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Breast pain 18 months after lumpectomy

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Re: Breast pain 18 months after lumpectomy

Hi Janee

Have you been on anastrozole long? I take letrozole and found that if I take it in the evening, I don't get the nausea. Also I found it worse when I first started and now, 9 months on,it seems to have settled.

Hope this helps xx

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Re: Breast pain 18 months after lumpectomy

This site is great , I had my lumpectomy last August after my routine mammogram showed two growths and whilst in surgery had lymph nodes removed. I sympathise with you over the tenderness and pain ,I try and live with it because I don't know who to talk to cos people say oh you look good and you'd never think I'd been 😷I'll. As I'm new o the area I live I don't know anyone to talk to and just explain my pain and anxieties. 

I could only have radiotherapy as I also have CLL and had chemo back in 2006/7. The meds they put me on was Anastrozole and had some side effects nausea,hot flushes. My gp wasn't happy giving me something for the nausea and when she did I could only have 28tabs that lasted a month.

 I think I have gone off the reply by telling my story but I know exactly how you feel and the need to talk is vital

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Re: Breast pain 18 months after lumpectomy

I had lumpectomy may 15th then 25th another because marginwas not enough .i start chemo july 13th.little nervous last 2 day had very sharp pains reading some of the comments i see it is normal feeling better about that thank you
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Re: Breast pain 18 months after lumpectomy

I had chemo April to September 2016, surgery lymph nodes remove in October and rads in December, and still in pain around the site where tumour was, starting work on Monday and I'm so tired, my feet feelings like when I was on chemo. Does anyone find it uncomfortable to wear bras.
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Re: Breast pain 18 months after lumpectomy

Hi...feeling pretty scared & anxious as i went thru a lupectomy & treatment in 2014, and have had regular check ups. however, in the past few weeks i have been experiencing that burning, stabbing pain that most of you have mentioned as well though what concerns me is that it's been almost 3 since the initial diagnosis. My dr is scheduling me for a mammogram and ultra sound to check things out. I am scared but I am sort of relieved to have found this site and feel a bit better reading other's experiences. I hope it's nothing but ever since beening ill and having the surgery etc etc...its so hard NOT to be feeling overly stressed and worrisome when something occurs.

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Re: Breast pain 12 months after lumpectomy

This forum is brilliant as you all say people go you are looking well now, my op was last year and  also had splinter in lymph  i am still in pain from scarring and lumpy boob i had my year test done and all ok, but in the back of my mind i constantly worry. My husband re-assures me on a daily basis, but as i didnt know that i had it the first time,only due to mamogram (thank the lord these people exist) i would never had known.

As all say get it checked if worried, i had a panic attack about 3 months ago the Dr was brilliant and they really dont mind due to circumstances.

Hope all goes well

Elaine

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Re: Breast pain 18 months after lumpectomy

I had 2 as well  but in July and September 2015 plus rads in January 2016. I find the burning sensation and the achiness  comes and goes and it's only at night that it gets to me. 

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Re: Breast pain 18 months after lumpectomy

Hi, I had lumpectomy June 17th 2016 and another op on 21st July as margins weren't clear. I had the usual soreness in the area initially but for the past 2 weeks the area seems to have flared up with pain, a stabbing sensation and burning, it's more painful now than when I had the ops done. I'm at the hospital on 16th June for first mammogram since ops. This sudden onset of constant pain has worried me but after reading all the comments on this forum, it seems that it's not unusual.
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Re: Breast pain 18 months after lumpectomy

I 'd hoped that I'd be able to sleep on my stomach again eventually..but 2 years after my lompectomy I still can't.. I live in hope.

 

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Re: Breast pain 18 months after lumpectomy

I had a lumpectomy 14 months ago and still get a lot of pain both in my breast and under my arm. I am also suffering with the side effects of the medication ( Letrazole) to be honest can't remember the last pain free day I had 😢
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Re: Breast pain 18 months after lumpectomy

Hi Caz

 

You don't say much about what kind of pain your in, or info about your op, but just wanting to say to you, don't suffer in silence, if you had an op last Thursday and you are in severe physical pain, don't try and cope with it contact the emergency numbers the hospital would have recommended.  You don't have to be strong, the help line on this website might be able to help tomorrow to talk through things, you need to look after yourself, so please reach out to where you feel most comfortable. Xx

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Re: Breast pain 18 months after lumpectomy

I'm so in pain I don't know who to talk to as I don't want to worry anyone my family x had the operation last Thursday and I can't believe the pain I'm in I'm a very strong woman but I feel so weak please help me get though this I understand everyone just thinks just get over it I'm all over the place I'm back at the hospital on Wednesday I don't now what they will do next 😝
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Re: Breast pain

Just like I just read, I was diagnosed April 2016 have gone through the Treatmen , my Breasts are still tender.

