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Newly diagnosed

19 REPLIES 19
tweenie
Member

Re: Newly diagnosed

Hi @AnnieV 
Thank you for your message, I’m so glad to hear your lymph nodes were clear too and fingers crossed your margins will also come back clear. 
I have managed to try to keep occupied today it’s my sons birthday so I’ve tried my hardest to try and forget about everything and just have a good day.

I spoke to one of the nurses from here this morning and that really helped.

Good luck with everything 🍀xx

AnnieV
Member

Re: Newly diagnosed

Hi tweenie

Mine is also er+ pr+ and her 2 negative and I was told that is a favourable biology (although I have no clue about these things). Also it is really good news your lymph nodes are clear. I remember feeling how each day seemed to drag before my op 10 days ago and was worried with every passing day that the bad situation would just get worse. It's weird in the end how quickly the date came round even though the days dragged. You will feel a sense of relief once the op is done.

During the op, I had a sentinel node biopsy which turned out to be clear too, so I am thankful. But still the worries don't stop as I don't know what the stage the cancer is at nor if they removed the lump with clear margins. Just have to sit tight until the next appointment. Trying to put my faith in the medics as they are the experts and face each hurdle as it comes.  

Sending positive thoughts your way xx

AnnieV
Member

Re: Newly diagnosed

Hi there Booboo2828

Hope your operation went smoothly. I had mine 10 days ago and it is such a relief to be rid of the lump. The 

first big hurdle done. Take it easy if you can. 

AnnieV xx

tweenie
Member

Re: Newly diagnosed

Hello everyone,

I had another appointment yesterday and got more information about the biopsy results.

I have er+ pr+ invasive ductal carcinoma the her2 result was negative.I met the nurse and she was lovely,she said my pre op is on 11th August which seems like ages away! She said my treatment plan will be confirmed after then as the lump is only 1cm (she was amazed I even found it) but it is grade 3 so possibility will need chemo, they will probably send lump away for the scoring.

I have woken up this morning and all I am focusing on is grade 3, I know I should feel positive as It has been caught at such an early stage I’ve already had a biopsy on lymph nodes which is clear, but I feel like the more information I’m getting the worse I feel mentally, like a terrible dream that I cannot wake up from xx 

tweenie
Member

Re: Newly diagnosed

@Booboo2828 

I just wanted to wish you lots of luck for today, I hope everything goes well xx

Evie-S
Community Champion

Re: Newly diagnosed

@Booboo2828 - a big welcome to this lovely forum, and I hope you will find lots of support and friendship on here. Please ask any questions, about treatment or how to use the forum, or sometimes you will just want to offload. It’s a safe non judgmental place where everyone just “gets it”. I wanted to wish you all the very best for your op tomorrow and for a speedy recovery. Please come back when you feel like it to let us know how you are. Hugs, Evie xx

Booboo2828
Member

Re: Newly diagnosed

Hi everyone

I am 45 and had my breast cancer diagnosis 4weeks ago. I have a boy 11 and girl 13..I suddenly feel so hopeless..I just registered this forum and found there are so many information and support here..

My operation is tomorrow and just can't wait to get rid of the lump..

Thank you ladies

 

louby_lou69
Member

Re: Newly diagnosed

I went for my pre-op last Monday.

They check your height & weight, blood pressure, blood test, they also did 3 MRSA swabs. The nurse asked me loads of questions about my medical history.

I also had an ECG too. I was there about 45 minutes.

I have to go for a covid test 3 days before my operation and then isolate from then on. You also have to do this for any chemo sessions too.

tweenie
Member

Re: Newly diagnosed

Hello Everyone 

I hope you are all getting on ok.

ive suddenly thought I don’t even know what’s involved with the pre-op side of things is there lots of other tests you have to have before the actual surgery?   I have an appointment on Wednesday but I like to know everything beforehand 😬xx

 

sharlea
Member

Re: Newly diagnosed

Hi, I’ve just looked at your blog, and want to say thanks for writing. Also, your comment about how it helps keep people updated.

I have found it very tiring, and sometimes tiresome, to update people. I know they mostly wish well, but it can really be so mentally and physically draining at times. I’ve just started my first chemo and delegated all updates to my partner.

Best wishes

Mai7
Community Champion

Re: Newly diagnosed

Hi Tweenie, it’s all very scary and of course you’re entering into a “journey” which you didn’t choose to be on.  Just take it one step at a time.  You’ll get lots of support on here.  I was 48 at diagnosis with stage 3 ER/PR+ in 2017 and now doing well.  Things get a bit less anxious once you have a treatment plan and something is being done about it.  Best wishes with your treatment. X

Lemonsqueezy
Member

Re: Newly diagnosed

@tweenie I'm so glad it has helped you. We all have our own experiences of this journey but I can't tell you how many things I have read that have resonated with me. I'm finding that coming together with other ladies is making me feel so much stronger and supported. Like an army of our own all fighting to win this dreadful war. And we will. Women are incredibly strong human beings.

