Same for me, 2 years ago and still pain and itching a lot of the time. My surgeon said I would have pain for ever probably, but leaves me unsure what to do with regard to checking for recurrence. I also had grade 3 but no lymph nodes affected, but only found by routine mammogram, my first one, and no idea if caught early or not or even if this makes a difference. Sorry can't help you, but can say it is the same !
I am 62 years old had lumpectomy 2 years ago Letrozol was first inhibitor they gave me you are right I felt like I was 90 years old so they took me off that and put me on Exemestane 25 mg ....the aches and pains were much worse so I took myself off of that ... surgeon found out told my oncologist and she has put me on 1 mg of arimidex or generic version of that and all is better
It did not make any noticable differance to me after nearly 4 weeks off it. It is a really good medication (so i am told) so i have started taking it again and getting pain management.
So good to hear that you are feeling much better and that things are improving. It is lovely when you suddenly realise Yes I have got there and the "fog" lifts.
Where are you going in Greece? We always used to go to Corfu and stay in Roda, beautiful little town, it is my favourite.
Hi, I'm not complaining, because really after reading all the post from you other lovely ladies, I feel SO LUCKY. I'm interested in the pain thing, related to Letrozone. Prior to my cancer diagnosis I had some pain in my hands. I now have it in my right hip and move like a 90 year old. I'm relatively fit (walking daily, 2 spin classes and 2 body balance classes -all at a low level I hasten to add). My hands are becoming increasingly sore too. Can anyone advise if stopping Letrozole has had any noticeable improvement in the pain.
It is 2 years next month since my surgery, I still get slight pain in my breast unless i knock it or lie on it then it hurts like hell, My problems are with the side effects of the Letrazole. They have taken me off it for a month to see if it is that that is causing me so much joint and muscle pain. Been off it nearlly 3 weeks and my hands are a little better but legs and hips still keeping me awake as are the hot flushes. I can not believe i am still in pain after nearlly 2 years. xxx
I finished my rads just over 3 weeks ago and all has been fine until 3 days ago!, I have had stabbing pains in the WLE area. Taking ibuprofen but doesn't seem to help. Tried soaking in warm bath too but no change. I'm quite despondent reading these posts am I going to suffer with this forever now? I feel so down this week. I too was very fit and full of life before this bolt from the blue hit me!!! I've aged about 20 years!! Feel like there is no quality to my life now. Can't drink alcohol. Can't go far from a toilet. Cant even sleep on my stomach which is my preferred position. Hot sweats hitting every night now! Moved out of marital bedroom so hubby can sleep. Constant nipple pain. Can't eat anything nice because it's bad for me!! Ashamed of my breast scar it's so ugly! Can't seem to raise a smile and I don't want to see or speak to anyone! Sorry to sound ungrateful and I know I have been lucky as it was caught early but there has to be more to life than this!!
I had a lumpectomy it'll be a year in April did radiation and boosts time now for the annual check very scared and nervous. I have. All the same symptoms as everyone else I take gabapentin letrozole ty
Hi, I had lumpectomy and removal of ancillary lymph glands plus radiotherapy 2 years ago. The first year I didn't suffer at all, but have been in a lot of pain for a full year ( now year 2) I wondered if it was nerve damage? I also suffer from M.E and Fibromyalgia so I don't know what is causing what pain. My recent mammogram was fine, thank heavens. I don't get much sleep at night, I wake up with breast pain which is pretty bad but don't suffer too much through the day. As you ladies know as soon as you lie down, especially if you are well endowed the weight falls to the side. I usually wake up clutching and supporting my boob. I'm so glad it's not only me as I thought I was going mad!
Does anyone still suffer pain so long after a lumpectomy. I am really really sore over the breast where the lump was removed. I had my check up with the surgeon in July of this year (1 year after surgery) and she said this was normal, and may be fluid. But it is agony when I lie down, sometimes I wear a bra at night to support my breast. Would welcome any thoughts anyone may have. Believe it or not I'm scared to go to docs, in case it starts all over again. Can't believe I'm thinking like that, because all the way through they told me that I had gone to my docs early and my grade 3 cancer hadn't spread to lymph nodes. Since then Ive been telling everyone else to go and get checked. Don't get scared get checked, just like the poster. Now i'm doing it!!!
