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Darling buddies from May - moving on

Community Champion

Re: Darling buddies from May - moving on

Hi,

how are you all? Its a bit quiet on here so hope you are all busy. Nick I have lost track of whether you are still away or maybe enjoying the company of your gs? Carole when do you see your new little gd? Hopefully you will get a cuddle soon.  I am busy at work too Lisa. i don't know where the days go to but the pile of work seems to keep accumulating. I have the tiniest gap on my desk and the rest is a mountain of paper and things to do when I get the chance. At least the days zoom by to the next holiday. Still haven't booked anywhere yet. Its Victor's choice so it will be in the UK booo. Take care xx

Community Champion

Re: Darling buddies from May - moving on

Hi all, will catch up tomorrow as been busy bee, back from hols then straight to Birmingham for course so slept last two days after work, should be back in land of living tomorrow. Have a lovely holiday Nicky. Rest f us batten the hatches rain is due tomorrow xxx

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Community Champion

Re: Darling buddies from May - moving on

Have a brilliant time Nick and I hope the weather holds so you can stay out and about for most days. Other people's families are quite difficult to understand at times aren't they?  At the end of the day I think you reap what you sow. That's why Carole and I are battling through some tough times with our oldies because of what they did for us in the many previous better years. I don't know what wsa said Carole and I don't think you should even write it down so there is a record of it, just think of her not being her normal self and not meaning it. I come home and tell everyone mine is deranged when she says horrible things. My brother says - well she looks like her mum even if what's coming out of her mouth doesn't sound like her! Nick it is difficult to give advice, they almost certainly know you are right but maybe can't trust anyone else to actually help out. Or if yoiu keep asking and no-one does help, you just get on with it, it wears you down keep asking.

On a brighter note glad GS is doing well and I think you might need to have a crying baby to appreciate a contented one. I have had complete polar opposites of babies and think it is just chance but experienced mums cope with needy babies better as they don't panic. Glad she had a sleeper even if she doesn't realise it yet!  I see your point about the chemo and saving it for later seems a great plan. How do you feel about faslodex? I have read a bit about it and know it works in a similar way to tamoxifen.  Do you have to have it in the backside and one on each side? That's really annoying if they can't stab you somewhere else or have it in a tablet!!! I would be having nightmares about what underwear was suitable to arrive in!! I will be hoping you don't mind the idea of it as much as I would or that you can have an alternative way of delivering it. I do like the idea of being on a new trial though. Presumably it would be a stage 2 or 3 trial so pretty well tested already. Main thing is of course that it does what it is supposed to and stabilises everything for you. Forget it all and have a lovely break. Lily xx

Community Champion

Re: Darling buddies from May - moving on

Hi ladies

Sorry to hear about the Mum troubles. Luckily I don't have it with my parents but OH is having to see more often as his Dad isn't getting any better which outs strain and stress on his Mum. He has to visit each weekend now, his choice, and although not too far away it does eat into his time off work. To be honest I try to keep out if it as I have my own health problems but if it were my parents I would be banging all his brothers and sisters heads together - there are 5 of them after all and sort out something more permanent. My 2 brothers know I wouldn't stand for any nonsense from them and I have no idea why OH and his younger sister seem to take on all the decision making, they are causing themselves more problems. Every time I say something about sharing the laid it sounds like I'm criticising the two of them whereas I think they are their own worst enemies, grrrrrr.

Bet you can't wait to see the new little miss, Carole, not long now. Our little chap is doing very well, as are Mum and Dad. I am helping out as much as they want me to and hoping I'm not in the way. ED is not keen on the in laws parenting skills, I won't even go into how badly our son in law was treated as a child as he's a stepson to the MIL so I think they appreciate my down to earth approach which appears to be working well. Having said that I ever had a baby that well behaved! Yes, I know they aren't 'behaving' but goodness me he's content and sleeps well, they have no idea how bad it can be for some Mums and dads, and just complain they they only got several lots of 4 hours asleep at night, I should have been so lucky!

As to treatment and scan results I hope I do actually change from this chemo, as it is a chemo, and it does have its long term effects which are cumulative. It also means if it hasn't stopped working I could re visit it again if needed. I should (and I say this with a bit of previous knowledge as its ended up not happening in the past) go onto hormonal treatment but as it will be faslodex I will have to go to The Marsden as faslodex is not funded by the NHS. You have to have it under trial conditions either with additional, newer, inhibitor drugs or possibly increased dosages, all of which are being carried out under trial conditions. I'm sure it won't be easy either way but it has been flagged up through various blood tests already carried out on me that I would benefit and respond quite well to it. We will wait and se, as ever.

Anyway off for our Hols tomorrow, YD will be here so no worries about leaving the house. Looking forward to some R and R, weather looking a bit of a mixed bag, hot to begin with but a few showers forecast for the end of the Hols, however this can change so I will pack accordingly.

Catch you all soon.

Nicky X 

Community Champion

Re: Darling buddies from May - moving on

Hi, we will be waiting to hear about the gossip Lisa, hope you had a great time. Nicky it seems to have flown by, your last eribulin possibly! I know in fact it only flies by for people not being poisoned! Fingers crossed for some good results from it and of so maybe they will keep you on it for a while longer. It would be nice to have some periods of stability when you didn't have all these big decisions to make. All of which take you away from more exciting things like babies or holidays Smiley Happy  . Keep me posted how you get on. Will you definitely go to the Marsden or does it depend on what the results are and if a decision is needed? Sounds like a good time to escape to Spain and enjoy some relaxing days. You deserve it. I have enjoyed planning work in the house but it drives me crazy when they are actually here so i try to be at work and leave Victor in charge. After quite a lot of changes here, we are back into resting mode and fighting of chest high nettles in our wild garden. One week away and they swarm back from an over run garden close to us. A never ending battle.

Oh Carole I am sure I know exactly what you are going through and how you feel. I have even talked to my lovely dad's photo recently and said that's it, enough, she doesn't even want to be here so come and get her! Thankl goodness I have a full time job and thank goodness you have the channel to separate you ha ha. My heart sinks if someone jokes that I am getting like her but at other times she is perceptive kind and very generous. You just never know what you are gettiing next! Yes I saw George with work colleagues and it wa fantastic. very realistic and a great stage show so I was on my feet dancing for most of it.  Not the Dbs yet! I hate to shock you but little chap is 13 now. Typical situation with the families. i assume the other mum has flown over and wants everything done her way? One of the girls' MIL causes waves and you just wonder why bother. Mum is trying to bully people into having the bridesmaids she wants/thinks should be asked but they are not budging and I admire that as I sometimes give in for an easier life these days. You take care with your palpitations or you will be having something else wrong. Better start having a wine yourself to relax! I think not calling is a good thing and probably the only thing that makes them take notice as you can't be unkind, weell I don't find I caan be. Although I notice she seems to be much kinder to the people who bite back! Typical, nice guys never win. Well cheerio Grandma and Nanna and we can all wait to hera what Lisa has got up to ha ha . Lily xx

Community Champion

Re: Darling buddies from May - moving on

Hi all

 

Nicky I don't blame you, you deserve a nice break and if it incorporates tasting some wine.... well why not. I'm pleased that you have finished your last current dose (hopefully) and as usual, along with the other buddies I'm sure we all wish your results to be super dooper!   Well, Grandma, I am just going to be Nanna.   I hope that you will be enjoying your new bathroom, and some freedom from workmen.

 

Lily, how are you and the family, Have you seen George M tribute yet?   Have your eyes popped yet with the dream boys.  Blimey, hasn't time flown fast, I remember when your little chap was born so he must be around 9 now??

 

Lisa you look like you are having fun in Majorca, it looks like a hen party lol.   I think parts of Majorca are very pretty, are you doing some sightseeing too? The weather looks fantastic.

 

The last week has been very stressful for me not being close to baby, son and DIL.   DIL's mother has been doing a lot of "wrong" interfering, maybe its a cultural thing, she doesn't speak any English so it has been difficult to explain to her, but son has felt a bit left out at times and of course, I am the one giving support, without trying to interfere, which hasn't helped my stress levels. I wasn't sleeping, I had a pounding of heart beat in my ear and my palpitations were getting very uncomfortable. Purely all stress related I think.  Finally by the end of the week the other Nanny was put in her place and has backed off, so, over the weekend I've just been enjoying seeing lots of photos and speaking to them both about how wonderful baby is doing.   I am so looking forward to my hugs after next weekend.

 

I also had some upsetting conversations with my Mum, purely because she has no tact and is always just putting her foot in it!   She has said things I just didn't want to hear, couldn't bear to think about (can't go into detail) but it was so upsetting.   Even though I asked her not to say those things she still carried on 2 or 3 times after!!!!   So, I haven't phoned her since Friday and will give it a few days so I don't say something I will regret.   I'm sure you understand Lily where I'm coming from?