Keep reading, keep talking, one thing you are not is alone. Blessings and light to you Tweenie. Robyn x

Calendula
Member

Re: Newly diagnosed

Tweenie - I'm in the same dreadful place myself and it's shit. Utter, unmitigated shit.  I can't really offer any words of wisdom other than to say it has helped me to share on here and to see I'm not as alone as I thought I was. xxx Cal

tweenie
Member

Re: Newly diagnosed

Hi Annie,

thank you for your message, there’s so many worries isn’t there, and everything happens so quickly there is so much to process in a short space of time.

I pray your margins are clear, lots of love xx 

tweenie
Member

Re: Newly diagnosed

Thank you so much Robyn, I have read your blog and it has really helped me, it can feel so isolating at times with friends and family not really understanding exactly how I feel and reading this has made me realise I am not alone xx 

Lemonsqueezy
Member

Re: Newly diagnosed

Hi Tweenie and welcome to the forum.

It is an utter shock and reading your post took me back 4 weeks ago in my life.

Bit by bit it will sink it. Just allow it to sink in. Cry, scream, get mad or whatever you need to feel to process the emotions. I found writing a blog really has been helping me and it keeps my friends and family updated as I couldn't cope with lots of separate messages. Everything is just overwhelming.

https://robyn-may.blogspot.com/ 

In one of my posts I talk about reading women's posts on forums supporting one another and they felt like cancer warriors to me, so strong. I was so new and scared and they were like "ah, it's crap but doable". But I'm learning that day by day you do accept what is happening and somehow, I don't know how, you do get through each step.

Blessings to you and your family, Robyn x

AnnieV
Member

Re: Newly diagnosed

Hi tweenie

I am 45 and like you was in complete shock when I had my cancer diagnosis confirmed at the end of June, having always been in good health. One of the many worries is when you have dependents and the effect on them (I have 2 boys, 12 and 14yrs so life is already busy and challenging). Everyone else around you is carrying on as normal so it is easy to feel alone. I have found it really helpful in using this forum and giving each other strength. Take a step at a time. My first big hurdle (after biopsy and diagnosis hurdles) was the surgery I had this week. I was terrified before hand. Planning what the day would look like and what I would need helped and dealing with all the logistical stuff. Then breaking the day down (I was even nervous about the injection in the nuclear medicine appointment prior to the surgery) bit by bit. I feel fortunate that there is no spread to my nodes. Now I am keeping my fingers crossed that they removed the lump with clear margins; I will find that out in a couple of weeks. Trying not to think about it yet though.

Best wishes to you xx

tweenie
Member

Re: Newly diagnosed

Hello, 

Thank you for your message, he said he would be able to confirm more after the lumpectomy but thought I would need radiotherapy afterwards but didn’t mention anything else. 
I did get a folder too just with info regarding primary breast cancer. I suppose it’s early days and I will know more in the next couple of weeks xx 

louby_lou69
Member

Re: Newly diagnosed

Hi

Its an awful thing to hear. I found my lump on 7th June and I’m having a lumpectomy on 10th August followed by chemo 6 weeks later.

Your consultant really should have told you what type of cancer it is as it will affect what type of treatment you have.

I have stage 2 lobular cancer and my cancer is fed by hormones (ER & HER2 positive) so that will effect my treatment in many years to come. My cancer doesn’t respond to chemo,  so I’m having surgery then chemo and radiotherapy to mop up any cancer afterwards.

I have a red folder that has lots of information in and my Breast Cancer Nurse wrote lots of info in it too.

Lou x

tweenie
Member

Newly diagnosed

Hello everyone, 

I have been diagnosed with early breast cancer a few days ago.

I have just turned 40 and am in complete shock as i imagine everyone else when they find themselves in this position.

a couple of weeks ago I found a lump that was not that easy to find, but something made me check.

I am fortunate to have private healthcare with work so was able to get an app the next day with a breast consultant, he examined me and felt it was nothing sinister but wanted me to have a mammogram and an ultrasound to make sure. The mammogram came back clear however the ultrasound showed a lump that required a biopsy. 

The consultant has been nothing other than positive and said the lump is 1cm and the lymph node biopsy was clear. I am waiting for my lumpectomy in the next couple of weeks, I asked him what type of cancer it was however he said he didn’t know at this stage but looks like a common one whatever that meant.

Since my appointment I feel like I have been thrown out of a plane without a parachute! I have a 9 year old son and I feel so frightened about everything. I read the posts on here and everyone seems so strong, I know I’m very lucky to have caught it so early but I am struggling to get my head around everything xxx