Hi all
Ive just come across this thread. Wondered how you’re all getting on. I recently had mx no recon... just using a comfie at the minute.
I’m starting to think about sports bras but they need to be cotton with adjustable straps.. any recommendations?
Xx
AnnaKarenina
What a wonderfully honest, reassuring and inspiring post xxx
Hello Whytefawn (I think you're from the wonderful October chemo starters thread? I am from the November starters thread and your group was inspiring to me when I began treatment),
I had a contralateral Mx in April plus node clearance having had 8 cycles of chemo first. I thought I wouldn't want reconstruction when I was diagnosed and by the time I had surgery, I was sure. Everyone kept saying during chemotherapy that I might change my mind and I did a lot of research to 'test' my intuition about reconstruction. I spoke to women who had reconstructions and those who had not. The more I found out, the more my intuition seemed right to me. I joined Flat Friends and found a lot of reassurance that I wasn't 'strange' or unusual in wanting to avoid more surgeries. I have hated being a patient (no one likes it though, I know!) and just felt that I didn't want to undergo any more procedures or 'tweaks' than I needed to.
I was worried about the look of my body without breasts, whether my clothes would look odd, how well I would or wouldn't adapt to prostheses etc. It is early days, but for me, the look of my body is nowhere near the issue I thought it might be. I am amazed really but I have been able to accept that this is me now and I don't feel the need to change it. My clothes look fine and although style may need some rethinking in the summer, I feel I can adapt and it doesn't push me to think about reconstruction one little bit. It is has been quite a lesson how little people seem to notice. I went back to work between chemo and surgery and was my usual buxom self. I returned after surgery in a new physical state and no one batted an eyelid. I have been pretty open about my treatment, but even so, no one seems to be staring because I am flat.
I am limited in what I can say at this stage about prostheses because I haven't yet gone for a proper fitting etc. However, I do have some softies and knitted knockers. I prefer the KK but it has been a surprise to me how rarely I wear them so far, especially as someone who likes to look 'just so'/takes care over my appearance (my family might even say 'vain'!). That may change, but at the moment, I prefer the ease and comfort of getting ready without them. I want the option of prostheses, but I am also reassured that I can and will manage without when I feel like it. I also love being able to dance, walk fast, run up and down stairs etc without the benefit of my previously well-endowed chest! I think when it comes to choose a prostheses, I will go smaller, maybe much smaller, than I was before this all began.
Throughout all my ruminating, researching and talking to others, I have realised more than ever that it is a deeply personal decision and one that only I could make. I might change my mind later and explore reconstruction but I feel pretty certain that I won't. My only 'advice' to anyone would be take your time, think it through and see where you end up. It is great to be able to discuss this - thanks so much for starting the thread. xx
I didn't want recon either and wear a prosthesis. I buy my bras from a couple of specialist on-line (and catalogue) suppliers. I visited a Nicola Jane shop at first and the lady there was fantastic and very encouraging. I can understand both why women choose to have reconstruction, or to to have both breasts removed for symmetry or health reasons.
I wish I had never had to make the decision in the first place but, after several years, I am still content with being a uniboob. Thanks for making this thread.
O WhyteFawn, I had exactly the same problem - was thoroughly down about the prospect of having to wear such substantial underwear. Initially, I thought I'd wear my usual ones with my adhesive falsie - complete disaster! Then I bought a couple of cheapies from Asda - not bad but falsie didnt feel secure. A friend suggested a visit to Betty and Belle -small lingerie shop near Manchester. (They have a website too). I made a round trip of nearly 500 miles and it was so worth it. I came out wearing a fab bra - pretty straps and pretty lacy cups and a definite spring in my step! I cannot reccommend them highly enough - the service brilliant - compassionate, considerate and personal. Tihey will also adapt 'normal' bras too.
I now feel so much better about how I look that I'm not considering any reconstruction.
Hi Jay68
Thank you for the advice. The rads nurse mentioned this to me. I'm keeping an eye on my skin and trying to remember to do the daily exercises. With the busy pace of life and the tiredness that kicks in, making time for exercise can be difficult but then I remind myself it's all worthwhile
Best wishes xx
Ladies on rads - a little bit of advice from someone who's 4 months post end of active treatment (well apart from Herceptin injections) - keep up with the breast/chest exercises.
Approx 10/14 days after rads my skin went deep red and peeled a little - looked mighty sore but really it wasn't as that area was, and still is, quite numb! So keep up with lots of moisturiser as well as the water intake too - it appears the "cooking" inside goes on and on and on....!
However, I wish I'd concentrated more on the daily exercises - as now I get quite a bit of discomfort - tightness in the areas where rads were aimed and a burning sensation on the ribs (especially at night when lying on the affected side) - I have researched and spoken with breast consultant - these symptoms are unfortunately very common after mx combined with rads. Discomfort can be "helped" by regular stretching exercises.
Hi Whytefawn
Thank you for creating this thread.
I had a full right side MX in Dec 2017. I knew from the point of diagnosis that I didn't want reconstruction and the thought of the 7-8 hrs surgery did not appeal to me. I'm 52 and knew that not having 2 boobs would not make any difference to my quality of life and I'm comfortable with my body. I've been married for over 20 yrs and hubby accepts me as I am. I finished rads last week and so far I haven't had any problems with my skin but it has darkened and I was told to expect this.
Several family members expected me to have reconstruct especially my mum who still doesn't understand why I decided against it! For now I'm quite happy as I am. I'm seeing my BCN next wk to sort out the prosthetic and I'm enjoying the freedom of not having to wear a bra all the time. The way I dress disguises the fact that I have one boob. I also wear vest tops with the secret support and the softie when I feel like it but most of the time I go without the softie.
I know we are all different, different stages in life, emotionally different and each individual will make a decision according to their situation. I totally respect that.
xxx
Hi Whytefawn
i knew from the second I was told I would need a mastectomy that I would not be opting for recon. The bcn said well read all the info so as to make an informed decision, the surgeon even booked in extra theatre space in case I changed my mind but I knew I wouldn’t . The thought of any treatment, any ops more than I needed I just couldn’t cope with.
i had x 2 WLEs in 2012 and probably lost about a quarter of my breast ( middle outer area) , I just wore padded bras and swimwear and will likely do the same this time round, whether I will be more self conscious, I don't know, time will tell.
im only 9 days post op so still in sports bra, my remaining boob is an A cup so have not even used the softie as it’s bigger than my other side!
Everyone is different, different shapes and sizes, different emotional responses, i know that, and they need to do what’s right for them and I totally respect that.
But fOr me, getting through this second time is all I am concentrating on.
x x