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Arthritis after Chemo?

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Re: Arthritis after Chemo?

Seen onc today - apparently (!!!!!)  Arthritis or join pain have nothing to do with BC or meds.

Oh yeah....

Back to GP next week......

Grumpy

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Re: Arthritis after Chemo?

Hi everyone, thought I would add to this post as I have had positive outcome from trigger thumb and de Quivuians in the other hand.

I thought these problems were from chemo or ananstrozole but once said no way. I ended up making a make shift splint for my right thumb as I cldnt work my computer and the left hand at the base of the thumb/wrist joint were unbearable. Went to go who gave me stronger antiinflammatories but they too only took the edge off.

I then phoned my hand surgeon who operated on a broken hand 5 years ago and described my symptoms over the phone. I went to see him 2 weeks ago and he to,d me I cld have steroid injection and it would go away. I said even in the at risk arm and he told me yes as its only 1ml and studies from the anaesthetises is that there is no proof that it causes lymphoma ena. I was worried but weighed up the fact I cldnt work and was in agony that I would risk it plus I trust him.

Anyway 2 weeks on and the pain has all gone in both hands (gradually after 5 days). The click still comes in my thumb sometimes but is not painful.

Hope this helps anyone
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Re: Arthritis after Chemo?

So glad I found this thread. I had joint pain on anastrozole, changed to exemestane which was fine for about 8 months, then the pain started and got appalling. I stopped the meds as it was nearly 5 years, hoping the pain would wear off. So far after 4 months it's still grim and had blood tests and x rays. Seeing clinic on Friday for some proper investigations and keeping fingers crossed. The medics don't seem to take this seriously cos there is no 'research' to support our experience.

Will post again after clinic, and best wishes to everyone suffering.....

Grumpy

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Re: Arthritis after Chemo?

Hi ladies.  I'm there with you.  Tnbc, 1node out of 3 infected.  3 fec and 3 tax, plus 23 dads.  Finished all that just before Xmas 14 and coped really well until the trigger thumb struck, dam painful and inflamed and painful wrists x 2 over the last 2-3 months.  Had an x-Ray which im waiting results, but not expecting much.  I know this is chemo related, I'm not on any other medication.  My question is, if it's chemo related Will it get easier over time or has this triggered arthritis that will only get worse?  

 

Has anyone tried systemic enzymes or anything else for inflamation?

 

Take care ladies.  Hbunny xx

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Re: Arthritis after Chemo?

Just went to see my breast care specialist nurse today to discuss my aches and pains. She was very reassuring and confirmed what my oncologist had previously told me. The aches and pains are the after effects of the chemo, especially after having taxotere. She also stated that it usually takes about a year for the body to start feeling better. I'm still pushing myself and hope the exercise pays off..
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Re: Arthritis after Chemo?

I also have tnbc and I'm 37. I have osteoarthritis in my feet, knees and hands. It is awful! I am having pain in my spine...just hoping the cancer has not spread and that's its arthritis. I had one lymph node positive. I was stage 2b grade 3. I finished chemo April 2014 and had 30 rounds of rads and finished them in June.
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Re: Arthritis after Chemo?

Hi, Ihave just joined the forum today hoping to find someone with the same problem. I finished my treatment of surgery with lymph node clearance followed by chemo which left me with severe side effects then 18 radiotherapy. I'm in agony every day. Every bone in my body aches. I feel like a woman of 90 rather than 49.. My oncologist says it's the chemo effects and might be round for some time. I have been walking everyday but my hips neck and even wrists hurt. I'm taking tamoxifen which I think makes it worse. I would appreciate if anyone out there has a miracle cure. Many thanks.
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Re: Arthritis after Chemo?

 
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Re: Arthritis after Chemo?

Hi I finished my chemo 30th Oct I have had terrible pains in my hands hips when iam in bed it's as if I seize up my oncolonist says it's the chemo and early menopaus its horrible between feeling like your 80 n the hot flushes and night sweats I don't know what's worse xx
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Re: Arthritis after Chemo?

don't know where I just posted my post so apologies if it's in the wrong place hahaha. Was going to add I'm triple negative too xx
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Re: Arthritis after Chemo?