 

We are having an Indian summer, it has been gorgeous during the day and our terrace thermometer reached 36 degrees today.   The pool though is only 19 so much too cold for a swim, I'm not very brave. Yesterday on my step machine I managed 2 kms in under 10 minutes.  I am trying hard to be active but rarely have the motivation.

 

I hope you all had a great weekend, sorry it's been a bit about me!   Happy holidays to Lisa and Nicky and Lily I hope that you are managing some free time, what with grandchildren and an aging Mum.

 

Love to all, Carole xxxx

Community Champion

Re: Darling buddies from May - moving on

Hey Lisa, hope you had fun (I'm sure you'll only read this once you're home and recovering!!!) and that the weather was OK, it's been a bit iffy over the last few weeks as I've had friends holidaying in Majorca. Tell us all about it!

Well, Lily, I've decided to be a glamorous Grandma ha ha. ED kept asking me, for 9 months, what I wanted to be and I couldn't make up my mind as we do still have both sets of parents who still have their own names which I couldn't use. So Nanna was already being used and I joked with my Mum that I'd have to kil her if I wanted to use it. Our families have never used Grandma, always Nanny so I thought I'd go for something ironic  which also has no particular link or memories (of old grey haired biddies) so 'Grandma' I shall be unless he wants to call me something completely different of course. Funnily enough some other friends, one already a grandma, and one soon to be, have chosen that name so we can all be glamorous grandmas together.

Hhow are things with your DIL, Carole? Recovering well I hope. Having had a C section with ED I know what it's like with the recovery. The main thing is to remember it's a major operation and not to underestimate the stress this puts on it. And baby, how is she? Our little boy is doing very well, putting on weight and feeding and sleeping well. I luckily get to see him quite frequently as ED is just down the road so we went out for a nice walk the other afternoon, making the most of it whilst the weather is still OK.

Well, I had my last (I think) eribulin yesterday, all went well and no repeat of the nausea from the first part of the dose last week. I say that I think it's the last because I am meant to be changing treatments but, as you know by now, things don't always go to plan with me! Anyway a CT next week then results a week or so after which I'm quite happy to wait for, especially as we've planned another holiday in between the two. This is our delayed holiday waiting for little baby to arrive as we usually go away once the school holidays are over and the weather is still nice in Europe. So off to northern Spain next week for a bit of travelling around and some wine tasting in Rioja which should be good. After that I expect to get another referral back to The Marsden to see what they have in store and if I fit the criteria for one of their trials, which I am hoping I will.

Workmen in again today to fit the flooring for our newly enlarged ensuite so eventually we will get to use it fully and then almost done, just a few finishing touches needed such as cupboards and shelving but were coping at the moment with free standing units we already had. Can't wait to say goodbye to all the workmen who've been here during this year but at least we've now got things as we want them.

Nicky xx

Community Champion

Re: Darling buddies from May - moving on

Ta, off at 5am lol... took Mam for wee meal out tonight so better get to bed as pick up at 4.30am so won't sleep lol. 

 

See younall all next week when I'm exhausted from 8 girls in Spain escapades xxxx

Community Champion

Re: Darling buddies from May - moving on

Hi everyone, hope you are all ok. Lisa I am really pleased to hear that your holiday is ok. So disappointing for people and I bet its wrecked some honeymoons and weddings too for some people. Hope you and the girls have a lovely time, of course you will! Good news about mum picking up.

So Nicky and Carole are you nans, nannas, nannys, grans or grandmas? I think it all depends what you called your own grandparents as people don't like to share their name, otherwise you have to hang another name on the end to know which one you are. I never had a nanna so i picked that. Also because my first one could say that easily from an early age. Our very eldest relatives were gran and nanny, so I guess that was the other reason as they were all stiull alive and called that by everyone. Such fun Smiley Happy

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Re: Darling buddies from May - moving on

Thanks mum seems much better apart from acid reflux which is causing her problems as switched her tablets and given vitiman d and calcium toobut not sure how long for.

 

yep holiday is causing me stress lol and will need another holiday lol. Luckily Ryan air just announced full list of cancellations so I can breathe at last lol

 

oh dream boys get you Lily xx

Community Champion

Re: Darling buddies from May - moving on

Hi well that's better news, mum out of hospital and both babies and mums healthy and doing well. You are making wish I had a baby to cuddle and I already have 6 little people to cuddle, well little chap has size 7 feet and is taller than me now so maybe not so little. he is a big cuddler though which I love. Oh it is chilly for September isn't it? I have my heating on so it just kicks in whenever the house cools down and let the shower run for ages before I venture in!1 No idea how I will cope with winter this year. I am supposed to feel hot all the time at my age but instead I feel cold so I am battling people in the office who want air con on. Do any of you feel very warm? Just wondering if the chemo forcing menopause means I am now experiencing the chilly 60s earlier than usual ha ha. Lisa I hope you have a lovely holiday. It sounds like the type you need a holiday afterwards to recover from! Have fun. I am looking forward to the George Michael tribute concert with work, hope he is good. Also booked for the dream boys. That should be amusing! Well better buzz off. Lily xx

Community Champion

Re: Darling buddies from May - moving on

Hi all, congrats carole, seen pics on Facebook so happy for you.

 

hope everyone having a nice weekend.

 

mum is out of hospital and loads better thank god, was pretty scary, she's worrying a lot but doing well just acid reflux playing up so she's worrying what it may be, now you can see where I get it from.

 

well on countdown , girly break on Thursday for 4 nights all inclusive just to chill and talk and laugh with girls, only issue is going with Ryan air so on edge of seat to see what happens eek

 

night xx loving my Saturday night X factor fix 😍 

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Re: Darling buddies from May - moving on

Whoopee, over the moon.   I've seen photos of little baby and she is adorable.   There was a problem during labour, she was 8 cm dilated and it didn't progress, plus Mum and baby were becoming distressed, so they put an epidural in, which improved the stress but baby was going into the wrong position.    Hence the C Section. Having had 3 I empathise, but at least it resulted in a healthy baby and a very happy mum and dad.

 

Tickets are booked!   Going over in 2  weeks time when DIL's Mum has had her couple of weeks.   Can't wait for cuddles.

 

Thanks for your good wishes everyone

 

Happy weekend all xxxx

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Re: Darling buddies from May - moving on

Congratulations New Granny No 2 👵🏻 What a lovely name. Sounds like the labour didn't go to plan and was quite an exhausting day for them both but the main thing is that mother and baby are well. I must admit the later it got with EDs labour I thought she would end up with a c section. Having also had a major infection 'downstairs' she's saying she would want one next time! A speedy recovery for Mum and hope you get to meet your new granddaughter very soon.

Nicky xx

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Re: Darling buddies from May - moving on

Congratulations Carole and it wasn't long to wait after Nicky's little one arrived. Such lovely times for you both. I love the name Sofia, very sweet. Was it a planned C section or did she have problems. You haven't mentioned anything so I am assuming and hoping that everything is fine healthwise. Book that ticket now! Congratulations love Lily x

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Re: Darling buddies from May - moving on

Sofia Cecilia Mirka arrived by c section at 19.20 this evening weighing 7lbs 2oz. Mum and baby are both well DIL over the moon son is beguiled by his new daughter.

Happy for them and can't wait to have hugs in a couple of weeks

Xxxx
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Re: Darling buddies from May - moving on

Sofia Cecilia Mirka arrived by c section at 19.20 this evening weighing 7lbs 2oz. Mum and baby are both well DIL over the moon sob is beguiled by his new daughter.

Happy for them and can't wait to have hugs in a couple of weeks

Xxxx
Community Champion

Re: Darling buddies from May - moving on

Lisa I hope your Mum is continuing to recover, sounds like an awful virus to wipe her out like that. Hope your leg and your eye is better.

 

Nicky also hoping your eye has improved and you are enjoying lots of cuddles with GS.

 

I'm on tenterhooks, DIL went into hospital yesterday morning early after having a show and pains all night. However her contractions weren't regular so they sent her home.   I had a message from our son just after midnight to say he was taking her back to hospital as contractions were regular.   By 9 am her waters had broke and she was 4 cm dilated, however, during the morning both her and baby were becoming distressed. So the last I heard was that they were going to give an epidural to help.   Not sure how that will help apart from relieving some of the pain, perhaps DIL is stressing too much. It's so hard not being there Smiley Sad

 

So no news yet other than that.