I am a bit paranoid about my next Mammogram Will it hurt? Will they find anything?

I also  dont like  comments other people say: but the Cancer Is gone now, you are looking good.

No one sees when you are tired and just want to crawl away.

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Re: Breast pain 18 months after lumpectomy

I had lumpectomy in March last year then chemo and rads and still get painful twinges In breast , I was never so thankful to get results of my first mammogram, so glad I found this forum x
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Re: Breast pain 18 months after lumpectomy

I bad a lumpectomy in 2004 and still experience a sharp pain every now and then. So my assumption is that it never goes away.

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Re: Breast pain 18 months after lumpectomy

Hi I had my surgery and radiotherapy in August 2014 and I still get burning and discomfort from time to time in my breast. I can only presume it's scar tissue that flares up now and again and I'm due for my mammogram in June I have them every 18 months down here in Wales , I would prefer annual but I've been told that research has shown no difference in outcome , that's easy to say unless you're waiting for your next one for reassurance!! anyway I would say that a year on I presume you had radiotherapy they say it's the gift that keeps on giving so I think what you are experiencing is not unusual I certainly was still having pain and discomfort at times and as still do , so try not to worry x

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Re: Breast pain 18 months after lumpectomy

Hi I am in same position like others have my surgery twice chemo radiation etc it was long road and people saying thank god it's all finish and I look normal but shame I can not show the scars I had inside me I am talking mentally not physically
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Re: Breast pain 18 months after lumpectomy

I am with you there I had mine surgery and everything last year this time but still in pain and gets emotionally upset many times when people says looking good can they see my inside
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Re: Breast pain 12 months after lumpectomy

Hi everybody, I had lumpectomy a year ago but suddenly starting pain in my breast now and then any idea what is.

anyway everybody needs to know that like other ladies said I am talking and walking ok but in pieces from inside which no one can see.

i wish they can see the mental and emotional effects of big C on any body

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Re: Breast pain 18 months after lumpectomy

Hi Alison51

 

I've just read your post and you're right down to every word no one knows what you're feeling unless they have been through it. I was diagnosed in April 2016, I had the full works no support from people who says they are friends no support from work, now I'm constantly in pain. people keep saying you are looking good, I always said that's the outside you don't know what I'm feeling on the inside.

 

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Re: Breast pain 18 months after lumpectomy

hello this is so good to see that you are not alone, i am due mammogram first after surgery for BC and a splinter had gone to lymph node, so am slightly paranoid, just like you some friends say such tactless things, like well at least you know that you had it and its gone !! just to ask how did you cope with mammogram as my boob still lumpy and painful, operation was in march 2016? x
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Re: Breast pain 18 months after lumpectomy

Hello, I am new to this however I was so moved by the letters.  I am not new to the BC world, had ER PR BC 6 years ago, then this past April was having another lumpectonmy same breast same ER PR BC.  I am not sure what is worse, always feeling like you have the BC in the back of your mind, or dealing with human beings who do not have a clue what hearing you have C feels like.  I am convinced of one thing, it takes courage to continue and dedication to learn everything that is available to help, and it takes a real sense of the fact that we are valuable, we are wonderful and we deserve the best.  There is no time for anything less.  So God bless all of you.  So now 8 months late I am having shooting pains, sorness and I wonder what the heck is going on now?  I am seeing an doctor now who is going to start bio identical hormone progesterone to see if we can balnce out the estrogen.  After what I learned about Tomoxifen, I felt lead to go this route.  I am having enough issues that I want to avoid any further health issues cause by a medication.  Has anyone tried this route?

