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Hair Regrowth FEC/TAX 1 year on!

8 REPLIES 8
Holeinone
Member

Re: Hair Regrowth FEC/TAX 1 year on!

Thank you Shi, I have just ordered a small bottle to try.  I've actually just switched to a pink salt shampoo by Sea Magik which I bought on offer a couple of years ago. It has noticeably thickened my hair and made it glossy and shiny in two uses.  It is expensive at £11 a tube but was half price I think. I used the first tube when my hair was very delicate so I didn't really notice a thing.  It really does look better now after two washes, the sea salt is a stimulant, as well as other ingredients. Just need to thicken it right up. fingers crossed the castor oil does just that.

Rambomac, no I was not told about permanent hair loss, I found out about that on this forum, and also found there are ladies with much more noticeable hair loss than me, mine looks normal apart from when the wind blows!  To be honest I would still have had full chemo, I think it needed to go through my whole body, and every cell, to work and flush out everything.  The many side effects of chemo still need to be understood though and remedies found for the damage it causes.  I stumbled across autonomic neuropathy after my oncologists (saw different ones each time) attributed every single side effect to the menopause. All of my symptoms appeared in front of me when I found out what it causes.  I feel that a lot of ladies could be suffering from this but putting it down to the menopause, which is what we are told.

Take care ladies and thank you for your replies xx   

Shi
Community Champion
Community Champion

Re: Hair Regrowth FEC/TAX 1 year on!

It was the sunny isle extra dark Jamaican black castor oil I used. It worked for the bloke because he showed me before photos and he was there in front of me with thick bonce of hair so I went with what he had used. Sorry I should have put in earlier message exactly which one it was. Don’t forget the red dot lush shampoo bar too 🤞it works, give it a month, keep using even if you don’t think it’s working you have to give it chance 🤞💕💕Shi xx

Rambomac
Member

Re: Hair Regrowth FEC/TAX 1 year on!

I'm so sorry for the distress it's causing you. I have been looking at every option to prepare myself for permanent thin hair. I came across something called intralace which is a mesh that attaches to your existing hair and a hairdresser then ties in real hair that can be washed, tied up and you can even go swimming with! It's not a wig with a band but as you can guess it comes at a price! Some quoting £1000 for the initial application that needs sorting every 6 weeks at £75-£100 depending how much hair you need. Some charities might even help towards the cost of this if you felt it was an option for you.

 

Did anyone tell you Taxotere could cause permanent alopecia?? No one told me. Looking back, I really wish I had taken the cold cap as I see others who hardly lost any hair. The distress it's caused me has been surprising actually but nonetheless it's affecting my self-confidence! I need to do something about it. I'm going to try this Jamaican castor oil. Ordered it yesterday so I'll keep you posted on how it works for me.

 

Best of luck to you and hope this short forum helps someone else. I couldn't find much on hair regrowth after 1 year post-chemo and was beginning to think there's no thread because it's so rare. 

Shi
Community Champion
Community Champion

Re: Hair Regrowth FEC/TAX 1 year on!

Holeinone, sorry you are having problems with your hair. Do rub the Jamaican black castor oil where your brows would be too. I was lucky a bloke in a shop heard me and tipped me off about the Jamaican black castor oil, he had full head of hair and showed me photo of him before using it and he was bold at the front, so that’s what convinced me to try it. Don’t Cory run into scalp leave for hour then shampoo off with the lush red dot shampoo bar called nu/new if they still do it ❤️ Give it 4 weeks, keep doing it and hopefully it will work for you too 🤞❤️💕💕Shi xx

Holeinone
Member

Re: Hair Regrowth FEC/TAX 1 year on!

Hi Rambomac

Thank you for posting this, I always look for posts about poor hair growth as mine is and continues to be.  I shall be following your thread with interest, and will try the Jamaican castor oil myself. 

