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Breast pain 18 months after lumpectomy

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Member

Re: Breast pain 18 months after lumpectomy

Hi, 

i had my first mammogram after 14 months too but they found micro calcification underneath on surgical sites, they want to remove the white specks for biopsy test but it’s very difficult to get it out because it’s on my surgical site so they reckon it might be during the surgery or radiotherapy and it’s 100% benign so they will monitor me every 6 months, having mammogram this coming Thursday hoping it’s gone. 

 

Member

Re: Breast pain 18 months after lumpectomy

@Bungee

I had my first mammogram 14 months after the surgery - it came back clear. I hope yours does too. Wishing you all the best.

Member

Re: Breast pain 18 months after lumpectomy

Hi, 

I got the same situation as you, occasional shooting pain and lumpiness. I had lumpectomy last June 2018. Just wandering if this is normal. I’m having my mammogram on January 30 hopefully nothing to worry. 

 

Member

Re: Breast pain 18 months after lumpectomy

Thanks for your post. Fifteen months post lumpectomy and 10 post radiation. 17mm tumour, sentinel node only removed and clear. Similar to what you describe - occasional shooting pains, lumpiness, and fierce itching which began only recently. Indeed, as my surgeon says, radiation is the gift that keeps giving. My first post surgical mammogram, done 14 months after surgery, was clear, so not worried. Mostly I try to ignore it, but not so easy sometimes. Trying different creams - have even gone back to using my leftover Miaderm. They tell me it gets better - 

 

Wishing you all a good new year, with good health at the top of the list.

Member

Re: Breast pain 18 months after lumpectomy

I too suffer from breast discomfort, shooting pains, aches etc every so often 2 years post lumpectomy. Only had sentinel node biopsy which was clear but the scar gets achy and sore at times. I had to lose nipple as lump was too close and only 3 weeks ago I had the last bit of nipple reconstruction-the tattooing. This seems to have woken up some nerves! It got very sore towards the end but I’m pleased with the results. What I have noticed though is I’m getting warm sensations on and off in that breast now. Not had that for a long time. No pains as such. Does anyone else still get warm sensations? Wondering if the tattooing has irritated nerves or something. BCN examined me last week at check up and everything good. Didn’t mention warm feelings though as it hadn’t happened then. BCN said women can have aches, pains etc for years. Shame no one bothered to tell us and stop many of us being so very scared our cancer was back. Same goes for long term, late side effects of radiotherapy. I escaped chemo as lump was only 8mm and no nodes involved. Am on the delightful Anastrazole though. Was great the first year or so and no side effects. I’m sure  making up for it now. Apparently late side effects of Anastrazole is common too. 

Take care ladies and any men. Look after yourselves and be kind to yourself.

hugs

Frances xxx

Member

Re: Breast pain 18 months after lumpectomy

I had all sorts of shooting pain for the first year but now I'm left with a different kind of pain so I think it just all evolves over time.  As I said in a previous post, the radiographer who did my recent mammogram said she has ladies still having discomfort 10 years on!  If it is playing n your mind call your BCN and see if they can see you to reassure you but I think it is probably just par for the course.  Makes it difficult to judge what's normal and what isn't though doesn't it? xx

Member

Re: Breast pain 18 months after lumpectomy

I had a lumpectomy in March 2019.  Had a follow up mammogram in August.  It was fine.  Just recently I started to have shooting pain in my breast.  I've been taking Arimedix (think that's how it is spelled) since the surgery.  I am scared to death that something is really wrong.  But now that I've read here that a lot of women have experienced the same thing I'm not so worried.  But if it doesn't stop I will call my surgeon.  

