell anyone anything until yesterday but with every person that knows I feel it's a burden lifted (don't quite know how that works!)

XX

ZippyZoo
Member

Re: Newly diagnosed reading

Hi Julia, yes of course you can join the convo. We are all totally new to this too. Its like I've landed on another planet really!! Totally agree with you on the humour front. When i got my results i went straight to pub with some friends for some stiff drinks and we laughed and joked (one friend had had cervical cancer a year ago but came through that all good thankfully but it helped having her there having gone through something similar) and had a few tears, not too many though as we dealt with it with humour which is exactly what i want to do. Laughter is medicine and all that.

Im 52 next month and was my first routine mammogram too. Letter to Dr also made it more real. Many women have told me it's like a roller-coaster. I was fine first two weeks then having a few up and down days, mainly I'm positive but i don't think it's possible to always be positive as you have to release the emotions when you need to. 

So many women have come through this and got back on with their lives so we can get through this xx

 

 

Jukat
Member

Re: Newly diagnosed reading

Hi ladies, can I join this small and select group please?

I had my diagnosis on Wednesday, invasive lobular breast cancer Grade 2. Had an MRI yesterday to see the extent to which it has invaded my breast before they decide on lumpectomy or mastectomy. This is like a bolt out of the blue as it was picked up on my first routine screening (I am 52) and I had convinced myself it it was nothing...fibrous tissue or an anomaly because I feel well in myself...so have been in shock ever since.

I have made jokes about it, telling my husband to make the most in case they lob one off, because I would rather laugh my way through this rather than cry and now today I received my letter to my doctor informing him of the situation and have had a couple of fits of tears. I'm supposing this is all normal and everyone is different?

I really hope you ladies are soldiering through! We are women - we are strong!

Julia x

 

ZippyZoo
Member

Re: Newly diagnosed reading

Hi Janbabs, thank you so much for sharing this, that's really reassuring. This sounds very much like how they are expecting mine to turn out. I was hoping they could whack me over the head without me knowing to knock me out 🤣🤣 but joking aside i have accepted what needs to be done and practising relaxation and positive mantras. I'm focusing on fact the team are there to do their very best for me so that way of thinking is managing to keep my nerves at bay to some degree and focus on the good things. 

I will think of what you have said about how well you have come through things (all things considered) when I'm waiting for the op. This will be another positive to focus on. Thank you. 

Great to hear you are doing so well so onwards and upwards xx

Janbabs
Member

Re: Newly diagnosed reading

Hi all

After seeing these posts I thought it might be helpful to share my recent experience. I was newly diagnosed on 27 January following a routine mammogram with primary Grade 2 ductal invasive cancer, Oestrogen positive, HER negative. I too found it very difficult getting my head round it. I was scheduled for a lumpectomy and sentinel node biopsy on 11 February but this was delayed due to high blood pressure. During the pre-op period I was very scared, anxious and worried as I had never had surgery or a general anaesthetic before. I had the surgery on 4 March and all went well. I arrived at the theatre unit at 7am, went to theatre at 1pm and came home at 7pm.  The worst bit is the waiting, and not knowing what is going to happen, but I was fine, and it wasn’t half as bad as I imagined and such a relief when I woke up in recovery and the nurse said “all done”. The nursing staff, consultant and anaesthetist were amazing.  
My pathology report said the tumour was removed with clear margins and lymph glands clear. I was staged as 1a.  I have since in May had 5 sessions of radiotherapy, the machine they use looks a bit daunting, a bit like a giant Kenwood mixer but once you are positioned and it’s all happening it’s not scary at all.  I had to learn deep breath inspiration technique as my lump was on the left side but that is easy as well.

I consider myself fortunate that I do not have to have chemotherapy but am taking Letrozole for 5 years and began taking Ibandronic acid but that gave me some unpleasant side effects so I am having Zolendronic acid IV on 3 July hoping that the same doesn’t happen. Other than that I have survived the journey to date very well. It sometimes feels like I have been watching a film, or I will wake up and it was all a dream, but I am getting better at accepting it.  I am much more relaxed now when I receive a letter from the hospital for appointments and know each stage is another step to booting cancer out. I wish you all the best, keep positive x