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Is it possible to lose weight on Tamoxifen?

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Member

Re: Is it possible to lose weight on Tamoxifen?

I have put on 2-stone - 6 years of tamoxifen - going to speak to GP to rule out other causes of weight gain and considering going to a nutrionist

Member

Re: Is it possible to lose weight on Tamoxifen?

Have any of you tried any of the alternative medications?

Member

Re: Is it possible to lose weight on Tamoxifen?

My nutritionist immediately told me that the main thing is to stick to the diet schedule, and perform proper physical exercise. We even started a special planer for proper nutrition https://onplanners.com/planners/best-food-planners-healthy-eating, in which the nutritionist prescribed my diet along with calories of foods so that we could break the nutritional value by the day. It made me feel good, well fed and full of energy.

Member

Re: Is it possible to lose weight on Tamoxifen?

Big hugs to you. I was 32 when I was told I had BC, went through chemo radio therapy. I went on to tamoxifen wasn't to bad at first,weight gain unbelievable so I went and spoke to my breast Dr and she reffered me to see the gynygologist at first he wasn't on my side when I asked for a hysterectomy. Try this try that,I wasn't having any of it. So after about 6 months going back and for he give in and put me on the list to have a total hysterectomy. 1yr and 6 months on best thing I've done. I'm 6 yrs cancer free now but the only down side is tamoxifen is still with me. Totally gutted I did try different tablets but just didn't agree with me. I've come to the point that I'm going to carry this weight until I come off the tabs I know it's so bloody hard I train a good 3-4 times a week I work ful time,but hay ho I'm 39 I'm still alive and I got my fab husband and my brilliant children with me. Just keep on to your Dr it's your body x good luck xx
Community Champion

Re: Is it possible to lose weight on Tamoxifen?

Hi Ladies, A lot of us taking tamoxifen would argue that it's the cause of our weight gain, I certainly did but after coming off them last October due to developing osteoarthritis I hoped the weight would fall off but sadly it didn't! I am currently on a mission to lose 2 stone via slimming world, I'm having to work hard at shifting it including walking 4 miles a day with my dog which is more a plod with arthritic knees but it's working and after 5 weeks I am a stone down 💪 1 more to go by August for my sons wedding is the goal! 

 

I was 46 at diagnosis and am 2 weeks off my 50th now and wonder how much of the weight gain is due to age also I know with hindsight I was eating far more than I'd like to admit 🙈 I don't think there is any magic answer but will never give up trying to look my best! 💅🏼💄

 

I was refused a hysterectomy when I asked as we make oestrogen in our fat too so removing our ovaries wouldn't eliminate it, another reason for reducing our waistlines! 

 

Good luck ladies Xx Jo 

Member

Re: Is it possible to lose weight on Tamoxifen?

💜
Member

Re: Is it possible to lose weight on Tamoxifen?

I’m the same also Im niw 59 had a masectomy in March 2016 started taking tamoxifen Jan 2017 after the chemo amd radio .. I’ve gained an extra 2.5 stone eat like wuite normal .. my skin is getting dryer on my arms, legs feet and hands..My stomach is the worst it like hangs and feels bloated all the time.. Im getting mood swings.. and hot flushes even through ud already gone through the change.. I was not offered or even told that having a full hysterectomy would enable me to stop taking tamoxifen so may ask my breast nurse about that this week..
Member

Re: Is it possible to lose weight on Tamoxifen?

Hi I am exactly same had mastectomy 2016 now on tamoxifen since 2016 I have gained 2 stone hate myself way I look clothes not fitting losing teeth from it I'm 44 confidence has gone I 've got oestheoarthiritis too that's got worse wish they would take ovaries womb and fallopian tubes so I cud come off tamoxifen cos of my age they won't do it I've got 7 children don't want anymore all down to cost nothing else they won't do my other breast till I lose weight I'm lopsided can't lose weight on tamoxifen surgeon knows that all down to money as usual so fed up
Member

Re: Is it possible to lose weight on Tamoxifen?

Hi!

I managed to lose weight. I was separating my food, applying creams for losing weight (Nivele and others). I also, tried to be physically active instead of sitting in one place.

Member

Re: Is it possible to lose weight on Tamoxifen?

