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Recently diagnosed with invasive ductal carcinoma at 37

8 REPLIES 8
Emilyblake2468
Member

Re: Recently diagnosed with invasive ductal carcinoma at 37

Hey @Stayzen 😀 thanks for the reply…that’s good news to hear how you’ve got on with Tamoxifen. My cancer was ER+ 7/8 an the same for PR+. I’ve always struggled immensely twice a month with my mental health, around when I ovulate and about a week before my period. I’ve been even worse when taking the pill and now have a copper coil in as things were so bad. So part of me hopes and thinks  that Tamoxifen will have a positive result on me - if not the benefits outweigh the side effects for me no matter what as my cancer was so estrogen receptive. It went from the size of a pea to about 20mm and back down during my cycle, and the covid vaccine made it extremely painful - I think that may have been one of the reasons I found it as I only had 2 cycles where I could feel it! Yes my breast care nurse has recommended that course and I think it’s a really good idea that I do it - I have been asking how I move on from this once I’ve finished my treatment and I think that group will really help me. Emily x 

Stayzen
Member

Re: Recently diagnosed with invasive ductal carcinoma at 37

Hi @Emilyblake2468 

I had the same diagnosis as you (also grade 1, 15mm, hormone positive, nodes clear), and looks like the same treatment plan - surgery, radiotherapy and tamoxifen. Similarly pre menapausal, although older than yourself.

I’ve been on the tamoxifen a year now and have tolerated it well. The main symptom is night sweats, which seems to be cyclical. I tend to have three weeks of night sweats and then a couple of weeks symptom free. At first I was waking up dripping wet (although it wasn’t waking me) and over the year this has eased and it’s mainly that during the night I am extremely hot. Luckily no other symptoms. I realise this isn’t everybody’s experience but i think there are a lot of people out there for whom tamoxifen is manageable.

I would recommend signing up for the moving forward course with Breast Cancer Now. As part of this they run sessions were you can talk to others who are going through the same experience, I found it really helped to know that others had very similar feelings and worries. 

Emilyblake2468
Member

Re: Recently diagnosed with invasive ductal carcinoma at 37

Hey Lizwa ☺️ Thanks for the reply, I hope you are doing ok (well as ok as we can in these situations) ❤️ how long ago were you diagnosed? It’s such a shock isn’t it, i think I’m only just starting to get my head round it now. Yes I’d love to chat that would be great 😊 Em x 

Emilyblake2468
Member

Re: Recently diagnosed with invasive ductal carcinoma at 37

Hi Bookish, and thanks for the reply ☺️ I’d experienced a couple of hormonal cysts over the years that had become larger around the time of my period, so I really did think it was one of those! I got a little bit more information yesterday, my ER+ and PR+ were 7/8 on both so the benefits of tamoxifen will be quite high for me I think. I’m sorry to hear you had a bad time on them, my doctor (who has had the same breast cancer as me) is on those ones I think and she’s found them much better too, Em x  

Liswa
Member

Re: Recently diagnosed with invasive ductal carcinoma at 37

Hi Emily

I'm 37 and recently diagnosed with invasive ductal carcinoma too grade 3 measuring 3cm her2+ that has spread to one lymph node 😞

I have to have chemo first and then treatment for the her2+ and then either a lumpectomy or mastectomy.

Am here to chat if you want to xxx

bookish
Member

Re: Recently diagnosed with invasive ductal carcinoma at 37

Hi Emily,

I'm a few years older than you, but my first breast cancer diagnosis was at 22 so... yeah. It's never a fun thing, but I think we generally think of it as an 'older' thing, so it can feel really isolating when you're that much younger.

Not going to sugar coat it, tamoxifen was so awful for me that they swapped me over to zoladex. Five years ago, with another diagnosis, they put me back on it and it was absolutely fine. Yes, a few hot flushes, but otherwise not really aware of any side effects. So, it could go either way.

Hope everything goes well for you xx

Emilyblake2468
Member

Re: Recently diagnosed with invasive ductal carcinoma at 37

Thanks for the reply Joemic 🙂 I’ll have a look in the younger women and families section 👍🏻 It would be really lovely to make some friends on here if I can ♥️ Em x 

Joemic
Member

Re: Recently diagnosed with invasive ductal carcinoma at 37

Hi Emily

Welcome to the forum even though none of us want to be here. I'm a fair bit older than you but if you look on the section for going through breast cancer treatment, you will find a heading for younger women and families. You may find some people to connect with on there. If not don't worry there are plenty of people on here to share your concerns and answer questions etc.

 

Joemic x 🙂

Emilyblake2468
Member

Recently diagnosed with invasive ductal carcinoma at 37

Hey everyone, I'm completely new to the forum (my breast care nurse signposted me to this forum this morning) and would like to introduce myself and say hi - and also see if there are any ladies out there who have been diagnosed quite early in life like I have.  I found a lump in my right breast where my bra wire goes back in April that was very painful around the time of my period and moveable as well. It was almost so low down I felt like it was moreso on my ribcage.  At this point I wasn't overly concerned as I thought it may have been a cyst (i'd had an ultrasound about 6 years prior that showed hormonal cysts and nothing to worry about). I had a biopsy and was diagnosed with a Grade One 15mm invasive ductal carcinoma (E+ P+ and Her2 Neg).  I don't think I could have run out of that door fast enough, I don't think anyone can understand that feeling until they've been there!

I've since had a lumpectomy and a sentinel node biopsy (lymph nodes were clear) and cancer was removed with a good border. I'm now waiting on 19 radiotherapy sessions at the end of June.  I was just wondering if there were any other ladies out there who have been diagnosed fairly early on?  Also, I was wondering how ladies have got on taking Tamoxifen? I'm pre-menopausal and worried about side effects.

I'm a single parent with a 17 year old Autistic daughter and luckily my parents have been a great support and helped me out so much and I'm so thankful.  I have hardly any friends and i'm feeling quite isolated with it all.  Emily x