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Newly diagnosed

11 REPLIES 11
AOL112
Member

Re: Newly diagnosed

It really is scary stuff! I have started a blog/diary to get my feelings down. It is so surreal as I feel well and am active.
Hobbies are a life line and good for the soul. I will be getting into things as much as I can.
I am so glad for the support on here. 
thank you for your response and support, it is very helpful. 
wish you all the best on your journey xx

Lemonsqueezy
Member

Re: Newly diagnosed

Hi AOL 🙂 I'm sorry that you find yourself here at all. I think it's the club none of us wanted to ever join!

It's positive that you are here and already finding ways to help yourself, I think for me this has been key.  Everyone is different and will find that help in a variety of ways. Blogging for me has been a life saver. It's enabled me to explore my feelings and write them down rather than keeping them stuff inside. Keep talking and expressing yourself in whatever way feels good to you.

Some people find hobbies a good distraction and outlet, like knitting or crafting. 

I remember the first couple of weeks feeling so strange. Surreal at times and hard hitting real at times too. Allow the feelings to come and go, allow the diagnosis to sink in at your pace. Blessings and good luck with everything x

Blog: https://robyn-may.blogspot.com/ 

AOL112
Member

Re: Newly diagnosed

Hello,

Thank you so much. 
I now have appointments lined up next week so hopefully more of a plan will come together.

it’s so daunting but yes I agree with feeling of having more control.

Will use all the support I can get 

Thanks again xx

Jacaranda
Member

Re: Newly diagnosed

It honestly does start to feel a bit better once you have a few appointments lined up and a bit of a plan. Somehow makes you feel more in control again.

At the beginning it just feels like jumping up out of a plane without a parachute. 

This forum is wonderful - strength and support and encouragement 💪 xx

Jacaranda
Member

Re: Newly diagnosed

Hi again Louby Lou

Another coincidence for us - 7th June was the day I had a telephone consultation with my GP to discuss the ‘dimple’ I’d noticed in my breast.  
J x

Shi
Community Champion
Community Champion

Re: Newly diagnosed

AOL ❤️ A good book that helped me was surviving triple negative breast cancer by Patricia prijatel, she is a 2 x tnbc survivor. It’s not for everyone but it helped me, just wanted you to know so if you wanted to get it, you could look out for it ❤️ Step by step and take it one day at a time and do it your own way and be kind to yourself ❤️💕💕Shi xx

AOL112
Member

Re: Newly diagnosed

thank you so much. I am taking each day as it comes and trying not to worry. Trying to keep my thoughts positive. It is a great help already just having the messages that are coming in and knowing that there is support out there. 
thank you so much for your response, greatly appreciated 🙂

nest wishes to you x

louby_lou69
Member

Re: Newly diagnosed

@AOL112 

Hi and welcome, I’m 5 weeks ahead of you. Found my lump on 7th June.

The waiting is so hard but I did find it gave me time to slowly begin finding things out and getting my head around the diagnosis. 
This forum is amazing and everyone is so helpful. 
Ive also been on the Macmillan website as there are forums and blogs too. I’ve started a blog just to get my thoughts down and hopefully help others.

My blog on Macmillan is called Cancer Messed with the wrong boobs. 
Please post again, it’s so much better to have support around you 

Hugs

Lou x

Anniej
Community Champion

Re: Newly diagnosed

Aw, bless you. You are in the right place for support and advice. All the members here have been in the same position as yourself and know just how  you feel. As Shi said, the helpline here is fantastic, and you couldn’t do better than to ring them. Marie Curie and Macmillan are also good sources of support. I reached out to my local Maggies Centre in Newcastle and accessed a huge range of emotional and practical support to get me through my treatments and beyond. Places like this have seen every type of issue and problem. Take one day at a time, and hold on to the fact that research now means we are living with, not dying from, cancer. Best wishes. Ann x

AOL112
Member

Re: Newly diagnosed

Thank you so much. I really am feeling lost with it all. I know the breast cancer I have been diagnosed with is triple negative invasive mammary carcinoma. I don’t have a plan in place which I think is causing me to worry. I do have a CT scan due in the next two weeks. Just the waiting seems forever. 
I will call my nurse team and ask the questions that I have, they maybe able to clarify a few things. 
thank you for your kind words and support it really is appreciated ❤️

Shi
Community Champion
Community Champion

Re: Newly diagnosed

Hi AOL, please do use the number at the top and speak to a nurse, or the someone like me option, sorry you find yourself on here ❤️ If you know what type of bc you have been diagnosed with and your treatment plan, do please share if you want, others will be able to help you more with their experience and knowledge ❤️ Always do as your team says, remember they have seen it all before and remember your treatments will be tailored specifically to you, it is never a one size fits all ❤️ Others will be along too to offer ❤️👭❤️💕💕Shi xx

AOL112
Member

Newly diagnosed

Recently diagnosed with breast cancer. All over the place. Feel this is where I can speak to others and get support