Hi all, I'm the same nearly 3 years! Not had a decent nights sleep since the op and radiotherapy, I rate sports brars they don't give you a good shape but are really comfy for the day and sleeping in, iv had the bamboo ones but if your fuller in the bust not so good. I have throbbing pain under my arm and thr scar on my bust is uncomfortable at times. I have night sweats and have moved in another bedroom🙁 I have joint pain every morning but once showered and on the move it eases, I have severe pain in my shoulder joint on the side of the treatment. I'm 60 and was really active and ran my own businesses but gave it up last year due to feeling really tiered which was a really really sad day for me.
I have just had some disscumfort and swelling under my breast phoned my breast nurse (Jane) who is amazing she said go your doctors in she would get me an appointment for this week (today) I got in the doctors they gave me antibiotics????? 500mg 8 yes 8 times a day 4000mg felt so ill and thought it was rather high the dose! Got more tablets 250mg twice a day!!! The pain and swelling has gone now so have cancelled my appointment for today?
We are the stronger sex and are expected too get on with the normal things as before.
Think the breast team at Aintree hospital and Warrington are worth there weigh in gold.
I send you all big hugs
I am getting really fed up with pain, my breast is still very sore and even my other breast hurts (it will be 2 years in April since my surgery) I have underarm pain where lymph nodes were removed, i have a patch on my back that is permenant pins and needles, i am having all the side effects from the Letrazole ... very bad joint pain and flushes and now I am having pain in my outer thighs and can not sleep for the pain. I am nearlly 62 and feel 90, before the cancer i classed myself as quite fit and did not feel anywhere near my age.
My GP said i should take Naproxen but i hate taking strong painkillers as they just cause more problems (stomach pain and even internal bleeding) he did say he would also give me Omeprazole so i counteracts the Naproxen but i really do not want to take tablets every day. Is it just me or is there anyone who agrees with me. I hate taking tablets long term especially pain killers.....
I agree, friends and family do treat you like you’ve had a bug but it’s all better now so carry on as before. It’s not quite that easy to do I’ve found. I’m still suffering with fatigue even if I don’t do anything. I’m struggling to get off to sleep most nights and find myself worrying about the cancer returning all the time. It’s 14 months since my op. It was a grade 3 oestrogen positive but thankfully caught at stage 1.
My husbands attitude is get on with it, you could get run over by a bus tomorrow and has actually said I’ve got more chance of dying than you with all the driving I do, the risk of me being in a RTA is much higher than you have of dying with cancer. He has a fair point but it doesn’t stop my anxiety at night.
Hi, I’m still getting pain in certain spots in my breast, not necessarily where the original tumour was removed 14 months ago. When I saw the oncologist a year after treatment, she said it was most likely the surgery or the radiation that’s causing it but didn’t give me any indication how long it might last. She did say I was still retaining some fluid in that breast and advised me to wear a bra at night to help improve the discomfort. I do this occasionally but find I get sore under the breast when I wear a bra 24/7. The skin under my affected breast is also still very discoloured following radiation treatment.
I’m now also getting tenderness in my other breast and feeling panicky about the cancer returning. The sore area is right on the edge of my breast by my sternum bone so I’m thinking what if there is cancer and it wasnt picked up on the mammogram because it’s on the sternum/rib rather than in the breast tissue?
I can’t hug anyone as both breasts are now sore. My dog tries to stand on my chest to say hi but I have to push her off. I had a check mammogram in November 1year post treatment which said no signs of cancer and was clear, this helped reduce my anxiety for a while but now I can’t sleep most nights, worrying over my other breast tenderness. I’m exhausted. Everyone assumes I’m all better now including my husband but they don’t see me awake with worry. I don’t want to be one of those people who attends their GP all the time needlessly so I keep putting it off, especially as they are soooo busy. I’m also scared about having to go through it all again. I wish someone could turn off my brain so I can sleep.
I had a lumpectomy and sentinel lobe removal (4 - all clear) in October 2016, followed by Radiotherapy which finished at the end of December 2016. I developed cording after and had about 10 sessions of physio but even now I am very tender around the breast area and under my arm. It has improved though, albeit slowly, and I was recently actually able to lie on my front with the aid of a pillow underneath me for the first time since the operation. If you have a Helen Rollason Centre near you, I can recommend them. They are fantastic for doing massages, reflexology, counselling or just someone to talk to - anything to get you through the side-effects and worry!
