Doz- I hope you've now got a date for your op; waiting is the worst time x
As you all know I had to be referred back to the gynae team; except for some unknown reason my GP referred me to Wrexham and not Shrewsbury where I've always been seen! Still, I went along as I just needed to see someone asap. The upshot is I need to be reinvestigated! So, had biopsies last Friday and will need ultrasound - hopefully this will be done within the next 1-2 weeks. If all is ok then nothing else needed but if all is not ok will need another hysteroscopy. Here we go again.
To change the subject completely my friend has only got herself onto the tv quiz show The Chase and wants me to go with her to Cardiff on 25th Feb; should be fun!
Hope all you flutterbies are well and keeping warm in this cold spell x
Thanks for all your replies about recons. Whichever one I go for (if any) I've got to lose some weight first. Dr told me yesterday that my BMI needs to be 33 or less and I think mine is around that mark at the moment; maybe a 34. However, I was talking to the nurse afterwards and she said that last week they had operated on someone with a BMI of 34. Still; losing some weight wouldn't harm; I've already lost 7 pounds so will keep going with the diet. There's so much to think about; the risks and benefits; do I want any more scarring and having more time off work.
As you can see from the time on this post I've woken early with all this going round in my head!
Phew; mammo was normal...and breathe! The Dr talked today about whether I'd be interested in having a reconstruction so I'e booked an appointment next month just to discuss it and what options there are. I think I know the options but I need as much info as possible before I make any kind of decision as its a major op and wouldn't want to rush into it if that's what I decide to do.
Has anyone else had a reconstruction and if so what are your thoughts?
P.S Yvie, I hear what you say about the implant recon. I am aware of mine too..it is the weirdest feeling at times, especially when I am cold, it kind of all contracts and goes hard!
GOOD LUCK FOR TOMORROW! Let us know how it goes xx
Hello and thanks for all your welcomes and nice words 🙂
Not feeling too bad about the body 'thing' at the moment, it comes and goes in waves i find. For two years I grieved intensely for my old body and brain. Well, my brain is getting there, but changed body, well, it's for good isn't it. The scar is massive and every shower or bath can be quite an emotional time (not always!) but sometimes.
Feeling a bit wobbly about my work situation at present. I have been working from home for the last 3.5 years and the job is very much tied in with my BC experience, operations etc. Funding is due to come to an end on March 31st which means redundancy for me. On the one hand, it will good to make a clean break fro it and all those bad connections, on the other hand, I am feeling a bit worried about my sick record. In the 3.5 years, I have had 4 bouts of sick leave. 3 for reconstruction ops and one for stress (BC related). I don't want to disclose my BC to future employers and am worried I may have to somewhere down the line or that my current employer will make a point of disclosing it in a reference!
Do most employers ask for a record of sickness still? I really want to make a clean break from it all now.
Right, have a good afternoon everyone, I am off to write my CV!
Naz I so know how you feel - it will be 1 year from my mx next month and tomorrow I have my first mamo post treatment. I have implant recon and am constantly aware of it.
Hi flutterbies, hi Jojosammy; welcome to this site. I'm coming up to 3 years post mastectomy and I run marathons and organise charity events..............................not!!!! Give me a pj day anyday. I think fatigue is common after this diagnosis; it doesn't end when treatment stops; the worries and anxieties are always there in varying degrees of severity and this is emotionally tiring so its no wonder you feel like you do. This site has been invaluable to me; and I feel so supported by everyone on here and hope that you do to.
Talking of support I think I need some right now. Some of you will know that I've recently been investigated for post menopausal bleeding and after tests and surgery to remove a polyp the results came back clear at the beginning of this month and I breathed a huge sigh of relief as this had been going on since September last year.. BUT, last week my symptoms started all over again. I phoned my GP for advice and he just referred me straight back to the consultant so feeling rather worried now. I also get the results of my mammogram tomorrow so anxious about that too. Needless to say sleep has gone out of the window!
Doz; have you got a date for your surgery yet? I agree with you that nurses make the worst patients! Keep positive x and am sending a wrap around virtual hug
Went to choir last night and used all my slimming world syns on a glass or two of red! We were recorded by a choreographer who is creating a dance production based on the sounds of Montgomery so really looking forward to the final result and will definitely be going to see it. Luckily? the sounds of our singing are going to be distorted and stretched apparently and after the way we sang last night maybe that's a good thing!!
Keep warm, more snow on the way oh joy
Your feelings are quite normal as I am sure your fellow forum users will tell you. To help you along I have put for you below the link to BCC's publication 'Moving Forward' which I hope you find helpful.
And also the link to the area of this website where moving forward is discussed further.
I just found it really strange that I had 6 months of chemo dominating my life and the staff were wonderful and incredibly caring but then from the minute I walked out after my last treatment that was it, nothing. No one spoke to me about after care or support, (maybe I was supposed to ask, I dont know). I had private care (paid by my boss, I couldnt have done it) so it isnt for lack of funding. Am I missing something. I was ok because I had a pretty easy time with my treatment but for some people this would be dreadful. Kind of like taking off the stabilisers from a childs bike too soon. Anyhow I think I wandering off into a different subject area now.
