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Where did I go????

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Re: Where did I go????

Wooo... we have all flown off, but will still remember our flutterby days. 7 years free now and STILL on letrazole ☹️ But grateful to be here. I wish medics of any sort would think to ask "is there any lasting difference from before you had cancer " or words to that effect! Bless you all. I have retired now!

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Re: Where did I go????

Thanks Doz ❤️

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🌹🌷🌻💐🌺🌸💖
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Re: Where did I go????

Oh sweetie I,m so sorry to hear your news and hope the outcome is a huge success xx💖xx

i know we had something special and I guess we still have and even though it went quiet I,m still here if you ever want to sound off... in Emmys words "sending spoons to see you through" 

take good care and remember stay positive xxxhugxxx

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Re: Where did I go????

Hi Doz

So sorry it's sad news that brings you back to the thread. Sincere sympathy to Emmy's family.

 

When I last posted I'd not long had my reconstruction op. Unfortunately on 28 Feb this year I was diagnosed with leukaemia (ALL) - such a shock, I'd just been on holiday and felt really well. So I've had Chemo again and now awaiting stem cell transplant.

 

Our thread started by you Doz was such a lifeline for me - it really helped me.

 

ive not found it with Macmillan leukaemia thread - a bit depressing so not continued with that.

 

We went through an awful lot and the thread was brilliant for all of us I'm sure.

 

Love to all

Stella xx

 

 

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Re: Where did I go????

It is with a very heavy heart that I am informing all the beautiful ladies on this thread that our Flutterby Emmy passed away last year.. she found out that her cancer had come back and I lost a very dear friend far too quickly... 💔

i,m so sorry it's taken so long to inform you all.. I,ve no excuse I just could,not find the right words even now I still don't know what to say 😢

I went to her funeral and met her lovely family, still finding it very hard to accept as we had been speaking..emailing most days since the thread went quiet, hopefully because everyone was finding life much easier?

i,ll never forget how much this thread helped and understand things don't last forever, however I would just like to thank you all who became part of the long and often hard road we all travelled together for just being there and sharing that journey.

much love to you all and I do hope life is being kind to you all... as always xxxxhugsxxxx 💖 Doz

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Re: Where did I go????

Hi Girls

nice to here everything went well with your recon honey... Very brave I,m another coward I just could,nt face more surgery and as for hospitals the only time I want to be in one is when I,m working! Ha ha! 

My thyroid surgery and how it's left me feeling has put me off permanently! 

I,m still bogged down with hot flushes possibly even more than when I was taking Letrozole... I now find out the levothyroxine gives me exactly the same side effects! Aaaaaaaaaargh! Can't win! And insomnia is worse so pretty sick of it all!

my hours are still normal at the moment though I,ve noticed on the roster that the odd week I,m getting shorter hours then the following week back to normal.....?? I,m hoping it's just to cover sickness and shortage as I will be pretty naffed off if it continues!

oh the joy!!!

enjoy your time in Mull I envy you 😊 

Love to all and hugs to everyone xxxxxhugxxxxx Flutter gently xx

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Re: Where did I go????

Hi Jane 

On 3 February last year had the latismussis dorsi (spelt wrong I know)! It's where they use the muscle from you back it is quite a big op, was off for six weeks but only in hospital 3 days. I then had nipple reconstruction & fat transfer in June- just day surgery. I've not had any problems touch wood! I had a session with BCN as well as consultant to discuss it, look at photos, and also spoke to a volunteer who'd had same op - good support.. But obviously it's a personal decision.

 

really hope the weather improves for you for Mull! It's awful here today.. Could be an afternoon watching the rugby!!

 

Stella xx

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Re: Where did I go????

Hi Stella

 

Glad to hear that you're pleased with your reconstruction...which type did you go for?  My consultant asked me again if I wanted to have one but just can't face any more surgery or hospital so have made my mind up that at the moment it's not for me.

 

Doz - how's the part time working?  

 

We're off to Mull 5 weeks today and can't wait...just need the rain/gales/snow to STOP!  Will be doing a sun dance every day if needs be!

 

x

 

 

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Re: Where did I go????

Hi Jane/Doz

 

Late response but I've been on holiday! Had a lovely time.

 

Really pleased your check went well Jane, out of the way for 1 more year. My next one is end of April and then one more. Reconstruction not for everybody but I am pleased with mine. Good on you getting a bike & booking your holidays. Lots to look forward to.

 

Doz I'll also be pleased when off letrozole - my memory is awful, hoping it won't get any worse once off medication.