 

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Re: Breast pain 18 months after lumpectomy

Alison51 You are talking as if you were me! I feel exactly the same. Everyone thinks you are OK cos you're walking and talking. I too had a lumpectomy mine was in February 2016 and I still have pain now and then. And since having lymph node removed for my SEN that hurts loads if I'm not careful.
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Re: Breast pain 18 months after lumpectomy

Thanks everyone,  very reassuring to hear your comments.  Had lumpectomy end of September,  and get occasional twinges and twangs  in my breast especially the week after chemo; or if unwell-just getting over a chest infection which was not fun coinciding with 2 days after chemo.

 

How did people find the T half of chemo, as compared to FEC?

Any strategies?

 

Thanks.

 

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Re: Breast pain 18 months after lumpectomy

Hi Alison

You're saying so many of the same things I've been saying, that somehow people have got the impression that breast cancer is no big deal, you have a bit of treatment and then it's all behind you and off you go. I don't know whether it's because more women have lumpectomies now, and that sounds like something quite small, they don't realise that it can still be quite major surgery. And as you say, you can continue to have pain from it long after all your friends have forgotten all about it. And the radiotherapy and chemotherapy, they have ongoing side effects. And then there are the hormone treatments, I don't think anyone on the outside realises that they have a lot of side effects, and you have no choice but to carry on taking them for years.

Like you, I've found that friends have been a bit varied, one just told me off for being negative when I said I worried about it coming back, another got the hump when I cancelled going over to her house for the day (60 miles away, and I gave her more than a week's notice) because I still wasn't feeling well after all the surgery. But other people I didn't know all that well have been wonderful, you do learn things about people when this happens to you. I have found coming on these boards brilliant in terms of finding people who get it, most people out there haven't a clue how we feel.

 

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Re: Breast pain 18 months after lumpectomy

I was diagnosed in March had my lumpectomy and my lymph nodes removed in April 2016 , which were clear , and recently Iv been worried about the pain Iv been having , specially when I'm sleeping as I sleep on my front and the pain wakes me up , reading people's post that even at 18 months they still have pain ,kind of makes me at ease and worries me that it could last that long . And also reading how family and colleagues think because your treatment is over that your ok , and thinking because your walking around and even working that your ok , I'm fed up with people saying you look good and glad your ok , I won't to say to them well when you have had a doctor say those words you never thought you would hear you have cancer , and then have half your breast cut away , and a mixture of chemicals pumped into you body and bombarded with radiation and the pain you feel and the emotional feelings your going through , then and only then you will know how I feel , And know saying your ok so get over it is so far from ok to say .Iv also Hurd people say you find out who is your friends , and that is so true , I cannot belive a so called friend stopped talking to me because I cancel a holiday because I was recovering, and to this day blames me for reckoning her holiday . My advice to anyone with a negative person in there life while going through cancer get rid of them and look after yourself . 

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Re: Breast pain 18 months after lumpectomy

I have until recently only read other people's conversations but have been worrying a lot lately as my breast are so sore when I press them, I had bilateral mammaplasty in Jan and finished radiotherapy in May. Your comments have helped me so much I didn't realise I would  feel sore for so long. Thank you Jeanette .

 

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Re: Breast pain 18 months after lumpectomy

Hi Katm, your post saddens me and also makes me so angry on the other hand. How dare people tell you 'that you should just get on with it and that you were lucky'  . You're allowed to feel how you feel.  If they can't be supportive or don't know how to be, then they should keep those comments to themselves. 'Back to normal'  they haven't got a clue.  A diagnosis can affect you for a very long time and just because things may seem normal to others, it doesn't mean that it is in your world.

Also sorry to hear that your partner doesn't want to talk, you are welcome to talk to me

I was diagnosed two years ago and also had a lumpectomy, i still get pain (a temporary burning sensation).

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Re: Breast pain 18 months after lumpectomy

Its only been 7months since had lumpectomy and lymph nodes removed. so pain wil still be there for while.

Roller coaster yes , its been that , I actually thought i went through it all quiet well. 

Felt bit of a fake ..as wasnt unwell or anything..

But just recently , everything has got on top of me. Friends and family and at work ,they all think your back to normal.

Just get on with it , you were lucky , whats been said to me ! Smiley Surprised 

I didnt feel lucky when i was told i had Breast Cancer my first mammogram. 

 

Now im emotional all time and dont sleep to good and to top all that stressed at work.... my partner doesnt even want to talk about it, he just says , go talk to your pal.

or get tablets.... I do not want to go down that road.