Member

Re: Breast pain 18 months after lumpectomy

Snap! Had mine a week last Friday and told 2 to 3 weeks for results. Since then I've been nothing but anxious. Xx

Member

Re: Breast pain 18 months after lumpectomy

Hi Snottydotty

Just to let you know I am experiencing the same as you. It is worrying feeling "lumps and bumps" I agree. I wasn't informed of this either. I had my second mammogram last Friday and am obviously worried about the results. I was told when I had my mammogram last year I would have to wait 10 days but this time I was told up to 3 weeks which I think is ridiculous. I'll be (am!) a nervous wreck!!

xx

Member

Re: Breast pain 18 months after lumpectomy

Thank you. That's very kind. Hope all goes well for you too x

Member

Re: Breast pain 18 months after lumpectomy

Hi snottydotty. Sorry you experienced so much pain on your mammogram.  I am due to go for my 2nd on 4th December. Last year someone on this forum advised me to request it to be done manually as it would be more comfortable than the 100 mile a hour flattening that is the norm!!!! It certainly seemed more bearable, although the nurses were a little 'snippy' when I requested it because they have to put a bit of effort into it I guess. I was also advised to take a couple of pain killers half hour before. I will be trying to do.this again this year!! I hope you feel ok now and you get the best result🤞🤞🤞🙌🙌🙌💗💗💗

Member

Re: Breast pain 18 months after lumpectomy

Only just seen this but I feel exactly the same. I wish someone could have told me at the time that over 18 months on from radiotherapy my breast tissue would be constantly changing still and it's hard to know what's normal and what isn't.  For peace of mind with hindsight I think a mastectomy should have been my preferred option. But my BCN was adamant I didn't need it. I can only assume she knows that a mastectomy can bring worse problems of their own. But I do wish I'd been more fully informed. Been for my second mammogram since treatment and the pain was excruciating. The radiographer said it was common for people to still be having discomfort TEN years later. But the pain I can cope with, it's all the unfamiliar lumps and bumps that cause me great anxiety. 

Member

Re: Breast pain 18 months after lumpectomy

There is no such thing as a stupid question when you are in pain!  
I started having sharp stabbing pain under my incision for a lumpectomy I had 6 weeks ago.  I am calling my surgeon’s office in the morning.

 

I happen to be an RN with a Bachelor’s degree and many years of experience.

 

You need the peace of mind that is available. Knowing the cause of your discomfort is the first step in finding a way to deal with it.

Member

Re: Breast pain 18 months after lumpectomy

There is no such thing as a stupid question when you are miserable.  I am 6 weeks after my lumpectomy and today I suddenly felt a sharp stabbing pain under the incision.  Tomorrow I am calling my surgeon.  I hope you will also contact  your doctor’s office for advice.

Member

Re: Breast pain 18 months after lumpectomy

This is me! Intermittent, no pattern to when pain starts or stops. I seem to be sensitive to any pain. Being a nurse has not made my anxiety less. 

Member

Re: Breast pain 18 months after lumpectomy

So reassuring to me to read this l too am suffering in silence with alot of pain inthe side of my breast and under armpit l worry about it so much...love to all you ladies.

Community Champion

Re: Breast pain 18 months after lumpectomy

Welcome to the forum Trixe.I still have sensitive boob 4 years on .

Member

Re: Breast pain 18 months after lumpectomy

Hi I am new to this forum i all so have breast pain 16 months on was wondering how long it would last looks like we just have to try and get through it the best way we can sending hugs 

Member

Re: Breast pain 18 months after lumpectomy

Hi all,

 

It will be 3 years on the 12th April since my lumpectomy, I still get pail (not as bad) and get swellings under my arm and down my arm. I have been told this is normal after a lumpectomy and radiotherapy. I have now been diagnosed with 

fibromyalgia, I was blaming the Letrozol (which causes joint pain but apparently there are many women who have had breast cancer can develop fibro. So now i have the joy of joint and muscle pain most days but at least i am still here to moan about it. Sending love, light and healing power to you all. Heart

Member

Re: Breast pain 18 months after lumpectomy

I think we live in constant fear I had a good cry the other day because my kids reckon I push them away and then told them why would I worry them by saying everyday I wake up in pain and In fear just had my second mammogram had a scare because there was a density that needed further scanning vur I am exhausted waited 3 weeks for results and them the next day in for scan everything was fine but still in so much pain 2 years down the line

