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Where did I go????

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Re: Where did I go????

Oh bless you 😔 what a messing around your having, I do hope it all comes back ok xxx
Yes I got a date 27th Feb eeeeeeeeeeeeeeeeeek! I,m very quietly pooping my pants 😳 really trying hard not to think about it but I,m not doing so well! Got my pre op on Thursday so it's making it all very real!
I love the Chase I will watch out for you 😊
Hope everyone is ok and your keeping well love as alwayz xxxxhugsxxxx
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Re: Where did I go????

Morning all

Doz- I hope you've now got a date for your op; waiting is the worst time x

 

As you all know I had to be referred back to the gynae team; except for some unknown reason my GP referred me to Wrexham and not Shrewsbury where I've always been seen!  Still, I went along as I just needed to see someone asap.  The upshot is I need to be reinvestigated!  So, had biopsies last Friday and will need ultrasound - hopefully this will be done within the next 1-2 weeks.  If all is ok then nothing else needed but if all is not ok will need another hysteroscopy.  Here we go again.

 

To change the subject completely my friend has only got herself onto the tv quiz show The Chase and wants me to go with her to Cardiff on 25th Feb; should be fun! 

 

Hope all you flutterbies are well and keeping warm in this cold spell x

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Thanks for all your replies about recons.  Whichever one I go for (if any) I've got to lose some weight first.  Dr told me yesterday that my BMI needs to be 33 or less and I think mine is around that mark at the moment; maybe a 34.  However, I was talking to the nurse afterwards and she said that last week they had operated on someone with a BMI of 34.  Still; losing some weight wouldn't harm; I've already lost 7 pounds so will keep going with the diet.  There's so much to think about; the risks and benefits; do I want any more scarring and having more time off work.

 

As you can see from the time on this post I've woken early with all this going round in my head!

 

x

 

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Good news re Mammo Elsa. Re all discussions about implants can't give opinion as didn't have mastectomy bit I can empathise re change in way we look and feel as my WLE left me with what I can only call a twisted boob I had some plastic surgery which made it look better and as it was 3 cams higher more or less made them level but still don't look at it if I can help it but now 4 years down the line and been to hell and back with everything else that has happened in our lives I am not so bothered just glad I am here to help other half through his traumatic time. Hope you all make the right decision and continue to get back to what is now the new you. Very little snow here thank goodness but cold and frosty so keep warm lovely ladies live and hugs xxxxxxxxx
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Re: Where did I go????

Hi Elsa great need about the mammo.
I'm just about yo ho into hospital on Tuesday for removal of my implant and have LD flap done. My implant has been quite badly affected by the radiotherapy. Originally they didn't think I'd need rad which is why had immediate implant - but I did @ chemo as well. Anyway saw consultant in October who suggested ld flap, gave me lots of info, then few weeks later saw BC nurse who went thru it all again & showed me photos & gave me a video to watch. BCC have also put me in touch with a volunteer who's had same op which has been very helpful. Saw consultant again 15/1 & booked for Tuesday 3/2. She did say the best one was the tram diep but still get very good result from LD flap. But it is a big op and can be off 6-12 weeks. Obviously if my plant was ok I wouldn't consider it but ovr got to have an op so decided to go for it. Hope that hasn't confused you more!
Welcome to our new ladies
Stella xxx (original one)! We now have 2!
PS Snow has cleared here in Leicester - hope its not too bad for everyone else.

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Re: Where did I go????

I had immediate recon with implant. It's ok, obviously would rather have my old droopy one but now have a very pert boob. Looking down is ok, looks good, but in mirror I can see I have a thick ugly scar at the moment. I couldn't have diep etc as BMI too high. I am thinking now I am glad I don't have hip to hip scar but implant won't change size as I lose weight. ( notice the positivity lol no mention of if I gain!) also it may well need changing in 10 years. When I thought I had a choice I decided I would always be led by the plastic surgeon as they should know what would be best for me. My first choice was implant then the breast surgeon said diep was the gold standard etc etc. So I researched that option and LD flap deciding upon Diep. Then, met with the plastic surgeon who was so lovely and tactful but informed me that I didn't have a choice. He immediately offered reduction to the other breast, to be done at the same time before I had a chance to ask, that is why I think they do what is best for you. My breasts were about 12in long so a big reduction was required. I was always very large breasted even when I was a size 10 so although I wish I was still "me" I am in awe of my now normal sized and pert boobs! Stella x
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Phew; mammo was normal...and breathe!  The Dr talked today about whether I'd be interested in having a reconstruction so I'e booked an appointment next month just to discuss it and what options there are.  I think I know the options but I need as much info as possible before I make any kind of decision as its a major op and wouldn't want to rush into it if that's what I decide to do.

