I’ve been struggling with this problem since starting zoledex and letrozole in 2019. I can count on one hand the amount of times I’ve been intimate with my husband and I feel awful but it’s just so painful so we don’t even try any more! Also had 2 very painful smears recently. I’m doing the Moving Forward course this month so hoping that will give some tips x
Yes. Completely given up now as it is so incredibly painful after a pretty active sex life previously. I am on arimidex which I believe is the main cause
sorry to hear you are having problems. Have a look on Menoupausedoctor.co.Uk
Look in the menu for Resources, then the Leaflet Menopause and Cancer. read on down, Page 9 is relevant
You can safely use Oestrogen pessaries (Vagifem) even if you have had hormone receptive BR Cancer. The oestrogen only acts locally. The leaflet which is inside the packaging is out of date and says not to be used for Br Ca patients but it is completely safe to use. But your GP may/will be reluctant to prescribe because warnings flash up on their screen for drugs. You may need to fight for this drug. Good luck
Re lubricants the Brand ‘Yes’ is supposed to be brilliant stuff according to a Tamoxifen buddy. Their website is YesYesYes.org There are a couple of options. All organic and non-irritant.
if you are on Instagram, Helen Addis @thetittygritty talks to Breast Surgeon and Cancer advocate Liz O’Riordan @oriordanliz They have recorded the most amazing Live chat ( Aug31 2020) about Sex, Libido and all things cancer related . Essential watch. She talks about many options to help us. Highly recommend.
I don’t have the dryness problems but need to wee often it’s a real nuisance and I’m trying the pessaries to help with this.
Hope this helps x
I ordered Yes vaginal moisturiser, which is beginning to help, though not quite there yet, and their lubricant. It's nice stuff and I think you can get it on prescription - it's actually referred to as a brand in one of the MacMillan leaflets so definitely NHS approved
My consultant has also said that a topical oestrogen cream that you apply directly to your quim will help, and has prescribed this too. I will start as soon as the letter gets to the GP!
It is a very depressing and debilitating symptom that no-one talks about enough, so I feel less alone for hearing that others are experiencing it too. Hope these suggestions help 🙂
Hi Little Gorton, I thought it was just me....all the leaflets and conversations with GP and BCN talk about "dryness" and loss of elasticity. There was little mention of atrophy. They mention "pain" and one guide I read tonight suggested a painkiller before sex, and lots of lube. The suggestion that sex counselling will help feels almost ignoring the biological reason for this.
So we have tried lube and I have been using hyalofemme and it feels like I am so raw and sex is incredibly painful, so painful that last time we tried we didn't try again for a month. I have continued with hyalofemme.
I have a conversation with the menopause clinic next week. It is the ongoing challenge of tamoxifen, constipation, painful and itchy labia and vagina...and the GP still won't prescribe the hyalofemme despite this being on my medication list. I have worked so hard on recovery, returning to work, trying to keep my child on track with year 10, exercising most days, eating healthier...but everyday, I itch as if I have thrush and I keep being fobbed off. I asked about the low estrogen cream but so far that is ignored by the GP and the BCN at my check up and didn't respond to my question.
I wouldn't normally talk about this at all, but losing intimacy after a year of sleeping apart due to treatment...it is just heartbreaking.
I really hope next week's appointment helps. I am so tired of this discomfort.
Hi, I must admit that I've not tried it yet. Have said to hubby that we need to think about it, but not quite yet! But I guess that we are put it into a rapid menopause so vaginal atrophy may be an issue? Lubrication not helping? I am kind of banking on KY jelly... But I also feel that I've read or heard somewhere that we can safely use the oestrogen pessaries - but they have to be prescribed. I feel quite lucky that I had a smear last year before all this started. I watched the Davina Macoll programme about the menopause on Ch4 last week, which talked a bit about sex. Have you spoken with a BCN? Or your GP? I'm definitely putting it off and have little desire, which is a shame as I could do with some fun...
Hope you get some more useful advice elsewhere @LittleGorton