 

Takecare both - happy days.

 

Stella xx😀

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Spot on honey xxxxxxx
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Thanks.  I'm well and have booked 3 holidays to various parts the Scotland and its isles this year; I intend to live life!  Have bought myself a bike and have started cycling though wet winter has been in the way; spring is around the corner so will get pedalling again.

 

Flutter life to the full!

 

x

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I said exactly the same 😊😊😊
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Ah bless you that's fabulous news the last year passes so quickly!! Countdown begins😊

Hope all is good with you butterfly xxx

i,m off Letrozole now ( 4weeks) still getting hot flushes? But I,ve been told it can take a month or two to settle...

cant wait!

much love as always stay warm and take really good care xxxhugxxx

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Annual check up last week all ok....phew.  One more to go then that will be 5 years,can hardly believe it.  The consultant asked me if I wanted a reconstruction and it was a no from me, I've had enough of hospitals, appointments, surgery,etc etc etc I can see the light!!

 

x

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Wonderful news xxx

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Fantastic news!!

stella xx

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ALL CLEAR DISCHARGED NO MORE LETROZOLE YAAAAAAAAAAAAAAAAAAY,

What a relief this had to be the most nerve wracking appointment!

soooooooo happy 😊😊😊 

Daniels doing really well he,s working as a wind technician for Siemens, he,s got his own team and is loving it!

once again my lovelies hope all appointments are positive and clear then we can all flutter gently 😍

MERRY XMAS AND A VERY HAPPY NEW YEAR XXXXHUGSXXXX 

 

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Re: Where did I go????

Hi Jane/Doz

 

Nice to hear from you both. So sorry about your sister Doz - must be very hard for you.

 

good news about Vicky- on the up and up. Good for her! Glad you're taking it easier with 2 shifts - finally! How's Dan doing?

 

You've both got checks coming up then - I'm sure they will be fine 👍🏻. I had my LD flap reconstruction done in February, now having nipple tatto done. My middle son has been working in Dubai since May- he came home Saturday for 10 days over Christmas.. We've just been into Leicester doing his Christmas shopping!!

 

Hope you both have a lovely Christmas and a happy and healthy new year..

 

Stella xxx

 

 

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Thankyou Elsa and enjoy your time off you deserve it xxxhugxxx
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Doz - So sorry to hear about your sister x

 

Eeek and double eek -I've got my 4 year check up on 13th Jan - always dread the appointment.

 

Fantastic news about Vikki; it was lovely to hear how well she's doing.  AND you are down to 2 shifts a week, wonderful and marvellous.  There is so much going on where I work and still immensely stressful there; but I'm looking forward to having some time off over Christmas and much needed r&r.

 

Take care xx

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Re: Where did I go????

Hi Flutterbys

i wish you all a very Happy Christmas and a peaceful prosperous new year xxxx

hoping you are all well...

i have my 5 year check up on Monday eeeeeek! Where on earth has the last 5 yrs gone?

so many things have happened in those years,

I sadly lost my sister in September which has taken my feet out from under me, it was very sudden and totally unexpected 😢 Missing her terribly!

my daughter Vikki finally started working again and has climbed the ladder very quickly as a Sui Chef at a local farm shop/restaurant... Very proud of the way she has adapted!

I have finally dropped my hours at work to just 2 shifts... So much more to life and finally taking a bit of me time!

bless you all and flutter gently xxxxxhugsxxxx

 

 

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Re: Where did I go????

Hi Flutterbys

 

Hope you are all well.  Just to wish you all a happy and peaceful christmas.  Flutter gently

 

Jane x

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Re: Where did I go????

Flutterbys United 💜 I too will pop on from time to time even if it's just to say hi!! Much love, travel light on your wings all my wonderful friends take care and now the adventure begins as we all find out what kind of Flutterby we have become, spoons and of course hugs xxxxx

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Re: Where did I go????

That's right Doz WE will always be united. I too will pop on now and again just to see how everyone is getting on.Eldest son arriving from Oz on 30th June soooooo excited. Then off to Center Parcs with family in July life is sweet at the moment so keeping my wings dry and flutteringstella glad your recon went well nurse mentioned to me about some lipofill but I can remember plastic surgeon saying it was risky as a lot of scar tissue so I will just wear my padded bra and leave well alone.
Elsa do let us know how you get on with race for life and hope your friend gets through her treatment okay
Au Renoir for now love and hugs to all xxxxxxxxx
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Re: Where did I go????