 

Has anyone else had a reconstruction and if so what are your thoughts?

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I think employers are more concerned about people who are regularly off sick for maybe 1 or 2days not something major as hopefully it won't happen again.xxxx
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Thanks Doz, that is really reassuring to know because I was feeling rather worried about that! xx

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Just a quickie girls.. An employer cannot disclose personal data to other people it's data protection! Nor can they discriminate due to major ill health.. I do hope that helps you bless Ya xxxxhugxxxx
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Re: Where did I go????

P.S Yvie, I hear what you say about the implant recon. I am aware of mine too..it is the weirdest feeling at times, especially when I am cold, it kind of all contracts and goes hard!

 

GOOD LUCK FOR TOMORROW! Let us know how it goes xx

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Re: Where did I go????

Hello and thanks for all your welcomes and nice words 🙂

 

Not feeling too bad about the body 'thing' at the moment, it comes and goes in waves i find. For two years I grieved intensely for my old body and brain. Well, my brain is getting there, but changed body, well, it's for good isn't it. The scar is massive and every shower or bath can be quite an emotional time (not always!) but sometimes.

 

Feeling a bit wobbly about my work situation at present. I have been working from home for the last 3.5 years and the job is very much tied in with my BC experience, operations etc. Funding is due to come to an end on March 31st which means redundancy for me. On the one hand, it will good to make a clean break fro it and all those bad connections, on the other hand, I am feeling a bit worried about my sick record. In the 3.5 years, I have had 4 bouts of sick leave. 3 for reconstruction ops and one for stress (BC related). I don't want to disclose my BC to future employers and am worried I may have to somewhere down the line or that my current employer will make a point of disclosing it in a reference!

 

Do most employers ask for a record of sickness still? I really want to make a clean break from it all now.

 

Right, have a good afternoon everyone, I am off to write my CV!

 

Naz xxxx

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Naz I so know how you feel - it will be 1 year from my mx next month and tomorrow I have my first mamo post treatment.  I have implant recon and am constantly aware of it. 

 

Member

Re: Where did I go????

Hi Jane
Sorry to hear your symptoms are back.. But I,m sure if it was something they would have found it last time? Could it be a side effect of any meds your on? I know some can give you small bleeds! Tho yes best thing is to get it checked out to be sure.... Good luck with you results for mammo, always a tense time as we all know xx
I,m not sure how long I,m going to be waiting but the surgeon put urgent on it and when I asked how long it would be he said within 3/4 weeks perhaps sooner.... And yup... I was awake all night too! As much as I,m trying not to stress my heads all over the place!
I rang work to forewarn them that I,d be off and asked if I not be moved until I,m sorted... As I,m always put onto Oncology and I don't want to be on there... I was told by our senior nurse its out of their hands its up to 500 bleep! So this morning I,m calling occupational health, I,ve enough going on without the stress of that!
Watched the slightest of coverings of snow fall about 5 this morning... Since then nothing! I,d like to have a couple of days of the White fluffy stuff but it's only settled once for a day then went as quick as it came😔
Stay warm all you lovely Flutterbys and stay well xxxxxhugxxxxx
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Re: Where did I go????

