Hi a lol, m back in land of living just, been wiped out since Sunday esp. with work, but wow I've missed your op totally nicky as didn't have to get on whilst away. Glad to see your resting and good luck with the check up, you are one tough cookie xxx
catch up on rest of goss tomorrow, of to land of nod xxxLISA
Hi Nicky, yes I often think we worry about the op and don't think nearly so much about afterwards. I always find that the initial recovery seems amazingly fast which makes you feel really optimistic about getting back to normal but its then followed by a much slower recovery stage as the deeper healing takes place. That part is the more frustrating part when you see much slower changes. It sounds like you have been through it then. Not sure tablets can ever get close to the power of iv drugs. Are you feeling more in control of the pain now? I hope so xx.Definitely listen to your body as I am sure your liver would not appreciate fine wines for a bit. I think the seta belt part might be 6 weeks like most big ops and anaesthetics, but might be a little more because of the position.Get the senna tablets out if the drugs continue to make your innards a bit sluggish. It works really well when you need it to. Keep me up to date on your progress and appointments. Is the district nurse popping in to check you out? Sad news about the cat but I guess it could have been a lot worse than his tail. I hope it all goes to plan and that he is insured.Thanks ed has 2 job offers which don't pay enough to live on and an interview for a job in a big firm who want a receptionist/organiser type role. I hope she gets it but you never know who you are up against and it is not her professional field.Time will tell. I have had such a sore throat which turned into the most annoying cough that started as soon as I got into bed each night. I have struggled to even get an hour of sleep in one go and then that started the acid problems off. The girls tell me that they say to put vic on children's feet to stop a cough! It sounds crazy i thought but this came back to me at 2.45 am when I was sitting in the bathroom being sick through coughing. Would you believe it works for big people too??? The whole room stinks and Victor says I am killing him with the fumes but at least we can sleep at last Take care of yourself love Lily xx
Gradually feeling a bit better day by day. I think overall it would have been better to have stayed in hospital longer as the transition from on-tap IV painkillers to oral ones has been rather uncomfortable to say the least. Generally moving around though much more comfortably and getting better sleep, although still quite uncomfortable at times. I go back next week for a check up with the surgeon, he says they do it sooner rather than later presumably to sort any problems out. I will ask then about driving and other precautions I might need to take. One thing at the moment is I don’t even fancy a drink so it must be my body telling me to wait for full recovery! Not that I was expecting or needing to imbibe but just goes to show how your own body tells you what to do. Eating lots of protein and off the carbs rich diet that hospitals give you which is no good for bed ridden patients who can’t go to the loo! Tablets are OK to take but I expect at the moment some of my liver function tests will be raised as it is under a lot of stress and one in particular shows this up. Generally bloods were OK whilst in hospital so the op itself didn’t bring down other readings for platelets, etc.
I managed to catch up with some of the Commonwealth Games but mainly on catch up or the edited programmes as most things I would choose to watch were on at ridiculous o’clock - understandably as it’s their time not ours. Now just trying to fill the days whilst recuperating and not getting bored. In hospital I was so wired out and spaced out on painkillers etc that I had no time to get bored, plus of course all the checks they do all the time. If the sun ever does come out I will sit outside for a bit as a bit of Vit D is good for the healing process.
On a bit of a sad note our EDs cat, which we used to have at ours as a kitten, wasn’t acting very well yesterday. They took him to the vets and they said he had been hit by a car ☹️ Obviously a glancing blow but his tail is broken and they had to keep him in to see if he had any other injuries. Luckily (being a cat he has 9 lives) he has passed urine which was their main concern but he is having his tail amputated today poor thing. This, we were told, is because he won’t have any feeling in it therefore could get it trapped etc which would cause lots of problems. Lots of TLC coming his way and hopefully he has learnt his lesson and will stay nearer his house where there are lots of hunting and killing opportunities!
ps hope your ED finds something she likes soon, Lily x
Hi everyone, how aere things with you/ I love the warmer weather coming in this week and hope it stays. Would have been nice to have a warm week away like Lisa. Carole has it warmed up in France too?
Nicky, how are you getting on with your convalescence after the op? That changeover to relying on tablets for painkillers can be tricky, so hope it is covering the discomfort enough but allowing you to be more with it. Are you able to drink and eat ok or not got an appetitie yet? Lots of protein needed if you can manage it, to help repair the body. What happens about taking tablets and alcohol, do you have a set amount of time you have to be careful for, or does it depend on blood results to gauge the speed of recovery of your liver?
Well I hope you are all ok. I don't seem to have had time to watch hardly any of the games on tv and just hear results on the news. Mum is hooked to thetv so she is getting a lot of enjoyment from watching it. Ed has been made redundant, which has been disappointing but she is looking around for new opportunities and has had a couple of offers already. Just waiting for one that fits in with childcare too as she is part time. Take care Lily xxx
Hi Nicky, I'm glad you now feel up to a post, another good sign. I won't repeat all my previous pm and text good wishes and nags to be sensible and not try to do too much too quickly. I am sure you are fed up me playing mum to you ha ha. Just really good to have you so well, so quickly and at home where you always pick up the quickest. I hope this turns out to be a big turnaround point for your treatment, as you really deserve it. Take care. That's an order. Hugs. Love Lily xx
A very quick update from a very tired person!
My op went ahead as planned on Monday and luckily wasn’t as complicated/involved as the surgeon had thought so less of my liver was removed. They did get all the visible lesions (presumably there’s others too tiny to see!) which is good. It currently feels like he had a good old rummage in there, chucked things around a bit and then put me back together! I think it’s called bruising. So the op wasn’t as long as it could have been and I was back in the recovery (HDU) by lunchtime, totally spaced out but looked after by great staff until the next morning when I went up to the general surgical ward. They continued to do a great job on there and gradually removed all the tubes etc until i was allowed home yesterday evening. A bit of a shock not having IV pain relief but good to get home and start recovering. Still very tired, after all you don’t actually sleep in hospital so, after 4 nights of disturbed sleep I’m spending the time now catching up with sleep and gently exercising as the physio has instructed.