Flutterbys united Butterflies ALWAYZ 🌹🌹🌹🌹🌹🌹 {¥}
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Re: Where did I go????

Hi flutterbies

 

It sounds like you lovely flutterbies are ready to move on with your lives and I too feel that way but know that from time to time I'll come back here for support.  It doesn't mean that I don't think about what's happened because I do every day but I'm able to cope with it better somehow.  Stella; so pleased that you're happy with your reconstruction; I had an appointment yesterday to discuss it again but at the moment I still feel its not for me but who knows maybe I'll feel different in the future.  Doz; also pleased to hear you're going to retire but I'll use the word retire in a very loose way because I know you will keep yourself busy and you will wonder where you got the time to ever go to work!  Janice - I was so glad to hear that Phil is doing well now after all he's been through and you've been there supporting him throughout x and yes; I will be doing a race for life next year with my friend and our daughters; hopefully it will be in Aberystwyth.

 

So flutterbies this is au revoir but not goodbye as I will keep checking in from time to time because as we all know that fragility comes to the surface every now and then and when it does I know you will be there xx

 

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Hi ladies - I think I've forgotten how to post! Had to change password then couldn't get back to page so hope this post appears! Jane well done on doing race for life - hope it won't be too hot! Janice - so glad to hear you and Phil are ding well & you've got the all clear - I've got another year yet. And doz - our inspiration or certainly mine - I don't know what I'd have done without some of your wise words. I'm sorry to hear thyroid has been sorted yet. It's not fair but such is life I suppose.
I had myreconstruction op in February which I'm very pleased with & was in for day surgery last week for nipple reconstruction & tidy up. It's amazing the things they can do..
My middle son Tom & his girlfriend Leanne moved to Dubai in April to work - missing them but looking forward to a holiday there later in the year.
I wish all of our butterflies well & will carry on checking in.
Stella xxxxx

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Re: Where did I go????

Hi Butterfly's
I think your right Janice and hopefully it's the same for everyone that things are getting better xxx
So good to hear that you,ve been discharged and Phil is well on the mend... Long may it continue 😊
Also sorry to hear about your friend Elsa I,m sure with your support it will make the journey so much easier!
This site has been my saviour this past 5 yrs with all the input stories and support bless you all it will be sad to see it retire...... But I think most of us are at our 5 year hurdle and hopefully it will bring the best of news for everyone, I will certainly be posting my results in November xxxx
Life has certainly had its ups and downs this yr thankfully not the dreaded cancer related! Still having issues with the thyroid but it takes quite a while to maintain the proper dose so plod on I will, had my app with Endicrinologist on Tuesday and didn't expect the camera down my nose eeeeeeeeeek!!! It turned out to be my surgeon who admitted the results were good as such but in theory it was,not necessary to remove it as the suspicious nodule was nothing 😕 but I guess in hindsight it's better to know that.... Tho it has opened a can of worms for me as the diagnosis of Hashimoto thyroiditis now needs attention and it's very complicated to treat if you want to get to the root cause of it, so basically they just give you thyroxine and your left to deal with fatigue hormonal imbalance brittle nails dry skin dry hair palpitations fibromyalgia symptoms the list goes on.. So until the thyroxine levels are right it's another damn long road!
My biggest question which no.one seems to be able to answer is... Letrozole inhibits oestrogen and your thyroid needs that hormone to supply the rest of the body so am I fighting a loosing battle? As yet not one professional has given me an answer? Hey bloody ho!
My friend Carol who lost her son in the French Alps air crash is going through a really tough time bless her, she had a memorial service for Paul in May which was beautiful but heartbreaking for everyone, now it transpires they have matched his DNA to remains 😥 so a funeral is required, It's terrible for her what with all the evidence being still going through the courts for manslaughter charges and hearing the last 8 mins before the crash has broken her so a lot of TLC Is In order for her in the future... I can't begin to imagine her pain 😥
This was going to be a quick catch up sorry....
Sister is doing well and Vikki is now job searching with vengeance! And I,m looking forward to retirement still!
I,ve set the date for December this year in the hope that life will have taken on a much more peaceful road and Vikki is off my hands 😊
Much love to you all I will pop on now and then so it's not goodbye just au reviour for now Butterflies! How precious you all are and have been take care of those wings and enjoy the summer!
Love and hugs as always Doz xxxxxhugsxxxx
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Re: Where did I go????