Hi to everybody and our newbies. Yes we all have different problems but as most of you say a bit more support wouldn't go amiss. We have had very little and when G.P get receptionists to ring asking for specimens and can't say why as they aren't allowed to and probably don't know anyway. Every time we visit G.P it's someone different and they ask what's wrong and have absolutely no idea about you. I know Phil gets very frustrated so tends not to bother them when he should.
Hope results are okay Jane thinking of you (big hug) and I am sure singing was wonderfulas regards running marathons couldn't do that but did manage pretty muddy race for life last year with my daughter . Never again ha ha. Take care all and keep warm we have had a smattering of snow but a few miles from us it's quite a bit. We don't get much living by the sea love hugs and spoons I think some of you need them more than others xxxxx
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Re: Where did I go????

Hi flutterbies, hi Jojosammy; welcome to this site.  I'm coming up to 3 years post mastectomy and I run marathons and organise charity events..............................not!!!!  Give me a pj day anyday.  I think fatigue is common after this diagnosis; it doesn't end when treatment stops; the worries and anxieties are always there in varying degrees of severity and this is emotionally tiring so its no wonder you feel like you do.   This site has been invaluable to me; and I feel so supported by everyone on here and hope that you do to.

 

Talking of support I think I need some right now.  Some of you will know that I've recently been investigated for post menopausal bleeding and after tests and surgery to remove a polyp the results came back clear at the beginning of this month and I breathed a huge sigh of relief as this had been going on since September last year..  BUT, last week my symptoms started all over again.  I phoned my GP for advice and he just referred me straight back to the consultant so feeling rather worried now.  I also get the results of my mammogram tomorrow so anxious about that too.  Needless to say sleep has gone out of the window!

 

Doz; have you got a date for your surgery yet?  I agree with you that nurses make the worst patients!  Keep positive x and am sending a wrap around virtual hug

 

Went to choir last night and used all my slimming world syns on a glass or two of red!  We were recorded by a choreographer who is creating a dance production based on the sounds of Montgomery so really looking forward to the final result and will definitely be going to see it.  Luckily? the sounds of our singing are going to be distorted and stretched apparently and after the way we sang last night maybe that's a good thing!!

 

Keep warm, more snow on the way oh joy

 

xx

 

 

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Re: Where did I go????

I don't post very much these days as I just go rolling along and have been having counselling which made me rethink so much of what has gone on.Doz hunny as the first Flutterby leader 😊 I think you are pretty amazing with all you have had on your hands it's now time for you to focus on yourself and I am sure I speak for us all when I say how much we appreciate what you started we also send you the hand to hold for as long as it's needed. Jojosammy and Naz you are in the best place to offload and yes we do 'get it' I know I would have gone totally round the bend if it hadn't been for the flutterbys! The after care is hard to find for some of us and it does hit you when it's over cos you haven't a clue who you are or where you've been!
The fatigue thing is so familiar I struggled and like you Jojosammy couldn't undertstand why I wasn't running marathons and stuff, I kept putting it down to chemo but then it dragged on eventually I saw my doc who sent me for tests and I ended up at rheumatology being told I have Fibro which really upset me so it's worth getting it checked out because sometimes it just might be something else 😞
We all deal with things our own way and this site has been a great example of this, when you read different people's experiences the one thing that stands out is that it affects us all differently and somehow we have to find a new kind of normal. I hope coming on here will help you the flutterbys have been a lifeline and I love my wonderful friends who saved my sanity (still bonkers but that's another story) take care all its ffffreezing so PJ's are the order of the day stay warm and flutter gently sending hugs to all Emm

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Hi
I don't think it's fair either as it seems different parts of the country get different quality of treatments and after care....tho perhaps we are to blame as maybe we should ask? I know personally I just wrapped myself in cotton wool and went quiet... Till I started writing on here.. Now you can't shut me up 😊
But I do think if we enquired about after care it just might be there?? Tho why we should have to ask baffles me! Good to here your daughter is doing well, as for other people having more energy etc! I think we touched on this on here a while back? Of all the girls who have written on this post we found we were all different in energy levels speed of recovery etc! Which made me feel better as sometimes I can't even bother to get dressed... Hence a PJ kind of day 😊 but that's ok if it makes you feel comfy then fine! If you can't be bothered to do anything that's also fine as long as your content with it hon... We are all different and we progress at different levels xxxx
Bad news for me today... The test I had on the suspect nodule in my thyroid gland is still inconclusive... So... They are removing half of the gland asap! Still in shock as us nurses are the worst patients and I am such a wuss 😔
Hope all you lovely butterflies are keeping warm and taking good care of yourselves xxxhugxxx
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Hello, this is my first entry here and registered just so I could add my penny-worth!