Will catch up with you all in a day or so. Looks like we will be getting a bit of sun as well Carole ☀️. A shame for all the school kids (and teachers) going back next week but great for me to sit out in!
Hi all, just a quick hello from me mainly to say good luck to Nicky, remember that a 9 hour surgery will still only feel like an hour to you. Hope you make a speedy recovery and will get back home soon. Lots of hugs xxx
Thank you Lily for your words about YD. Lisa is still posting photos from her hols and gosh it seems like she's been away forever
Wishing everyone a great weekend. Hoping for some sun here and for you all too.
Love Carole xxx
Hi Carole, I meant to say congratulations about your daughter. She has done so well and what a great help she will be translating for medicals. She will help so many people and reassure them in a time of need. Yes it is windows 10 here too but I have to use it quite a bit at school so at least some is familiar. Still trying to find documents though.Computers are so necesary but so annoying too! I have to find my own payslip and print it off now, instead of a welcome little envelope in my pigeonhole. I wish I could be organised and have a password I use for lots of things but never do and have so many to remember now. So annoying but at least if someone gets one they don't get to open the door to everything I guess. When is Lisa back, I have lost track!. Hugs Nick. Love Lily xx
yes I am too, no idea why. Hugs galore. See you soon love Lily xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx
Thanks Lily, have sent a PM xx
Btw is anyone landing on a very old page each time they access this thread? I’m ending up on one of the earliest pages - which was way back in 2009!
See you all soon
Hi NIck, blazing the trail to help the next generation, as always. I am really pleased that they have given you this opportunity as It has been in your mind for quite a while now. Any op is daunting but it sounds like you couldn't be in better hands, so to speak. Very fortunate to be in a specialist area for this. Strangely I was asked if I knew anyone who would be a liver donor and read a little about it. I was rather shocked that the donor only keeps one third and gives away 2 thirds of the liver. So it seems we can manage with quite a small amount and then it regenerates. So you will sail through your part. Please pm me details of when you go in, as I want to be sending you my best 'white witch healing power'!!! Maybe someone could send me a text to say its done if you still have my mob number, or I can resend it. I would like to support you through it all if I can help in any small way. Brave girl and I hope that you will be rewarded with some good news that makes it all worthwhile. Hugs Lily xxx
Glad you all had good breaks over Easter - and you might still be enjoying yours Lisa, not sure when you get back. All sounds very good with a change of scenery for all and a chance to catch up with family.
We have stayed at home over the Easter period, seeing family and friends but generally just getting everything in order as I have my Big Op next week 😬. I have kept quiet about it as I am not really broadcasting the fact on other areas of the forum (although will be happy to do so once it’s over and done with). I had a consultation the other week with the surgeon who said if I were his sister he would recommend to have it done. It was originally planned for earlier this week but as he wants to do the op himself he realised he wouldn’t be in so it is next week. I’ve had my pre assessment and also agreed to take part in some research which is to deter,one if a different type of MRI scan will detect liver cancer better than the current ones so I’m still being involved in things that should help future generations. This will be a major op lasting some hours with a reasonably long stay in hospital afterwards, although our expert team seem to think I will be out pretty quickly as I live so close to the hospital and will have someone at home with me for the first few days after I get home. They are real experts in this type of surgery and people from all over the country come to our hospital to have this op done and the surgeon doing the op is the top dog 🐶 so I’m in good hands - but pretty scared of the whole thing! If Dr Lily, or any of you, want to find out more the op is called a liver resection so you can look it up online. I will be out of cyber action for some time so don’t be alarmed however I will be back in touch once I’m out of the HDU and being thoroughly bored by my spell in hospital. No driving or heavy lifting for several weeks after so even more boredom but I understand I need to get out and walk to aid recovery so I hope to be super fit as well 😀
Anyway, onwards with a coupe of days of getting everything in place, including the garden so I can sit out once the sun arrives (it’s gone back into hiding after 2 lovely sunny days) without looking at it in frustration that I can’t do anything to make it look better!
Take care all
Hi buddies, looks like you got told off Carole ha ha, although she did it very nicely compared to some of our interventions (I am appreciating that bec, in case text talk makes it seem otherwise). I recall a rather eager e-cop chastising me for saying bloody some years back, as we all know I like a good long b text at times. Its a good thing really, a good bc friend of mine stopped posting on here after a shocking reply from a troll after she revealed she was a widow. We do need people on the case at times.
Anyway back on track, I am just back from the big family holiday and my much treasured week with all my littles and bigs too. We ahd a variety of relatives pop in to visit as well as we were really near enough to home for a day trip. We took all the dogs too and were so pleased to find a local pub that allowed dogs to sit under tables, so we could eat out quite a lot. I was most pleased being head chef ! I am surveying the washing mountain and trying to work out the minimum number of loads to cover the variety of fabrics and colours. Do you do that? I hate putting it on for a couple of items. Anyway it was black, white or other. We will see if all items survive the groupings, before being tumbled, no matter what the label says. I had an interesting conversation with Victor about his Brittney Spears cropped top and stomach sliding out!! He says I tumble everything and shrink it. I said I think more body is trying to squash into it, ha ha. I am doind penance for having been on holiday and leaving mum, so will be busy trying to get her cheerful again. Don't suggest we take her, I still haven't forgotten the last time we did. Carole will have a deeper understanding of this. Carole nice you have some brighter weather, are you planting yet? Take care this year as the pup sounds like it might try to help by digging them back up again. Don't forget some bulbs like daffodils can kill dogs if they eat them. Obviously not poisonous to squirrels though as they have dug up almost all of my new bulbs and left holes all over the garden, so disappointing. Nick are you getting on ok with the latest drugs? Are they fairly use friendly with regard to s/e? Any news yet about other options they might consider? Brilliant news about your decade, mine was in Feb. I am a little superstitious but told a few people. You buddies have been incredible friends to have, through good and bad spells. So very very nice to have someone who will always understand and have a kind and helpful word or advice to offer. I don't know what I would do without you all. Special thoughts to our many friends who didn't get to today but have helped shape medicine for next generations by bravely soldiering on, so the drs could keep pushing the BC stats up so well in our 10 years, and the next. With much love Lily xxxx
Just to let you know I edited out a hospital name / location you mentioned in your post, we generally do this to protect the identities of users on our open Forum.
