Hi alay got out of hospital yesterday.. Pneumonia and a pericardial effusion (fluid around the heart).
Was a lovely ward and I quite enjoyed my time there! Feeling better but the heart thing needs monitoring.
Janette - fingers and toes crossed for you tomorrow :-)))). Hoover sounds good! Can't sleep so might go browsing in a mo.
Welcome to the new ladies, frightening times. I've been here since Jan 16 with bone and lung mets and once I got my head round things after a couple of months I've been having as many adventures as I can squeeze in.
Infact the next one is on Monday.. Me and new hubby are hiring a VW camper in Sidmouth and have 5 days of fun ahead of us but no plans. Carolyn or anyone who knows Devon/Cornwall.. Any ideas of where we could go.? I'm after quaint towns, nice scenery, not too bothered about shopping (as hubby gets too bored!) maybe a place of interest? Like a good museum.. Well he does! Happy to drive for a few hours each to get about.
Note.. I am in a wheelchair so no massive hills!
Any ideas greatly received.. Apparently I'm in charge of navigation.
Thanks Carolyn, results appt at 3.45 tomorrow so have got all day to sweat it out!!! I've had a banging headache all day think it must be the stress of tomorrow! Well, I have finally ordered a new vacuum 😆 oh Carolyn you won't believe what happened last night, I was getting square eyed keep googling hoovers and reading reviews I said to hubby I've had enough of looking now let's go to bed and watch TV , 10 mins into Law and Order SVU and the TV blew 😁😁😁 so now I'm on the hunt for a new telly too!!
Hope everyone is doing okay, hugs Janette xxxx
Andrea, Great news. Once you find out it's not an immediate death sentence you can learn to live with it, especially a little at a time.
That's such fantastic news Andrea, I bet you've been floating round on cloud 9 since that result!! It really does give hope to the rest of us - love, love, love the good news you shared!
Welcome Avrelia - I've been on this forum 4 or 5 weeks now and I hope you find it as helpful and supportive as I have found it. Good luck for tomorrow - did you get to choose a wig today?
Hope everyone's keeping well (as well as can be expected at least!) - sun is shining where I am - might go and sit in the garden for a bit xxx
Hello, Andrea - never apologise for giving us all good news - it's what keeps us all going! It's wonderful to read good news! So glad you have had such good results. Long,may it continue!
Andrea that's fantastic news! Jeanette, I live in Pennsylvania, about 1 hour west of Philadelphia. I met a lady from this forum not long after I joined. Her name was Dot. She played cribbage on line with a lady that lived about 11/2 hrs from me. Her son also lived on the west coast. She has been here several times before I knew her.Her cribbage friend brought her too meet me. She was such a sweetie and quite hilarious. Then group of ladies from here started a private forum. They used to have meet ups and take my picture and place it on the table. A couple of us used to Skype. They have all passed. I miss them! Avrelia and Carolyn thanks for being good luck charms. I should have my results by Thursday. Vacation was great. We did our camping trip party weekend then went to visit friends for a day. Went to a big lake in the state of New York and ented a bow rider to play on the lake. Visited a museum and had some nice dinner outs. We were very limited in activities because hubby has an infected foot, with an open sore. Came home and had to have a 2nd skin graft to try and heal it, plus my knees are killing me! By the way just finished a year of letrozole and ibrance! No scan til October. FF
Thank you for sharing your marvellous news, I was feeling a bit weepy today , but you have put a big smile on my face. Enjoy your moment , hugs Marie xxx
Andrea, that is so great to hear, hope that this stays the same for ever!!! You gave me hope today that is why I hug you so much!!!! I was very sceptical about joining that forum, but with each post I read I realize the oppposite!!! Keep hoping guys, we can do it
Andrea, that's great news, no wonder your so happy!! We always like to hear good news on hear it gives us all a boost. I see onc on Thursday for CT results so I'm hoping to be celebrating too!
Carolyn, I still haven't got a new hoover yet, so fed up of looking on line and reading reviews!!.....its a good excuse for not being able to do the vacuuming though 😆
Hi funnyface, hope the bone scan went ok, 11 years is a very long time since you last had one! Where abouts in America are you? We have friends in Michigan, we met them on our honeymoon 11 years ago and we have been writing to each other ever since, unfortunately we have never met up since. They are a beautiful elderly couple, she calls me her English daughter and when I was dx with secondaries in 2014 she sent a teddy over with a card that read "everytime your feeling low give this bear a hug and and know I will be hugging you back" oh my word I bawled my eyes out when I read it!