I finished chemo in February 2019 and Herceptin February 2020, and had to keep my wig on until mid 2020, 18 months. I kept seeing ladies with gorgeous short cropped hairdos, all full and thick, mine was scraggly and patchy. Outwardly my hair covers my head, however I always had a fringe, now that is very sparse, every time I look in a mirror I see the light bouncing off my scalp. I have to wear a hat as my head gets so cold in Winter now.  I hate having my photo taken as if the wind blows you can see my hairline has receded quite dramatically and I look partially bald. I guess I have lost about 35 to 40% of hair. In little under three years I've only grown 8 inches or hair, I am trying to cut off the frizzy ends but they have not yet reached my shoulders from the top of my head, and am having to have a short bob now as my hair is too thin to take a longer haircut.  

Added to the extremely slow and thin hair growth I also have no eyebrows so have to draw them on every day, never had an issue before chemo, they were very obvious!

I hope the castor oil works for you, I am at my wits end with my hair, it's soul destroying.

Take care x

 

 

Shi
Community Champion
Community Champion

Re: Hair Regrowth FEC/TAX 1 year on!

Rambomac, hope it works for you as well as it did for me, give it 4 weeks and see what you think. I went from nine to decent covering in that time and then continued with it from there. Still do tge extra dark Jamaican black castor oil once a month too, it’s good for scalp. Good luck 🤞💕💕Shi xx

Rambomac
Member

Re: Hair Regrowth FEC/TAX 1 year on!

Thank you so much for this. I've never heard of this so I'll give it a try. I've been looking at Monoxidil but the stories of hair shedding before it gets better fills me with fear! Can't afford to lose anymore, plus I've heard that you need to keep using Monoxidil and not stop or the hair growth stops. I'm not bothered by the length of my hair at all, it's the thickness that's concerning. 

Thanks so much for replying! x

 

Shi
Community Champion
Community Champion

Re: Hair Regrowth FEC/TAX 1 year on!

Hi rambomac ❤️ What worked for me was extra dark Jamaican black castor oil ribbon scalp and leave for an hour then wash off with the lush red dot shampoo bar called new or nu (not sure if they still do it) but within 4 weeks made a real difference because mine hair took a while compared to everyone else’s but remember we are all different ❤️ Make sure you moisturise hair lots as it goes back too ❤️ I’ve found the Aussie miracle range good and as it got longer again, I use Philip Kingsley hair elasticizer and the vo5 hot oils. It does take a bit of time but be positive and patient, embrace all the new styles you will go through and you will get there it just takes time ❤️ It’s taken 3 and half years for mine to get back to near my waist but it’s been worth the perseverance ❤️Keep focused and give the tips a try you’ve nothing to loose ❤️💕💕Shi xx

Rambomac
Member

Hair Regrowth FEC/TAX 1 year on!

Hello bc thrivers!

It's the end of November 2021 and I finished chemotherapy in the middle of January 2021 (technically my cycle ended Feb 2021) and I have been obsessing over my hair regrowth! I've read in lots of places that TAXOTERE has a 15-30% chance of permanent hair loss. I've seen people at 6 months post-treatment with a full head of hair who've had 2 visits to the hairdresser for a tidy-up! My hair is still short, thin and at a guess I'm missing 60% of the hair I had pre-treatment. I didn't opt for the cold cap as I can't handle hanging around hospitals more than I need but also I got the impression from my Macmillan nurse that there was some ambiguity about the effectiveness. I'm obsessing over my hair!

It's seriously been such a distressing part of this whole thing. I've had a lumpectomy and 2 nodes removed, 6 rounds of chemo and 19 zaps of radiotherapy. My hair apparently is my crowning glory and the gateway to moving on. I'm not reading many threads about hair growing much beyond 6 months even. Someone please brighten my day and tell me I should wait longer and it'll all be ok. 

And with respect please don't tell me to speak to my bc team, I don't have one I trust. My bc nurse gave me an incorrect diagnosis as did my consultant and after treatment I had bone pain and my referral for a bone scan was missed plus my annual review (unbelievable I know!).  I'm very well clued up in the healthcare system being a specialist nurse myself and I feel I have nowhere I trust to turn to apart from fellow bc thrivers. One thing I do know is that if you're that patient that has one mistake happen, it sadly won't be your last. I am that patient and I despair at this given how I went above and beyond in my own role as a specialist nurse.

I hope some can share their stories to give me hope. How id your hair regrowth going after 10 months?

Thank you xx