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Joint and muscle pain

Cmg
Member

Re: Joint and muscle pain

Hi cambo55

I've just started Anastrozole and am experiencing shoulder pain on the same side as my operation. (Lumpectomy and further op for axillary clearance). 

Not sure if it's due to the medication or just being put into an awkward position for my radiotherapy planning.

Wondered if you could tell me which physiotherapy app you have been sent for the shoulder crunching etc

Hope things start to improve for you soon 🤞

 

cambo55
Member

Re: Joint and muscle pain

3weeks later neck pain .I have had tingling sensation in hands , feet from when I had chemo, even wakes me up through the night .

cambo55
Member

Re: Joint and muscle pain

I’m on letrozole too been in it since January this year , but just as I was finishing my radiotherapy in feb started with lower back pain and then 3 weeks later pain .My consultant has told me to stop taking it for 6 weeks but the pain is still there , but I do suffer already from osteoporosis and osteoarthritis.

I had a MRI scan on my spine 2 weeks ago and a dexa bone scan on Wednesday. 
I’m due a telephone consultation on Wednesday from my consultant.

Ive also been sent a physio app to see if that helps with my shoulder crunching and tightness in my armpit .

tait75
Member

Re: Joint and muscle pain

Hi I’m in similar situation to you, in agony with both shoulders and upper arm pain day and night which started at the end of chemo. Pain killers and ibuprofen gel do nothing for the pain.  I had steroid shot into one shoulder and got immediate relief for 5 months until it wore off, but other arm has had lymph nodes removed so can’t do anything with it. If you do happens to find something which works be sure to let me know!

Susanmanchester
Member

Re: Joint and muscle pain

Am on letrozole I was fine for a few months but now on painkillers and ibruprofen gel shoulder semi frozen. Mornings are worst . On this another 9 years so trying to find out ways of improving joint situation hands also bad - and not the side I had surgery . That arm has lymphodoema .... 

murphsmum
Member

Re: Joint and muscle pain

Hi Rosem

I too have joint pain, fingers, elbows, knees & hips. My chemo finished in December and I wondered if it was a late side effect (pain started in March), spoke to a chemo nurse who said it wasn’t anything to do with chemo and it sounded like rheumatoid arthritis! Had a blood test as my gp also thought it sounded like r.a, the blood test showed a possibility of lack of vitamin b12 but I need another blood test to check this but because of Covid they don’t want me going to the surgery. 
First thing in a morning I can’t bend my fingers and I hobble about a bit but once I get moving it eases. I wondered if I should take some kind of supplement but not sure. I’m not on any medication apart from Thyroxine for my under active thyroid.

If it’s not one thing it’s another 🙁

thurnefi
Member

Re: Joint and muscle pain

rosem

I haven't tried (I am on letrozole, slightly different, but similar joint pain side effect.)  Only because my oncologist said that omega 3 or any fish oil wasn't worth it whilst on letrozole.  I confess I didn't ask any further questions, and assumed (perhaps wrongly) that the effect of letrozole in inhibiting oestrogen was so complete that any supplements wouldn't work.  It will be interesting to hear from Jaybro after she has been on her supplements for longer.

xx

Jaybro
Member

Re: Joint and muscle pain

Hi Rosem

 

Yes and it’s a ‘special’ omega 3 oil taken directly from the algae the fish dine on, thus eliminating the poor fish from the chain. I’ve noticed no change but it is early days. In the meantime, being in agony, I saw my GP who’s sent me for a raft of blood tests that might indicate causes, rather than just blaming the anastrozole (or zometa infusion). His view was that chemotherapy and hormone therapy may trigger auto-immune responses that actually cause the joint and muscle pain and there’s no need to put up with it. I’m awaiting the results (and trying acupuncture) before giving up in despair!

rosem
Member

Joint and muscle pain

Has anyone tried omega 3 capsules to help with joint and muscle pain from anastrozole, and if so, has it helped. Thanks x