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Bone mets - please join in

funnyface
Member

Re: Bone mets - please join in

Hello all we had a lovely time. We arrived at our friends place and were quite surprised. Here several of our friends got together and chipped in to surprise us. They had been planning it for a month. There was roses, cake with a bride and groom topper, and a booklet of events in 1982! There was balloons and Happy Anniversary banners, along with gift cards for sticky buns at the local bakery, another gift card to a sandwich shop we like and $250 in mad money! We didn't expect any of this! It was very hot and humid on Friday and Saturday. It got cooler each day. Sunday we were able to have my best friend and his wife over. Monday on our anniversary we went out for a late breakfast  and then a nice dinner. Dinner was excellent, but we ended up at a chain steak house that we could have went to at home. I was disappointed that it wasn't a little nicer of a place but it is off season at the shore and most of the finer restaurants were closed on Monday! Carolyn dessert was excellent and was this layered chocolate yummy with chocolate mousse, chocolate cake, chocolate crumb base, a chocolate fudge like filling, chocolate icing with chocolate curls on it, and vanilla ice cream with a chocolate drizzle all over ice cream and cake thing. I thought of you with every bite! When we got back to the house things went down hill! Ross took our dog out, Maggie crossed over in front if him he took a quick step not to step on her and hit uneven payment and went down. He has road rash on both knees, down his legs, top of one foot and big toe, and his elbow. He said he jarred himself so heard that he though t he collapsed lung at first. His back and ribs still hurt. Last night was the first he could lay down and sleep. He has been sleeping sitting up on the couch! He refused to go to the hospital, but now admits he is sure he should have. I said well you can still go! He refuses! He says, no need to that he is slowly getting better! Luckily at our friends place she is on the bay side on a channel. You walk right out her door onto the deck and the water is rght there. You can sit in the living room and see the water, so we just sat and enjoyed the water front, and played games! Important part we were together! It was very relaxing! Came home and WOW did the rest of the leaves pop out! I really wanted to spend the weekend working outside! It is pouring and we are in a cold snap!! Going to be below freezing at night!! I'm bummed because I really wanted to work on some outside things before I start the new meds. Outside is my happy place! FF

Hayeswen
Member

Re: Bone mets - please join in

Hi I take chewable Ad cal twice daily and have 'bone juice' injection every 4 weeks although my insurance company, who I work for, will not continue to pay for this after my next one as they state it is a prevention rather than a cure and is not covered anyway that's another story but My Onc said there is a tablet alternative?

Congrats to all you who have had good results this week.

I am off to see the breast surgeon this pm for my Post op check up and dreading he will tell me something I am not expecting also getting anxious about my radiotherapy to my hip from the end of March as still have the pain but told it could take a couple of months to feel better. Would be interested to hear anyone else's experience of radio.

Have a good weekend all and here's to a sunny one. We did have some sun here earlier

Wendy
helen44
Member

Re: Bone mets - please join in

Fab news Janette!

Love Helen x

Ladybird
Member

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Well done Jeanette.. Letrozole rules!
Ladybird has Denosumab every three months (injection at the house). We are assured her leg pain is down to trapped nerves. Keep stable!
X
Carolyn52
Member

Re: Bone mets - please join in

Nicky
Hope you are ok ..I know you are struggling a bit as I read on the other thread ..hoping you settle with it soon and can jet off again on one of your adventures !
Hugs xxx
Carolyn52
Member

Re: Bone mets - please join in

Hello suze
Having no calcium might mean you will need adcal tablets ..they are really nice ..ask for lemon or tuitti fruity ones as they are a good help and easy to digest ..your oncologist will make a decision on denosumab but they do blood tests before them to make sure everything is tickity boo ....
Hope u feeling ok
Xxxx
nicky08
Community Champion

Re: Bone mets - please join in

Welcome back FF, hoping you had a fab time away and a great anniversary celebration 🎉🍾, also that it has left you feeling rested and ready to face your new treatment.

Janette - great news, definitely a few vino collapso's neede this weekend 😊

Corey - great news from you too. Does this mean you are a stable Mabel as well or is it news that what a dr thought was SBC isn't? Sorry, if I haven't remembered, lots going on on this thread all the time!