Hi everyone, I came across this thread whist hunting for answers about my painful Hands/wrists!
My brief history: diagnosed with stage 3 idc on left side with node involvement finally (after a 7 month fight) in Feb 15, mastectomy and full node clearance Mar 15, 4.5 Months TAC ended at the end of Aug 15 then 25 rads ended at the end of October.
The last couple of months I have been getting terribly week painful wrists and thumbs on both sides. Also cramp to my left hand and both legs.
The onc and gps just say it's post chemo effects but my other concern is I was anorexic for many years before the cancer. Could the two together be causing me problems.
I had a bone scan done before chemo but the onc thinks there's no need.
sorry to go on but I find others with first hand experience better than some of the professionals.
much love to you all and thanks in advance xx
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Re: Arthritis after Chemo?

Thank you
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Re: Arthritis after Chemo?

Hello Sabela

 

Welcome to the forums.

As well as the forums we also have a support helpline where the staff can offer emotional support as well as practical information. The free phone number is 0808 800 6000 and the lines are open Monday to Friday 9.00 to 5.00 and Saturday 10.00 to 2.00.

 

Best wishes,

June moderator

 

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Re: Arthritis after Chemo?

I also have the same problem like you. I was diagnosed with breast cancer stage2b in February 2014. I finished chemo in August 2014. I had one bone scan before and after chemo. It let me find out chemo medicines caused arthritis in different places in my body( feet, knees, hands, ribs and spine) I am 45 but feel like 90! I am thankful I am still in this world, but they should explain the arthritis side effect!
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Re: Arthritis after Chemo?

What about Chemo I don't know ? Exercise can benefit a lot to people who are suffering from arthritis. In a study it was shown that approximately 53% of people who have arthritis problem do not exercise or go for a walk. Beyond exercise walking is suggested by doctors in arthritis problem.

 

 

Knee Arthritis

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Re: Arthritis after Chemo?

I was dx with breast cancer 9 yrs ago, had WLE, Chemo., ( FEC ), Rads, and 5 years of Tamoxifen.
I have suffered with painful knees for about 3 years ( my job probably doesn't help I'm a nursery nurse working with 0 - 2's ).
Also last year I fell and sustained a fracture of the 9th rib on left side ( side effected by BC ).....this took quite a few months to heal properly.
About 8 weeks ago I fell from a chair, I again sustained fracturesd ribs but this time 2, one being the 9th again!!.... three weeks after the original injury I bent to put a dish in cupboard and felt and h eard rib crak, but no pain, then five weeks after the original injury I went to sit down and they cracked again....this time had severe pain again.
Saw a GP 2 weeks ago (not my usual one ), she straight away wanted another X-ray as noticed my BC history on file and said as long as next X-ray showed clean break it would be ok otherwise she would be referring for bone scan, X-ray aptly., was 'normal'.
When I saw my usual GP this week, I mentioned to him that the triage nurse I spoke to expressed concern regarding possible Osteoporosis /Osteopenia.....he said...'' its ok nothing like that or cancer sec's showed up on x-ray ''.........
Could someone tell me if a normal x-ray would even show up these things?.

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Re: Arthritis after Chemo?

I have just stumbled across this as I browse the web.

I was diagnosed 2 yrs ago this month with triple negative Lobular cancer and DCIS, I had a mastectomy, Chemo (5xFEC and 1xTax) followed by 25 radiation. I also had 25 lymph nodes removed of which 11 were affected.
Since finishing treatment on 31/12/11 I have suffered with the most terrible bone pains. I am unable to use my hands first thing in the morning, unable to grip anything. I also have terrible pain in my lower back, hips, knees, shin bones and sometimes even my toes. I am taking anti inflammatories and tramadol slow release - though they are keeping some of the pain at bay, it has not stopped it and if I forget to take the pills, the pain is unbearable and I am unable to walk very far.
My surgeon has catagorically stated that I do not have secondary cancer and has now passed me onto a rheumatologist who I will see on Friday. My knuckles are now a shade of red, which is worse some days than others. I am finding it pretty hard to accept this is not cancer, but the possibility of being rhuematoid arthritis - assumingly been brought on by the chemo. I had a sever reaction to the Tax and ended up in hospital for a week in severe pain.
I know the original post is quite old and I wonder if the OP and others have any updates as to how they are now?

Thank you.

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Re: Arthritis after Chemo?

Thanks for all your comments.I finished chemo in Feb and radiotherapy in April.I have developed a sore, clicky thumb and ring finger.Feels like the ligaments.It began pretty much overnight. The onc. said it was caused by Femara and stopped it. I have been off it for a month but the problem is increasing and now I notice it in the other hand.It is not bad during the day but begins as soon as I lie down at night.My knees and feet began aching after chemo, too. I don't think it is the Femara, myself. I hope I can find the cause and a cure sooner rather than later. I wish the same for you guys, too. By the way, I was already menapausal before the cancer.