 

xxx

Community Champion

Re: Darling buddies from May - moving on

Hi, well I need to send get well wishes to everyone! Lisa so sorry to hear about your mum, sounds very scary so good to hear she is on the mend.  Nicky hope your eye continues to improve a bit quicker. That drip down the side of the eye used to bug me as it sometimes got sore. You could be right about the grit and lack of lashes. Hope the nausea was coincidental but probably wouldn't hurt to take a small anti sickness dose on the last one. Could be psychologiical but could be a build up on the later doses. Sorry also to hear ed had some infection worries but happily sound slike she is bouncing back now and can show him off to everyone now. I do hope you are preparing for another sack this Christmas. Great fun buying baby things. I hope you are ok Carole. I am scare dto ask as we seem to have hit a poorly patch. Love Lily xx

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Re: Darling buddies from May - moving on

Ahhh Lisa, bless both you and Mam. How frightening that she was that poorly but it sounds like the Drs were on the ball and got her hooked up to everything she needed. Wishing her a speedy recovery and she's not in hospital for too long. I think one type of tablet that she may have been on, a diuretic, can cause low potassium levels, mainly because  you pee so much it can deplete them. Given that she had a really bad stomach bug as well it wouldn't be surprising that lots of levels that we don't even think about got so low. Hope you are recovering from your fall and it was only your pride that was damaged 😉

Well, last but one infusion yesterday and for the first time I felt a bit nauseous afterwards. Normally I feel absolutely fine, take no anti sickness and just carry on as normal but defitely felt a bit grotty yesterday. I actually think it's a reaction by me going into hospital and thinking I will be nauseous if if have chemo - all in the mind rather than anything particular causing it. One thing I have come to hate is the smell of the conditioner they use before putting on the cold cap - they do this once the hair has been wetted as it helps release the cold cap at the end and you don't have lots of hair frozen to the inside! I took my own last time to get away from theirs, which would normally smell absolutely fine but to me I'm associating it too much with chemo. Oh well, only one to go and I'll remember to take my own again as I forgot it yesterday. I also had a scare this week on Sunday night. My right eye was very sore in the night, I needed to rub it a lot and even take painkillers as it was so sore. Anyway, come Monday morning my vision was really blurred and I immediately started thinking, Oh no, brain mets. I know my eye was sore but know way too much about what can and cannot happen with SBC so was not a happy bunny. Not much better by Tuesday morning when I had hoped it would've  have improved. Anyway I was seeing my onc that morning and he was very reassuring about it being an infection at which put my mind at rest, and funnily enough on the drive home my vision was so much better! I think I may have got a bit of grit in it, especially as I have no eye lashes to protect my eye, and rubbed it so it scratched the eye a bit. It is definitely getting better but not 100% at the mo. Add to that the constant watery eyes it really doesn't help with seeing things clearly!

Yes, I have been seein GS quite a bit but don't need to be there all the time to help ED as her husband is off for about 3 weeks and it's good for them to be themselves and their own unit. eD had a bad time with a severe infection with her stitches but is now on the mend on antibiotics and painkillers. She was so bad she couldn't even sit down to feed or hold her new baby so her OH was doing all the feeds and nappy changes. She is feeling much better and enjoying being a new Mum now and because they had to go to her GPs a couple of days on the trot they have got out of the house and realise there is life outside ha ha. She is popping over today to show him off to her grandparents who are now Great grandparents which will be nice. Rather than ha have them all at their small house it's  easier they all come here so I will be able to have a cuddle with him again. After a couple of days and nights not settling he seems to have got into his routine - sleep, feed, nappy change, sleep repeat. Very contented little fellow and, although we all say it, a very beautiful baby boy, ah.

Hooe your son and DIL don't have to wait too long Carole, I think the due date must be quite soon.

Nicky x

Community Champion

Re: Darling buddies from May - moving on

Hi all, weather been very strange here, one minute sunny next minute torrential rain.

 

ha lily I meant travel insurance. Wow got a great deal, all medical conditions
covered and £68 for annual policy including USA 😁😁😁. Believe it or not lily the shoes were Louise and from clarks and love them.

 

well, had awful 48 hrs but hopefully coming out of the other side. Mam has had a viral bug for about 3 weeks. Started with sickness and major toilet issues  bless her, she was wiped out for a week. Few days okay then back again and she's just felt generally crap and her acid reflux playing up. She rang me at 1am as had palpitations and whnnshuts her eyes everything jerked and tremorred. Ended up taking her to a and e where we stayed till 9pm before being moved to coronary care bless her. Looks like her potassium, magnesium and calcium levels had all dropped seriously low, she was on oxygen, drips in both arms to get nutrient back in, cathatar in and about 10 lots of bloods and said serious. Had me worried as kept asking about cancer history and her brother sister and aunt died of itbut ask you about everything. Today's been a new day tonight she looks loads better, and on a normal ward. Consultant thinks it was the trots as it was really bad and she wasn't eating or drinking so wiped her body of nutrients and mixed with one of her tablets which has rare side effect of wiping potassium out, even though been on it for 10 years, so after lots of IVs levelsmall back up and she's back on her feet, so I'm hoping for some sleep tonight.

 

night xx

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Re: Darling buddies from May - moving on

 Hi everyone, ha ha I loved the emotional tag and thought it was a cool feature i didn't even know we had. I must use it myself when the moment arrives. Carole its chilly her too but hoping the sun will be back and its not autumn already. It must be exciting waiting to hear about your new little GD. I hope she arrives on her own and doesn't need some help, so much nicer than the induction walk into the hospital. Having had a big family I found mine were all different and didn't follow a pattern really. I am curious to hear her name now.

Lisa how embarassing and painful to fall over. I hope it wan't terribly painful and throw those rotten shoes away now in case you break a bone next time. What was the insurance policy comment about? I wasn't sure. Only about a week until your holiday now so I bet you are busy trying to get evrything up to date at work before you go. Spa day was a lovely treat. We are up in London in a big spa hotel for Eds hen do in a few months and a night out in a club and lots of food and fun. Very excited about it. Before then I am seeing the dreamboys and I will be the oldest person there I am sure so will be very careful not to be anywhere near the end of the aisle to be safe. The girls got the tickets and one of them booked the front arggggh. Might not take my glasses so the view is a little blurred ha ha. Then next week going to a George Michael tribute concert and very excited about that too. Going with work so should be fun.

Nicky I bet you are popping around to help with that little chap as often as you can. Which side of the family does he take after? Hope he is settling a little. What a lovely thing to take your mind of appointments. Love to all Lily xx

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Re: Darling buddies from May - moving on

Welcome back Lisa, sorry about your leg and hope it doesn't affect you on your break.  I have no idea what happened with my  emotional tag, hit the wrong button I think instead of a smiley Cat Surprised

 

All for now xxx

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Re: Darling buddies from May - moving on

Hi all, quick catch up before I bash on and aim to get earliest night, sorry for absence, work is sooo busy and have som Night time meetings and been on a course, ha fell in front of boss and leg black and blue just before my hols typical, ha weather was terrible and my wedges slipped on silver circles that were indicating the dropped kerb, happened twice at both sets of traffic lights, needless to say those won't be in my holiday case. Mam not feeling great with awful acid reflux well she hopes it is and had a bug so been at there's a bit, nieces birthday and sorting out for girls holiday... phew so finally logged on before off to bathe my still weird eye..... and what a time to log on....

 

Nicky , amazing news the name is lovely really cute and hope you've had a lovely day spoiling him if you managed to help out today. Hope treatment still going well.

 

carole, oh how long till your new arrival.? Oh and what happened with your post, says wanting emotional at the bottom.

 

Lily, are you back to routine at school, did you go for a different job at work??

 

well nothing interesting to report her, been so sad watching the news... right off to try and find the dreaded insurance policy online, the joys of the form filling... oh old boss bought me a lovely spa day at a local place that I've never had the spas as too much money, was lovely, me and friend went, was bliss, sat around reading, was fed and watered, facial, tucked up in a furry bed overlooking the woods and country and then some pool time and outdoor hot tub with a prosecco overlooking the gardens (and in heavy rain lol), bliss but been exhausted every since ha.

 

night all, will try and pop back in more often as missed the gossip...

Community Champion

Re: Darling buddies from May - moving on

Hi all

 

What a lovely name Nicky for GS, he was a good healthy weight wasn't he?   I hope that your daughter is recovering well from the experience of childbirth.   I know it's a perfectly natural thing but it does take it out of you.

 

We are eagerly awaiting the arrival of new grandaughter, we know the name already but I'll surprise you when she arrives.  All is well so far.

 

It has been a bit chilly over the weekend, definitely autumnal and despite our best efforts to keep the flies out, unfortunately they seem to find a way to get in as they don't like the cold either.   Today is quite bright and sunny, after having overnight rain.   I shouldn't complain considering what The Caribbean and Florida are going through.

 

YD will be here for only another couple of weeks, and then will head off to her final year of her Master's, and studying.   Let's hope she will be able to find a decent job when she finishes. Still, will worry about that next year.

 

Smiley Sad

 

Mum is still finding the odd BB, the council are fumigating next week.   She often complains of "just not feeling right", so I suggest she tries to eat, even if only a bit of cereal and to keep taking her drink supplements.   