Hi to all other mets ladies, hope you are coping with SEs and the treatments are doing their job.

Nicky x

 

Carolyn52
Member

Re: Bone mets - please join in

Hiya FF

Welcome back ..hope you had a good holibob and feel rested and ready to start your new regime !! you can pack the bikini and flip flops away again now !!
Hugs xxx

Srilata03
Member

Re: Bone mets - please join in

Dear Corey,
This is wonderful and a great hope for us. Pray you stay clear of cancer forever.
bonariensis
Member

Re: Bone mets - please join in

Hi FF, we've missed you. Hope you had a good break. B xx

funnyface
Member

Re: Bone mets - please join in

 
funnyface
Member

Re: Bone mets - please join in

Hi everyone! I'm home descending tired! Trying to catch up!

 

Welcome Suze and Wendy! You have joined a great bunch here! Hope it is helpful to chat!

 

Janette, Fantastic Stable Mable!! Toot toot!!

 

Corey, That is amazing!! Long may it last!! 

 

FF

Mollymop
Member

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Yay Janette so pleased for you!! xxx

Suze57
Member

Re: Bone mets - please join in

I'm not o. Denosumab but I think I might end up on it once I've had scan results. I was told yesterday that my leg pain is because of a slipped disc in the area where one of the Mets is and there's no calcium in my blood. The cancer wouldn't have been found without the slipped disc. 

rosie53
Member

Re: Bone mets - please join in

Thank you to all my cyber buddies for all your lovely posts/comments. I feel like a kiddy teenager this evening, think there might be a few cheeky glasses of wine on the cards this weekend!

Hi, SUZe57, bone juice is our slang for denosumab.
Hugs Janette xxx
Barton
Member

Re: Bone mets - please join in

Hello Janette, more wonderful news! You are amazing. Congratulations.

 

Hugs. Barton.x

bonariensis
Member

Re: Bone mets - please join in

Good news Janette, I'm pleased you are another stable Mabel B xx

Barton
Member

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Oh Corey, that is such wonderful news! Wow! I am so pleased for you! It really cheers me up to read good news.

 

Hugs and best wishes (you can relax for 6 months now). Barton.x

bonariensis
Member

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Hi Corey. That's great news, I'm so pleased for you. Enjoy the summer (tho I know you work hard). How's the young donkey? B xx

Suze57
Member

Re: Bone mets - please join in

More good news - fabulous! Well done Janette (Natalie1) Stable Mabel. What is bone juice? x

Carolyn52
Member

Re: Bone mets - please join in

Hiya Jeanette
I have been checking in for your news ...such a relief for you now.....soooooo enjoy your weekend and relax.
Loads of hugs from your letrozole buddy
Xxxx👍👍👍
rosie53
Member

Re: Bone mets - please join in

Hi, "Stable Mabel" checking in! 😆😆 CT stable and markers nicely sat at 19. Onc has agreed to change my bone juice to 6 weekly because of increased aches and pains since being changed to 8 weekly.
Hugs Janette xxx
Suze57
Member

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Wow! That's fantastic news Corey. You must be over the moon. Shows its worth the side effects. So pleased for you x
rosie53
Member

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Not until 4!!!!! 😨😨
Jeanette xxx
Carolyn52
Member

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Jeanette
What time do u get your scan results today ?
Always horrid hanging around .
Hugs xxx
rosie53
Member

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That is just fantastic news Corey! So pleased for you.
Hugs Janette xxx
Carolyn52
Member

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Corey
What super dooper news and we are all over the moon ..you can relax now and enjoy the lovely summer on the farm with Jamal .