Hi.
I too have a pot belly and as my mom pointed out..a fat ass!
So tamoxifen is the culprit eh!? Ive put on a stone and a half in 11 months. Ive read potassium helps...anyone on here take potassium as a tablet? Only asking because the foods high in it i dont like apart from bananas. X
Member

Re: Is it possible to lose weight on Tamoxifen?

Oh thank goodness! I thought it was just me! I was thinking the plus side to chemo (hahaha!!) was that Iwas going to shed  a bit of weight, nope, so far I've put 2 stone on! Talk about kick you when you're down.

 

I've had a lumpectomy, chemo & radiotherapy, I'm now on tamoxifen daily & 3 weekly herceptin injections. My joints ache, I can't shift weight despite all my efforts. I'm exercising as much as I can, which is mostly walking and yoga.

 

I've been a weight watcher memeber for years and have been really sucessful with them, but it doesn't seem to make any difference now!

 

eek

 

 

Member

Re: Is it possible to lose weight on Tamoxifen?

Thank very Annie's for your big hug and positive words of encouragement. It's feels good that someone knows and understand the efforts that goes in to losing the weight. 

Also, have changed my dietary habits, eat smaller portions, eating much less carbs, eating more protein and veg. Didn't totally cut dairy..... maybe once or twice in a month, I do take a little butter and half slice cheese. 

Have also started Yoga classes, feels exhausted but good!! Learning how to breath properly, which in a way helps to calm my anxiety.

Trying my best to lose another 1 half / 2 stones by end of this year. Fingers and toes crossed that I could do this!!

BIG hugs back to you and wishing you well.

Take care, Annie ❤️

Community Champion

Re: Is it possible to lose weight on Tamoxifen?

Penash, Yes, it is true . The nutritionist at Maggies advised me to avoid all foods containing oestrogen , including soya. Its amazing what has oestrogen in, from milk, butter to meat and poultry. Don't get me started on yoghurts! X

Community Champion

Re: Is it possible to lose weight on Tamoxifen?

Hi Jbelle, I really sympathise with you re weight. I'm not on Tamoxifen but on Letrozole and am shocked at how hungry I get. Im determined to keep the weight off ( lost 17lbs) so have gone the clean eating route. Lots of vegetables, smaller amounts of clean protein and some carbs. Mainly Quinoa, and other super seeds and pulses. I'm enjoying the new experiences but I have had to re stock the larder! The cook books I'm using are Leon. I think going pescatarian has also helped. I sending you a big hug and hope you continue the good work. You've done marvellous losing so much weight. X

Member

Re: Is it possible to lose weight on Tamoxifen?

Hello Ladies, I have been on Tamoxifen for 4 years and have put on 3+ stones. Previously was wearing tops at size 12 and bottoms size 10 and was active in exercises. My sizes went to 18 and 16. Also stopped exercising because of my joints were hurting and didn't have any mood to do anything as I was feeling tired most times.

This year, my doctor sternly told me to lose some weight as this will also bring my glucose and cholesterol levels down. So I started eating more healthier...... try to cut of carbs and half the normal portions. Also, started taking daily walks.

Till date, have lost about 1 half stones and it does feel a lot better

Wishing everyone good luck in weight control. Best wishes xxx

Highlighted
Community Champion

Re: Is it possible to lose weight on Tamoxifen?

I'm due to stop tamox next month after 5 years on it.   I am so looking forward to stopping and hope that it will mean my body will get back to normal e.g. I can bend without pain, my knees won't keep giving way on me, and are painful at times and hopefully I will just be able to move prior to starting tamox in 2012.  I have also gained weight, especially around the tummy area and I think this can be a common problem.

 

Good luck to all those trying to lose some weight I hope we all manage to achieve it Smiley LOL

Member

Re: Is it possible to lose weight on Tamoxifen?

I would not touch herbalife sypplements. Living with a former body builder we did everything to avoid soy and with oestrogen positive cancers the research would suggest to avoid soy. I would buy a good soy free protein such as reflex or kinetica.
Member

Re: Is it possible to lose weight on Tamoxifen?