I was diagnosed April 2012 BC had lumpectomy, 6 rounds of chemo then double mastectomy and immediate reconstruction January 2013. Trying times as my diagnosis came a year in to my daughters 2 year, 3 months chemo for ALL (acute lymphoblastic leukaemia). She was 8 at the time. I am also a working single mum.

I had the 'luxury' of seeing how the care (and after care) of children with cancer are afforded and even though now she is in remission I can call the Drs and nurses and they will call straight back. They will see her at the drop of a hat and a year after her treatment is over, and she has a full 'MOT' every three months. Just as it should be.

However, me? Straight after chemo I was given an appointment to see my oncologist in 6 months. A week before it came around, and it was cancelled, and another was made for in another 6 months! The consultant in overall charge of my care also alternates her appointments at 6 month intervals. Any 'issues' and I have, I have to explain the whole saga to my GP of the day at my surgery about my treatment etc. I currently have been diagnosed with post cancer chronic fatigue by the GP after going to see her 6 times and being told to 'rest a little, here have some anti depressants' I'm not even depressed lol!

So, I see I am not alone. Thank goodness my employer has been super, and they are helping me by financing some treatment by seeing a fatigue specialist and I have my first meeting with him next month. Otherwise it's a shocking state of affairs, we all worry if it's 'gone' if it's going to 'come back' and our loved ones are exhausted with it all, let alone us. No one told me that post treatment would be like this, and I can honestly say I felt better during my chemo than I have done this last year, at least I had someone to answer my concerns then. My quality of life is non existent and the guilt I feel that I should be doing lots and lots of stuff with my daughter after all she's been through adds to my feeling of low self worth if the fatigue has left me any lol! But what I wanted to say was thank you to everyone here that is sharing their experiences as I did until an hour ago, feel I was very much on my own, as all I kept hearing were people a year on after treatment were doing things like running marathons, arranging charity events, etc. some days I can't even be bothered to brush what little hair I have! So, thank you everyone xx
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Re: Where did I go????

Dear Jomar and Naz please don't feel alone in all that has gone on this site is here to help and you are so welcome to our flutterby club.Its just over 4 years for me and it does get better but I to found very little support until I came to B.C.C forums. I still hate my altered shape but just getting on with it now and unfortunately I am like you Jomar as I haven't got much time for me as my husband has also been to hell and slowly working his way back after 2 years so you do tend to push yourself into the background. I had some counselling 18 months ago and found that did help especially the anger I felt having both of us going through Cancer but hopefully we will all make it and try to forget the bad days and remember the good ones and one day at a time. It gets easier but the trauma will always be lingering especially at check up times. We had great plans for this year but have had to put them on hold till hubby is fully well but I am still determined to go to Australia even if it's next year now so keep positive and keep warm and cosy. No snow here YET and we may just miss it so flutter gently love and hugs xxxxxxx
P.S hope all goes well today Doz I have everything crossed. Xxxxxxxxxxx
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Bless you we all know how you feel once treatment is finished and the deed is done we "are" left to adapt and it's not easy... Whether you have lost a Breast or had half of it taken away as I have, it is,nt easy coming to terms with the loss and it does leave psychological scars in more way than one! It's an unseen legacy that sadly we do have to come to terms with 😔 and I think we all would like to be treated with a bit of caring for what we have been through... So yes of course you can join in you already have honey 😊 xxxxhugsxxxx
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Can I join in please? I am 3 years from reconstructive surgery and sometimes I really struggle with my new body. Sometimes I can' t quite believe that although it was only one breast which was taken off, it was MY breast and I miss it. And what gets me more often than not, is that NO ONE ever ever asks me " how do you feel about the reconstruction?" " How do you feel about not being able to feel anything there?" And your scar?? Just because I look well on the outside, does not mean that I don't miss my old body and the FEEL of my old body...