Member

Re: Breast pain 18 months after lumpectomy

This is awful we have been through so much it is nearly 2 years since my surgery and radiotherapy one of my biggest issues were the cording and tightness around my arm chest and breast I did find out that the pectoral muscle which covers the shoulder chest cavity and ribs  and breast apparently can shrink due to radiotherapy which causes the tightness I am now having physio which is helping but sometimes the more my breast feels heavy and swollen the more I find I can't catch my breath the after effects of treatment is horrific 

Member

Re: Breast pain 18 months after lumpectomy

Gosh frampton 16 weeks?? That's a lot to go through!! But at least we are through it!!💖💖

Member

Re: Breast pain 18 months after lumpectomy

I had a lumpectomy 5 months ago and then 16 weeks of radiation. My breast is lumpy, hard, looks like leather and I often experience shooting pains which has concerned me, but after reading this post, I realize it is normal. Also, I suffer from fibromyalgia which causes me to hurt all over. There are times that I feel that I can not make it another day. My husband does not understand which makes it even worse. 

Member

Re: Breast pain 18 months after lumpectomy

It is so reassuring to read these blogs..........it certainly makes it easier knowing so many of you feel the same as me, having had 6 sessions of chemo, lumpectomy, 22 lymph nodes removed and 3 weeks rads !!! i know im only 3months down the line but my goodness its still so painful.....hard lumpy boob, itchy rad burns and stiffness and pain under armpit. Painkillers really dont seem to touch it.......so even though your 18months down the line and still in pain at least it has stopped me worrying about it so much.   i agree with what some of you say about being left to juat cope and are just told to read the leaflets, so hearing from you reaaly has helped...thankyou J x

Member

Re: Breast pain 18 months after lumpectomy

Omg exactly the same I have had the fear of God in me its also about 18 months since my operation still so many shooting pains sore ribs and pains in my arm your body feels alien it is so difficult to deal with you feel so alone as you say there is so much your not told I was in so much pain this week I didn't think I would survive the night I was absolutely petrified  thank you for sharing not that I want any of you to suffer but sought of reassuring to know I am not on my own

Member

Re: Breast pain 18 months after lumpectomy

Hi Jackie 

 

I have been googling breast pain 18 months on from treatment and ended up here! I know you posted this a year ago, but reading it has helped me as I’m gripped by the fear. The aches pains and soreness have been freaking me out!!! No one at the hospital tells you about this, and they have fobbed me off, so I’ve been suffering and worrying alone. Just wanted to share what a help this post has been!

 

i hope you are doing really well

 

Jackie x

Member

Re: Breast pain 18 months after lumpectomy

This is very comforting to read, I’ve been very worried about the different aches and pains in my breast and that area! 


@Alibobs wrote:
Hi Tucky. Just wanted to put your mind at rest and confirm that I am 14 months after lumpectomy and SNB and 11 months since radiotherapy and I still have discomfort on my treated side. I think its internal scarring and the result of radiotherapy. I believe this will lessen in time. I just had my first year all clear last month so I will take a little discomfort in the knowledge that all is ok. Wish you well and if you need to you can always speak to your BCN im sure she will put your mind to rest. 💖💖

 

Member

Re: Breast pain 18 months after lumpectomy

I also seem to have a weird ache/pain sort of under my boob close to my rib. I also get a weird pain in the side of my boob near my armpit.  It freaks me out. I guess this is normal? It’s 18 months since my lumpectomy, I’m waiting for my annual mammogram, I just want it over with, it’s all such a worry!


@Julie4556 wrote:

Hi, I could of wrote this, i am exactley the same and i too feel like i have just been dumped and no one gives a dam. I am still n a lot of pain in my breast and under my arm, I ake Letrozole and now have Fybromialgia to cope with too. I would recommend to anyone to have a full mastectomy as my sister had one 5 months before i had my lumpectomy and she has not had any troble at all. I am in pain most days and am worse when i go to bed, the pains in my legs, hips, arms etc are getting worse day by day. But guess we are lucky in one way and we were treated in time. xxx Hugs xxx


 