Hi flutterbies; and hi to Jomar our new flutterby. We've all felt (and sometimes still feel) like you feel now. When all our surgery and treatment is finished others forget that we still have to live with either the side effects of medication or a changed body due to surgery. We also have to get through the anniversaries of these things happening to us. I'm approaching the 3rd anniversary of my mastectomy and all those awful memories are stirred up again. The annual check ups are also a source of anxiety. Everyone seems to thnk that once you've had treatment that that's it; you get on with your life just as you did before the diagnosis............ except everything has changed for you. That's why I post on this forum because the lovely flutterbies on here just 'get it' because they've been there themselves. So anytime you need support we're here for each other x
Well. hello all.
I joined this forum some time ago then forgot all about it. I had a mastectomy and auxillery clearing then 6 months of chemo so I guess I was full to the brim with anything cancer related. It really is all consuming.
I was very lucky in that my boss paid for all my treatment and the place I had chemo was incredible. I almost looked forward to my weekly treatments as the antihistamine knocked me out and it was the only time I ever used to sleep.
2 weks before my diagnosis. (another story, they did not deal with that very well at all) my freind gave birth to my godson who had many problems and spent the first 16 months of his life in hospital. This was a huge distraction for me throughout my treatment and while I was on weekly treatment I was then at St Thomas hospital with them every day. That certainly kept things in perspective for me watching all those precious little babies fighting for their lives. Also during this time my beloved dog died unexpectedly. We had been inseperable for years ( Im still not over it more than a year later). Next, my best freinds mum died on christmas day, we knew it was coming as she had kidney failure although why they decided to stop her dialysis just before christmas is beyond me. What with all this going on my health situation was not very high on my list so I feel like I went through it really easily although if i wasnt at a hospital i was in bed or the pub. My dod died in November and i (wrongly) drank myself stupid for about 3 months with the parents of my godson and my freind who lost her mother. Drinking and very sick humour got us through it. I had my very long vey thick hair cut to a short bob the day before my chemo started and used the cold cap. I did loose 50% of my hair. Not too nociable for others but of course to me it was half my hair. I now have tufts of hair about 2 inches long sticking out all over which is nice : )
Anyway I was looking through these threads last night to see if I could find some answers or find I am just a hypercondriac and like everyone else was surprised to find so many people feeling the same way. Although my chemo was first class I walked out of there on the last day with no direction whatsoever. you cant possible know what its like unless you have been through it so all my freinds have had the attitude of its over, get on with it. Its been implied by some that Im lazy because I still struggle to get up in the mornings have no energy and feel weak. I have very mixed feelings on this because half of me thinks that because I had an easy time with my treament I shouldnt feel like this but then other times I want to scream the C word at people.
Went to my gp yesterday because Im fed up with feeling generally unwell. When I said I couldnt get up she asked me if i thought it was depression. However, its a physical thing, I wake up and it takes about an hour before I can get up, its like coming out of a GA every morning and i ache all over and cant move my fingers. Had a blood test but she thinks its probably the tamoxifen, so thats nice as i still have 4 and a half years of that. And dont start me on the weight gain . . . .
Sorry about all the moaning, Im usually quite positive.
One last moan. I feel cheated. I was led to beleive that I would find this new love and appreciation of life while instead Ive got a hair that looks like a goat has been chewing it. One boob bigger than the other with one also looking like the goat has had a go at it, no feeling in my boob,right arm, armpit and shoulder. (those of you with the same will know the frustration of it itching and not being able to do anything about it) a stone and a half heavier, fat in places Ive never had before and a belly that hangs down past my hips. I am so ashamed of myself for thinking this because Im supposed to be grateful for being alive but Im most angry that I got an illness that made me fat instead of an illness that makes you thin. I know thats terrible and Im really not a vain person at all but thats the truth. I never said I was a nice person : )
ps Janice and Phil (Honorary FB!) - I can fully empathise with Phil about having blood taken. Because I've had a mastectomy I'm not allowed to have blood taken that side...guess where the good veins are!! So every time I need blood tests they have to use the other arm..guess where they can't find the veins!!
Poor you Doz; sounded a dreadful experience. I hope the dr got enough for testing; could it not have been done under a GA? Well I finally got my results through on Tuesday and all ok. Same day I got an appointment for my annual mammogram on 21/01/2015; oh joy. This is not a good time of year for me; I feel myself building up to the annual check up and get really anxious about it.
On my days off now so can relax a bit; singing with choir at an oap's dinner on Sunday and we're doing Homeward Bound and Fields of Gold; which makes a nice change from Christmas Carols!
Doz- hope your biopsy is ok tomorrow; how long will you have to wait for results? Keep positive my friend. I'm going to be giving the hospital a verbal rocket today as I still haven't had my results and it's nearly 8 weeks since my op; it beggars belief. Poor old Daniel; an awful thing to happen; hope he soon feels better and makes a good recovery.
Stella-good luck too for your results on Thursday. I was told I had lung nodules after I was diagnosed with BC but it was benign and dr thought I had sarcoidosis. I still have check ups with the respiratory team but whatever I have has not progressed thank goodness.
Mull was beautiful; we had lovely weather for this time of year; blue sies and snow capped hills. One day of persistent rain and force 9 gales but I quite like being by the sea in stormy weather. We saw otters and sea eagles, divers and little auks. We were so tired on New Years Eve that we raised our glasses at 9pm then went to bed!
Wishing all flutterbies a happy and peaceful new year
Wishing all you lovely flutterbies a peaceful Christmas. I'll lift a glass (or two!) to you all at New Year on Mull