Morning all

just wondered if anyone is taking tamoxifen and drinking protein shakes in the morning as part of your weight loss journey.

i have been on tamoxifen for 4 years now and in that time i have managed to lose 3 of the 4 stone I put on during chemo etc.

i have joined a free fit club and had started drinking a Herbalife protein shake in the mornings which was working well for me.only thing is I had to stop as someone google the ingredient soy protein isolate and said it increases estrogen which counteracts the tamoxifen.

does anybody know if this is true? If anyone can help I would really appreciate it x

Member

Re: Is it possible to lose weight on Tamoxifen?

Mine is an old story but still relevant

 

I put on 2 stone after dx which was due to comfort eating and i believe Tamoxifen

In 2007 I joined WW and managed to lose a fair bit but was taking the Tamoxifen until jan 2008 when I developed blood clots in both lungs 3 weeks after an op and I was later put on Arimidex

 

I lost all of the weight (managed to kep it offf too) but it defintely went quicker when i stopped Tamoxifen

 

I guess back then I was on the old points system too with WW

 

So it can be done but it's hard and I'm sorry some of you have GPs who won't help

Member

Re: Is it possible to lose weight on Tamoxifen?

Hi I have been on Tamoxifen for 4 years now and have gained weight about 22lb . Over the time I tryed losing weight by counting calories also did the 5 2 diet all from home with no luck. I even started buying bigger clothes as I thought this is something I have just got to accept.

 

My sister in law goes to slimming world and Ithought I would give it a try. I can honestly say its the best thing I did I followed the diet which is very healthy and now after 14 weeks I have lost all my weight I had gained .

It has been the best thing I ever did as you can eat lots, it feels hard to believe . I am so happy now I thought if I could advice any one stuggling to give this a try. It does help if you go to a class as you get lots of suport and advice.

 

Good luck

 

Member

Re: Is it possible to lose weight on Tamoxifen?

Dear God I thought I was going mad! Your case sounds exactly same as mine just one month apart (my op was January 15 radiotherapy in March 16)

I have also asked about stopping tamoxifen - I know that sounds ungrateful - but just wondered was there an alternative I feel like the pilsbury dough boy! Had to order size 18 blouses in work and 16 skirt/trousers always been in a 14 and a 12!

if anyone can help please share with myself and Christine

Thanks you

Alison

Member

Re: Is it possible to lose weight on Tamoxifen?

Hi there.  I was diagnosed Feb 2016, had double m/s and put on Tamoxifen, been on this full time since Nov 2016.  Having a bad time - joints reall ypainful, i have old injuries that are deteriorating, and i am out of breath, severly when swimming spinning, which i do all the time.

 

To say they want me to stay on it 10 years, i think i will have committed suicide before then, as i have a disability and can only do non impact stuff, and can't go walking.  It's awful, i would rather not take it, and just get on with my llife.  I am being referred for a hysterectomy as i also have bad abdominal pain, and have the risk of it spreading.

 

I am 45, and only work 2 days a week, thank goodness, becasue i am so tired, and yes, i think i have put weight on, as my IBS - C has gotten worse sine al this.

Spoiler
 
Member

Re: Is it possible to lose weight on Tamoxifen?

Hi everyone I have just discovered this site by entering in the question about weight gain on Tamoxifen.  I had a lumpectomy and Radiotherapy in March 2015 and was put on Tamoxifen.  I started getting my fitness back a little then lost my mum so was feeling knocked back, my GP put me on Citalopram.

In January this year I thought thats it I am going to get healthy and fit again...... so I have been eating healthy foods, maybe treat myself at the weekends, and exercise in the gym with a PT and pilates 3-4 times a week.  I have lost nothing in fact I have gained!!!  seeing my consultant this week to see if I can change from Tamoxifen. 

does anyone have any advice words of wisdom, or something to keep me on the staight and narrow??

Thanks

Member

Re: Is it possible to lose weight on Tamoxifen?

I can soooo relate to how you are feeling, I too was at my best fitness and health wise, before BC. I lost 6 stone and was going to 12 fitness classes a week, with a great social life too.

I had a lumpectomy January 2015 and chemo and radio therapy up untill july 2016, and been on Tamoxifen since.

I have put on over 3 stone since taking Tamoxifen and was told by the breastcare nurse it could be difficult to loss. I also now have many pains in my feet. legs and breast, and was told that it's still early days and is down to the radio therapy mostly. I am struggling with fatigue really bad and struggle to do 4 classes a week. Even walking 15 minutes a day is a struggle sometimes.