Thanks a lot for your post, Becca at Breast Cancer Care.
Nicky, I had forgotten that you had already had BC before the rest of us, it's strange though isn't it how diagnosis dates never leave us. It has been a pleasure for me to know you all, albeit by internet. Hope you have had a chance to catch up on some rest.
Lily how are you getting on with your new computer? Is it a windows one or Mac? I ask because I found it difficult at first to get the hang of windows 10 when I replaced my laptop 2 years ago. Some things about it are still odd.
Lisa seems to be having a great time with lots of photos on FB.
We had a nice time seeing YD in Lyon, although the mobile home we stayed in was a bit dowdy and as we were in the mountains it was freezing at night. The 2 bedrooms did not have any heating Still, we saw some sunshine during the day.
Since we arrived back home on Monday afternoon we have had a couple of very nice days here, the sun is lovely and quite warm too. Pup is still getting me up at night, but I'm trying to extend the time. His nibbling is the same and I think he gets quite cross with the soreness of teething.
Our GD is teething, but doesn't have any as yet. I get lots of photos all the time and she is so smiley and happy, a real cutie. They are very lucky to have such an easy baby.
YD has finished her 2nd year of her Masters, but at the moment she is doing training as part of the studies with a gynie dr. She is doing translating for the doctors and the interns (I think they are the equivalent to UK registrars). So in July she will be home again until she finds a job, or decides to become an independent translator. This will take a while before she is earning enough like any self employment. She has final exams in August and September. I am very proud of her dedication for her studying.
Well I'm off to take little pups out for a short walk, usually I end up dragging him as he doesn't seem to like the big wide world yet
Have a good weekend all love Carole xx
Happy Easter everyone. A late message from me as it’s been a hectic 24 hours with babysitting GS at our house then a few visitors before a family meal, phew. No chance for a sit down o4 even a glance at my phone let alone my iPad. Poor little chap seems to be back with teething problems, having already got his bottom two. Luckily for us he was as good as gold last night, just not a happy bunny today 🐰 😟Hope his mum and dad have a good night with him tonight.
Anyway another landmark was reached today with it being exactly 10 years since my secondary diagnosis. What a roller coaster I’ve been on - with more to come I’m sure. Thank you all for being there' our lovely friendship has helped us all at various times and long may it continue.
Hi, well the computer has arrived but my sites and favourites don't seem to be a priority so I am still waiting for them to all be imported for easy use. Just wanted to wish you all a Happy Easter. Lisa I am probably too late but have a fab time. You have got me itching to return to New York. We have been offered a place to stay in Florida if we go some time so that is on the list too. I just struggle so much with the flights.Just come back from a funeral only an hour away and been green as green just from that journey. Hopeless. Carole enjoy your visit and Nicky enjoy your gs time. Sounds like a good time for everyone then
Better get back to packing. I have been getting hilarious accounts of what the littles have put in their cases. They were allowed to pack a little case of whatever they wanted to take extra. I can see us having a boxer pants shortage!! Take care love Lily xx
Enjoy your hols Lisa, lucky you, very jealous. It’s what you need to get away from work for a while and spend time with the family - plus the bonus of sun and retail therapy - what’s not to like!
Carole - enjoy being away visiting YD and do hope your rain stops. Ours has stopped this morning but looks like it is starting again, and continuing all weekend and into next week. Not much fun for anyone. Glad pup is behaving himself a bit more. It is like having a baby again but I’m sure once he is into a routine, especially his toilet training, he will become such a companion for you.
Lily - you enjoy your hols as well (lots of enjoyment on this post ha ha) . You will have a great time in your barn with all the littlies running around. Fingers crossed for the weather so you can all get out and about.
Well we’re not off enjoying ourselves, just at home but will see family over the weekend. GS, who is doing so well, and is the smiley-est baby ever (as I keep saying to his Mum, way more smiley than she was!), is having a sleep over with us on Saturday as ED and SIL are out for a birthday celebration. Just hope I manage a decent nights sleep for when they all arrive for lunch on Easter Sunday! We will be pottering around the house and, weather permitting, sorting out a few things in the garden ready for whenever the sun decides to turn up this year.
Have a great Easter/Pacques where ever you are.
CArol, hope pup is improving xxx
lily, enjoy, barn with all family sounds amazing.
Nicky, hope you are doing okay and having some chill time xxx
well, I'm packed finished work at last, just now and off at 5am. Talk to you all in 17 days but may try and get on line. Big hugs all, miss you xxx
Hi, sorry for my absence but the hard drive crashed and as the computer is 6 now its got to be a new one rather than a repair. Sil managed to save all the data hooray and all the emails but there is a queue for Victor's work laptop as I can't be bothered to bring mine home from work or attempt to use a phone. There are a few around but no idea what their passwords are. Anyway that explains my lack of text.
Nicky glad you had a nice trip even if chilly. Did you visit the baths. I tried the water there yukkk ut you have to do these things once and it was my first visit. Any more news from the latest visits regarding surgical options? Also hope the bum stabbing is manageable, I bet your veins were cheering. Little GS sounds so cute and must give you so much happiness.
Lisa yes we are off when the schools closed, staying in a big barn which has 6 bedrooms and is open plan living space so the noise should be impressive when the littles all get round to hide and seek. I have 2 funerals to go to next week so not a good start but not family so a little easier than some losses. I hope you have a lovely time in Florida and New York. i have to go back!! I am really hooked on the West Wing on tv so really want to try to go round the White House if at all possible on our next trip. i don't think it is easy if you are not American though.
