Hi Ya Dellywellydodah🤗
I finally got more mobile after a few weeks in bed I think why I was in such agony the nurse said maybe a nerve in my tummy & made the pain unbearable to stand hey ho that’s all behind me now.
i have had a set back the Lymph node removed during surgery as a precaution the results came back positive it was not the news I wanted to hear & of course I had big meltdowns again as I was sent for body scans to check if it’s elsewhere so it was back to sleepless nights for me again. Scared out of my blooming mind.
Lucky for me & huge relief it had not spread I cannot tell you how I skipped out the consultants room.
so the plan is I’m booked in on Friday 21st feb for another operation to remove more lymph nodes for testing I’m not sure what the plan will be after treatment wise they don’t really tell me which is frustrating as I want to know I guess they have to wait on the next lot of lymph nodes results.
I feel like my diary for the last 3 months has been full of hospital appointments I know I’m not alone as all us warriors are seeing lots of docs nurses etc.
i am getting cabin fever too being stuck in all the time well apart from a mooch to local shop walking distance & I miss not being able to drive 🤔 mind you my scar on tummy feels ok but still numbness but that may never go I was told oh well small price to pay for being saved.
so I will be packing a little bag this week for hospital and this is an overnight stay only which is a relief apparently I come home with one drain. I am NOT going to clog myself up with too many tablets that was a lesson learned the last time 😂 embarrassing moments 😂
so that’s my little update & hey thank you so much for checking in on me.
i hope you’re doing ok what’s happening with you? Hope you are doing just fine.
I’m approaching the half of century birthday in May so I’m keen to feel human for that & hopefully raise a glass to I’ve kicked cancers arse.
🙏 big hugs 🤗 Nicky xx
We haven't heard from you in a while. Hope you are recovering and doing well, are you??
Feel like giving us an update?
Lots of love to you
Eeee, I don't know, what some people do for attention from a handsome nurse, pretending to need the commode, and flashing your bum with the hospital gown?! Reminded me of that comical scene in "Something's Gotta Give", where Jack Nicholson's in hospital walking down the corridor unknowingly flashing his cheeky cheeks!
Good to hear from you and glad you're home in your own bed. Not glad you're in so much pain, plus majorly bunged up. It's such a nuisance side effect with painkillers, makes you feel groggy too. Hope you've had some "movement" on that front (or should that be behind ), and that the fruit's working?!
Keep us up to date. We'll all be gunning for you ref results.
Lots of love, flower. xxxxx
Oh the embarrassing moment was day 2 the catheter was removed & of course I needed a assistance rang the nurse bell & then a drop dead hunky nurse appears I’m sitting there in my hospital gown with the ties & the back covering up very little 🧐 how could I say no I don’t want you to help me can you fetch me a lady nurse !! Anyway he eases me up with me screeching in pain & I really couldn’t do it so he gets the commode omg 😮 the embarrassing moment I won’t forget . It’s sure good to be home in my own bed I am not to clever on my feet due to the pain but am getting up every few hours to have a shuffle I’m now cutting out my day time tablets coz still not been able to go to the loo it’s ridiculous lol I’m eating fruit like no tomorrow 🤣 I still not yet have had a peep but from looking with the sports bra on it looks just the same as the other boob I just know that the nipple is missing I will one day get that done but the main purpose for this was to get that cancer out of my body 🙏 I will receive results of Lymph node in 2 weeks please god it comes back clear. Meanwhile I’m gonna keep positive & gain my strength day by day girl powers 🤗💓 us warrior girls understand each other thank you for checking in on me 🙏🤗💓😉💪Xx
I’m home now & using my own thrown🤣 Pain is still horrendous on the tummy & getting me up the stairs was an ordeal so I’ve opted to stay in bed to recover & with the help of hubby I get up and shuffle to bathroom like a 99 year old . Today is Day 8 after the op and I know this is going to take some time I hope by next week I can maybe go for a little walk on the outside world. Thanks for checking in on me lovely 😊💓💓
Am thinking of you, wondering how you're doing?
Hope you're good. Well, as well as can be in your circs. Comfey? Presume you're still in hospital?
Are you still throning it, or have you now gone back to the plebian basics and using the loo?
What's happening? Are you now doing a little exercise, perhaps?
Let us know
Lots of love and a big gentle hug to you xxxx
Helloooo, brave lady
Good to hear from you. Sorry to hear you're struggling, a bit?! Crikey, I would have been too with what you've just been through, think anyone would.
I had to chuckle at your "all the being a lady have gone out the window". Summoned up visions of you sitting on your THRONE (commode!!). You've been promoted from "lady" then?!
Whenever I've had ops, be that boobs or major knee op, the Anaesthetic team particularly, have always been so fantastic, wonderful. They seem to have an extra something in helping put you at ease.
Guess we're all different about "looking". I made a point of looking same night with first mast, in the ward bathroom - literally knocked me to the floor. Not a good experience. Didn't bother with second mast, nor much after that. In fact avoided it. But . . totally different after a much delayed 1st stage of recon (expanders for later implants). I couldn't wait. Stood in the ward bathroom and shouted "Whoo Hoo", as it was so great to see some of my old shape back. So, I was glad to hear you'd chosen immediate recon.
Some women are okay with no recon, but I was never happy having no boobs.