Hi Jane seems like everyone is too busy to post nowadays I just looked on to see if there were any new posts I do hope you get to do the race for life next year I have done it twice I did pretty muddy one last year and it was great fun. I have now more or less been discharged from hospital just got my 5year mammo in October.
I am sure your friend will get through it all with your support as you can empathise as you have been there.
I don't suppose I will be posting much now as Things are getting better for both of us Phil is doing fine now so hopefully we can have some time to enjoy our lives again take care and look after yourself love and hugs Janice xx
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Hope all you flutterbies are well as its a long time since anyone posted.  I joined Facebook at the weekend and got in touch with a long lost friend.  It was a bittersweet experience; we arranged to meet and it was lovely to see her again BUT guess what?  She was diagnosed with breast cancer this year; had a mastectomy in February is going through chemo now;then radiotherapy then will need arimidex.  Poor thing my heart went out to her; she looked so vulnerable.  I'm seeing her again tomorrow; she's still got her great sense of humour and we're planning to do a race (fast walk!!) for life next year all being well.

 

 

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P.s sorry meant Doz stupid ipad
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Re: Where did I go????

Great news Jane so nice to have good news hope all continues well for you.
What can I say Diz it seems like trying to get blood out of a stone getting answers from anything.Phils consultant said he would arrange his next C.T scan for July and I saw him write on the form "after July 12th" but they obviously didn't read it and send app for 30th April so trying to get that sorted. As he has to go in the day before for I.V fluids we need to get it sorted as the bed will have been booked. Seems as the N.H.S has sunk lower than it ever has so dear knows what will become of it all. Take care and hope the police get it sorted for you soon although your insurance should be chasing him as well.
Hope everyone else is doing okay love and hugs Janice xxxxx
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Re: Where did I go????

Where do I start..... Morning flutterbies that is such good news Jane I,m so pleased for you xx
Easter Sunday an uninsured driver ploughed into my car launching it onto the pavement and driving off, it narrowly missed the front door of the 3rd house along from where it was originally parked, I,ve got his reg and make of car and 4 witnesses, and as yet the Police hav,nt followed it up, so to date I,m £250 out of pocket for excess 😟 plus a couple of long taxi fares to Hospital... Where I got my results I,ve got Hashimoto thyroiditis it's where the immune system attacks the thyroid... What's left of it 😟 they took bloods to see what's going on with adrenal gland calcium level T4 T3 which are part of the thyroid function (I,ve been doing lots of research! ) and that was 11 days ago, having a right pillaver trying to get some answers the results are there but no.one has reported on them so I,m left feeling rubbish 😕 made some marathon phone calls today to try get some answers in the end I asked them to give the results to the Endo Consultant so I can get some answers and treatment! As food can affect this and I need to know what I,m dealing with to be able to sort that out! So I,m still off work ironically because the NHS my employer has,nt got their act together!
Hey bloody ho!
My poor friend Carol is living a nightmare with all the revelations from the plane crash and is finding no peace at all 😥 she,s been told there will be no burial so the poor girl is getting no closure it's absolutely heartbreaking, today she has flown to Cologne for a memorial service and it will be the first time she has stepped out in public, can't begin to Imagine her pain!
BUT
The sun is out and as much as it's not that warm I will enjoy it!!
Hope you are all well and getting ready for the summer, love and hugs to you all as always xxxxhugxxxx
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Re: Where did I go????

Hi flutterbies

 

Hope you are all well.  I just wanted to share some good news with you; I had my test results back for possible endometrial cancer and all good....such a relief.  

 

Jane x

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Re: Where did I go????

Hi Doz do sorry to hear that news. As Jane says words aren't enough. Take care of yourself and get good news when you see Drs.
Hugs to all
Stella xx

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Doz-how truly awful for your friend; words just aren't enough at a time like this but my thoughts are with her. So sorry x

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Well done Janice and yes happy Easter to you Phil and the rest of the Butterflies!
Still recovering and think I,m getting quite under active symptoms from my thyroid op 😔 feeling pretty rubbish but only a week to go for my follow up!! Fingers crossed I can sort my poor old body out?
Sorry not posted for a while there,s been a very tragic loss for my friend Carol from Mallorca,
Her son Paul was on the flight that crashed into the French Alps, absolutely heartbroken and it has broken her, he was her life and a very lovely lad who was witty full of life and very special, this has been the worst tragedy with terrible terrible implications 💔
Sorry to dampen my post with such awful news but hav,nt had the heart to write much lately...
Love to you all always xxxhugxxx
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Re: Where did I go????