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Re: Where did I go????

Hi Jomar

 

Your feelings are quite normal as I am sure your fellow forum users will tell you.  To help you along I have put for you below the link to BCC's publication 'Moving Forward' which I hope you find helpful.

 

http://www2.breastcancercare.org.uk/publications/about-breast-cancer-care/moving-forward-resource-pa...

 

And also the link to the area of this website where moving forward is discussed further.

 

http://www.breastcancercare.org.uk/breast-cancer-services/talks-courses-local-support/talks-courses/...

 

Take care,

 Jo, Moderator

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Re: Where did I go????

Hi Jomar
It is a very daunting time lots of info is,nt passed on whether your private or not but McMillan nurses are always in attendance at our clinic to talk to and advise.. The day you finish treatment the world becomes a very large place and your umberella has seemingly disappeared 😔 but it has,nt really if you need advise or just someone to listen just ask honey there,s always help... Here is a good place to start 😊 but your BC nurses can put you through to the right people!
It is a very lonely and at times scarey place to be when you walk out of the door for the last time... We can all relate to that, but the girls on here are all at different stages in the long road to recovery and we are all of the same mind.. No matter what stage your at it is still daunting but with help and support you will get through it! We're all still here offloading and if truth be known I don't know where I,d have been 4 yrs on without this site and the lovely butterflies! Spread your wings sweetie and join us in getting there 😊 xxxhugxxx
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I just found it really strange that I had 6 months of chemo dominating my life and the staff were wonderful and incredibly caring but then from the minute I walked out after my last treatment that was it, nothing.  No one spoke to me about after care or support, (maybe I was supposed to ask, I dont know).  I had private care (paid by my boss, I couldnt have done it) so it isnt for lack of funding.  Am I missing something.  I was ok because I had a pretty easy time with my treatment but for some people this would be dreadful.  Kind of like taking off the stabilisers from a childs bike too soon. Anyhow I think I wandering off into a different subject area now.

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Hi flutterbies; and hi to Jomar our new flutterby.  We've all felt (and sometimes still feel) like you feel now.  When all our surgery and treatment is finished others forget that we still have to live with either the side effects of medication or a changed body due to surgery.  We also have to get through the anniversaries of these things happening to us.  I'm approaching the 3rd anniversary of my mastectomy and all those awful memories are stirred up again.  The annual check ups are also a source of anxiety.  Everyone seems to thnk that once you've had treatment that that's it; you get on with your life just as you did before the diagnosis............ except everything has changed for you.  That's why I post on this forum because the lovely flutterbies on here just 'get it' because they've been there themselves.  So anytime you need support we're here for each other x

 

 

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Jomar glad your post finally got put on here... I thought something strange was happening I kept getting notifications that you had posted at 03.36 03.49 and 03.58 but nothing had appeared on the forum until now 17.15?
You blast away girl as we all have done and will carry on doing... Been there done it and unless you,ve experienced it no.one will ever understand the physical and emotional roller coaster it puts us on!
Must dash as I,m out with my family but just wanted you to know your not on your own and we all know exactly where your coming from sweetie! The gift that keeps on giving (B*****d)
Sorry it's so short but I could,nt not send a quick reply for now to let you know we're here for you xxxxhugsxxxx
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Wierd your showing now 😀 xx
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Is anyone getting notifications that someone called Jomar has posted on here? It's really odd I,ve had 3 notifications but there is nothing here? Xxxx
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Hi Butterflies
Hope everyone is well and not being too affected by the weather,, tho to be honest it's quite calm here at the moment.. Had a few snow flurries and a lot of frost but nothing major 😊
Finally got my letter through, follow up from having fine needle aspirate on my thyroid gland.. Results so far inconclusive? So next step is appointment with Cardiovascular Surgeon which is this coming Wednesday 😳
Really trying to not get wound up but the minuite the app, came through the dread started 😔
Going out with my family and a few friends tonight for Vikki's birthday... Sister came through from Norfolk so it will be a proper family gathering 😌 it,ll sure take my mind of things!!
Work is dreadful at the moment we are being put onto wards where there are shortfalls in staff leaving our own ward on minimum staffing.. Things are really not good at the moment so as soon as I find out what's happening neck wise! My application to drop hours is going in! Drastically! I just don't like being taken out of my comfort zone patient wise 😔 and especially how I seem to get put on Oncology ever time I,m moved 😔 it's not a speciality I would choose so my mind is made up!
Hope all is going well for you all and your keeping those wings dry flutterbys
Love and hugs as alwayz xxxxhugxxxx
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Well.  hello all.