 

 

 

 

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Re: Breast pain 18 months after lumpectomy

Omg!! Reading all the comments about pain and discomfort so long after surgery and treatment, is such a comfort to me as I thought it was just me, although I just had my annual mammogram and it come back normal I still have doubts, also people think all is ok now you've finished treatment and back to work, plus good friends now ignore me and family (mother-inlaw)that didn't want to see me whilst going through treatment and didn't contact me or my boyfriend during our 'rollercoaster journey' now wonders why we don't join them for family events now, anyone would think I had a contagious cold/virus not cancer. Thank god I have amazing friends.
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Re: Breast pain 18 months after lumpectomy

Omg!! Reading all the comments about pain and discomfort so long after surgery and treatment, is such a comfort to me as I thought it was just me, although I just had my annual mammogram and it come back normal I still have doubts, also people think all is ok now you've finished treatment and back to work, plus good friends now ignore me and family (mother-inlaw)that didn't want to see me whilst going through treatment and didn't contact me or my boyfriend during our 'rollercoaster journey' now wonders why we don't join them for family events now, anyone would think I had a contagious cold/virus not cancer. Thank god I have amazing friends x

 

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Re: Breast pain 18 months after lumpectomy

Thanks somuch Pat for replying. I have my annual ms appointment Monday so will bring it up then. I think that my mind has been racing with WHAT IF'ssince the journey began. I amsure all will settle soon. Take care and keep well. xxx

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Re: Breast pain 18 months after lumpectomy

Nice to hear from you Lesley and Mary. Smiley Happy

 

Lesley, I'm doing ok on Anastrozole (touch wood!). I'm having some hot flushes but not too bad. No pain in joints yet but I do take 75 mg of Amitriptyline daily for MS pain so I think I might have managed to kill two birds with one stone! Hope it continues like this!

 

My fatigue is through the ceiling! Was bad enough living with MS fatigue but it's even worse now. I'm not sure if it's the Anastrozole or my MS reacting to it. On the up side, at least I'm used to fatigue and my life is arranged to deal with it...have meals delivered, have a cleaner etc etc. 

 

For the first few weeks I had terrible trouble getting to sleep but it's better now. Just the occasional night. I take the pill in morning. Woman Happy

 

Mary, can you ask someone about your back? The rads nurse maybe for the BC nurse? It might be related...hard to say. It might be because you are so tired. When I'm very tired I tend to get lower back pain. 

 

Kelly, hope the pain is improving or at least that you are reassured and not worrying about it. I wonder if massaging the breast would help, esp if there's liquid it there. Might help to disperse it. There's more to this BC lark than it says on the packet!!!

 

Wishing you all well. Cat Happy

 

Pat xx 

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Re: Breast pain 18 months after lumpectomy

Meant to as if you ever suffered back pain after all rads,op etc. I have quite stiff achy back and not sure if its all the cancer journey or ms related. xxxx
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Re: Breast pain 18 months after lumpectomy

Hello Pat, just noticed you were on giving valuable advice as ever.

Well Rads over 3 weeks ago and it all went well although its the weirdest thing but I feel tired and wobbly more this week. The nurse at the hospital said to expect this as did my gp.

I am very consciousof every wee ache and pain and my mind then works overtime, hopefully that will settle in time.

I have the neurologist on Monday for my normal ms appointment so it will be interesting to see what they will say as I had my first relapse in June. 

It has been a crazy dark summer but hopefully all will be fine. Thanks for all help/advice. Mary

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Re: Breast pain 18 months after lumpectomy

Hello Pat, lovely to hear from you.  As usual, reassuring words from you.  Yes, wearing a bra "supports" and helps the aching but I do whip it off as soon as I get indoors as nipple is still peeling and sensitive, between a rock and a hard place, what's best? Like everything on this BC journey you just have to go along with it.

 

how are you doing with Anastrozole?  I'm coming to the end of a 6 week break as I was feeling so awful due to lack of sleep (flushes/sweating) which haven't improved, so guess it's menopausal not all down to the drug, though now off it I find I manage to drop off between flushes whereas on it once they started I was wide awake all night.

 

Hope ms is  stable and you're keeping well xx

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Re: Breast pain 18 months after lumpectomy

Hi all, and to Lesley...we were on July rads together. Smiley Happy

I had lumpectomy on May 20th and still getting pain esp sharp stabs of pain behind the nipple. Saw surgeon a couple of weeks ago and he said it's perfectly normal. Can last a year or two or longer! 