 

Well, my housework is calling Smiley Sad love Carole xx

Spoiler
 

 

 

 

Community Champion

Re: Darling buddies from May - moving on

Hi everyone. Nicky I love the name. Funny that I mentioned William or a modern/current name!! We must have a psychic link going on. I like family traditions with names, we have a few but not everyone continues them. Always up to mum or dad. Who do you think he looks most like? Well how lovely to have the excuse to monopolise the little chap while helping them out. New babies can be hard work. Main thing is not to both get up, to take turns looking after them so you at least catch some sleep. My best sleeper from early on was the only one that was born in the day time. All my night born babies seemed to think that was getting up time every day and had to gradually move their clock round. Well congrats again and welcome to the Nanna club. What have toy decided to be called? Lily xx

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Re: Darling buddies from May - moving on

Hi, thanks ladies. A very busy Friday for me just making sure family and friends knew plus of course visiting my lovely grandson before he came out from hospital. Sorry I realise I have given you this info already.

So the details, for Dr Lily: As you have done I'll give you his name once and then refer to him as GS or similar. His name is Quinn William (William being his dad's middle name and a family tradition). He weighed in at 7lb 3oz and was a week early. ED and her OH are v tired as the lovely little baby doesn't want to sleep much. I think we will be relieving them a bit today so they can have an hour or so catch up with sleep. I managed a long cuddle on Friday as I was at the hospital for about 3 hours, visiting then waiting for them to be discharged which took an age. Luckily they live only about 5 mins away so it will be easy to drop in and help out if they need it, which going on this mornings cry for help might be more often than we all thought!

Niw we just need to wait for Carole's news of her GDs arrival 😊

Nicky x

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Re: Darling buddies from May - moving on

C O N G R A T U L A T I O N S!!!!!!!!!!!!!!!!

 

To everyone of course xxxxxxxxxx

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Re: Darling buddies from May - moving on

Congratulations Nicky that's wonderful news. Very glad to hear he arrived safely even if he did take his time. First labours!! It sounds very familiar, lots of hanging around and wondering if it will ever happen. He was early wasn't he? Do we have a name yet? What did he weigh? I love the details. I bet you can't wait to have a cuddle and spend some time getting to know him. Lovely news Love Lily xxx

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Re: Darling buddies from May - moving on

Hi ladies 

A busy morning for me as I have been updating family and friends about the arrival of our new grandson 👶🏻. Born late last night so ED and GS are still in hospital making sure they are OK. EDs waters had broken on Weds morning so they gave her a chance for the labour to start naturally, she was already having contractions, or she had to go in yesterday morning to be induced. I think if it goes beyond 24 hours after the waters break but the baby isn't born both mother and baby need to be observed for about 12 hours for signs of infection so she won't be home until later this afternoon. Anyway I'm sure I'll hear all about it when I see her but not a quick labour from what I can tell. However they are both looking great (good old whatsapp for sending photos) and she is very happy, as is the new Daddy!

Will catch up over the weekend.

Nicky x

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Re: Darling buddies from May - moving on

Hi all, really sorry I've been missing things hectic and been away with work. Will read and catch up tomorrow, chilled spa day treat so hopefully in a more chilled place and more time, catch up tomorrow xxxxxxx

Community Champion

Re: Darling buddies from May - moving on

Hi all

 

Lily it sounds a good plan to get tough with some of the parents, I find it unbelievable that some parents take no interest in their children's education.   I used to spend quite a bit of time with all mine doing homework and projects, and I was never a brain box.   Hopeless at maths but good at English and some of the other subjects. The council refuse to fumigate the entire building, even though I've suggested it must be more cost effective than keep going to individual flats.  They just won't have it and then they blamed my Mum for hiring a private fumigator!!!!   I'm told they take a long time to get rid of, my sister has to wash everything in a 60 degree machine (impossible as some clothes you can only wash on a 30) and then double bag things up so the council can go in and spray her wardrobes, chest of drawers, bed etc etc.  The problem is that Mum's flat is tiny and just doesn't have the space to have loads of bags for storage.   Fortunately Mum hasn't been bitten. Your decorating sounds lovely.  Wet cars in the morning are a sure sign that Autumn is here. Sorry to hear about the damage to ED car, hope everything is sorted out with it now.

 

Nicky you're busy decorating too, how is it coming along? I think I would rather be at home with workmen than doing all the rounds of chemo and appointments, I expect you are too.   Not long now for both of us ha ha.

 

Well today is a monumental day, 5 years to the day of starting tamoxifen and today is the day of my last tablet.   Don't you think it a bit strange that I had just enough tablets to take me to the exact anniversary? I think someone is telling me it is time to stop.   I hope my body will bounce back to pre tamox, stiff joints no more and a bit of weight loss would be nice.

 

I had to take a urine spec to the laboratory as I think I have yet another urine infection.   It takes 3 days to get the results but luckily I have a prescription of antibiotics already so will start to take them, if the results show a different AB will work then I will change.  I'm exhausted as up and down to the loo for 2 nights has worn me out.   I've also found out that the thyroxine tablet I take has changed components recently and thousands of people have reported vertigo, fatigue, memory loss and muscle cramps.   All of which I have so I am asking my pharmacy if there is another brand I can take.

 

Our son and his GF are looking forward to the baby arriving, hopefully on time but we won't know.  I have a box of baby bits and bobs for them as I've been collecting for months. As I won't be able to get over to see the newborn to begin with, Mr P is going to take it over at the weekend when he returns to work.  He will be spending 2 weeks in Falmouth as his ferry goes into dry dock so basically he'll be having a working holiday lol.

 

That's all from me for now girls, take care everyone love Carole xx

 

P.S. the last long post I made somehow disappeared from my keyboard, so this time i've copied all the way through lol

 

 

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Re: Darling buddies from May - moving on

Hello everyone. Thanks Nicky, actually our little girl  was in the car and it hit ED's side first then skidded along to baby's side, whose window was wide open if anything had shot off! Amazingly there was no injury to them so it is a very big bill to sort the car out. Apparently she was distraught when they towed the car away and she is not allowed her old car seat either. She keeps telling us all that 'my car is broken' and wants it back. Funny that she would attach to it. The other driver has admitted blame and there was a witness so things will goes as well as they can but as you say, the innocent party often loses out. We will see as it is financed. They gave her a huge 7 seater van type replacement and she has refused to drive it so they are waiting for a smaller family size car. She is used to a camera to park and lots of gadgets and the replacement is old school despite being new. I winder if we will all lose the ability to do these skills in the future as hers parks itself too. Sorry to hear your daughter's car story. Just grit your teeth on the bathroom work as I am sure it will be fab and worth it in the end. That's what i tell myself. I hvae had a ceramic sink put in this week and new worktops so we have had to empty the kitchen. Crikey there was a lot in the cupboards!! I managed to be at work so an unsuspecting Victor got it ha ha. He asked me if I knew exactly how many cleaning products I had and he had lined them all up to prove his point lol. He siad he wouldn't mind if I actually used them occasionally ha ha ha. Lovely and exciting waiting for baby. You wait until she tells you it has started, you will not know what to do with yourself!! Yes your whole world changes when it arrives but for the better and it sound slike she is going to be a doting mum. Carole don't forget to let us know when anything happens with yiour new grandchild too. Hope she is keeping well and has an easy labour. Its not the first is it?  Lisa how long until your girly trip? Llovely time of year to get another break in. Hugs Lily xx

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Re: Darling buddies from May - moving on

Sorry to hear about your daughter's accident Lily. Honestly you do look at some drivers, whatever their age, and think they are not concentrating.  Was little miss in the car at the time? If so it would have been extra scary.  Glad that no-one was hurt but I know after the event a lot of bruising can come out as you're not braced for the impact when its something you've not been able to anticipate.  Hope it all works out OK with the car as well, I've also heard of stories where the driver who wasnt at fault ends up worse off financially.  In fact that has happened to YD. Her car was written off a few years ago when someone went into the back of her at traffic lights.  She was able to get a new car on finance but after about 18 months when she moved to Putney she didnt need a car but also couldnt afford the payments as her rent was London rates so she went to sell it. Lost alot of money, all because some idiot didnt stop at a red light.  The car would have gone on for years as well as it wasnt very old, just not worth repairing.  Anyway hope there's no issues like this for your daughter.

As to getting up early, yuk! I'm currently having to get up each day before 7 to be ready in time to let the builders and plumbers in.  All 3 of us in the house (me, OH and YD) are having to use the one bathroom at the moment and as we all have to get in and out in an hour its a bit of a wake up call.  Normally I wait until they've gone to work to keep out of the way but as I'm the one that has to make sure everrything is covered with dust sheets and moved out of the way each morning I have to jump into the shower early.  Couldnt quite manage 6.10 though!

So, although I've had a week away from medical stuff it's been a week staying in all the time to make sure I'm generally around with the workmen here.  Hope they get it all done in a day or two so I get some time to do things I want/need to do before heading back onto the chemo ward.

ED is getting impatient now but I don't think she realises she should relish these days with no full responsibility of a tiny baby!  I found the one thing that changed massively when you have a baby is the fact you can't just act on the spur of the moment, you have to wait, or spend time getting things ready, baby included, takes quite a while before you can grab things and go!  Will update on any news obviously.

Lisa and Carole, hope things are OK with you both?