HI. You sound like me! .2015-- (stage one/ hormone receptive) Lumpectomy, 5 weeks radiation- did a number on my skin. Tried two drugs, now on letrozole. Still having pain where they removed the (3) lymph glands and into the side of the breast. Throbbing pain which does wake me up. Lots of joint pain also wakes me up at night, goes away once I'm up and 'running'. Anxiety gets really bad at times. I, too, continue to stress, which I know is bad, worrying if the cancer will come back. Need to check out some sites where ladies are mentioning about bras. Wear one at night, mostly, and it seems to help. Why, I dont know. Yearly 3-D imaging and other check-ups due in March. keep your fingers crossed for me! OHH!The letrozole-- causing my hair thinning, breakage, dried out, freaking me out. Glad to have found this site. Thanks everyone.
re front fastening bras. My surgeon recommended miracle bamboo bra. I bought one from Roberyt Dyas and i also found them on Amazon. Nicely padded. You can also buy bra extensions (from pound shop. lol)
Hi Ladies, so reassuring to find this thread.
BC diagnoses March 2017, lymph gland removal (3 / all clear), lumpectomy, breast reconstruction using flap/own fat from under arm/back and 18 sessions of radiotherapy + 3 boosters, Tamoxifen for 10 years! Also due to family history I qualified for genetic testing, clear on both BRAC1 and BRAC2 genes. I'm now getting to the 1 year mark from diagnosis. Thought, probably as many of you did, I would start to feel 'normal' with the body again. However I still have pain from my lymph node scar, tightness in my breast. I still sleep with my soft sports bra on as this makes me more comfortable. I followed the exercise plan and still cream the area of the operation scars. Plus, having for a long period had problems with my lower back (had MRI scan, physio, meds for this), since being on Tamoxifen that has become a great deal worse. I’m only in my 40s but when I get out of bed, until I start moving, I move like someone a great deal older.
Sometimes it does get me down, but then I tell myself I’m still here with my husband and children - I just plod on. Reading that others are experiencing similar problems, the replies to questions raised, gives some comfort knowing we are not alone even when sometimes we think we are.
All my thoughts and best wishes go out to you all - take care.
Hi ladies. Just joined and already finding out stuff which is reassuring for me. I feel incredibly lucky as everything has gone to plan. Lump found sept 17. Op September 17. Radiotherapy finished Dec 17 and now restarting my life. However, Just recently I have had pains just under my arm (where 2 non cancerous lymph nodes were removed). My BC NURSE assures me all is well, but I feel more assured reading "real stories". My other "worry", is the fatigue. When does this stop? Mostly I feel good, and have even started a gentle spin class and body balance class. But there are times I just suddenly, have to stop everything. I can easily sleep for 10 hours a night, as well as the occasional nap during the day. Is this normal? Also Bravissimo is excellent for bra fitting and choice. Just bought 2 new bras yesterday, and feel much better and more comfortable already.
Hi Memphis, I have just read your post. So glad you are all clear!!! I have a question, is there a tyo about the 'pull on the breath'? I was just wondering. My breathing has been a little odd since my 2nd surgery (Sept 7, 2017) where the 2 nodes lymphectomy (they were negative for cancer) and the original area where the HER- 6mm, Estrogen and Progesterone+, Stage IA, was found. I have an incision that is not healing up (Dr says that it can take a lot longer than normal due to having had the radiation, but I am on antibiotics for the 3rd time since Thanksgiving). Anyway....just wondered what you meant by that pull on the breath phrase. I can't seem to explain to anyone what I am experiencing. Thanks! PSB
hi my mother is due this operation in feb this yr she is 71 also had a heart valve replacing some ten yr back so is on warfrin my mother belives she will die im so worried and just seeking some advice if u can help me
Hi welshlady 66.
i have looked for the bras from George on line and can not find them, I got one the other day from a different site which was ok front fastening but had no padding what so ever, after wearing it my boob hurt more as I had no support. Could you let me know please what site you ordered them off as at least they had the paddings thank you
Very late to this but just wanted to reassure you that I had exactly the same thing but two years before you and I'm big boobed too. I didn't ask, but always wondered if the surgical team had taped over my nipple to keep the breast taut at the outside edge which is where they made the incision. It felt like someone had put a big bit of tape over the nipple and front of my boob and then ripped it off afterwards. Happy to say that the pain stopped eventually.
I found the best bras for me (30G) were Macom as you can order them by back size and the cups stretch to fit your cup size with no seams and not too much compression (the Royce bras felt like I was wearing an elastic band, ouch!)