Member

Re: Breast pain 18 months after lumpectomy

Hi, I could of wrote this, i am exactley the same and i too feel like i have just been dumped and no one gives a dam. I am still n a lot of pain in my breast and under my arm, I ake Letrozole and now have Fybromialgia to cope with too. I would recommend to anyone to have a full mastectomy as my sister had one 5 months before i had my lumpectomy and she has not had any troble at all. I am in pain most days and am worse when i go to bed, the pains in my legs, hips, arms etc are getting worse day by day. But guess we are lucky in one way and we were treated in time. xxx Hugs xxx

Member

Re: Breast pain 18 months after lumpectomy

Hi, I just wanted to say what a comfort it is reading this, I’ve been silently fretting for ages, I had a lumpectomy 18 months ago, and have exactly the same, pain and aching and soreness around my rib at the bottom of my boob and in the armpit. I thought I was the only one! 


@saralou wrote:
Hi, I had my lumpectomy and radiotherapy two and a half years ago and I still have a very lumpy sore breast and soreness around my ribcage and armpit. If I had known I would be left with these lumps I would've begged for a mastectomy. I've had two clear mammograms but I never fully trust them, as I'd had a clear mammogram just before I found my tumour.
With these hard lumps you are always questioning whether they have changed shape or feel different. I did go back to the breast care centre last year as I was worried but was made to feel like I was wasting their time and being paranoid.
I was given Exemastene to take but no one has ever checked my medication in two years. I hate taking it, it makes me feel nauseous and all my joints hurt. My gp said he didn't know the drug and couldn't help. I feel as if you are completely left on your own. Sorry I sound such a misery. I've not talked about this to anyone since my treatment.

 

Member

Re: Breast pain 18 months after lumpectomy

Hi, I had my lumpectomy and radiotherapy two and a half years ago and I still have a very lumpy sore breast and soreness around my ribcage and armpit. If I had known I would be left with these lumps I would've begged for a mastectomy. I've had two clear mammograms but I never fully trust them, as I'd had a clear mammogram just before I found my tumour.
With these hard lumps you are always questioning whether they have changed shape or feel different. I did go back to the breast care centre last year as I was worried but was made to feel like I was wasting their time and being paranoid.
I was given Exemastene to take but no one has ever checked my medication in two years. I hate taking it, it makes me feel nauseous and all my joints hurt. My gp said he didn't know the drug and couldn't help. I feel as if you are completely left on your own. Sorry I sound such a misery. I've not talked about this to anyone since my treatment.
Member

Re: Breast pain 18 months after lumpectomy

I just wanted to say how reassuring this forum is.   Reading the posts has helped me enormously as I have been worrying about pain. Thank you lovely ladies. 

Member

Re: Breast pain 18 months after lumpectomy

sessions. My left, operated on breast is now much bigger than the right, the nipple is very tender, I have stabbing pains, thickened lumpy areas and oedema. I am conscious of it all the time, bras don't fit and my left arm keeps bumping into the swollen side. I honestly wish I could have had a mastectomy instead.

Exercising with any vigour is impossible as it jolts the breast and is painful. 

Well, moan over, I otherwise feel OK, can taste food again properly and have some hair so no longer need a head covering. Counting my blessings! 

Member

Re: Breast pain 18 months after lumpectomy

I am 7 months after lumpectomy, lymph node removal and 20 radiotherapy sessio

Member

Re: Breast pain 18 months after lumpectomy

Hi Tucky. Just wanted to put your mind at rest and confirm that I am 14 months after lumpectomy and SNB and 11 months since radiotherapy and I still have discomfort on my treated side. I think its internal scarring and the result of radiotherapy. I believe this will lessen in time. I just had my first year all clear last month so I will take a little discomfort in the knowledge that all is ok. Wish you well and if you need to you can always speak to your BCN im sure she will put your mind to rest. 💖💖
Member

Re: Breast pain 18 months after lumpectomy

Hi Ladies,

I am 6 months post op for lumpectomy and bilateral mammoplasty (reduction) and almost 4 months post radiotherapy.  

my problem is that my left breast, which is the one with radiotherapy is still really tender; i can't lie on my front at all.  i understand that the itchiness is part of healing but i just wonder if i am expecting things to be back to normal too quickly.