Hope everyone has a nice Easter even though weather looks as if it may be more like xmas. We are off to D.Ds for the weekend so hope it at least stays dry.
Started Slimming World and lost 2ponds in my first week just hope I can keep it up.
Love to all hugs Janice xxx
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I was doing the slimming world as well but with all Phils problems wasn't sticking to it so may go back to classes for the support and not have wine lol. Doz I so sympathise with you poor girl roll on April and hope they get you all sorted for the summer. Have decided as well as my twice a week health gym I may do some weights as well as good for the old bones and hopefully I can lose 2 stone by July I can but try. Now I have written it down I will have to try thanks for your support Jane love to all big hugs Janice xxxxxx
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I give up with dieting I,m all over the place at the moment my appetite is fluctuating as is my weight 😃 think I,m going to wait to see if I need meds for thyroid then take it from there?
Had a lovely Mother's Day Vikki spoilt me rotten and took me and my sister for a meal 😊 (I ended up paying I can't see her spend so much while she still is,nt working ) but even so the thought was lovely! Daniel is somewhere in the Irish Sea up a wind turbine so he,s taking me out tomorrow night when he gets back 😃😃
Weather has picked up again and I spent yesterday pottering and getting all my pots cleaned and fresh compost in ready for the big plant up 😃
Still struggling with energy levels and headaches... So hopefully come April when I get my check and diagnosis that will get sorted?
Getting really bad night sweats at the moment again this blessed thyroid problem and of course good old Letrozole give the same side effects so getting double the blinking dose! Not sure which is causing what aaaaargh!
Oh well another half sunny day time for my daily walk with Ben (he,s loving me being off 😊) then home for my mummy nap 😴😴😴
Love to you all xxxxhugxxxx
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Good luck Janice.  I'm also trying to lose weight and have lost a stone so far but seem to have come to a complete standstill for the last 3 weeks despite dieting so, like you I think I need to up the amount of exercise I do and now that the days are getting longer think I'll start going for regular walks at least.  I'm following Slimming World; which seems fairly easy to stick to (still doesn't stop me craving buttered toast and marmalade in the mornings though!).  x

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Hope everyone had a nice Mother's Day. Had to laugh as my daughter had rung and texted and as I was out and about she was getting worried. Ha ha makes a change as it's usually other way round. Decided I am going to have to lose weight have at least 2 stone to lose. Walked nearly 3 miles today and gym tomorrow so wish me luck. Love and hugs Janice xxxx
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Hope everyone had a nice day. Lovely to have my daughter up from London for the weekend and she's cooked dinner. 😄😄
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Thanks Doz. Lovely day here so got some clearing out done in the garden love to Al xxx
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Happy Mummy's day Futterbys xxxxxhugxxxxx💐
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Hi Francine, I was diagnosed 5 March 14 and had my surgery 12 March14 followed by 6 months chemo then2nd surgery comprising WLE and full node clearance as it was in the lymph nodes, then 4 weeks radiotherapy. All that finished end November. I was advised mastectomy by oncologist but Mr K suggested a phased approach as if I got clear margins and nothing more in the rest of the nodes it would have been for nothing, on the other hand he said if it was then he agreed I had no choice and he would recommend a mastectomy. Thankfully it was all clear margins and I am thankful I listened to him. I am ER positive and supposed to be having hormone therapy but have decided not to take it yet. If you want to private message me that would be ok Uppingham isn't that far we could meet for a coffee in Oakham when you are feeling better
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Hi Bondgirl

You're nearly a neighbour then!! I'm in Uppingham but only moved here 6 months ago and don't know anyone really. All my friends are no not near me now and my family is split between Somerset and South Africa sonot much chance to see them. At least my OH is very supportive and my daughter, who lives in Lindon, comes down when she can. Yep, Mr K is lovely and I have a lot of faith in him. He isn't one of those 'just cut it off' surgeons that some ladies on here seem to have and I'm sure he'd only recommend mx if he thought it was really necessary. I found all the staff at Glenfield lovely, especially on the ward. Wish I could have all my appts there rather than LRI as is so difficult to park and bit of a trek but that's the way it is. I can't see why the oncology team couldn't see patients at Glenfield one day a week perhaps but I'm sure there's probably a reason they can't. Seeing them next Wednesday so should have treatment plan by then. Xx
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Oops replied to the wrong post. Francine, he was mine too, hope you are recovering ok
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Hi Francine, he was my surgeon too I have had two lots of surgery and he is excellent very easy to talk to. Hope you are recovering ok, keep strong xx