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diagnosis and really scared

9 REPLIES 9
eeyore58
Member

Re: diagnosis and really scared

Hi Blackcat, thank you for the reply, so blooming scary all this, i just want to climb into a hole and fall a sleep till its all over 

Blackcat182
Member

Re: diagnosis and really scared

Hi eeyore58, for me the initial diagnosis and first few weeks were the worst. So much so that the stress and anxiety manifested itself into physical aches and pains all over my body and I convinced myself and my family that it had spread to my bones! I couldn’t eat or sleep it was horrid. 
Fortunately the scans showed it hadn’t spread beyond the breast and one lymph node. 
As soon as my treatment started I felt better and more in control the weird aches and pains went and I could focus on getting through the chemo. 
Take one day at a time, ask friends and family for help. If you’re not able to sleep then go to your gp… sleep and rest is important. 
I also found watching some ladies who have posted their cancer journeys on YouTube very helpful. 
Dee Doherty is a good one. 

https://youtu.be/sOBVVeyV4tE

Xxx

eeyore58
Member

Re: diagnosis and really scared

Thank you Eglis i will try to do what you are suggesting, atm my head is in the clouds and just thinking the worst x

eeyore58
Member

Re: diagnosis and really scared

the chemo is before surgery and to start within the next couple of weeks xx

eeyore58
Member

Re: diagnosis and really scared

Thank you so much Evie xx

Evie-S
Community Champion

Re: diagnosis and really scared

@eeyore58 - it really is a massive shock getting that diagnosis, and you have the fear of the unknown to deal with at the moment. I’ll try to explain a bit about chemo and give you some of my experience.

Chemo isn’t nice but it is doable if you take everything one step at a time, as lovely Eglis advises. Is the plan for chemo first and surgery after? That’s what I had but every case is different.

I’m not sure which drugs you will be given but usually there is a pattern so that you go through a cycle with some bad days, but also some good ones. Your team will explain everything to you, and you will be told to get a thermometer to check your temperature daily so you can tell if you have picked up an infection. You will also be given a 24 hour number to call if that happens, or if you have any worries at all, so they can advise whether you need antibiotics immediately. You need to try to keep away from bugs if you can as your immune system will be reduced, but it’s impossible to stay away from everyone and all germs. I had a cold with my first round of chemo, they gave me antibiotics to clear a throat infection, and then all was fine. You should of course be as careful as you can, but don’t immediately panic that every bug will send you to hospital. Follow the instructions they give you and you will be well looked after, going down a well trodden path. Lots of ladies on here have young children who bring in cold after cold.

You should consider joining the monthly chemo threads on here so you can chat with others at exactly the same stage as you. I found that my real lifeline.

Keep reminding yourself that your team told you the treatment will cure you or treat it. Try to get some rest if you can, maybe try some mindfulness to try to get your mind under control. Get out a notebook and scribble down all questions and worries, so that they are out of your head and on paper. Just a few thoughts - of course always much easier to type than put into practice. Evie xx

eeyore58
Member

Re: diagnosis and really scared

Thanks Evie, i'm so scared,  scared of having to have chemo, surgery and thinking my prognosis isn't very good and im going to die? she did say that i would be cured or if spread anywhere else, treated!  im also worried about chemo ...if i get a cold it will develop into Pneumonia, my lot are always getting colds so thats me straight to hospital, sorry im a complete mess xx

Eglis
Member

Re: diagnosis and really scared

@eeyore58 @Evie-S 

Try to keep your feet on the ground and take one step at a time.  It’s not easy but there’s lots of listening ears on this forum and @Evie-S @gives really good advice.

I‘m not sure what else to say…… it’s a horrid process to have to go through.   Sending you loads of good wishes, positive vibes and energy.  Try to focus on facts and not what ifs.  Keep talking - it helps!

 

Evie-S
Community Champion

Re: diagnosis and really scared

@eeyore58 - I’m so sorry that the verbal diagnosis was confirmed today. You will be feeling as if you have been hit hard by that truck that came out of nowhere. It’s a massive shock, so take some time to get your head around things, this really is the time for lots of self kindness.

I had similar to you, invasive ductal with node involvement, ER positive and HER negative, chemo, mastectomy and radiotherapy and now Tamoxifen. So if I can help with any explanations please ask any questions.

Really try to take one day at a time, or even one hour at a time if things get really tough. Use this forum to chat and get support anytime you need it.

I don’t know if you have seen the service “Someone like Me” - where you get teamed up with someone specially trained who has/had what you have? You might find that helpful. And of course the lovely nurses are always there to advise and support.

Sending you really big hugs and I hope others will be along soon too. Evie xx

eeyore58
Member

diagnosis and really scared

Hi all i have just got my diagnosis and i have grade 3 invasive ductal cancer ER positive and HER2 negative its also in my lymph nodes, im not sure what stage yet until i get results of pet/ct ...dr said chemo and mastecomy but if its spread then they will talk about treatment, now im thinking its spread of course and im literally going to die, im so fricking scared, i cant think straight! she also said its aggressiv,e i also had a skin punch biopsy to rule out IBC too, she said that inflamation is prob caused by the cancer thats in my breast rather than IBC, god i hope she correct. anyone else have the same as me? x