I joined this forum some time ago then forgot all about it.  I had a mastectomy and auxillery clearing then 6 months of chemo so I guess I was full to the brim with anything cancer related.  It really is all consuming. 

I was very lucky in that my boss paid for all my treatment and the place I had chemo was incredible. I almost looked forward to my weekly treatments as the antihistamine knocked me out and it was the only time I ever used to sleep. 

2 weks before my diagnosis. (another story, they did not deal with that very well at all) my freind gave birth to my godson who had many problems and spent the first 16 months of his life in hospital.  This was a huge distraction for me throughout my treatment and while I was on weekly treatment I was then at St Thomas hospital with them every day. That certainly kept things in perspective for me watching all those precious little babies fighting for their lives.  Also during this time my beloved dog died unexpectedly.  We had been inseperable for years ( Im still not over it more than a year later).  Next, my best freinds mum died on christmas day, we knew it was coming as she had kidney failure although why they decided to stop her dialysis just before christmas is beyond me.  What with all this going on my health situation was not very high on my list so I feel like I went through it really easily although if i wasnt at a hospital i was in bed or the pub.  My dod died in November and i (wrongly) drank myself stupid for about 3 months with the parents of my godson and my freind who lost her mother.  Drinking and very sick humour got us through it.  I had my very long vey thick hair cut to a short bob the day before my chemo started and used the cold cap. I did loose 50% of my hair.  Not too nociable for others but of course to me it was half my hair.  I now have tufts of hair about 2 inches long sticking out all over which is nice : )

Anyway I was looking through these threads last night to see if I could find some answers or find I am just a hypercondriac and like everyone else was surprised to find so many people feeling the same way.  Although my chemo was first class I walked out of there on the last day with no direction whatsoever.  you cant possible know what its like unless you have been through it so all my freinds have had the attitude of its over, get on with it.  Its been implied by some that Im lazy because I still struggle to get up in the mornings have no energy and feel weak.  I have very mixed feelings on this because half of me thinks that because I had an easy time with my treament I shouldnt feel like this but then other times I want to scream the C word at people.

Went to my gp yesterday because Im fed up with feeling generally unwell. When I said I couldnt get up she asked me if i thought it was depression.  However, its a physical thing, I wake up and it takes about an hour before I can get up, its like coming out of a GA every morning and i ache all over and cant move my fingers.  Had a blood test but she thinks its probably the tamoxifen, so thats nice as i still have 4 and a half years of that.  And dont start me on the weight gain . . . .

Sorry about all the moaning, Im usually quite positive. 

One last moan.  I feel cheated. I was led to beleive that I would find this new love and appreciation of life while instead Ive got a hair that looks like a goat has been chewing it.  One boob bigger than the other with one also looking like the goat has had a go at it, no feeling in my boob,right arm, armpit and shoulder.  (those of you with the same will know the frustration of it itching and not being able to do anything about it) a stone and a half heavier, fat in places Ive never had before and a belly that hangs down past my hips.  I am so ashamed of myself for thinking this because Im supposed to be grateful for being alive but Im most angry that I got an illness that made me fat instead of an illness that makes you thin.  I know thats terrible and Im really not a vain person at all but thats the truth.  I never said I was a nice person : )

 