Hope things ease for you soon
I had lumpectomy in June 2017 then 15 rads and 5 boosters, I have since found that first thing in morning when I get out of bed oh my days the pain in my right boob and under my arm where lymphnodes removed is painful. Once I move about it does ease off, I am finding as months gone on my breast is more tender and under arm not so flexible even tho I still do excersises. When I worry more than usual I look at this site and read comments and then I don’t feel so alone and scared, thank you everyone
Hi Avyi I was the same as you had terrible problems wearing a bra post op and then after my radiation treatment could not tolerate anything near my skin, I had two bouts of cellulitis which took months to get rid of and now I have fibrosis of the breast tissue and lymphodema of the breast as well, the best bras I bought were the cheapest from george they are post op bras you have to order online, but they came very quickly and I think were around £15 they fasten at the front and you think they are going to be tight but once on they are so comfortable and they have pads for the inside which is good as my right breast is bigger than my left with the swelling, they are very strechy and soft I would recommend them to anyone
Perhaps give your bcn a call tomorrow and see if she can suggest something xx
I'm almost 3 weeks post lumpectomy and 2 lymph nodes out. I got an infection in my breast wound that has delayed my return to work and am on antibiotics for that. The actual wound doesn't hurt, nor does the under arm wound, although I have the stiffness and pain there when stretching, but have bneen doing my exercises, so thats getting better.
My problem is around the nipple and front of breast area - shooting, sharp pains, pin like pricks, sore, swollen and still bruised nipple area. I cant wear a bra - tried twice. However I'm very large boobed and I cant go to work without a bra on after chrismtas! Are there any other big boobed women who have any ideas for me please? Sports bras hold you in tightly so that you dont bounce when running so they are too uncomfortable as I cant have the pressure.
Many thanks ladies
I am also getting lower middle back pain. 4 weeks after lumpectomy. I am going to look up effects of anesthesia. Also, I am getting a slight blip in heart,that a feel like fainting, but it goes away very quickly. Scary. That might be another anesthesia effect.
One Yr on, like so many of you I still have pain under my arm, around my breast and across the Lump removal scar. My shoulder is stiff and my inner arm number. This is obviosuly radiation and nerve damage.
I still wear sports bras as they don't hurt me as much as pretty ones - my aim is to have a pretty one by Christmas 2018, even though continually taking Heceptin my libido to zero!
I'm 64 but look 50. However, I feel like an old lady when I wake up, after exercise I lose 10 yrs, and then I can eally get on with things.
I had to shut my business 4 months ago and now I'm trying to start a life. Its can't be the same but it will be good if I work at it.
Its a real shame that locally they offer no physio on exit from the Operations or Radiation. They know that cutting nerves causes the pain and the settling down takes a while (I was told 3 months, then told 6 now being told 12) Radiation has hidden side effects that don't go away quickly. However the main problem is post op is that a physical physio session is no longer included - a sheet of paper doesn't work - it has to be. My physio friend gave me exercises to do every morning - they help!
Like everything worth having you have to work at it - so go swimming (backstroke is essential), massage the solid and hard areas where the pain is, get fit and eventually - I sincerley hope it wiil all start to ease.
Mine has marginally... so yours can to!
Hello everyone, my name is Ana and I was diagnosed with Her2 breast cancer October 2017.
i had 4 chemo treatments of which I sailed by ! 18 radiation treatments of which I handled very well. I'm still having a targeted treatment, Herceptin, and I'll be done next month. I will on tomoxafin for a few years and so on. I've had my first mammogram after diagnoses last month and it's clear of any tumor's. Yehhhhhh
It's all good you may say, however the issue is that I have more discomfort and razor sharp pain and later like pull on my breath then ever before. My surgeon and oncologist advise me that it's all normal - but I can't shake the feeling of uneasiness.
Thank you everyone for sharing your stories, I feel connected to you through our mutual symptoms.
The power of positive thinking will get us through our prognosis and beyond to wellness.
Merry CHristmas and a joyous 2018.🎆
Thank you so much, that is so reassuring to read, I have been getting stabbing achy pains and getting very anxious !!! I will sleep tonight now xx
I too have been having terrible burning pain and sometimes very sharp sudden pain, im 5 mnths post rads, I found a lump a couple of weeks back had a scan and had a letter back saying the lump is nothing to worry about but they will keep an eye on it, but now My skin has gone thick and raised and is sore cant wear a bra other than a post op one and thats only for a couple of hours at a time and im still so tired all the time I have kept doing the exercises although painful, I have had an appointment to see surgeon next week wasnt supposed to be seeing him till january so will see what he has to say about it all x
Thank you so much for sharing , I had a lumpectomy in Feb 2017. Followed by chemo, 16 rads and now Letrozole. Now I am having breast pain off and on. Also tenderness under the arm. There is hardness around the surgery site. So glad to hear other stories like mine!