Also, has anyone else's scar become raised and hard ?  I am still finding wearing a bra uncomfortable (post op bra) on the left side and sometimes have to wear a dressing under the left side for comfort.  thanks xx

Member

Re: Breast pain 18 months after lumpectomy

Will do x
Community Champion

Re: Breast pain 18 months after lumpectomy

racehl

 

Let us know how you get on if you want to xxx

Member

Re: Breast pain 18 months after lumpectomy

Thanks for answering. I’ll call them Monday as pain is only recent. 

Community Champion

Re: Breast pain 18 months after lumpectomy

rachel root

 

It does take a bit of time for your breast to settle down after having had rads, I still get occasional aches and pains 20 months after finishing rads, but if you are concerned and need reassurance, give your bcn a call to see what she says xxx

Member

Re: Breast pain 18 months after lumpectomy

I’ve just come on here for same reason although I only finished radio 3 months ago. After lumpectomy, sentinel node removal and radio plus boosts my boob is more painful now than the ongoing pain I had prior to diagnosis. Is letrozole a factor?
Member

Re: Breast pain 18 months after lumpectomy

Hi welsh lady 66, I have just been going threw the stories again and noticed yours which I replied to in January. In April I was diagnosed with cellulitis and was on antibiotics for over 3 months, went for a mammogram in June first one since lumpectomy a yr ago and thank god it was clear. The consultant said it was due to radiotherapy.  3 months later I still have breast pain and it is like looking at blotchy red skin that covers half my breast. Every now and again it will feel cooler to the touch.how did you find out that you had fibrosis and lymphodema of the breast. Thank you jo 

Member

Re: Breast pain 18 months after lumpectomy

My first mammo came back as clear too, i didn't think it wouldn't, just going to accept that to get treated and grt rid of the cancerexperience some problems afterwards but now i know what my breast now looks and feels like i know what is bew normal for examining my breasts x
Member

Re: Breast pain 18 months after lumpectomy

I am a breast c survivor of 9 years and had cellulitis 4 times and took antibiotics and it always cleared up don’t worry it’s normal for women with lymph node removal 💓
Member

Re: Breast pain 18 months after lumpectomy

I had lumpectomy on left breast 9 years ago got 14 lymph nodes removed because I had BC with lump removal and I went to atm reached out over my door jeep to deposit money in with left arm now I have breast pain and it’s really sore ....I hate when this happens
Member

Re: Breast pain 18 months after lumpectomy

I had DCIS with micro invasion. All removed with clean margins. 15x radiotherapy, and now tamoxifen. I rang the BCN before when I had some discomfort - as some of you say, like the sensations that made me seek a mammogram in the first place. The pain is very mild, worse when I poke and prod. My first year mammo was clear, and that was only 2 months ago. As you are, I am trying to be positive as there is plenty of reassurance in this thread.

Member

Re: Breast pain 18 months after lumpectomy

Hi mishy, I have now been told it is another side effect of radiotherapy and it may clear up it may not, still I will take that diagnosis as we all know we have faced worse. Jo x
Member

Re: Breast pain 18 months after lumpectomy

I have them still too as well as some breast swelling but i did get a clinic app as i was worried so yeah i would ring if you are concerned we are all different so its better to get checked if you are unsure, mines breast lymphodema through rads and nerve damage from nodes removed i also had pain as a symptom as well as my lump xx
Member

Re: Breast pain 18 months after lumpectomy

I had a wide excision and sentinel node followed by 15# radiotherapy, still getting sharp stabbing pains 8 months on, felt just like the pains that alerted me to the cancer in the first place, the trouble is who knows what is normal afterwards, don’t like to bother the bcn but worried about ignoring it, am also on letrozole , anyone else get these stabbing pains ??

Community Champion

Re: Breast pain 18 months after lumpectomy

Mishy

 

I am well thank you, spent the afternoon in the garden and I am absolutely shattered now. 

 

Got to rest up now as I have a bowls game tomorrow afternoon so a nice relaxing evening I think.

 

Thank you for your lovely words

 

Helena xxx