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I did laugh about trampoline Doz can just picture it. I have got an appointment with G.P next week to discuss medication re osteopenia has taken them long enough it's over 5 weeks since I got letter. They were going todo telephone consultation but I need to discuss other things so asked for face to face app. Have no idea who the doc is I am seeing so here we go again as he will no doubt no nothing about me. Hope you all survived the gales love Janice xxxxxx
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I just posted wrong! Sorry girls it went as a reply to Janice's post I think? Doh!!! X
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Hi yes feeling a bit less she'll shocked 😊 had my bloods done as well so at least they are looking after me... Good news for you Jane.. Hope mammo goes well! It's always a big reminder but I,m sure you will be fine... I can't have bloods done on my right side either due to having had a bout of Good old Lympho 😞 so my poor left arm gets a battering!! Hope everyone is safe and sound with these awful winds! It was reported this morning that a trampoline was making its way down our Main Street!?! That did make me laugh but I don't like wind! Of any sort!! 😐 take care flutterbys xxxhugxxx
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Hi Jane glad your results were ok but still got your Mammo to come.Phil said this morning "why can't they just leave me in peace for a while.he was at diabetic check this morning and the health care assistant got blood no bother as she tried a bit higher up his arm. Just goes to show that if they listen to the patient it makes things easier.flutter gently and enjoy youR singing xxxxx
Doz hope you are feeling less sore today and RESTING xxxxx
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ps Janice and Phil (Honorary FB!) - I can fully empathise with Phil about having blood taken.  Because I've had a mastectomy I'm not allowed to have blood taken that side...guess where the good veins are!!  So every time I need blood tests they have to use the other arm..guess where they can't find the veins!! 

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Poor you Doz; sounded a dreadful experience.  I hope the dr got enough for testing; could it not have been done under a GA?  Well I finally got my results through on Tuesday and all ok.  Same day I got an appointment for my annual mammogram on 21/01/2015; oh joy.  This is not a good time of year for me; I feel myself building up to the annual check up and get really anxious about it.  

 

On my days off now so can relax a bit; singing with choir at an oap's dinner on Sunday and we're doing Homeward Bound and Fields of Gold; which makes a nice change from Christmas Carols!

 

x

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Phil says he's honoured to have got his wings and considers it an honour. Poor you Doz you have certainly had a rough time and Please take care of yourself you so need a break big hug xxxxxx
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Re: Where did I go????

Hi
Had biopsy yesterday and it was dreadful 😞 due to where it is (behind main artery) the lady doing biopsy explained she would have to go in and down from the other side of my windpipe.. I have to say it's the most painful and uncomfortable thing I,ve ever had, so not feeling too clever at the moment 😰 started to get the sweats halfway through and felt my colour draining but could,nt move or swallow, fortunately I think she was aware and finally managed to get a very small sample...not enough for slide test AND pathology so it's just gone to the latter for testing but they admitted it probably was,nt enough so may have to go back for a repeat 😢
Still pretty sore and my voice is very croaky but swelling has,nt got any worse so hopefully another good nights sleep... It's knocked the stuffing out of me.. I will find out in a week whether they got enough or results!
Waiting room again 😥
Poor old Phil he must be sick and tired of it all now.. I can so empathize with all the waiting it's
Draining 😞 hope all goes well for him... I think he can become an official butterfly now bless him!
You take care Janice.. Enjoy those P,Js I,m right there with you!
Love to you all xxxxxhugsxxxxx
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Re: Where did I go????

Hi Doz hope all went ok yesterday I was thinking of you and meant to post last night but got caught up in things as usual.
Jane sounds as if you had a lovely new year and glad weather behaved.
Hope everyone else is doing okay we are just going along with the flow seeing nurse daily as Phils wound still not healed.He was in hospital overnight on Monday for fluids before his ct scan on Tuesday and poor bloke is like a pin cushion as they struggled to find veins then he had to have check bloods again today so is fed up with it all.now he is worrying about results and has to wait till 16 th February unless they can get him an earlier app. Never mind he is great apart from that so hopefully we may book our trip to Australia later in the year
Take care all and stay warm p.js and dressing gowns are normal attire as soon as it's dark love Janice xxxxx
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Re: Where did I go????

Hi ladies

 

Doz- hope your biopsy is ok tomorrow; how long will you have to wait for results?  Keep positive my friend.  I'm going to be giving the hospital a verbal rocket today as I still haven't had my results and it's nearly 8 weeks since my op; it beggars belief.  Poor old Daniel; an awful thing to happen; hope he soon feels better and makes a good recovery.