Hugs Janette xxxx
Hi guys, thanks for all the supportive letters yesterday, tomorrow I have got an appointment at the Wigs clinic, have not even asked for one, but recieved the letter in my letter box, so ....I am going. I am still a bit dubious abot the cold cap, since I cannot imagine having it for that long on my head, and still, I do think I will loose may be some of my hair, so what is the point. The other yhing is that I have heard that the chemo will not reach the hair so that is why it might be preserved, but I have some mets on my skull as well, will the chemo be able to reach them if I choose to try the cap or not.
My first chemo is planned for Thursday, and I think my period is due then as well, I guess that will make the side effects even worse, but I think that I am prepared. My cancer is Estrogen positive and HER2 negative as far as I know....
As it comes to work I plan not to stop. I do housekeeping in a hotel with my partner, who is going to do my job as well when needed, poor he, I love him so much,he is my hero...I have been advised by the nurse to contact McMillan citizen advise bureau, but since we are self employed and we will hopefully still recieve our full wages, is there any point for me to apply for any type of benefits? What do you think? Lots of hugs everyone, hope that each and every day of our lives is better than the previous.
Carolyn, This PJ girl was showered, dressed, and make up on by 5:45 AM. Have to be at the hospital by 7 to register for bone scan. Injection at 7:30, scan at 10:30. Hubby is taking me to breakfast in between, in what I call my lovely scan clothes! Not much better than PJ's. Black exercise pants with a white stripe and a white top. I've never exercised in them, only thought about it. I'm anxious over these results since I haven't had a bone scan in 11 years. Somewhere along my journey a bone met was spotted on my back when they did a CT of my chest. I was told in March that my bone met was stable. I told them that's nice but no one had to me I had it. My new oncologist was supposed to check on it. The only thing she told me was yes it has been there. I have no idea when this developed. She said at first she didn't think I needed a bone scan bc it was only one met. I told her I disagreed. I said you only scan my chest how about the rest of me that hasn't been scanned in 11 years. My right hip has been aching, hoping it's just arthritis or the letrozole. Hope you all have a good day. Scorching here! FF
I know exactly how you feel as I too was diagnosed with primary and bone mets at the same time. That was in May 2016 so I am a couple of months ahead of you. It's is the most scary time but as many other ladies have said once the treatment plan is in place you will start to feel a bit more in control. I am currently on monthly Zoladex injections (have now had three). Don't look at the needle and you will be fine. It's just a large scratch, all over fairly quickly and then you forget about it for 28 days. I am also on tamoxifen as my primary is very oestrogen positive. For the bone mets I also take Ibandronic acid which I chose to take by a once daily pill. I really didn't want to have to visit the hospital every month to have it by intravenous methods. I take my little pill every morning first thing with a large glass of water and then sit and meditate or look at the iPad for a full hour before having my breakfast. If you would like to talk or you think I can help you with anything then please just ask. I would be very happy to share information. My very best wishes to you. Debbie xx
Hi everyone, I have been diagnosed with BC last month. First they thoght it was a primary but when I did the scans it turned out that I had mets in my bones as well. My whole condition is good, I feel only a pain in my back and breast, and my lymph. I will be on EC therapy and on Zoda-wahetever the next month. Has anyone been through that types of treatment, how are you feeling. I am 37....Sorry, do not even know how to start all of this
hi Scratch.(and others)..thanks for telling me about the four weekly denosumab injections...i think this is the norm but they said i could have them 6 weekly to fit in with my 3 weekly chemo cycles to save time and travel just for the injection. I only have one cycle left so i will ask about having them four wekly if they give me the rest from chemo they kep talking obout.x
Hi everyone...i feel terrible...i have only just noticed the post about Tomboy....absolutely devastating news..so young. My thoughts and best wishes to her family.x
Hi ladies, a quick question for the queen of shopping Carolyn 😆my hoover has packed in this morning 😠do you know of any good hoovers on the market at the moment? Preferably a lightweight one?
Hugs Janette xxxx