Nicky xx

 

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Re: Darling buddies from May - moving on

Hello, I was thinking of everyone who would still be asleep when my alarm rudely awoke me at 6.10 this morning.I tried getting up at 7 yesterday to break me in but no use, I was still out for the count and probably would have slept until 9 if left undisturbed. The car seems to be a soggy dripping mess every morning, which I have missed as the sun soon clears it, but not on early work mornings, so got my squeegy wiper out already to clear windows Smiley Sad . Always my first sign that summer is almost gone boo. Victor has been off, which he does every year, maybe to get me back for long holidays when he has to work. I haven't updated you, the bedroom is so nice and it has been exciting to come home each day and find another part completed. The room is all very peaceful in muted pale beige and cream, which has made it look much bigger. New very squashy soft pale carpet, wardrobe doors all painted a distressed cream to match other furniture and merchant chest. wallpaper is a pale beige with a paler off white  cow parsley spray all over it. Love weeds!! I might have to abandon the curtains which are a bit too bright cream with a small gold pattern on. I think the pale room is making them look brighter. Alternative is to have a bed throw that picks up the gold, well just a little.Don't want it to look like Vegas! So many things went wrong its frustrating. One of the workmen had chipped a chunk off the merchant chest, right on the side that you look at, no idea who did it. The radiator leaked and came through the ceiling and spoilt another room slightly. Victor snapped the phone cable off so no phone in there. I pulled the thread to pleat the curtains and both ends came free so I spent quite a bit of time tonight with a needle trying to thread all 3 of the strings through about 3 feet of tape heading so i could pleat them to the right width. Mum has lost the plot with building work next door and is kicking out and being mean but worst off all, someone smashed into eds car on the side our little pink sits. They are ok but the idiot got every panel and has dented both wheels and the chassis' bent so not looking good for the car. They were all completely fine so must be a strong car on the sides. Always a worry with financed cars as you hear about people losing cars and still owing money. Main thing is they were all fine except her partner being furious that they had endangered his baby, just drove out a side road straight into them. So a  very eventful week of good and bad things. Hoping for a more peaceful time next week.

Nick enjoy your lovely week away from poison darts and vampires. Do you have any plans? Nice to have ed around to go out with too. Not long now Smiley Happy .   Have they got any names or will it be a surprise? I am always curious to see if people will pick a traditional William type name or one of the current names ecah generation likes. I like both. Carole are you gettign excited too? Do they have any names in mind or do they keep you guessing until the end? Poor you two and the eyelash/brow problems. I don't think I would bother on an ordinary day either. Its still you Smiley Happy  Nick hope your workmen have gone and left you inpeace now. The smell of paint has been horrible but he bought quick drying gloss and it has gone much quicker than usual.  Lisa are you in a decorating mood again yet? or has the kitchen calmed you down for a while? That was a long job but I bet it is lovely now. Well better buzz off to try out the new room for the first time. Enjoy your weekend Lily xx

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Re: Darling buddies from May - moving on

Hi ladies

Hope all is well with you and yours?

Ive just had the second part of my 7th cycle of chemo so looking forward to a week or so away from hospital appointments etc. The only type of medical event I will be looking forward to is of course EDs baby arriving, but who knows when that will be? How is your daughter (in law?) doing Carole? Sorry, I'm sure it's your DIL but honestly have a brain like a sieve. As to the lashes etc I'm in complete agreement with you and how awful that yours have never returned. Is that completely or just they are not very long or are a bit thin? I'll have to see what happens with mine after this chemo is over. I literally have none and that makes it impossible to use the implant type of semi permanent ones that Lily mentioned. eD uses them all the time but I think they anchor them to your own lashes and they fall out as and when your natural lashes do. I've got nothing to anchor them to! I've stopped wearing the false ones everyday and use eyeliner and then put the lashes on when I'm seeing people or going out - otherwise it's an expensive 'habit' as they inevitably get a bit mis shapen over a couple of uses so they are not able to be used for that long each pair. I look out for offer some in Boots and Suoerdrug and get them then.

Lily, poor you going back in August, pretty much unheard of in these parts as they never seem to go back before September but, as you say, it's not the kids, just the teachers. Our kids are still off until Monday so we're expecting busier roads as per usual then. We live quite near to the local village schools so get a lot more traffic through our quiet street and lots of parents walking their children to school, all with no paths where we are as the part we live in is very old in parts so there was no real traffic when the houses were built and therefore no need for pavements. I hope your bedroom is coming together and you can see the light at the end of the tunnel. We have builders and plumbers in again as we are changing around our en suite now. Ahhhh. Could do without the constant drilling, electric saws, dust and water being turned off but it's something we wanted to do since we moved in so I'm gritting my teeth and putting up with it. We are so pleased with the other bathroom that was done I'm sure this one will be equally as good and therefore make all of our days start a bit brighter than they have done with the previous bathrooms. Don't get me wrong, they were new and modern but not how we wanted them space-wise and also no natural light so  we are also putting in a couple more skylight windows which should make a lot of difference.

How are you doing Lisa? And how is the weight loss going? Hope you are still making progress and noticing the difference. And how is work? Are things settling down a bit? Or getting worse? Let's hope not with the last bit!

No other news from me for now.

Take care

Nicky x

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Re: Darling buddies from May - moving on

Hi everyone, how are you all? I am trying to stretch out my last days of summer holiday as we go back in August!!! So disappointing but will get some non pupil days so at least I can be half asleep and ease in gently. I have some very difficult classes in the coming year, so this is a warning that I may be moaning a lot. You usually get one class that is much harder than others but I am shouldering a much bigger load this time. I like the challenge and I am really patient but kids today can sometimes really push the buttons and you have to bring in good results or the teacher gets the blame. No allowance made for having kids who just don't care and if that combines with parents who don't care about education either then there is nowhere much to go unless you snake charm them. I'll have a try. So I am planning clear instructions about what I expect to happen, clear punishments for if they don't happen and then very long boring talks through lunch for anyone who needs to have a repeat, every week if necessary. Will let you know how it works out!

Nick, I hope this week has gone to plan and you must be heading towards the end of this first set of doses on this regime. What month will they review everything again? I am hoping you can have some good period of time on this drug as it seems to have been reasonably tolerable and give you less days afterwards of side effects. It would also give you extra time to spend oohing over your grandson Smiley Happy when he arrives.

Carole you can get semi permanent eye lashes now that last much longer and they attach them for you. Might be worth while if you have some events to attend. The eyebrows can be tattooed as well and last about a year and not too expensive. If you feel like treating yourself. I did wonder about the eyelashes as mine are nowhere near as thick after chemo. I am thankful they are hanging on after hearing yours have gone permanently. I am rather lazy, in my later years about anything that takes time and bother. Oh no not the dratted bed bugs again! Were you very careful not to take them home when you visited? My friend brought them back from an Italian holiday after leaving theri suitcase on the floor and she had to have the whole house fumigated several times and throw the bed and bedding away to eventually clear them. Your mum is much too old to cope. Can they move her because of this? Mum has fluid issues too so we have slightly raised the end of her bed by putting a thick towel under the mattress. Its not much of a height but the garvity overnight definitely makes them more comfortable, plus the electric footrest on her chair during the day. Lisa I have taken a leaf out of your book and got some nice evenings booked. Going to see a George Michael tribute act, I do love the songs and intend to sing along ha ha. We are also going to see the dream boys and I am terrified as they have booked right near the front. I am going to make sure I am right in the midsdle and can't get out, just in case they are looking for an oldie. Hopefully not. But after being dragged out to have one sit on my lap and pretend to do saucy things last time I went to a hen do, I have no intention of getting caught again!! We also have Eds hen do, which this time will not involve a stripper she says. We had booked up and now the plans have fallen through so looking for a London trip that will be fun. Any ideas? School results for GCSEs today and I was really pleased with all my kids results. They ranged from level 5 to some brilliant level 8s, so brownie points for me at work. Pretty pleased with them as they are not the top set but they have been lovely and most worked really hard. Homework in from everyone every week, it makes the difference. On the decorating front I found some lovely wallpaper and they are starting next week. Bad news is trying to empty the room! Ceiling is plastered and I bought a huge rattan style off white lampshade, sort of clementine shape that throws lovely patterns all over the ceining through the gaps in the wicker. New bedside lamps. Throwing away the headboard too and ordered a cream metal ornate new one that will be annoying to lean on but lovely to look at! Still waiting to decide about the carpet as a lot of cream items in the room. Its been so long since we decorated i have got really excited about buying things. Then went out and bought 2 pairs of trousers and 2 dresses I fell in love with, so wrecked the bank balance rather this month. So our next little trip will hang over until half term while Victor recovers ha ha. Hugs. Lily xxx

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Re: Darling buddies from May - moving on

Hi all, I hope this finds you all ok and coping with whatever life throws at you.  

 

Nicky that sounds good, that wearing the cold cap is keeping your hair intact, do you wear the cold gloves too?   Do you find the cap difficult to wear?   I still have no eyebrows or eyelashes after 9 years.  How do you find putting on the false eyelashes? I have worn them in the past but as I don't go out much there isn't much point when just staying at home.  I always found them very fiddly.  It must have been very exciting watching the athletics live. I enjoyed them on the television.