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Re: Arthritis after Chemo?

I have terrible pains in my thumbs and middle finger, trou
ble is its spreading to the other hand too, never had anything like this before, I finished chemo last september and this started after I started taking arimidex,they say its the menopause but ask anyone not on arimidex and going through the menopause and they dont have any problems. Its so painful cant even press the buttons on the remote control my thumbs are so stiff, cant have injections on the side I had my mastectomy and lymph node removal so dont know what to do, but its really debilitating best wishes suzan

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Re: Arthritis after Chemo?

I have pain in my thumb joint and yesterday the rheumatologist did an ultrasound and showed me the bone spur. Just for the record I had my cancer treatments 10 years ago and have been taking Femara for the past 4 years or so. I have osteopenia in my hip and take Boniva for that. The doctor said the spur is probably from arthritis, but after listening to you all, I wonder...

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Re: Arthritis after Chemo?

I am totally agreed with you.
_________________________
I lovegoogle

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Re: Arthritis after Chemo?

I can hardly believe I am reading this. For the past 6 weeks or so I have been having increasing pain in my thumbs....it sounds similar to what you have all described. I hadn't dreamt that itmight be connected. I'm on Tamoxifen rather than aromatase inhibitor but have certainly been thrust into my menopause. I shall have to talk to my onc about it.

Jax,I'm sorry to hear that things have been so very difficult for you.

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Re: Arthritis after Chemo?

Hi, I am triple neg, so I had no hormone therapy following chemo. 2 Yrs ago before treatment I had bone scan and not a hint of degeneration anywhere. I am now confined to wheelchair/crutches, in constant pain, and my spine has crumbled,for which I have had several unsuccessful operations! Also now got further degeneration in both hips and ankles! I was on FEC and Taxotere and I am convinced that is cause, although this is obviously denied by oncologist. I thought I would get my life back after mast, chemo and rads, but the following year has been worse, far worse than I could have imagined. Hvae tried every type of pain relief known, in hospital they even tried morphine and pethedine drip to no avail. Morphine patches bring me out in a rash, so it's basically cocodamol with the odd spot of Oramorph when i can't stand it any more!
And I thought having cancer was bad enough!
Sorry about the rant,
Jax

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Re: Arthritis after Chemo?

Hi Ladies

I have similar experiences to yourselves. Had arthritis before Dx in Dec 07, was told to grin and bear it by GP, was on Diclofeneac and Solpadol. I had 6 chemo in 08 and during that I was pain free with arthritis, was told it loves the chemo!!! I was then on Tamoxifen for 3 months but due to weight gain went onto Arimidex, I had told my ONC that the pain was getting worse after the chemo had finished she said it was the brain getting used to the pain again! I was on Arimidex for 6 months and I could'nt stand it apart from weight gain, joint pain, ,night sweats and carpal tunnel I could hardly walk. I hobbled into the onc again in March and requested she took me off the Arimidex and I'm now on Aromasin , I have found these much better. I asked if she would refer me to a DR about the pains which were excrutiating, I have just seen a rheumotologist and he has done X rays and is going to change my medication, I am also having injections in my knees which is where I am suffering , he is also doing a check about the carpal tunnel, I tried to convince him that I thought all these symptoms were related to the tablets but I do not think he was convinced. I actually found my Onc much more supportive than my GP and I got an appointment really quickly from March 5th to April 2nd.
It's interesting isn't it how one thing gets cured and another worsens, it's also interesting how different people get treated by Oncs and Gp's depending on where they live?
Sarah

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Re: Arthritis after Chemo?

Hi Flame,I had chemo 5yrs ago and had awful arthritis afterwards.My onc put it down to the instant menopause the chemo had brought on(I was 45) The first year was the worst.I felt like an old woman with the feet of an 80yr old elephant - especially first thing in the morning when I'd a job to hobble down the stairs. But it did get better and after 2yrs I can honestly say I was back to my old self -apart from my feet (I have peripheral neurapathy)However I surprised myself this Christmas when I bought (and wore) my first pair of high heels in 5yrs. I kept them on all evening and my feet didn't complain once!

Josie x

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Re: Arthritis after Chemo?

I am 49 years old and am 2 years post treatment for breast cancer. So far I am considered cancer free. I had been developing arthritis before being diagnosed with cancer. Following treatment I feel that my arthritis is far worse and I don't know if that would have happened anyway or is a result of the cancer and/or chemo. I just joined this website and am very interested in all the comments.