Carole are you sure you got a pedigree pup and not a tiger cub!!! Little devil. Ours didn't like the pet corrector either. Isn't he interested in his toys and chewing them? Mine loved her flavoured puppy 'toy' bones and the rustling and squeeky toys. Even tearing up cardboard like toilet roll inners. It seems a long time to still be crying. Ideas are a hot water bottle (if safe and not very hot) to snuggle up to, lots of cuddly toys (with buttons and dangerous parts removed), the radio on low, something safe to snuggle into. Otherwise go see the vet as he might have tummy ache from a food that doesn't suit him or something? Ours pood for ages and it just suddenly stops. Try a good play and walk as late as possible to tire him out. Also think about what times you feed him as dogs have something whereby their food is evacuated certian time after it eats, so changing the time he feeds may allow him to hold on longer. What part of you is he nipping? If feet, give him your slipper or wear harder shoes. i would definitely enrol in pup classes as soon as he is allowed. Most vets here offer and run them to help with socialisation and problems. Or ask the breeder as the problems may be typical of the breed you picked so they would have ideas too. Good luck. Lily xx
Hi to all
Jobey thank you for offering some advice. The situation isn't much better yet and being as I'm home alone (Mr P works away) I am finding it quite tough. We have some lovely moments but many that are quite exhausting. I'm not one for having animals in the bedroom so will have to put up with it. I'm sure it will get better. He is only 11 weeks old so still very young.
Nicky your break in Bath with the snow and deer sounds picture postcard, I have been to Bath it is a lovely City. It's nice when our little ones can join us at the table. I'm so pleased that you had a lovely birthday.
Lisa, where are you off to?? Well in fact gone by now so have a super time.
Lily how are you? Easter soon so I guess you and the family will be having some time together, is it the Haunted House again this year lol??
I saw my GP yesterday about some abdo problems and am having a CT next week. I guess it could be due to adhesions following operations but it's just a precaution. She also prescribed me some stronger sleeping tablets and boy, last night I was out for the count, very unusual for me. Consequently I didn't hear my little pup but ended up clearing up in his cage this morning, YUK? Getting a good nights sleep has made me feel so much better today.
Better get on with things, love to all Carole xxx
nicky that birthday sounds lovely and the hotel sounds really nice and cozy as it's so bitter out. So you've a few weeks off from the hospital now??
carole, poor you with pup, I'm sure he will settle down lol. Omg the rain on your Facebook post was really heavy.
lily, are you due your wee break soon?
nothing to update on here work is bonkers as ever as we move towards becoming a subsidiary unfortunately the governance all needs to be in place very fast so it's hectic but off on my hols on Tuesday and so ready for it.... hope the snow keeps off as I've seen we are due it again.... we've had none this time round but 35mins away and covered, it's very strange.
off to bed now . Nite nite xx
Just got back from a very snowy stay in a hotel just outside Bath. It looked like a picture postcard with the deer in the deer Park and log fires burning in all the rooms. They had upgraded us to a cosy room in the garden where we had a lounge area with wood burner. Very romantic and just perfect weather for it. A day spent in Bath today doing some extra birthday shopping as OH had given me some spending money. Didn’t buy much but a nice top which I wouldn’t have justified for myself! We had a lovely day on Saturday, my actual birthday, when we went to Winchester with ED, SIL and GS for a lunchtime meal. GS was soooo good and had all the servers coming over him as well as the shop assistants when we went (more) birthday shopping afterwards. He now sits in one of those chairs that you secure to the table so he feels part of the whole meal rather than be stuck in his pushchair or car seat and is much easier to keep entertained.
So, a tiring but very enjoyable birthday and a few weeks off now from hospital visits -last week was jam packed but nothing that I hadn’t expected.
Take care and hope the snow has gone where you are - we had loads on Saturday night and Sunday morning but it’s mostly gone now.
Hi peacock, sorry if I'm butting in but we have had two dogs from puppy's and never crated either , they have both slept up with us from day one as couldn't bear to hear them cry if we shut them down stairs! both golden retrievers , the first one was hard work and woke me several times a night to go out but by 6 months was house trained and slept the night through on our bedroom floor , Gracie our current dog who is now 3 is a darling and from 10 weeks old has slept under our bed or on it with only a handful of accidents in the early days 😊
Nipping is natural with a puppy , easily sorted with a stern shriek from you or a squirt of a wonderful thing called pet corrector , it's a can of compressed air that works a treat! Only have to show it to ours now to stop unwanted behaviour! Good luck with it all and hopefully your pup will soon settle down and give you a nights sleep! Xx
Hi everyone. Happy birthday for tomoorow Nick, hope they all spoil you. Have a lovely day.
Lisa how is the job going? Hope things are working out ok.More snow due tomorrow!! So annoying this year, I want to see spring as going away soon. At this rate I will be packing a dozen jumpers and taking my gloves and scarf. Good luck Carole with the toilet training. That's the only part I find hard work about new pups. Its a long time since I had one and I paid people to come in and take her out on days we both worked or she would go out for the day to family to play with their dogs. It was always too long to leave her until she was much older. I did use the crate though as she was really tiny and the kitchen is big with too many little gaps to get stuck in, so I penned off a play area for her and then the crate when alone for short spells.I didn't really have biters from what you are describing, maybe the puppy bones made of plasticor rubbery compounds. Ours loved the chocolate fragranced one. I hear the golden retrievers are surprisingly the dog that send most owners to A and E so labs might be the same at wanting to hold your hand a bit too much!! Its sweet. I never mind unless its my toes. My neighbour says the chocolates are terribly accident prone and theirs could never be trusted with a small ball without getting into danger. I am pleased you have dogy company again. Lily xx
Hi all, will catch up with goss tomorrow just been manic but popped in to wish belated birthday to nicky. I'm off to bed now although just watched celebrity bake off and can't stop giggling xxx
Hi everyone, how are you all? I am enjoying it being so much warmer, so not happy to hear news of more snow being a possibility. Too much already as far as I am concerned. Carole the pup is certainly keeping you busy and that's brillliant to be clean so far. Our dog was in a crate as well when tiny, it keeps them safe and makes sure they don't over do it. Pups can be quite silly and do too much which I believe can become a joint problm for some of the more leggy breeds. Mothers day was lovely thank you and everyone gave me Nanna cards and gifts on top of the mum ones, so i was extremely spoiled. I saw them all which was most important and I really feel for you being apart Carole. From reading Nicky was one down too. So I was fortunate. We had a huge family meal here and everyone ate exactly what they like best. We call it 'everything out' dinner. The little ones love it. I hadn't realised we had started having titles or themes ha ha. My diet is completely useless as we also had 2 birthdays so cakes galore. i also had a box of personalised really beautiful cup cakes just for me. So hmmm cake every day. Lisa are you on a countdown to your holiday yet? so exciting as it gets closer and the thought of hot sun, fab. Nicky when will you hear about the op? Did they give any indication about whet5her you met some of the requirements or is it all down to the surgeon to decide? I hope you will have the opportunity to put your case forward and discuss it. Or even better. Surgery is a big decision which I am sure they will evaluate very carefully. I guess it is all to do with the position of it, so fingers crossed you get what you want. Keep me posteda nd it would be a nice birthday present to get your wish. i hope you do love Lily xx
Hi Nicky, just in case I don't manage to log in again so I will wish you a happy birthday, I've also read briefly about a liver resection and hope that you will be able to have it. The liver is an amazing organ in that it can regenerate in just a few weeks. Good luck with the appointment.