 

Lily the weather went from being very hot, to quite a chilly 15 degrees overnight last week but is back to hot now and I've been able to use the pool, although it's still a bit too cold for my preference.  Are you enjoying your time off, can you manage to do some things that you like apart from baby minding of course lol. Are you back at work next week?

 

Lisa, don't worry about your accent, I managed to work out what you wanted to say.   How is the diet going have you lost any more? Bet you can't wait for your next trip?  I always liked Majorca.

 

I've been busy with Mum and her council again as she has bed bugs but this time they are all over her flat! The council have contacted pest control but goodness knows how long she will have to wait.   In the meantime she's had a private fumigator in, who admitted to Mum that several of the flats where Mum lives have had these bugs.   Makes me want to scratch just thinking about it.   She's in quite low spirits at the best of times. Her feet and legs have been swollen with fluid for months and despite being on water tablets it doesn't seem to get better.   We (my sister and I) have been told it's because she has vascular dementia and heart disease, consequently her blood and oxygen is not being pumped around like it should. I suppose at nearly 91 years of age nothing can be done.

 

I'm off to roll out my pastry now, I'm intending to make a sausage plait with apple and cider - bet it won't turn out quite like that lol.

 

Take care, love Carole xx

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Re: Darling buddies from May - moving on

Hi everyone. Crikey that North/South language divide too, especially when mixed with text talk and prosecco Lisa ha ha. Mind you that's when we hear more from you, so don't be discouraged by our teasing you! We love you just how you are. I've often wondered how students get marked for English language GCSEs in areas with strong dialects?? Are they allowed to use regional terms like wee lassie? I was talking to a lady while out today, who was teaching her grandaughter to say wee rather than little. It did not make any sense to my little pink for whom wee means find the potty bloody quick or Next is going to have a minor flood. Don't the Scots use the term wee for going to the loo?? I am curious now. Lisa are you far enough North to answer this one? I loved the idea of your dad, arms folded outside the surgery 30 minutes before they open and the receptionists saying oh crikey he's out there again and you getting an appointment instantly ha ha. I wish my dad was still here, he would have done that for me too. Shame the US holiday changed but you know you will still love it. The big apple oooh I want to go back, fantastic trip to add in. Enjoy Palma too and choose yourself a nice roomy who sleeps the same amount as you and who you don't mind seeing you semi naked. I have to share a room for Eds hen do and they are trying to get me to share with a relative on the other side who is very nice but I'm a bit scared. I was told don't worry she snores and farts a lot!!!!! Well does that sound like a roomy to pick??? I wanted to go with one of my girls who will forgive me anything I do!! I was hoping to see a bit of the eclipse but ten tons of cloud here so no chance. Carole did you have any luck? How's the weather with you? Nicky how lovely that ED is on maternity leave now, although that's when I started to consider labour, oooooh. So much better to be ignorant first go in my opinion and after that you make an informed choice but it improves over pregnancies for most folk. I heard that number 5 is like number 1 and hung my boots up after number 4. Think by then Victor was nearly having a breakdown anyway when left on his own with them ha ha. Nicky I am surprised about the lashes and brows because mine stayed throughout and I always attributed that to the cold cap. Clearly not always the case. False lashes are really good now aren't they, did you think about the semi permanent ones? ED has had her eyebrows tatooed as hers are so thin she has to use pencil every day. They are amazing and people all want theirs done after seeing how they look. Might not be allowed while on treatment though, thinking about needles. Maybe after this course if they are slower coming back than you would like. i went on a look good feel good course and they showed us how to do great brows. Have you ever been on one? Lots of lovely free gifts, even Chanel on ours. Good luck with your dose this week and hope you feel well enough for the carfest. I hadn't heard of it so looked it up and note it is right in your area so should be a good day out without too much travelling time. We are just emptying the town of the V festival campers so no pounding beat to rock me off to sleep tonight. I have heard that Jay Z and Pink put on good shows, son went to see Banksy and loved it. Had to have the day off work to recover so must have been good night dancing to his music. I watched them going out in a mixture of girls in spangly scratchy hot pants and braless tops and the blokes in comfy shorts, walking boots, bandanas and waterproof jackets and decided its not a fair world!! Hugs Lily xxx

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Re: Darling buddies from May - moving on

Goodness Lisa, that took a lot of translating ha ha!! I'm almost fluent in Cumbrian by now but I got thrown in a couple of places.  Only joking, I don't even try to use my phone to post on here and I have to watch out for auto corrections or (un)preditable spellings.

Glad you have another big trip to look forward to but what a shame that you have to spend 3 days in NYC ;-)

Enjoy Palma Niova, I first went there when it was quite a sleepy town in the 70's, our first holiday abroad, but it has since been engulfed by Magalluf which was fairly 'British' even then.  Having said that we (OH) and I have enjoyed our most recent trips to Majorca and  especially the city, Palma.  Lots of good transport using buses so you can easily visit for a night out and try the tapas bars - very pretty at night.  Weather should still be quite toasty I think as southern parts of Spain (and Balearics) don't cool down till about November.

Hope this gives you light at the end of the tunnel to look forward to as work sounds very busy with lots of changes going on.

Cold cap is keeping the hair from falling out any more and it is growing and, dare I say it, covering the areas where it did fall out/thin.  Only trouble is that this chemo has made all my eyelashes and brows fall out.  This has never happened before, I've always been able to keep quite a lot of the hair there and I've only just had the same number of cycles as the oither chemios I've had that did make all my head hair fall out.  Very strange and I've resorted to false eyelashes - which do look completely natural by the way as I've not gone over the top with the ones I use day to day - but do have a set of party lashes :-)

Nothing else to report other than I start round 7 of the chemo this week and will try to stay awake at Carfest on Friday as we have day tickets - but ordered them last year (as with the athletics) ages before I even knew I'd be on this chemo.

Nicky x

 

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Re: Darling buddies from May - moving on

Hi all, thought ice post tonight when I have just cracked the wine open and not put to on yet because once that happens I'm tired and sick of looking at computers..

 

not much news news from me, still have a sore eye which is blurry and gunk your, goes through stages but I've got something called bletheritis so need to take more care and get a routine sorted and see if helps. Headaches eased off though, think they are stress related.

 

Work is manic, non stop and huge amount of learning, all our governance arrangement weren't up to scratch so working with consultant and involved in that but comms still aren't great so it's all a bit strange and I'm trying to do co. Secretary and health and safety and policies so I think they recognise that needs to change as too much. Boss official retires this week but been on gardening leave for few months so off to see him on Monday.

 

hols , well you know me love a good planning session but trying to please 9 friends resulted in chaos esp. as we all haven't been away together for about 15 years... trashy Palma nova here we come but hotel seems nice and 4 nights all inclusive so it may get load and messy, 21st September so hope the weather holds out..

 

next years is booked too, all excited having a sort of year off from Florida, so decided vegas, California and Hollywood, all ideas planned and brother and co. Decided the wouldmquite like to come to Florida with us again whilst my niece is obsessed with with Harry Potter, so it's Florida now and at Easter so most expensive time but found a cheaper flight back via New York so 3 nights in New York has been added to the hols 😘😘😘😘

 

carole, still jeleous of your weather and keep us updated re when you can plan visits, love the smell of new born babies but they are so fragile scare me lol..... spesh when people are watching how I handle them as not a parent.

 

nicky, glad you've got some days off from treatment, how is the cold cap working for you, I never bothered and always wondered if I should have, when I was on tax hair started growing back really quickly. Nice that your daughter isn't finishing work and I bet  you are really excited about the new arrival, lots of hugs and cuddles. So where are you planning for next trip, love your trips...

 

lily, how was your hols, thinkmive missed a chunk of message she on here? Glad your back on line too... sound roughy still with your mum and brother not helping much, always falls to one I think.... have you anymore plans for the school hols? Weather has been awful here.

 

well laughing at the doctors appointments, ours have to know your ill 3 weeks in advance to get an appointment, doesn't help when it takes 4 times to get your bloods lol. You can get an appointment on the day but only save 3 and phone is constantly engaged at 8am when open so dad usually goes down and stands outside at 7.30am, break through last week, get a text to say now an app for our doctors and can book appointments, couldn't not find any, text them, not working yet but you can use it to write a reminder down when prescription due then phone them to order it..... rocket science eh lol.

 

well off for my wine, it is Friday and my fix of pretty little liars as finished prison break and lucifer.... no lap top this week either so weekend void of work.

 

have a lovely weekend all, sorry for typos and very long post, not even rereading it, but hey you like the challenge of working out what I mean....... good job it doesn't need come with a Cumbrian accent.

 

xxxxxx

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Re: Darling buddies from May - moving on

Morning from a dull and damp UK! Nothing like as nice as you have Carole and not a holiday in sight for me for a while. Where are you planning Lisa? Hope work isn't too manic, especially with the changes that have been made and that you are coping OK and not getting stressed. None of us need stress! But we do all seem to get it however hard we might try.

