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Is anyone taking alendronic acid?

10 REPLIES 10
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Re: Is anyone taking alendronic acid?

Hi , I broke my elbow 6 years ago and that was when After bone density scan I was put on alcedronic take every Sunday  and Adcal tablets twice a day xso have osteoporosis and osteoarthritis .I have been fine on tablets , but you are suppose to have a holiday from them after so long , but because I was diagnosed with breast cancer ,my GP said  to just mention it to my consultant and ask when I am due for a further bone density scan 

 

Sue x 

 

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Re: Is anyone taking alendronic acid?

Hi I tokk it for about 5 days but started with really bad hip pains and I felt really depressed with the pain more so than with my initial diagnosis. I went on to have infusions every 6 months and have had 2 now with no problems at all. Hope you are OK with the tablets

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Re: Is anyone taking alendronic acid?

Sandpiper

Thanks for this message which I have just re-read.

I'm grateful for all the useful info and encouragement.

I feel exactly the same as you. I remember feeling sorry for all those old ladies who have to count out their tablets every day or week. Now it's my turn and it makes me feel ancient too! However (at the moment) I feel physically very fit. Though the lockdown and all the bad news is very depressing and distressing at times. 

Have to try to keep positive - no point in doing otherwise!

Very best wishes

Jane x

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Re: Is anyone taking alendronic acid?

Thanks for your message thurnefi

It is useful to know that there is an alternative to the tablet if that doesn't work out. I'm taking the first one tomorrow and feeling a bit nervous. 

I am so grateful to you and all the others for these suggestions and for your encouragement.

Best wishes to you also.

Jane x

 

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Re: Is anyone taking alendronic acid?

Jane

I have been on AA for about seven or so months (I think!) as I too have osteopenia. I did find that despite sticking to the guidelines very rigidly I was experiencing dreadful acid reflux.  My GP switched me to an effervescent one instead of the tablet, which I am pleased to say doesn't have these side effects for me.

Just wanted to let you know about a possible alternatve.

Wishing you all the very best xx

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Re: Is anyone taking alendronic acid?

Thanks for your lovely reply.

I haven't actually got osteoporosis. It's the beginnings of that - I think it's called osteopenia. Thanks to your and others' encouragement I shall take the medication in the hope that it will stop the condition from getting any worse.

Good luck with your recovery

Jane x

 

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Re: Is anyone taking alendronic acid?

Dear Jane,

I've been on Alendronic Acid for around 10 months plus Calcium/Vit D supplement. I've been on letrozole for around 14months too without any side effects. I had a Dexa scan shortly after going on letrozole and it showed osteoporosis in my spine and oesteopaenia in neck of femur. I was a bit fed up about it all, I hadn't had any symptoms, it made me feel very old all of a sudden. The list of possible side effects can be off putting but I have been fine. After the first dose I felt headachy and unwell for a day or so, the second dose I felt a little under the weather but no problems since then. Make sure you follow the instructions - I take mine on my quietest day of the week, which is Sunday. The National Oestoporosis Society have a very good website - lots on nutrition and safe forms of exercise. They have a specialist nurse helpline too which I used. 

I did have a dental check up before starting the treatment but that might be difficult at the moment as dentists are only seeing emergencies, I think. 

Keep well and don't worry.

Sandpiper

 

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Re: Is anyone taking alendronic acid?

Hi Jane, 

ive been taking alendronic acid for approx 8 months and haven’t had any problems so far. My gp said to take it on the same day every week, with a pint of water, on an empty stomach and stay upright for at least 30 minutes. 

It is important to stay upright and it was recommended that I had a dental check up before I started them. 

I’m sorry you’ve been diagnosed with osteoporosis but I hope you get on ok with the tablets xx 

 

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Re: Is anyone taking alendronic acid?

Hi

That helps a lot - thank you!

Jane x

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Re: Is anyone taking alendronic acid?

Hi Jane

 

I have the 6-monthly zometa infusion (zoledronic acid) as an alternative to the aledronic acid treatment but they’re more or less the same thing - biphosphonate treatments. The leaflets have to warn us of all the potential side effects and they’re pretty scary but you have to weigh it up against two essential factors. Osteoporosis is a horrid disease in itself but biphosphonates reduce the likelihood of a recurrence of breast cancer in the bone marrow, one of its preferred targets. Most people get by with few problems and, with the tablet form, you have better control over whether to stop it because of side effects, which is always an option. My friend has been taking it for years and says the worst thing is having to take it on an empty stomach first thing in the morning when she’s yearning for a coffee!

 

Hope this helps a bit x

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Is anyone taking alendronic acid?

Hi everyone

i had a mastectomy last year and have been taking letrazole since September. I have noticed pain in my hands recently and think that might be a side effect. But it’s bearable. Now the doc wants to prescribe alendronic acid as the beginnings of osteoporosis in my neck, hip and spine were picked up in a Dexa scan. I read up about this drug and it’s a bit scary. I’m sure some of you are taking it and I’d be interested to know what your experiences are and, in particular, if you’ve had any side effects.

Love to all

Jane