I also feel that my friends that were amazing during my treatments are now very different towards me. I AM very grateful that I have survived this but do feel very angry and frustrated with it all.

 

I sure it will get better in time, we just have to be patient I guess :0( xx

 

 

Member

Re: Is it possible to lose weight on Tamoxifen?

I have been on tamoxifenfor a year and a half my weight is up, not necessarily from the drug but it won't let me lose more than 5 lbs ugh
Member

Re: Is it possible to lose weight on Tamoxifen?

I'm sure these feelings are normal that's why so many breast cancer charities offer counselling. I'm definitely going to take up some counselling and set myself some new goals. I was a sprinter and a swimmer so maybe I'll put a triathlon on that list. Definitely look into counselling and join some groups. I've joined a Facebook group called building resilience after breast cancer. It's been helpful. I'm not really a face to face group person x
Member

Re: Is it possible to lose weight on Tamoxifen?

I went through dbl masectomy 3 years ago, though in my mid 40's, my GP would not send me for a mammogram.  It took 8 appointments until I was taken seriously.

 

YES, I am single, no children :-(  live on my own, lost my job after telling my employer that I would need time to recover. After going through the radiotherapy and starting Tamoxifen, my life changed in an instance.

 

Prior to my diagnosis, I self trained as a Triathlete, I was the fittest I have ever been, so toned and ideal weight. I do suffer with Osteoarthritis (family history) and it has worsened in the last 2 years dramatically.

 

I am doing my best to stay positive, even though there is something niggling at the back of my mind. I can only say, I haven't accepted whats happened but just deal with it.

 

I don't feel femine anymore and put up my guard if any men strike up a conversation with me. I gained over 2 stone since three years ago and comfort eating. My friends tell me I've lost my personality and now I am wondering if there is light at the end of the tunnel.

 

Is this normal? Anyone who can relate to this, please let me know.

 

Member

Re: Is it possible to lose weight on Tamoxifen?

I have been taking tamoxifen for nearly 2 years and during that time have more or less maintained my target weight  (within half a stone anyway) after losing 1.5 stone at Slimming World 3 years ago. My weight is up and down a bit but generally still at a healthy level but I have to work at it! Xx

Member

Re: Is it possible to lose weight on Tamoxifen?

I'm gaining weight on chemo and very worried about tamoxifen. I lost the stone 7 years ago and kept it off until about 10 months before diagnosis. Nothing changed with my diet or exercise bit I wonder if it was due to the tumor growing. I see such Good results from slimming have world but it will depend on the consultant. Best get through chemo first. We are entitled to see a nutritionalist once having a cancer diagnosis x
Community Champion

Re: Is it possible to lose weight on Tamoxifen?

Hi all,

I've been on tamoxifen since May & my weight has remained stable, however, I did not have chemo to recover from as well.  I have made a conscious effort to increase my activity levels & feel better for it, as well as watching what I eat & curtailing the 'wine o'clock' habit!

It's also recommended that I'm on it for 10 years, so at least this experience has been a wake-up call in making some lifestyle adjustments & I feel fitter than before diagnosis.

ann x

Member

Re: Is it possible to lose weight on Tamoxifen?

Hi I am still taking tamoxifen and during that time gained two stone. I always blamed the tablets and didn't know what to do. I was also suffering from fatigue which was a nightmare with work and life in general. I decided to join weight watchers Feb last year with the hope something would happen. Well, the first 3 weeks I was really good and didn't lose anything which was upsetting but I carried on and then started to lose 2lb a week. What I also noticed by changing my diet my fatigue was getting better and suddenly had lots more energy. So ten months later I have now reached my goal and a bit more and feel great. If you are looking to lose weight give it a go. I know it doesn't work for everyone but even if it helps with your fatigue it will be worth  it. Hope this helps.  Good luck..xx

Member

Re: Is it possible to lose weight on Tamoxifen?

Hi,

 

   it is slow to lose weight. I think we get a distorted idea of how quickly you can lose weight from all those miracle images we see on the web "I lost 230lbs in 5 weeks" things. Those are the exceptions. As long as its going down, that's worth celebrating.

 

   I've been keeping a blog about my efforts to lose weight on the dreaded T. Its at https://girlvstamoxifen.wordpress.com/

In three months I've lost 2.6kg, but I'm pretty pleased with that.

