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grade 2 lobular cancer-

11 REPLIES 11
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Re: grade 2 lobular cancer-

Home today had op yesterday stayed overnight as my oxygen was low,

all went well got no pain feeling happy and relieved it’s gone, 

now for the radiotherapy 3 weeks xxx

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Re: grade 2 lobular cancer-

thanks will keep in touch  xxx

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Re: grade 2 lobular cancer-

Good luck Lynne, I hope all goes well for you, let us know how you get on😘.

Sx

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Re: grade 2 lobular cancer-

Sara

thank you so much for your reply and update on the mastectomy, I am going for surgery on the 20th Feb now having a lumpectomy after having second thoughts last week ,

sounds like your op was positive and you sound very positive I wish you the best 

lynne xx

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Re: grade 2 lobular cancer-

Hey Minie

 

I was diagnosed with a grade 2 lobular HER2+ ER+ tumour in Nov last year initially the MRI was showing it to be around 4mm, they also found a 7mm grade 1 ductal HER2- ER+ initially I was offered a lumpectomy but I was clear all the way through that I wanted a mastectomy as I was told that it can be difficult to see exact size of lobular cancers and I didn't want to have to go back in for a 2nd surgery. The surgery was really manageable, I was up and about the next day and walking 3k per day after 1 week, the prosthesis looks really natural and I even wore a bikini when I went in hot tub last week...you couldn't see any difference😁. I have just started chemo and herceptin as it's HER2+, so far, so good🙌. It's a very personal choice and difficult to get your head around but the most difficult part is the waiting, once treatment starts you feel like you're doing something positive. Good luck with whatever you decide😘

 

Sara x

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Re: grade 2 lobular cancer-

Hi jan

fantastic news!! I am ecstatic for you I can imagine how you feel, (free from that dreadful disease..........that totally turns our world upside down!!.......)

Now you can celebrate...:) 

I wish you the best looks like my surgery is going to be 26th February finger crossed! xxx

take care

x

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Re: grade 2 lobular cancer-

Hi Minie

 

Yes I’m recovering. You are the first to know my great news today - I am as completely clear as they can get in the circumstances. MRI totally clear so I’M FREE. Yippee, yahoooo, yay, whatever 🙂 I go back in June for another zometa treatment and I need to go to Neurology about some lingering side effects but I still feel so liberated, I would skip for joy if I could! Maybe in a few weeks when the pains have worn off 😉 

Take good care of yourself - you have to be No 1 priority for a while xx

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Re: grade 2 lobular cancer-

hi Jaybro

thank you so much for your reply and advice sorry to hear you had to have the full works hope your recovering ,

take care sending hugs xx

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Re: grade 2 lobular cancer-

I did too (then, after more tests, I had no choice). But it seemed a no-brainer to me. The thought of radiotherapy on a nipple just horrified me. I had to have the full works, including radiotherapy anyway, but at least it was on a scar. I look on it as my life-saver. 

 

Make sure you have front buttoning pjs and some winter clothing that’s very easy to get into as arm-lifting may be a bit hard at first. You may have a drain for a few days, so men’s soft shirts, loose cardigans.... You need a personal servant, plenty of chocolate and peace and quiet. And do those exercises - I can’t stress enough how important they are. Take care, Minie x

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Re: grade 2 lobular cancer-

Jan

what lovely words thank you so much, i have opted for a mastectomy I only had one day to make up my mind,   xx

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Re: grade 2 lobular cancer-

Hi Minie 

 

So sorry you’re in this position. But you’ve found a good place now and I hope that sense of being alone with your diagnosis will ease. There are many members here and we’ve all been through it or are going through it so we do know what you’re suffering.

 

Remember, the recovery rate is getting higher by the year (well over 90% for those with an early diagnosis) and your cancer has not spread. You’re now in the best of hands and your team will do their utmost to get you through the process. However, you have to make serious decisions with limited information. Please don’t turn to what we often call Dr Google. Google is an unreliable source of confusing, often outdated or seriously scientific stuff above our pay grade. It can’t take into account the specifics of your unique diagnosis and has no consideration for what I consider to be at least 50% of the process - emotional wellbeing/turmoil. One bad piece of information can do untold damage (speaking from experience). If you need more information, the nurses you can speak to here are wonderful, well-informed and sympathetic. Your breast care nurse can also answer questions. I’d advise you to take a trusted person, preferably one less emotionally involved, to your future appointments as it’s hard to take everything in and they can at least make notes or raise those questions you meant to ask.

 

My diagnosis was different so I can’t advise you on what you’ve asked but I’m sure others who don't have insomnia will reply tomorrow. Meantime, remember so many of us have been through it and we’re still here. I can tell you that chemotherapy was s*** but the rest is nowhere near as terrifying as we anticipate. You need to look after your mental health now as it’s taking a battering. This is where meditation, yoga, mindfulness, exercise all come in. If these let you down, there are great hypnosis videos on YouTube that got me through the whole thing. I’m plugging into Progressive Hypnosis’s Manifest Healing as soon as I’ve posted this! It’s been my sanity-saver!

 

I wish you all the best. It’s not easy, there’s a lot of waiting and a lot of uncertainties but it’s all manageable (I’m the queen of panic attacks so I know what I’m talking about lol).

Take care,

Jan x

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grade 2 lobular cancer-

been told i have grade 2 lobular BC been in shock did,nt tell anyone for 2-3 days that was on 7th January i had to wait until today for my test results (3 weeks of hell) to be told if it had spread or i had more than one lump, i was relieved to know its the one lump 17mm, now at the stage where they are going to operate i have been given the choice of lumpectomy plus radiotherapy or mastectomy , my mind is everywhere ..........anyone had treatment for this type? ......