My two suggestions for helping recovery are perhaps a bit early for your type of op than masts. More for when you're back home. But think about the couple of Para's before bed, to make sure you get your much needed undisturbed by pain sleep.
Keep posting to let us know how you're doing.
Lots of love, and a big but gentle hug to you xxxx
surgery day arrived it was tough I took my deep breaths in & out had a few tears but mopped them up fast as I was soon to become a pink super warrior like all of you lovely ladies.
i was kept busy chatting about my 3 grown up kids whilst the injection went in & 10 hours later I’m in recovery with a hunk of a doctor I didn’t have my glasses but I’m sure it was Mr Clooney himself he made sure I had pain relief coz I needed it the tummy is sooo sore & nice cool water what an amazing man he is.
i am on a ward of 4 ladies to be honest I have slept a lot for 2 days I am struggling to stand & shuffle along with all these bags the groin pains the worst. I gave up earlier and asked for commode to come to my bed all the being a lady goes out the window 🤣
I am just doing what I can do as this morning I pushed myself and felt faint and sick.
i have had the sports bra fitting tonight I still can’t look I think that’s a long way off baby steps.
i am told I will be here up to a week depending on my mobility.
so you had your surgery 13/14 years ago and still helping others on here wow amazing 😉 just what I intend to do ...
thank you for your help & support it’s blooming hot in this hospital so I shall end this now.
love from a newly qualified super pinky warrior 🙏🧗♀️💪🤗 Xx
That Goerge Clooney's a busy fella! Don't know how he's fitting it all in, with surgery, filming, and now he's enrolled in my "Deliver-A-Hug" service featured on "Feeling Worried and Alone" thread (Coping with Fear and Anxiety).
Well, I hope all went well with your surgery on Friday. I don't know if you're still in hospital as you didn't say how long you'd be in? They get people out and home so quickly these days - I was in for 5-6 days with both my mast ops 2006 and 07.
That's a mammoth op and time taken, so I hope you're comfey and being thoroughly spoiled.
It sounds like your not pro medication, but my two biggest tips would be:-
Take some painkillers before you go to bed, even if you aren't in pain at the time, because you can bet if you don't, you'll move in your sleep and the pain will wake you up.
And secondly - Be reeally strict with yourself about doing your exercises. Yes you'll be stiff and awkward to start, but you'll be amazed just how quickly your mobility will improve each day, session even. I did mine more often than suggested, as it was something to do while in hospital anyway. Obviously within the limits of not bursting your stitches!!
Wishing you speedy healing Pinky. Sending you a GC hug x x x
Take care lovely & know we’re all here for you!
You’ll be just fine & it will all soon be over - onwards and upwards! 💪🏻
Im praying that your surgeon looks like George Clooney, too! Xx
Thank you Jan I did buy some rescue remedy I have spoken to the nurses & surgeons at my pre op assessment & explained my anxiety so they are all in the picture I know that I have to be strong & just go with this it has got to be done I know once the needle goes in tomorrow morning I shall know nothing about it.
today has been tough & emotional but I’m now tucked up in bed ready to zone out with some meditation.
I’m up at 5am I’ve got this 💪thank you so much for your kind message and tips .... tomorrow is pink warrior day 💓🙏🤗xx
It sounds to me like you have things well in hand, certainly relative to me. One thing that struck me though is that, during all those hours of surgery, much of which presumably is preparation, you are in the best of hands. It’s in no one’s interests to lose a patient! I’m phobic and all I could think about was what if I was sick! I found being completely open with everyone about my anxieties led to their bending over backwards to make me feel ok (and you can’t reassure a phobic, believe me). Talk to your consultant and anaesthetist if they visit you before the operation. Tell each nurse. They have heard it all before, are very understanding and will listen even when they are busy.
It’s great that you’re finding the meditation app useful. Otherwise I’d have recommended the YouTube videos I have plugged myself into throughout treatment. Make sure it goes with you to hospital. Have you tried Rescue Remedy? Some people find it helps reduce anxiety as drops under the tongue or a mouth spray. I was able to take arnica 30 before and after surgery and I believe it reduced the pain/bruising from surgery (mastectomy and full axillary clearance). Certainly I used no pain relief at all after the injection the hospital gave me. But check with your consultant first if you’re using homoeopathy.
I’m not a believer in the battle imagery surrounding cancer (it makes so many people feel they aren’t Up to scratch when things don’t go to plan - if we feel weak and useless now and then, so be it - in my opinion) but I wish you well in handling whatever lies ahead. I think you’re off to a good start, even if it doesn’t feel like it as the anxiety builds. Just remember, you’d need to be superhuman not to feel anxiety!
I hope Friday runs smoothly for you,
Hello I’m wondering if any of you lovely ladies can help me to keep calm & focused I was diagnosed with invasive Ductal carcinoma on left breast on 19th of November I have 2 lumps and mri confirmed some cells also in same breast. It kinda turned my world upside down but as it was Xmas approaching I kept busy & quite a few meltdowns along the way & a couple of panic attacks I am using a meditation app which helps & my husband & grown up kids are so amazingly supportive.
i am going to be having a mastectomy with Diep flap reconstruction on Friday the thought of 10 hours in surgery is scary but I know this is the start to kicking Cancers butt. I am anxious but positive if that makes sense I would like to hear any tips of how you got through it & how you felt after so I’m prepared 💓
thanks 🙏 Nicky Xx