 

Remember to think about the other health consequences of diet and exercise and don't just concentrate on the weight loss, and remember that even a small decrease in BMI reduces your chance of recurrence.

 

 You can do it!

 

-chibi 

Member

Re: Is it possible to lose weight on Tamoxifen?

Hello I have been on tomxifine since June 2014 I lost my chemo Wight . Then I gained it all back from 2015 to 2016 . I eat health . No carbs. Do sport . And tried loads of diet yet no change in weight. I gained 10 kg . That's too much
Member

Re: Is it possible to lose weight on Tamoxifen?

Hello I have put 3 stone on since taking tomaxifin from March 2015 I've tried lots of diets and excercise but nothing is working it's very depressing so 2 weeks ago I started to take Acai berry bought from Holland and Barrett and it takes the hunger of me I've now lost 4llb and I'm over the moon long may it continue x

Community Champion

Re: Is it possible to lose weight on Tamoxifen?

That's reassuring. I too finished treatment about a year ago and have put on a stone. I've always been a fit gym bunny but have been reduced to yoga because of fatigue and joint pain. I use to do 5-2 diet too which I found was fantastic at maintaining weight but finding very difficult to go back on it. This drug induced menopause seems to have left me craving carbs which I never ate before!

I've also stopped working - made redundant mid chemo and no energy to search for a new job. Being at home is full of temptation!

Hearing that it is possible had given me some hope and I'll get back to my healthy eating plan and see how it goes.
Member

Re: Is it possible to lose weight on Tamoxifen?

I finished treatment in Oct 2014 and have been on Tamoxifen since August 2014. I lost 1.5 stone since finishing treatment, by a combination of doing more and eating healthy. I have had to get a lot more active. I need to lose another stone or so, but I know its possible, I just need to focus Smiley Happy
Member

Re: Is it possible to lose weight on Tamoxifen?

I finished all my treatment in September last year, which included, chemo, surgery and then radio.  I have been on tamoxifen since September 2015 and will be on it for 10 years. I am so depressed at the moment as over the last year have put on a stone. I weighed myself this morning because i felt slightly slimmer and I have put on 41bs?? I have a healthy diet and exercise regulary.  Before diagnosis I was on 5-2 diet but just not in the right place to start that again yet. After 10 years at this rate ill be the size of a house!

Member

Re: Is it possible to lose weight on Tamoxifen?

Good to know it is possible, been on Tamoxifen since Nov 13 and have really struggled to lose since then. I didnt like the leader at SW so have been going to WW for 3 weeks now and have only lost 4lb, was getting incredibly fed up and thinking of leaving so thank you!  I'll stick with it and see what happensWoman Happy

Member

Re: Is it possible to lose weight on Tamoxifen?

By the way I belong to a rheumy forum and it seems that nearly all of us who developed rheumatoid arthritis did so after a trauma. Mine was breast cancer but there are many other stories of people enduring all sorts of terrible ordeals and then getting RA. Interesting.
Member

Re: Is it possible to lose weight on Tamoxifen?

I have been on tamoxifen since 2011. I also have rheumatoid arthritis. I have been taking steroids for pain but this just increased my weight. I didn't know tamoxifen caused weight gain. I can't exercise much but try to eat more healthily but can't shift this stone. I have always been slim and this is depressing me. I guess I will have to eat even less. But am wondering if Letrozole would work better for me. Just rambling on here.
Member

Re: Is it possible to lose weight on Tamoxifen?

I have been on Tamoxifen for 1 year 6 months now. Finished radio in Feb 15. I have lost all the weight I put on during chemo. I have done by cutting out sugar and greatly reducing carbs, ie, no pasta, no rice, no bread, no potatoes, no fruit juice.  I have replaced these items with larger quantities of veg and salads.

There are plenty of web sites offering sample menus and advice about going low carb and lots of suggestions to change how you eat.  When you have lost the weight you can reintroduce some carbs but the trick is not to over do it when you do or you will pile all the weight back on. I have found I am eating hardly anything processed anymore and my portion sizes are smaller and if I have pasta or rice I make sure it is whole grain. 