I think I must add that no snail's were harmed in this incident and he's still posing around the garden ...very green but a happy chappy! !
Hugs xxxxxx
Corey45
Member

Re: Bone mets - please join in

good morning ladies,well yesterday i had to get my results of my pet/ct scan.sat in the waiting area like a shivering jelly ,wondering what oncologist was going to say.after half an hour delay i was called in and im still in shock but very pleased to say that im completely clear of cancer.the area in my sacrum didnt even highlight this time and im clear every where else. he gave me a copy of the report and im glad about that as i sat there in complete shock (think i had my mouth open all the time)and came out still gob smacked.he dosent want to see me for 6 months then i will have a scan just to check up on things.so im over the moon.its happy days here still cant believe it.carolyn do you think the snail wanted to be painted, i think that snail has big plans to go to glastonbury lol.take care love coreyxx

Srilata03
Member

Re: Bone mets - please join in

Dear Carolyn
I was feeling very depressed with side effects of everolimus. You made me laugh so much depression vanished like magic. Imagine a snail ramp show in your garden and lunch party of the mice . thanks to you and your hubby
Barton
Member

Re: Bone mets - please join in

 Oh Carolyn - you are a tonic! You made me laugh out loud!

 

Hugs. Barton.x

Carolyn52
Member

Re: Bone mets - please join in

Hiya suze
My sis worked in a school too ..the dreaded ofsted visit ..stress to all staff but sure it will be fine and it will take yr mind off c for a day or too !!
Yep Barton only "posh" snail's in our garden now ...think there is already a queue forming for the designer look !! Ha ha .
Barton
Member

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Colour-coordinated snails! Is that the latest fashion now - snail catwalk, here we come! Great, Carolyn! Congratulate hubby for me - a great invention.

 

Hugs. Barton.x

Suze57
Member

Re: Bone mets - please join in

Thank you Carolyn. I needed a laugh. Feeling v emotional today, receiving lots of hugs and kisses from.colleagues. didn't sleep well, then we got the call. Ofsted are in tomorrow and possibly Thursday. Just what I needed more stress. Have had bath and lying with leg up. Fingers crossed we'll pass tomorrow and we can celebrate Thursday. 

Keep the funnies coming. I'll share some of our lovely children's funny quotes one day. X

Carolyn52
Member

Re: Bone mets - please join in

Hubs is an avid gardener but colour matching snails to his fence is a bit extreme !! Ha ha
Also, he bought a few boxes of lawn food and gave our son a box for his garden ....son said that within 20 minutes of sprinkling it ....every mouse in the area was out on his lawn eating the food ...my reply " well it does say on the box "animal friendly" !! His reply "doesn't mean a free lunch" !

I Apologise ..this isn't anything to do with bone Mets but hope at least it raised a smile to your day !!
Xxxx
Srilata03
Member

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☺Carolyn

That's really funny. Poor chap covered with green paint. I couldn't stop laughing trying to visualise the green snail crawling by .
rosie53
Member

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Hahaha! That's hilarious Carolyn!
Hugs Janette xx
Carolyn52
Member

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....and he's been to specsavers !!👓
Carolyn52
Member

Re: Bone mets - please join in

Good morning
Hope everyone is well.
Something to make u chuckle ..hubby has been painting the garden fence panels ..Forrest green ...this morning on the path is a snail ...you guessed ..green ..must have got in the way of the paint brush !!
Laughter is the best medicine !!
Hugs xxx
Carolyn52
Member

Re: Bone mets - please join in

Hiya jeanette
Welcome back from your weekend break ..yes good to get away from routine.
We have had grandkids and a dog here so the house looks like a war zone !! But I'm not worried too much. Just been over for McDonalds ...yum and I've just finished off grandsons Easter egg he didn't want ...so oink oink again 🐷🐷🐷
rosie53
Member

Re: Bone mets - please join in

Hi ladies, just checking in after having a wonderful weekend away in the Lake District.
Did me a world of good and it took my mind off my imminent CT results on Thursday! And funnily enough I didn't need any painkillers at all!
Hello to all the newbies, your in good hands here, lots of support, advice and also a good giggle too!
Hugs Janette xxx
Carolyn52
Member

Re: Bone mets - please join in

Hiya pippin
A fractured pelvis is very painful. When I was dx Oct 2015 ..the scan showed a cracked pelvis, hole in femur and hip like honeycomb! I was rushed in to have a femur nail put in to save it collapsing and to protect the hip.
18 months later and my latest scan shows bones recovering well and I'm driving, can manage "Next" sale and get around quite well with one single crutch. Hopefully with the help of denosumab ..the pelvis will mend and strengthen .
My oncologist said to eat as much dairy as possible to help bones too so I will probably die of a heart attack with all the cholesterol more than the cancer !!
Hugs xx
ramade
Member