Hi to everyone else. I'm off for an early night as little choccie has had me on my feet all day.
As a bonus, I've lost 1.6 kilos in the last week. All the running about I am doing has benefits. Exhausting though.
A busy time for you Carole, being a new Mum and all ;-) Hope Aero gives you hours of pleasure and not too many puddles or chewed things. Glad you had a good time in the UK when you visited, sounds like you weren't troubled by the weather.
Well, I had a lovely Mothers Day and made sure ED did as well - her first one. We made sure the two menfolk did the cooking and more importantly the clearing up. OH was very much the sous chef (or most likely the washer-upper) and SIL was the chef but he is very capable. YD had left earlier in the day for a two week holiday to Canada to visit a school friend who is living and working out there at the moment. All very odd without her here, even though she's usually working, especially though as it;'s her birthday today. We will celebrate with her when she gets back.
A few hospital visits this week but nothing too bad. Carole, I'm hoping to have a liver resection (ie cut the bit out with the large lesion in it!) so not another biopsy. One of my appointments is to discuss whether or not it can be done. Otherwise everything is just fairly routine.
Have a good week all, I'm looking forward to another weekend of celebrating, this time its my birthday, hooray.
Hi everyone. Carole returning to the new puppy must have made it a bit easier to say goodbye to everyone this time. A sweet name, is it a boy or girl? Yes I can remember standing outside at 4am frozen wondering if that was my life now. But suddenly they get that bit bigger and then you are throught that very needy stage. Buy lots of carpet shampoo and trainer pads for the floor. they seem to work really well. How were all the family? Lisa hope the extra workload isn't running you into the ground. At least your trip is getting closer so you will have time to relax. Well for part of it. New York is much too exciting for relaxing on that part of the trip. Its been a busy day as mum had an operation today, planned and minor but she has to be awake evry time now after strokes each time she has an anaesthetic. People seem to get braver as they get older and she said I saw this great big injection and it went right into my eye. It made me want to pass out just thinking about it. I think I would have screamed. She is now on her zimmer frame with an eye patch so terribly dangerous. When her carer came in I couldn't help saying she wants captain birds eye fishfingers today ha ha. She has taken it all much better than we could hope and fingers crossed being able to read again will help her to be happier and do hobbies she can't currently do. Nicky I like the sound of the plan and hope you will get your wish for the surgery to remove the persistent one. I guess that will all depend on where it is and your history. I have only read a little about the procedure as it was a rather complex document and I was half asleep but I thought the type of bc seemed to have a bearing on it and also exactly where it is located, although this paper talked about people with more than one tumour being offered surgery as well. You have had a liver biopsy before so i am sure you will already have more than a good idea about what it will involve and the recovery. But who cares if it does the job!!! Lily xx
The port needs flushing as blood clots can form if it doesn’t have the blood thinning drug injected (ie the ‘flush’) and if one of those gets in your blood stream we all know what can happen. The ‘flush’ is actually heparin, an anti coagulant in a very small quantity, not the same amount as I had to inject myself with when I had actually had a TIA. I would also get the port removed given the chance but as it’s likely to be used again at some point I will probably have to keep it in. The fulvestrant injection has to be given very slowly, in fact the nurse giving it to me there’s not much chance of giving it quickly as it’s very viscous so there's a lot of pressure needed on the syringe to get it injected! Not too sore but I knew about it! I am waiting for an appointment with the liver specialist but last weeks weather has probably put their work load back as their weekly meeting I think was on a Thursday which was a day when not many hospital staff got in. The MRI was of the liver so they have all the info they need, other than pre med checks etc so I shouldn’t need to wait for any other scans. I’d expect the procedure would be ultra sound guided anyway so it wouldn’t quite be a stab in the dark 😉🔪
YD managed to travel to and from work OK and the restaurant were very aware of the travel issues so everyone went in late, after assessing the conditions, and came home early. In fact they closed for 2 nights, after all there weren’t many customers wanting to travel for a meal out in those conditions either. She had almost a normal working week, ha ha and was nice to see her each evening for a change.
No holiday plans for us until I know whether I’m having surgery or not, and the recovery period that it will entail, however we are planning to do something in the next couple of months, just not sure when and where. We are going away for the night near my birthday to Bath, just OH and me, so that will be nice. It’s to a boutique hotel and we have stayed in some of the same small group before so we know what to expect in terms of rooms, service etc so we’re looking forward to it. The fact they had a very good deal on sealed the deal!