I try to exercise at least 3 times per week but this is not vital to the weight loss but it does help. I jog for 30 to 40 minutes if the weather is nice or I do stepping for the same duration while watching music videos if I don't want to go out. However, I go through phases of being able to work out or not being able to due to tamoxifen.  It is difficult to keep going when in the throes of a hot flush and I find that sometimes my legs feel very weak and I have to switch to walking.

It is hard work but it is possible. I feel great and I look good too. 

Member

Re: Is it possible to lose weight on Tamoxifen?

I have been going to Slimming World for the last 12 weeks and have lost nearly 2stone, so yes it is possible. I have been taking Tamoxifen since January 2016.
Member

Re: Is it possible to lose weight on Tamoxifen?

Hi ,EThomas. Having exactly the same problems. Finished radiotherapy 12 months ago, so tamoxifen one year. Just trying on summer clothes from last year... Can't get into a lot of them! Had  very sore knees... sore to kneel down and especially at the end of the day. Weight gain affecting another health problem. Been able to lose weight before but finding it very hard on tamoxifen. Usually active, cycling, swimming. Any handy hints anyone?

Member

Re: Is it possible to lose weight on Tamoxifen?

I had my surgery 6 months ago. I did not have chemotherapy thankfully, but i have put on so much weight since being on the tamoxifen. I cant even fit into the clothes i wore to hospital on the day of my surgery. In 6 months i have put on at least 2 stone and cannot seem to shift it. Its making me so depressed. I've always been an active person, i walk my dog twice a day. I eat healthly. I'm just at a loss as to what to do.

Member

Re: Is it possible to lose weight on Tamoxifen?

Hi deb's, I'm on tamoxifen and have been for 2 1/2years. I've struggled with my weight but have managed to lose about half a stone. It's taken about three months and its been hard. Keep trying til you find some way that helps you. I joined slimming world, but after six weeks I left and then started losing weight!! It's hard, but keep trying.
Jenny s
Member

Re: Is it possible to lose weight on Tamoxifen?

Hi the achy joints get me every time, I was going to attempt spinning ? I'm 3 yrs in on tamoxifen hot flushes, feel so down, tried Pilate's, personal trainer, walking, I work on my feet all day hairdresser, my back, shoulder, and fingers, and !!! all ache, my boob, like toothache, my underarm is tender from hot flushes, I can be so hungry , then full no inbetween x
Member

Re: Is it possible to lose weight on Tamoxifen?

Glad to hear you got help and it is proving a success for you. Unfortunately my GPs would only refer for something like this if a person was absolutely gargantuan. When I went recently and had thyroid tests done the GP was only concerned with whether the yoghurt I consume at breakfast is fat free! She gave no help whatsoever, it was like she wasn't interested and of course I was asserting the link between being overweight and breast cancer when post menopausal. I have currently fallen off the diet/exercise wagon a fortnight ago, starting gym again at 7.30 am tomorrow!

Member

Re: Is it possible to lose weight on Tamoxifen?

Hi Debs,
I put on 4 stone during my 9mths of treatment and when I started taking Tamoxifen all my joints hurt so much that it was virtually impossible to do any form of exercise.

I was very active b4 being diagnosed with BC. Went to the gym 3 times a week, rode my bike twice a week and played squash.

I tried my best but only managed to lose 7lbs and was so fed up that I went to see my GP who referred me to a weight management clinic. It was brilliant!!! They put me in touch with a dietician and physiotherapist who gave me a pedometer to wear for 12wks and told me to try and increase my walking distances daily and on each visit checked out my food diary.

I have lost 3stone since Feruary and feel great. My joints hardly hurt anymore and I am now back at the gym and the hot flushes have also vanished completely.

So my answer is yes you can lose weight on Tamoxifen. If you're struggling, go see your Gp. It worked for me

Good Luck Deb

Member

Re: Is it possible to lose weight on Tamoxifen?

this may seem like a daft question, but did Tamoxifen make you any of you put weight on or was it the treatment you have had previous to this?. Reason I am asking is because I haven't had chemo,(I realise how lucky I am not to have had that), due to have RADS very soon then Tamoxifen, so would like to know whether I need to prepare for a weight gain. thanks

Member

Re: Is it possible to lose weight on Tamoxifen?

Hi Buzzy
I managed to lose 1 1/2 stone whilst on Tamoxifen by the novel approach of eating less and exercising more! Now I wonder if I can patent that and sell it as a high tech diet and make my fortune?