 

Stella-good luck too for your results on Thursday.  I was told I had lung nodules after I was diagnosed with BC but it was benign and dr thought I had sarcoidosis.  I still have check ups with the respiratory team but whatever I have has not progressed thank goodness.

 

Mull was beautiful; we had lovely weather for this time of year; blue sies and snow capped hills.  One day of persistent rain and force 9 gales but I quite like being by the sea in stormy weather.  We saw otters and sea eagles, divers and little auks.  We were so tired on New Years Eve that we raised our glasses at 9pm then went to bed!

 

Wishing all flutterbies a happy and peaceful new year

 

x

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Re: Where did I go????

Poor Daniel! Can't believe it when it's on your own doorstep! Wishing him a speedy recovery. Hope they got the thugs.
I get my CT scan results on Thursday for the nodule on my lung - hoping to be discharged.
Then see surgeon on 15/1. My plant has to come out at RT affected it quite badly do having back flap recon I think.
Janice hope you and Phil are ok and everyone else of course.
We went yo Lanzarote for Xmas - very nice. Came back to snow at east Mids airport & diverted to B'ham!
Happy New Year ladies - hope its a good one for all of us.
Stella xxxx

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Re: Where did I go????

Sorry just realized I had,nt told you about Daniel 😔 he was attacked on 23rd in the pub by some scum bag drunks who were not locals!
He was hit in the face with a piece of wood and had to have 16 stitches in his mouth... And his ankle was broken!
First xmas home in 4 yrs and it was spoilt sadly!
xxxxxxxx
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Re: Where did I go????

Happy new year Butterfly's 💗
It started off well for me I picked up Noro Virus at work after being moved onto another ward to cover short staffing! The nurse I worked with had had it and admitted was,nt 48 hrs clear..... So I'm presuming I caught it off her?
Had a pretty quiet xmas with Daniel not being able to eat properly due to stitches in his mouth but we had a lovely quiet family day all the same 😊
Hav,nt seen him or Vikki since before the new year as the last thing I wanted to do was pass it on to either of them especially with Daniel using crutches and his toilet is upstairs....... and I missed his birthday yesterday so will have to celebrate at a later date 😞
Feeling a bit more human today.. Hopefully I will get to see them soon!
Also had a bit of a scare.. I found a little lump near my thyroid gland so Dr sent me for a scan which I had last week.... Lump was fine it's just a grissly nodule that happens as we get old but there was an abnormal nodule on the opposite side, which I have to have a biopsy done next Wednesday! Trying very hard to stay positive but I keep wondering when all this s**t is going to end?
Enough is enough! Me thinks!
Hope you all had a lovely xmas and 2015 will be kind to us all.. Notice I added myself to that 😃
Love and very best wishes to you all new year will hopefully be our year xxxxxxxxhugsxxxxxx
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Re: Where did I go????

🎄🎄🎄 happy christmas Flutterbys just fluttering in before walking the doggies, have an amazing New Year! Spoons,hugs and as ever love xxxx

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Re: Where did I go????

Have a wonderful Christmas Butterfly's with love and a million hugs to you beautiful ladies!
And so to bed! aaaaaah! 🎅🎄🎄🎄🎄️ Xxxxhugxxxxx
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Re: Where did I go????

MERRY CHRISTMAS to all my beautiful flutterby friends. Have a lovely day we are going to have a nice peaceful day and maybe a walk to help get some calories off ha ha.
Enjoy Mull Jane Janice xxxxx
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Re: Where did I go????

Wishing all you lovely flutterbies a peaceful Christmas.  I'll lift a glass (or two!) to you all at New Year on Mull

 

Jane 

xx

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Re: Where did I go????

Sounds lovely Jane singing in such a posh place.Mull will be great for Hogmanay I am sure it will be wonderful. I agree with what you say about Doz I don't 't know how she finds the energy. Will keep fingers crossed for a fine new year
Xxxx
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Re: Where did I go????

Had to do something to make my 65th memorable 😀 tho it turned out fantastic my kids completely spoilt me 😊 xxx