Hi to Lisa and Carole, hope all is well
Hi everyone. Lisa it sounds like your job might actually turn into something new if it is a takeover. If it becomes a bigger company maybe it will open more opportunities. Apay rise, even if modest is a big indicator that they want to keep you. Why not hang around and see what happens. There will be new people to work with as well so quite a few changes to make it more interesting? I can't believe you slept through an earthquake!! Must have been small or you snore a lot ha ha. Carole please post a picture of you pup. I love puppies. Hard work though, how are you getting on?
Nicky how long does it take for the discomfort from the injection to go? When YD had an ectopic pregnancy she had to have chemo in her backside. Not sure why there. Lucky pants are a must each time!! In the end my port was taken out because of it needing flushing regularly. I still have a hole/dent in my chest where it was. Not sure why it neve filled up again. Is it risky to your heart then or do yuo mean the infection risk? Are you waiting for an appointment with the liver consultant or do you need to have other things done before this can begin? I imagine there will be a lot of scans and things to be sure of its exact position but hopefully your recent scajns will be a large part of this already. Did your daughter get home in the snow as there were a lot of road problems in your area after you said she insisted on going to work. Such a worry.
Anyway on a cheery note has anyone got holiday plans ahead? Lisa you are the best one at getting organised and it is such a boost to have something to look forward to. I am away later this month but at least 4 birthdays and Eater coming up so a busy time. i bought 17 easter eggs and boy are they difficult to get in bags and home without squashing any. Love Lily xx
Hi Lily, it has to be given in the butt as it is a very viscous liquid and I imagine needs to go into the largest muscle as it’s a sub cutaneous one ie not into a vein. Good job I had my pretty knickers on 😉👙You’re right about the port as well. In fact everyone, including me, had forgotten about it when I finished chemo last year and I suddenly woke up one night remembering that it hadn’t been flushed for at least a month! Panic stations - I didn’t need anotherTIA! So I have been getting it done when I have my bone strengthening injection which has been every 6 weeks, but will now get all of it done (injections and flush) when I go in four weekly. They are pretty good at my hospital and I get the next appointment sorted each time I’m there for treatment.
Lisa, good to hear from you and glad you are safe and sound. We have quite a lot of snow here with more forecast later today. Our roads have been grittedover the past week as the temperatures have been so low so we can get out and about. In our last house though, as it was down a country lane which never got gritted, we were pretty much stranded until it thawed. Glad we are where we are now! Very envious of your trip, as ever, how lovely to look forward to the sun, and the shopping😉, especially after all this rubbish weather.
Take care all, keep warm, have a good weekend and watch out for the icy patches.
Ghiball, I'm back, huge grovelling apologies, work has been bonkers so not had time for anything 😪. So nicky, that sounds like great news and a great team at your hospital. Whilst daunting operation sounds good to get that lesion out and have a look at it. Oh in the bum ouch. How is the treatment though? Any side effects yet?
carole, just seen pup on Facebook, how adorable xxxx hope you had fun in UK?!
lily, snowed in, has its plus and down sides eh....
not much to report here, didn't get that job which was expected lol. Ain't looked for anything else yet, my assistants leaving too boo hoo. We are becoming a subsidiary of another housing association much bigger and national in a couple months and all things go and with doing governance I've got a huge amount of involvement, it's blowing my mind at the minute lol, but tiny pay rise too.
worked at home due to weather but had to braved it today so headed to Carlisle for meeting on train, cold, brrhhh... ps. I slept through the mini earthquake, it was in our town too lol.
28 days and counting till 2 weeks in Florida and 3 nights in New York 😍😍😍😍.
Hi Nick, thank yuo for the big update. I am so pleased that you got what you were hoping for. Surgery is something we have talked about a number of times and I agree it would be a good opportunity if you meet all the surgeon's requirements. It also gives them the chance to get it out to analyse and possib;y gain a lot more information. It occurs to me that it they also were able to get anything else there it might shed light on whether the persistent one is in fact different strain from the more responsive ones. I absolutely hate the idea of injections in the bum, well done for being brave. What is the reason for this site? Mind you, I am sure the arms will be cheering to be given a break from needles and your port too. Have you had your port flushed through recently as I think it needs it regularly if not in use? Amazing that you had built yourself up for the 'I am not going to take no for an answer conversaiton' and then got it straight away. Ha ha I bet your face was a picture beaming. I am snowed in again hooray. Lily xx
Was going to give an update as I’ve eventually had my oncology appointment, better late than never - although maybe that’s not the right approach in this case 😉
So, all armed with questions, challenges and OH I went on Tuesday, ready to fight our case of getting fulvestrant on the NHS or funded by the hospital and not having to pay for it ourselves. It is the recommendation from The Marsden. Anyway we get into the consulting room and smiling onc says, guess what, our local trust has chosen to fund it (not just for me btw, in general) so blow me down! Then she says, oh and you can most likely have surgery, (again, wow, didn’t expect such a positive outcome for the meeting). And not only was fulvestrant being funded they actually had some in the pharmacy fridge and I got it about an hour late. Have never known such speed. I am pursuing the surgery option but this won’t stop the continuing hormone treatment, unlike if I was on chemo when you have to stop all treatment for immunity/infection risks. We have a world class liver cancer surgeon at our hospital which, if he says yes to the op, will mean I’m in the best hands possible. So, there’s been a lot of waiting around, I also know this treatment may not work, none of them are guaranteed, but if I can also have the op it will rid me of the biggest lesion and what I see as the most stubborn part of my cancer. Will update once I know more but I am happy with the plan as it is what I had wanted but hadn’t expected to get. The reason for not posting anything sooner is that fulvestrant is not funded by the NHS ie not NICE approved so I knew it was unlikely I would get it unless it was in a research hospital or in a trial, neither of which were options for me plus I wasn’t sure what the MRIwould show up in my liver and whether they would consider removal, it it seems they probably will. So, other than a sore bum (fulvestrant is given by injection into each buttock!) I’m OK.
