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Recent diagnosis - autistic daughter & partner. getting sad and angry lots!

2 REPLIES 2
EJBSinger
Member

Re: Recent diagnosis - autistic daughter & partner. getting sad and angry lots!

Thank you that’s really amazing - especially the apps - I do like my apps.

Yes the visual guides are a great idea - why didn’t I think of that? I do loads of visual support things for my daughter.

 

much love xxxxx

Mai7
Community Champion

Re: Recent diagnosis - autistic daughter & partner. getting sad and angry lots!

Hi EJBSinger, sorry to hear you’re feeling overwhelmed with it all.  It really is a difficult thing to get your head around and coping with a pandemic as well as moderating your communication within your household makes it even more stressful.  Maybe you could put the stages of treatment up on a visible calendar to share some predictability with family members.  That way you don’t have to verbalise everything.  I think we all struggle to communicate with our loved ones after diagnosis because we are giving them news we don’t like and don’t want to deal with ourselves.  I lost my left breast in 2017 and whilst I am grateful to be alive there are some pretty devastating trade offs which we can’t be expected to move on from quickly.  Here’s my story: Http://lifeafterlola.com/ 

Healing really does take time so don’t feel bad for not feeling glad about your treatment plan.  It’s not like being given a spa treatment plan.  Let us know how you’re getting on and once you have your treatment plan you can chat with others on the going through treatment threads on here.

in the meantime, keep yourself in the loop with these apps:

https://breastcancernow.org/information-support/support-you/becca 

https://www.nhs.uk/apps-library/owise-breast-cancer/ 

EJBSinger
Member

Recent diagnosis - autistic daughter & partner. getting sad and angry lots!

Hi

My first post and I was adamant I didn’t want to talk to anyone. It’s exhausting. But I have an autistic daughter & Aspergers partner and they’re struggling with my moods.

I just keep feeling so angry and crying all the time. 

im looking at losing my right breast and they’re still investigating the left one. But if that gets rid of the cancer it’s worth it. So I should feel glad that it’s all treatable. But why don’t I? 

I’m just not sure how to feel and what I can expect. I can’t get my head round this happening during a global pandemic either.

So many thoughts, emotions.

Totally overwhelmed