Any advice, suggestions or possible websites would be appreciated.

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Re: Arthritis after Chemo?

Hello fellow thumb victims! All other symptoms nearly gone since stopping arimidex, except the thumbs. GP thinks it is trigger thumb, a disorder of the tendons etc NOT bones. He is referring me to a specialist, will try injections of steroids straight into thumb joints. If that no good its sugery, which I suspect will be the final answer because I get a lot of tingling in hands which I think is also connected to carpal tunnel swelling. Will keep you informed. Zoe x

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Re: Arthritis after Chemo?

It might be the arimidex rather than the chemo; I developed severe arthritic symptoms on both Arimidex and Femara, mainly in hands and feet. Eventually the oncologist put me back on Raloxifen and I had a major operation last april to reconstruct the large joints of my two big toes - it still hurts - They - doctors - say the evidence for a link between severe osteoarthritis and Aromatase inhibitors is "anecdotal" but women on these forums complain about arthritis all the time. Can we all be just unlucky? It's worth talking to the oncologist about this and then you just have to decide how much you can bear, good luck.

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Re: Arthritis after Chemo?

It's 3 years since I finished chemo. I changed to Arimidex nearly 18 months ago and have had pain in my wrists and thumbs ever since, getting progressively worse. My GP says it's osteoarthritis and that nothing can be done. Nobbly lumps have developed on both my thumbs and somed of my fingers. No pain killer helps much and it does get me down.
I wonder why I have not been refered to anyone. I know it's not rheumatoid as I had blood tests to rule that out.
Kelley

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Re: Arthritis after Chemo?

I have pain in my hands and fingers especially my thumb. Some days are worse than others. Sometimes it hurts to even lift a mug of tea. I also have trouble opening packets, bottles etc. Also pain in my shins can be really quite sore. No pain killers help. I saw my onc last month and was told that it was the chemo that was still in me (finished chemo in Nov). I'm at the end of my tether with this as it is stopping me from doing things.

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Re: Arthritis after Chemo?

Pain in hand joints began in Nov and getting worse by the day.
Worse in a morning and after afternoon nap - 2 fingers get locked in position.
Finished chemo Dec.
Taking Ibuprofen and codeine, but can't crack the pain.
The Onc. thinks it may be connected to the menopause.
The Onc. has referred me to a Rhuemtologist, but there is a 6 week wait for an apponitment.
Rang to see if they could see me sooner and explained for last 11 months had cancer op., chemo and radio, and felt suffered enough, but didn't work.
Would be interested to hear if anyone else in same position and if you took part in the TACT trial.
Thanks

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Re: Arthritis after Chemo?

I have stopped taking arimidex for a week just to see. All joint stiffness nearly gone, ut hte thumbs are really awful still. Big knobby bits at the base of each thumb. Anyone else got this? NOT recommending any one else to stop, just did it in desperation...Zoe x

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Re: Arthritis after Chemo?

Like deb I have had rheumatoid arthritis for years and yes, while I was on chemo things were great but now 18months on I am struggling at times with joint pain. Not sure if it is the RA or the femara.
Alyson

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Re: Arthritis after Chemo?

I have awful lumpy painful thumb joints too....thought it was the Arimidex?

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Re: Arthritis after Chemo?

Hi Katie
I have had rheumatiod arthritis for 18 years now, and must admit, during chemo, i never had any problems at all, but once finished, the pain came back with a vengeance! chemo can do a lot of things to our bodies, but i keep my fingers crossed for you that you dont have to suffer yet another setback. good luck
deb x

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Re: Arthritis after Chemo?

Hi Katie!

A friend of mine has had real problems with arthritis caused by side effects of chemo and was referred to a rheumatologist. She has tablets now for the pain and stiffness as she found going up and down stairs really almost impossible. It has also affected her immune system permanently too, so lots of problems. The treatments seem almost worse than the disease! Don't know if chemos are much stronger than they used to be as another friend had BC 18 years ago and didn't suffer hardly any side effects from the chemo and certainly nothing once she finished it. Hope the rheumatologist can help.

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Arthritis after Chemo?

Hi All,
I finished chemo last April, not on anything else as I am triple negative. I have been having a lot of join stiffness and ny thumb joint on one hand has grown what seems to be a bone spur.
Had a check up with my onc yesterday and he agreed with my suspicion that it might be arthritis brought on by my 'instant'menopause. He is referring me to a rheumatologist and also for a dexa scan.
Has this happened anyone else?

Thank you

Katie