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Brilliant, really pleased for you Carolyn, long may it continue.

ramade xx

Suze57
Member

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Yes Pippin. My name is Susan (naughty name) nobody calls me that. I'm Sue and Suze was my dad's name for me. You're right about the 50s. There were seven Susans in my class! Shame you were denied reconstruction but glad to hear Letrozole doing its job.
I can get quite emotional at times and agree with you that it's not morbid to think about the end. Providing you don't get carried away. I work with so many children who have sorrow in the lives that it's hard not to cry sometimes. Pleased with myself for having a mini wardrobe sort out and about to go out. The sun's just appeared here. Take care everyone x
Pippin
Member

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Hi Carolyn

Yes, I should have thought of just saying "hip problems" will try that now! Like the comment about the vodkas though but no idea where that answer would lead!

Hi Suze

I take letrozole (no probs so far touch wood), denosumab, and calcium/vit D (also had radiotherapy and just before that mastectomy (for 2nd primary which is not responsible for the mets!) but denied reconstruction!!!!!). I am a bit further east than you, but I suspect our name is the same - something about being born in the 50's. Agree full time work is the key but with fractured pelvis I thought it a step too far!!!

 

I cried this morning, v.v. unusual for me: I was watching the short video of the 12 year-old would-be funeral director on the BBC front page on my PC. Not sad tears but you know when something touches a heart string. I was thinking how it would be for my kids to talk with someone so young about practicalities. I know I am unusual in not thinking these things are morbid.

 

Pippin

 

Hayeswen
Member

Re: Bone mets - please join in

Hi all thanks for your kind words they are much appreciated. I am working full time and intend to carry on as long as I can as it helps keep things normal although for the next few weeks I am off recovering. As for festivals I went to wireless and can recommend especially the Bacardi tent
Suze57
Member

Re: Bone mets - please join in

Hi B. I did look at side effects yesterday because I had indigestion. They're similar to extremesine which I had after Tamoxifen. I struggled with Tamoxifen as very nauseous but wasn't too bad on extremesine. The aches and pains are horrible and I have to keep reminding myself that they're probably just that aches and pains. I have scoliosis as well so some of it is posture. I have to keep straightening myself. Good to hear from you. S x

Suze57
Member

Re: Bone mets - please join in

Hi Wendy. It's scary but there's a lot of support. I alternative between positive and weepy moments. I'm back in school tomorrow and generally hit the ground running as soon as I arrive so being busy should help. I'm not going to be a martyr though. Ill stay off if I'm ill. I had my reconstruction eight years ago and glad I did as it helps me feel shapely. I have friends who decided against it and I understand why. Cancer has no respect and it is what it is. We just have to find why's to outwit it. 

Pippin, we have so many similarities. Yes state pension at 66 and I will be claiming it. We're going to Carfest. As I'm 60 this year (and I mistakenly thought 10 years clear) I've been doing 60 things I've never done before. The festival is one of them. What meds are you on? I'm finding waiting for more test results is bad especially as I'm very impatient.

Carolyn, I love your SOH. That's just the kind of thing I'd say. 

bonariensis
Member

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Hi Suz, I'm sorry you've had to join us here but you sound very positive and going to a music festival sounds great, You said you hadn't read about the side effects of letrozole but if you start getting new aches and pains it might account for some of them. I don't take it but I take exemestane which has similar though perhaps not as severe side effects. The aches and pains spook me from time to time but often turn out not to be C

Hugs B xx

Carolyn52
Member

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Hello pippin
Like you I use a crutch when out and about ( walking stick not enough) people often ask and I say " hip problems" .it's too much to explain.
Maybe we ought to reply with something silly like ..drunk so much vodka earlier ..can't stand up or its to save wear and tear on our shoes !!
But as least we are still mobile and I'm driving again now ..
Carolyn52
Member

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Hello Wendy
Welcome to the forum and what a shock for you ...but we are all here to support and offer kindness.
It's a very cruel disease as for many ladies it hits just as we have raised our kids and were looking forward to some ME time etc.
But life if life and we cope.
Xxx