I was very worried it was another cancer forming but examined me and reassured me it's all ok. Still some swollen tissue from rads. Not nice to have the pain but is nice to know it's normal. Also I find wearing a bra helps. 

All the best, 

Pat xx 

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Re: Breast pain 18 months after lumpectomy

Reading all your posts has reassured me no end.  I had my op beginning of June this year and rads July/August and was getting very anxious because I'm still getting sharp stabbing pains in breast and pains/aches in breast bone and ribs.  The mind starts working overtime especially in the early hours when laying awake unable to sleep even though I'm exhausted.  My skin has still not recovered from rads.  

 

This is whole thing is awful and seems never ending,  and I'm sure I'm not alone in that friends and family think that now treatment (other than hormone drug) is finished its all over and expect you to carry on physically and mentally the same as before, almost like you've had a cold but it gone now so forget it.

 

Wishing you all a good weekend xx

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Re: Breast pain 18 months after lumpectomy

Julie I'm guessing you would have had Radiotheraphy , this is what makes you so tender, I finished mine in June last year and I can't put much pressure on my boob still, I was told it may always be like it so I don't worry Xx Jo 

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Re: Breast pain 18 months after lumpectomy

Hi. I'm exactly the same. I had a wide lateral lumpectomy june 1st 2015. My breast hurts all the time. Aching, sharp pains and also under my arms around my ribcage. I've just been told to give it time but how much longer? I hate bothering my nurse or GP. I'm worried it might be back
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Re: Breast pain 18 months after lumpectomy

Myofascial releases with certified lymphedema therapist will help. I treat this regularly at Vanderbilt in Tennessee

 

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Re: Breast pain 18 months after lumpectomy

Go to a physical therapist that treats with myofascial release. Takes 6-12 sessions at 1x a week

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Re: Breast pain 18 months after lumpectomy

I treat this regularly. Look for a clinician that does myofascial release.

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Re: Breast pain 18 months after lumpectomy

Same here have to careful with cuddles
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Re: Breast pain 18 months after lumpectomy

I had mone a year ago March radio therapy and tamoxifen. My first annual app all clear in fen. Still get pain in breast where lump nodes removed.of I lean on it it hurts. I'm. Told its part of the process especially under the nipple loads of nerve endings healing.when I lean forward the bread feels top heavy and itchie
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Re: Breast pain 18 months after lumpectomy

Oh my operation was a year ago and got my 1st mammogram since then anout 2mths ago and they said everything was fine xx
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Re: Breast pain 18 months after lumpectomy

Hi Kelly i hve pain on my left side to which is sore to ly on at ngt in bed. The doctor said lik you its either fluid or ive pull tissue in that area. I got my lumph nodes out aswell as it had spread to them. It is worrying when ur sore still and dont no really why u do think the worst 😔😔
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Re: Breast pain 18 months after lumpectomy

Hello My surgery was about 4 months ago and lymph node had a splinter in first node, so early days I know but having lots of pain, there was an infection which a course of anti-biotics did the trick., it is where the scarring is under arm and nipple area.

so I feel for you if 18 months down the line you are still sufferring 😞 I suppose it all has to mend and knit back together. I find sleeping a problem at the moment as i sleep on my side, and the emotional side also keeps me awake also, so it is nice to chat to like minded people.

all the best Elaine

 

 

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Re: Breast pain 18 months after lumpectomy

Hi There
I don't knkow if this what you want to hear - I had a lumpectomy, TNC and 25 sessions of rads in 2007 and yes I still experience pain, breast swelling and occassionally a clear oil-like discharge. Apparently this can happen is an unfortunate side effect of the TNC and rads. I do get neuropathic pain as well. A small dose 10mg of amytripaline at night with co-codamol of a bad seems to keep it all under control.
Take care Jacqui

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Re: Breast pain 18 months after lumpectomy

Hi. I hasurge lumpectomy in march 2011. I was ok until after my radiotherapy Lin October 2011. After the booster rads to the scar it became very very tender. It's ok now until someone hugs me or I catch it. Like nerve pain. At my check up in march thus year they told me to use ibuprofen gel. Investors bought it but not used it. I still can't bring myself to touch where the lump was. Daft I know!! But I believe it's supposed to help. None of the doctors I've mentioned it to seem alarmed.
Mandy xx