So, onto your news. Great you’re getting a puppy Carole, sounds like you needed time and have come to the right decision for you. You will be kept busy as well which will be lovely and hopefully able to get out and about with training once this awful weather clears (rain or snow it’s affecting us all I think). I expect you are in the UK at the moment, if I recall visiting GD, annoying if you’re caught in this bad weatherhowever a nice place to be if it’s seeing the little miss.
Lily, a day off, that sounds good and wise! It’s snowed heavily overnight with more to come as we now welcome the Beast from the East - as well as Storm Emma from Portugalwhich will produce snow once it hits the Beast! OH not travelling today as his work is towards the part of the county where the two weather fronts are expected to meet later in the day although YD has decided to go in. We have advised her not to but she thought she needed to, hmmmmmmm, no one ‘needs’ to however she has taken extra everythings with her including boots, another coat and a complete wardrobe change in case she has to stay overnight somewhere.
Lisa, how are you doing, weather/job/social-wise? Not heard from you in a while. Would be good to have an update from you and see how you are.
Better dash, need to sort a few things out including clearing the drive 🌨☃️❄️
Hi, are you all as chilly as me? We have been snowed in so an extra day off for me. It was over 4 inches so just couldn't get out our road. Dreading tomorrow when I have to get to work unless the skies open tonight and pour some more over our house. Its very strage as there are huge diifferences between quite short distances across the county. people at work had a lot of snow and we had none at all and they were only 20 minutes away. Now they have a double drop and we have quite a lot too. Lisa I can see Cumbria is tricky and also 2 earthquakes??? How are you getting on? Nicky I did think you might escape too much snow but its so random. How are things your way? Also have you been to find out more yet? Thinking of you as you get settled into whatever the new plan is. I hope its what you want it to be, as I know you have enough current knowledge to keep up with the docs to a good level. Carole did the snow reach France? You myst be about to have your new puppy, what a lovely thing to loook forward to. I am looking forward to hearing about how naughty it is and how many of your slippers it eats!!! Get your carpet shampoo ready for little accidents. Lily xx
Hi everyone, well Carole will be in 7th heaven googling over the new babies and other little people by now. have a lovely week and store up all those memories for when you get home. Well I didn't apply for the job, partly for good reasons like a lot of stress moving as so much to learn, you don't know friend from foe and who will help you, they currently look after me with regards to lifting, other stuff that reduces my physical load every day. Bad reasons were that I was not confident enough I guess and better the devil you know. Will maybe regret it but at least i know what I am dealing with still. Thought I might be a bit too old too. How did yours go Lisa, any feedback from the first one? I know you were unsure. Good for you, for going for it. Carole the puppy sounds too cute for words as I know exactly what it will look like. Get insurance asap as I know chocolate labs can be very accident prone, especially about chewing and swallowing things. One lives next door to us and the stories of him leaping for balls and then getting them stuck!! Not just once.However he is 13 and the best possible temperament and they are such faithful and loving companions to have, perfect. Is it male or female and do you have a name yet? I want Lisa to get one too please.
Nicky well sorry but you know I will worry so no point trying not to, we have all been together too long to not carry the worry that a bc dx brings. Anyway I will do the worrying for you, so have a rest for a bit if you can. Keep me posted when you can tell me what you get next. Glad you got to see a boffin so worth the treck to go up there. How's your dear little chap? Any teeth yet? Yes half term was lovely but went in a flash. it felt like a cafe at time but I don't care as I love them all round and the house full of little people and noise. I sometimes think about retiring and when the alarm goes off at 6.10 it seems a reall good idea. But do you need to go to work to enjoy the holidays as much as I do? Plus can I chance not having a salary at this stage as my pension is tiny, having stayed home for years with my family. Plus I would be available every minute for my mum and she is getting demanding but has no expectation when I am at work. Hmmm double edged sword. Better keep going then. We will visit Portugal as soon as the school holidays start so late July. Tesco are selling Portugese custard tarts!!!! I can't decide whether to try one or wait for the real authentic flavour while there. Victor will love them. Well better buzz off as been a long day and still work to do before I can go to bed. Hugs. Lily xxxxxxxxxxxxxxxx
A quick post from me as I am off to UK tomorrow for lots of baby and grandchildren and children hugs for a week, so if I am quiet don't worry. So excited as little GD is now 5 months old and pretty verbal. I hope to squeeze in a brief visit to Mum too.
Lily you were exactly right, we do not want to be without a dog,....... so on 1 March we are collecting an 8 week old chocolate labrador😁. I am ready to have a new pups and so looking forward to getting him. It will be hard work to begin with, but maybe that is what I need. We will try to cage train at first as I don't want our things chewed, but I know it comes with the territory.
Anyway, Nicky good luck with your appointments, Lisa any news about the new job and the same Lily, have you done anything?
Love to all, xxxx 😀😀😀😀
Hi Lily - don't worry, I'm OK, just not been on here much last week as not much to report. I'm still keeping quiet about the 'possibles' as I get fed up explaining one thing when in the end another thing ie treatment happens. I had a second opinion (again!) last week and will be having the recommended treatment discussed with my own onc next week, so no news at the moment. It was reassuring though to speak to one of the top chaps at The Marsden (again!) so we will see. It obviously sounds like it takes ages to sort out - which it does - but this seems to be the case with many secondary ladies, with primary it all is fairly stright forward with only so many treatments used and therefore quicker decisions are made. I am still enjoying the time away from hospitals and blood tests etc but even on a 'good' week like last week I had two days where I had appointments, but luckily no blood suckers.
Hope you enjoyed half term even if the weather wasnt so great. Back to the grindstone now but the lighter mornings and evenings must make a difference.
How is the job situation ladies - Lily and Lisa? Any decisions been made either from an interview or deciding if to put yourself forward for a job? Hoping you have got to the next stage Lisa.
Carole, how are you doing? Have you booked to come over to visit soon? I'm sure you would love to but it must be difficult to work out when is best and to deal with the long journey time.
Anyway, will update once I know for certtain, oh, and Lily, let me know when you are going to Lisbon as I think some trips might be better at different times of the year depending on how hot it is.