Ive been enjoying my 10 days away from hospitals and just pottering away, no real plans but getting on with some of the things that we all put off. Weather was Ok yesterday but in for a few wet days it seems - always in the school holidays! You must hate it Lily, the one time you want to be out with the littlies and have the time, the heavens open although, as you say, it's not cold, just a bit muggy when it's overcast. No doubt a nice September if previous years are to go by.

ED finished work, at long last, yesterday which will be good as she has a bit of a drive when she has to go into the office and getting a bit achey doing that. So, about a month to go which I hope she gets to enjoy and baby doesn't arrive early. I had 2 weeks off, with her, before being admitted to hospital and not coming out until 3 weeks later having had a very prem baby so I never did get that time off to myself before becoming a Mum as second time around you of course have a toddler in tow. Carole, it is difficult to plan isn't it, especially when travel is involved. We're the same trying to have a late holiday but not booking anything until we know when the baby has arrived and although I'm sure I will want to see him a lot OH and I still want our break! For you I expect it will depend on how close you are to your DIL. It can be a bit difficult whereas with your own family you know exactly where you stand and they know as well that they can say or tell you things without causing offence - well, let's hope so! Luckily ED loves about 5 mins away so I can pop in as much as she wants or needs without committing to set times. Also her OH is off for quite a while after the birth (how on earth did WE all cope before any form of paternity leave was given?) so I will be giving them space to become a family but of course on hand for advice and no doubt help! Well, that's the plan.

Anyway better get started on my list for today, I'd never remember any of it if I didn't write it down.

Nicky x

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Re: Darling buddies from May - moving on

Hi everyone. I have been having IT problems after a windows 10 update deleted  everything under the sun on here. I hate computers. Victor has been flat out trying to get it back but we lost edge for now, so back on good old internet explorer. Well I was annoyed at first but I have old favourites logged on there and found that treatment survival calculator someone sent us years/forums ago so I have been playing around with it, to see if another treatment would have changed anything. Do you remember you can put in all your dx details and it gives you bar charts and pictograms. then you can change the years, etc. You are supposed to be a Dr but hey you call me Dr Lily so I figured I had sufficient experience to cope, fascinating. Anyway i am back! Lisa are you planning another holiday, if yes where to? Carole I am trying to empathise and I was nearly there until you mentioned 33C and then i got far too jealous. Its just cloudy here but still in t shirts and shorts. Are you in your pool again yet? I think the when to visit the baby depends on the person/couple. If its your daughte in law tread very carefully. If its your daughter I think you will already know. Mine wanted me there as soon as they were born and then said come any time but ring first in case other visitors or midwife visit. All of their partners would be trying to get me doing nappies instead of them but some folk are more keen to close rank and have some alone time or are anxious about letting people watch until they feel confident. First time breast feeders need a huge amount of support as they have that wait for the milk and then when it comes they have a blues day and cry a lot. If its not a first then its already a busy house and noisy so next babies just slot into the noise from day 1. I think that's why a lot are better sleepers. I get very excited about babies int he family so I am pleased you both have such happy exciting times ahead. We have the wedding this year and I think if things go to plan we might see  more babies after that. We will see what they decide. Nick yes I hat having to deal with dr surgeries, so stressful but what's the point when they are supposed to be helping you stay healthy!! Ours have put a new screen up as you could literally hear everything they said about other patients. You don't want the world to know you are booking a smear test really. I found out they had forgotten me and I am 15 months overdue, something I am not happy about. That mad eme wonder when I am due a mammo and I can't remember how oftern you get called, I am on the national register for all women now, kicked off the more frequent list despite my protestations. Yes we had a missed appointment sign and it went down dramatically after that. Ridiculous not to cancel. My brother is not in my good books as he left his dog with mum and I had to do an second trip there tonight to let it out as she felt ill and her speech went crazy today. It happens occasionally but there is always the worry its another biggy so I went. Yes I agree with the funding argument and its a good thing you are under the Marsden wing. Are your 2ndary friends under there too or does it have to be an unusual case unless you live in the area? How are you getting on with the cold cap? Has it worked for you? I used to have a scarf as I used to hate little bits of ice sliding down my neck at the start and end. They have probably updated the models by now though. Fabtastic about the athletic seats. 2 of my friends went to see Bolt and Mo, I haven't seen them to ask if it was very emotional in the arena. I watched at home, mixed emotions. Hope you manage to get a break some time but will you even want to go when the little chap arrives?? Have you decided what you want to be called by your grandson? Hugs to all. Lily xx

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Re: Darling buddies from May - moving on

Hi all, will have a catch up tomorrow. Sorry been manic with work and hols plans. Hope everyone well xxx

 

Community Champion

Re: Darling buddies from May - moving on

Hi all

 

I've been quiet as I don't have much news to report. The weather has been crazy, the last 3 days of last week were cold and very autumnal, one day I even lit the wood fire as sitting around made me feel very cold.   However, today is lovely and sunny again and expected to go to 33 degrees. The problem with the swimming pool is that it needs around 3 days of that temperature to reach a nice warm 26 degrees, which is just right for swimming but with temperature keep upping and downing, it is not reaching a warm enough temp to swim.

 

Lily I bet you are lost for words with your brother's actions!   Mine is pretty much the same.   As for the doctors, well that seems ridiculous how your Mum was treated, my Mum is always complaining about her doctors surgery so perhaps her complaints are justified if your Mum is anything to go by.

 

Nicky I know what you mean about a baby arriving, no one knows exactly when it will be.   I would like to get a flight booked to get over to see them, but first must allow her Mum to spend time with the baby so will have to take a step back until our grandaughter is probably a few weeks old.   I love newborns!!

 

Hope everyone is ok?   Signing out for now love Carole xx

 

 

 

 

 

 

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Re: Darling buddies from May - moving on

What a bloody shambles Lily, good job you weren't being checked out for high BP as I expect it really was through the roof. Aren't receptionists the gate keeper? Trying to keep Drs and patients separated! I must admit I hear a lot of horror stories about how difficult it is to get appointments but our GP surgery seems to be able to fit you in fairly quickly either as a non urgent appointment or the same day if it is urgent but you don't have to phone as soon as they open to get an appointment. They run a phone appointment service which used to annoy me but does help cutting down the wasted appointment time that some patients would have taken up when all they need to do is talk to the Dr to ascertain if it's urgent or not. Also our surgery publishes its number of missed appointments each month and I'd like to give a piece of my mind to all those patients who couldn't be bothered to let them know they wouldn't be coming to their appointment.

As to your brother, well, best left for you to deal with him but I no wonder you were/are fuming.

You asked about self funding, well, yes I can but I have no I idea of the costs involved. Our chemo unit is happy to treat me if I did do this. However unlike primary BC it's an ongoing treatment rather than a fixed number of cycles so it could really stretch us financially. I would be able to get the same drugs on the NHS at the Marsden however, as part of the trials they run, so for the cost of petrol and parking plus more travel time, I think that's the way to go.

I am now on my 10 days sabbatical, ha ha. Just a gap in between cycles. All went very smoothly this Wednesday so much so I walked down the corridor towards the chemo ward, shown my seat and immediately one of the nurses was there with the portacath trolley to get me hooked up. Cold cap on and ready to go. Just as well as we were off that evening to watch the world athletics - yes, the only night it poured down but you don't know that a year in advance when you order your tickets! We had seats way up in the gods so went all the way up loads of steps to end up not finding them and annoying lots of people already in their seats as we shuffled along looking for them. Then went all the way back down again to speak to the volunteer who had said where they were. She went off for ages to speak to someone and we were getting a bit impatient waiting around when things were obviously going on inside the track. Anyway she comes back with the team leader who had some special seats we could have instead and we ended up around the other side of the stadium right in front of the podium on the home straight!!! Fantastic seats and so close to the action, well worth going up there for. Luckily all the seats are under cover so we didn't get wet watching, just traipsing back and forward from the station. We stayed up there in one of the budget hotels which was a good move as getting back home that late at night would have been a pain. So, a little mini break, but not a glimpse of sun anywhere!

Carole, yes, wouldn't that be amazing! ED is due 14th but, as we have learnt only about 5% of first borns come on their due date. All this is of course lovely but it does scupper us for our usual late summer holiday! Can't book for 2 weeks beforehand in case she's early and can't book for 2 weeks after in case she's late. Coupled with the likelihood of me changing treatments around the same time which will involve me having even more appointments I'm not sure we'll even get away for some late sun. If we did have a glorious September weather wise we could of course stay in the UK which isn't such a problem, it's just if we go abroad. And it's not just me wishing for some relaxing time away from hospitals etc it's also OH who needs a break from his job which is why we usually do a few shorter breaks earlier in the year, not so much in the school holidays (did too much of that when the girls were at school!) and then go away later.

Anyway enough of my moaning, have a good weekend and hope the sun shines even if the temperature is a bit chilly!

Nicky x

 

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Re: Darling buddies from May - moving on

Hi everyone, how are you this week? I have been very puzzled by our dreadful weather, even hailstones earlier this week, when MD was on the SE coast and was sending me snaps of blue skies and them on the beach. Bizarre.I feel quite chilly in the evenings, not sure if its just me or the temperature. I have been furious with my brother who I left in charge of the oldies for my 7 annual days off, pre-booked with him 6 months ahead so one of us is available for a crisis. So I was not impressed when YD told me that he had flown out the country while I was still away and mum had fallen. I also got 4 calls about my other oldy with a flood and then no power. He told me he made a mistake and I told him I had said a lot of very rude things about him, leaving my kids to have sort everyone out. Hmmm and now he has gone again on holiday again. Grrrrrr. It has taken me this long to be able to type about it without sending my bp through the roof. Had to take mum to the dr again today. We were left waiting for ages so I enquired why and was told we were 90 minutes early. I said I don't think so, it was definitely agreed. Receptionist said she would email the dr and see if we could be seen early, then waved yes. When we got in there we had been sent to the wrong dr to see a lady with the same surname. Even the dr couldn't get the receptionist to answer the phone to sort it out (no surprise there). So she went off to sort it out and told us we had now missed our appointment because they hadn't logges us as arriving. Mum was hysterical so there was no getting rid of us as she said don't bother with me you clearly don't want to see me. I might as well be dead! So we were senn and came out with antibiotics, so clearly that's how you get them these days ha ha. As we went out the 97 year old lady was trotting in and fortunately got her appointment. The receptioinist said what's the chance of 2 people with the same surname having an appointment on the same day? I didn't trust myself to respond and be polite. Then they said your mum needs a review and can't have any more prescriptions until it is done. When can i bring her in I said? Sorry we are booked up 4 weeks ahead and don't have any appointments for you, they replied. You will have to ring at 8am every day and see if you can get an on the day appointment.   I was speechless. Too many patients and not enough doctors. What a rubbish service.

On a much more pleasant matter it would be sweet if they arrived on the same day. I hope both mums to be are keeping well. I see the bad weather is with you too Carole, any improvement yet? Nick how are you doing this week?  Lisa how are you? Hooray the decorating plans are underway with a plastere booked to skim the ceiling and hopefully get rid of an annoying crack. Might fill it with the receptionistSmiley Happy Lily xx

 

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Re: Darling buddies from May - moving on

Hi all

 

Welcome home Lily, goodness I bet that week went quick for you, like Nicky I thought you'd be away a bit longer and didn't realise it was a week already.   Crete sounds interesting, was it very hot?   The ancient site of Lato certainly sounds interesting, and I remember writing about Knossos when I used to do the travel guides.   It seems as though you've had plenty of historical and mythological sites to visit, how lovely.  Now back to reality!

 

Nicky and Lisa, how are you both doing?   Nicky wouldn't it be funny if your grandson is born on the same day as our grandaughter?

 

Not much news from me, things are very quiet here.   Weather changeable since yesterday and we had a fantastic thunderstorm overnight.   In some ways it is nice to be cooler at only 23 degrees.

 

Signing off now, take care everyone xxx

 

 

Community Champion

Re: Darling buddies from May - moving on

Hi everyone, hope you are all ok. Yes it was a good place to visit and probably helpful to only get to 32C otherwise we would never have managed long in those big sun trap archeological sites. You know what I mean Carole! Pompei is much bigger. I need to work on keeping my tan moisturised because there is not enough sun here to top it up. I have had to look out jumpers, cardigans and socks for the evenings as feeling a bit chilly. I think next week is supposed to be warmer, fingers crossed. Its so annoying if it warms in September  when I go back to work.  Nick I'm sorry to hear about the peripheral neuropathy is starting and good plan to mention it, so a decision can be made before you get left with worse effects. Although I know you will be keen to complete the full course if you can. I guess they will weigh up the pros and cons of each scenario first and then advise you. You have done really well to get through 6 double doses. I remember struggling a bit in the later ones as they just go on but it was the blood tests and wasted time that got me most. Its encouraging to hear about these ladies breaking all the rules and keeping going on treatments. Good for them. It sounds like you have a lot of other options, should you need them, which must be reassuring to hear. then there are different combinations with the ones you have already had. That's without the new ones coming in all the time. I don't know if your unit/onc would oblige but my onc always said I could get a drug from anywhere privately if I had the means to pay, if not given on NHS and he would do the rest. Its big money though but is worth looking into and finding out more if faslodex becomes something you want to try. It annoys me that people can't just have anything that would help them.It shouldn't come down to money grrr. Yes I always understood that my low hormone figures meant that the tablets were not going to be as effective for me. Glad that yours are high to give you greater effectiveness.  it will be lovely to have your little grandson to coo and fuss over. Is he due early September just so I know when to start a countdown Smiley Happy . I have to say it is the most anxious time when daughters go into labour, worse than doing it yourself, not that i thought that was possible at the time! I think everyone is different about what help they want and also it depends on their labour and confidence. Ifthey have spent much time regularly around new babies they already have a lot of knowledge and confidence, compared to someone who hasn't. Victor had never even held a babyso he was a complete nervous wreck! I bought all of mine a couple of books in their latestages of pregnancy and they found them really helpful, both to plan ahead what to expect and also to look things up when they were having an anxious moment and wanted to know if something was normal. What an exciting time, I love it when babies are due and the tiny new babies are one of my favourite parts. It is potty training non-stop here with all 3 of our youngest ones attempting to be dry. They were born in the same year so everyone takes a potty wherever we go. They all like their own one too. Our little pink one has to go commando as she can only stay dry if wearing no pants or nappies. Once one goes, they all start and everyone wants to wee ha ha. At last I am getting going on decorating again after receiving a large tax refund. The bullies would not believe me and over taxed me for the whole year. I am getting our bedroom ceining replastered to get rid of a persistent crack. Hope it works if they tape it. Anyone had any success with this method? Then I need to go to choose wallpaper and decide on a colour theme. i think I will just see what wallpaper I fall in love with and decide the colour scheme from that. Also changing the carpet which is the original from when we moved in and i didn't much like it then, so well overdue for the skip! Have a good week. Good luck with the next dose Nick. Lily xx

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Re: Darling buddies from May - moving on

HiLily and welcome home, I had expected you to be back next week but I know you said it's difficult for Victor to get so much time off now he's doing his own thing. Wow, you packed a lot in! I think I would have just sunbathed all week ha ha. Interestingly the real heat wave is missing parts of Greece and hitting Southern Europe more so you orobably got away a bit lightly than some. Anyway you're back now to enjoy seeing the family for the rest of the holidays which is good. Very fascinating about the sights (sites?) you visited in Crete, I used to live reading the stories of Greek Mythology when I was younger  but unfortunately haven't remembered all the gods and their attributes although everyone must have heard of Hercules.

Yes, I'm on cycle 6 at the moment, second dose next week. I will continue with the GCSF injections but not on such a regime, just enough to boost the but not suffer the knock on effects. Although I've not had peripheral neuropathy on  any of the other chemo's I've had that lost it I do think it's just coming on now, in fact I mentioned it to OH the other day. I will let my onc know when I next see him but hopefully be able to continue through to the 8 cycles that has been suggested. Funnily enough there is another lady on this regime who has just done her 17th cycle! The longest I've ever heard and most oncs don't prescribe for as long so presumably she copes well with it. If I go onto a trail it will be at the Marsden, our local hospital is not a research one so they don't run trials. It will be a faff having to travel there but I feel more positive and strong than I did earlier in the year when j was about to embark on one so mentally I hope it puts me in a good place. Also I was chatting to my own onc and asked him what he would do next (as I can't get faslodex locally as its not NICE listed) and he said there were other chemo's still available and I had also forgotten I haven't has all the hormones (yet!). I am 8/8 ER and 6/8 PR which is important as I read many years ago that you respond better to hormone treatment  if you are highly PR as well as ER+.

Enough about me!

Lisa - well done you with the weight loss. I have to admit I couldn't understand what you had written and just thought it was one of you little expressions ha ha. Thank you Carole for interpreting! Keep at it as its always difficult to get the weight to start coming off but once it does it gives you more motivation to keep at it.

Carole- way too hot for me! Keep cooling off in the pool. Sorry to hear about the leg cramps, ED suffers with restless legs and loses a lot of sleep which doesn't help. Have you had certain mineral elements tested in your bloods, like zinc and potassium? I'm sure I've read that taking supplements of these types of things can help with cramping.

Well, we're just going about our usual stuff, no holidays now until after the baby (boy) arrives in September. Hoping to go a way afterwards but will want to be around to help out a but afterwards as wel, if needed. I was saying to OH that I was pretty much on my own, as most of us were with our own baby's, as he didn't have paternity leave, just a couple of days off. So I'm sure she will manage when he OH is off and they need to have their own time together, not have the MIL poking her nose in!

Nicky x