Hi, we nearly dropped off page one, I hadn't realised it had been soooo long. How are you all? Any news yet Nicky? I hate it when you go quiet xxx
Hi buddies, how are you all this week? Carole the glasses sound a good bargain, well done. Hope they are making everything much clearer for you. You are such an animal lover with the cats and I really think you need another dog in your life before too long.I find that I can't settle without one in the house, having lived all my childhood with at least 4 dogs at a time. I prefer one or maybe two but they make me feel safer. We have cat allergies in the family so never managed to get into cats apart from visiting friends with them, gingers are my favourites. I hope you get a trip sorted out soon to see the family. Thank you for the encouragement with the job and I need it because I haven't done anything about it yet. I am on better the devil you know at the moment. This will probably change every day! You too Lisa and thanks all for the info on providing health details, they seem to have improved these things over the years.Hav eyou heard anything about your interview Lisa? I was impressed that you actually enjoyed their exercise and so I feel that part will have gone really well and be a positive. I think you should start thinking about what went wrong and why as you may still be called back despite what you think. Even if not this job there willl be other interviews. Work on your confidence because you have relevant experience and the rest of the day went well so you have the skills and really can move on to bigger things, believe in yourself, we all think you can.
Nicky I would love to hear more about Lisbon. I know the tram stops close to our hotel, which was one of the reasons I picked it and the huge sunroof so I can still soak up a few rays even on a city holiday. I gather the beaches are fairly close too if we want.I have seen a tour of lots of palaces so will try to find out if Sintra is on there.Sounds like our sort of excursion. We walk a lot every day on holiday so sounds just right for us. Victor has to pull me up hills. The first page of the application asks for my date of birth so there will be no hiding of ages for me! That is one part that makes me hesitant as I am at the top of the salaries and therefore expensive and old. Maybe I should re-label that as vast experience ha ha. Yes it is that aspect of being expected to arrive bouncing around and making an impression that concerns me. I work really hard but I have good backup currently and might not have any if I move, no way to find out how it would be. Hmmm need to keep thinking. Unbelievable that the docs have got no further with your mil's dx, how can that be? I am enjoying the week off although so far I have had large numbers of extras for every meal so today was my first relaxing day. Wishing you lots of luck as always plus a good plan of action as you meet up with the onc to discuss what comes next. Also hoping that the extra scans can be more helpful in decision making about the annoyingly persistent little s... that is still lurking. Maybe rads or surgery might be on the table? Keep me posted and fingers crossed as always. Love Lily xxx
Nicky your break sounds lovely, I've looked at Lisbon as few times as looks fab. Glad you had a nice break. Back to it,,, when do you get a date for MRI??
Carole, glasses sound fab and good on you for the gym, I need to get myself into some exercise or diet.
lily, I've worried about the BC bit especially when they ask for references which includes sickness absence but from what I can understand they usually only ask for last 3 years....
well, I messed up my interview, I'm still cringing. It turned out wanting more of someone to transform the Admin team which makes it more exciting but they aren't clear on exactly what they want as it's a brand new post. I had prepped so much too. The presentation from them was good and then we had 2 hrs to do an exercise which was about some general questions and then how you would approach the first 3 months of the job... I really enjoyed all this, then we had lunch and met one of the managers who done the interviews last week. She said they were very staged and false so it treat it more like an informal chat at this stage, then the first girl came out and said she was in 40mins and waffle duchess and they looked bored, so by time I went in I was on the informal approach and no rambling.... but I ended up only being in 15mins and totally waffled and didn't sell myself at all so I nearly ran out. Was sooo bad so I'm very confident that I won't get a stage 2 interview....
anyhow drowned my my sorrows in Liverpool singing along to kenny and dolly tribute and took my Mam and dad to the cavern 😍.
night all xx lily enjoy your week off
We got back late on Weds eve and a couple of busy days followed so I’m only just catching up now. Of course the washing mountain and also seeing little GS - who is far more of a priority than the stupid washing 😊
We had a great time, just managed to get some of the decent weather that they have, although we had read that this time of the year can be unpredictable it was actually very bright and sunny every day, and warm enough to sit out in a sunny spot without our coats on. It was chilly in the mornings and at night, which we knew about so went well prepared with suitable layers and coats/jackets. I can thoroughly recommend Lisbon Lily, if you send me your email again (by PM) I can give some more detail rather than bore everyone else on here, although if the others want to know I can put it on here as well. It is a lovely city, quite hilly but various trams and funiculars make that a bit easier. Some beautiful old sights to see but without it being so jammed packed with them, like London or Paris, that you have to dash from one to the other to make sure you’ve seen them. We had a day trip out, by train, to Sintra which has these most amazing palaces and castles in the hillside where the royals and rich people had their holiday ‘homes’, quite spectacular but even more hilly! Lots of chilling out and lots of walking but we had a great time, just what we needed having both been away separately in January and me knowing that appointment/s loom next week.
Have caught up briefly with your news and glad to hear all seems to be well with everyone. As to job applications and interviews I understand now that you can’t even be asked your age/DOB any more let alone any disability or health issue. Of course they can work out your age roughly from your cv but you can’t be discriminated about regarding health or disability. So you wouldn’t need to mention anything about BC Lily, and they can’t ask, so go for it if you think it’s the right thing - and it sounds like it is! I know I could in theory get a job and not let anyone know about my SBC but that would be totally unfair on the company seeing as I have so many hospital appointments and SEs from any treatment I’m on. And however much a company wouldn’t be able to discriminate against me I know who would get the job if it was between me and a perfectly healthy person with the same attributes, qualifications etc!
Enjoy the weekend, we have a catch up weekend, visiting OHs parents who are not in the greatest of health and unbelievably no real cause has been established for his Mums continuing health problems despite scans, blood tests, physio etc. His Dad continues on the slow dementia path which will not get any better and is probably a big contributing factor to his Mums problems. I generally keep out of the decision (or non decision) making process as they are a big enough family to sort it amongst themselves without in laws getting involved! Plus my main focus is always about my health and, as I warn them, my parents 😉