Bone mets - please join in

[Carolyn52]

Hello Renee
I thought u were radio silent for a few days ..hope you are beamed up again to the forum ..
My sketchers were a birthday pressy but I have 4 pairs of similar ones from matalon. .I just live in them. I would honestly say they are brilliant for hip and leg support.
I hope you find a good site that you can donate your shoes. .I'm sure they will be well received but I hope the army personell are all female as I don't think the males would appreciate sparkly high heels or pink furry slippers ....ha ha ...
Hugs xx

[jazmia]

hi carolyn ,

i dont know why but getting no posts through from site at all ,i just wanted to say ,do you use GROUPON at all as they have SKETCHERS on at the moment at reduced prices i believe ,they are memory foam trainers .

i have also joined the DOUGLAS BADER forum as i am lead to believe they take odd shoes ,plus apparently there is a site for army personel who have lost limbs but as yet have not found it .

much cooler here today with a strong wind ,but lucky as we could have been in turkey or greece ,just dreadful 

take care reneex

[Carolyn52]

Hello ladies
Well feel sorry for all the holidaymakers here in Devon today ..it's cold, wet and windy ..I'm lucky I have all my home comforts but they are just wandering around in soggy flip flops and disposable ponchos ...not much of a holiday but hey hoo ..the sun will come out again soon.
Hope everyone is ticking boo
Xxx

[bonariensis]

Too pointy toed for me.

[Carolyn52]

Hello Renee
I only just realised what you are going through ..you are paying twice what you need to pay but that's good if you can donate one to a useful cause. Would they not issue you a false leg so you can at least get use of both your sketchers ..
Sorry your pain is still giving you problems ..if it doesn't get any better ..then chase up your oncologist maybe ...

Think sketchers should be issued by NHS on prescription ..brilliant support for us bony mets ladies. .I feel like a little budgie ..bouncing with energy !!
Hugs xxxx

[jazmia]

hi carolyn ,we have had no storms ,not even rain although it has looked like it all day.

my stomach is the same and back i think is a little easier ,not saying too much as it could return with a vengeance .

i bought some sketchers ,first ones and was delighted with them but then had my leg removed so only one gets worn and such a shame ,but my district nurse has just told me to look on line as she is ure there is a site that you can donate one shoe or slipper to,which would be great as i have a wardrobe bottom full of left shoes going to waste,have you or anyone else heard of this site.

take care 

love reneex

[rosie53]

Hey Carolyn, I got some Sketchers a few months ago omg how comfy are they! The best trainers I've ever had!
Hugs Janette xx

[Carolyn52]

We had the thunderstorms last night .. really pretty and lasted about an hour but its still hot and sticky here and it didnt clear the air much. Its still 24c or in my lingo 75f .. ish ...im waiting for it to cool down a bit so I an have a little walk around to stretch the old bones and christen my new Sketchers ,,  really bouncy and comfy so I might even break into a little jog !! Ha ha . 

xxxxx

[rosie53]

Afternoon ladies, no thunder storm here....yet! We've been expecting it though, it is very close and sticky and is starting to look a little grim!
Carolyn, sorry to hear about your daughters mother in law, we've all been there and know how scary it is!
Think there is a few of us with scans coming up, I've got mine on the 4th August with results on the 10th so not such a long wait this time, had my TMs done Monday and will ring for the results of them in a few weeks.
Best of luck to anyone having /getting scans and results.
Hugs Janette xxx

[Rose47]

Custard creams and a hot cup of tea will set you straight for the rest of the day Carolyn.

I am so very sorry to hear the news of Lisa (Racer), I am just so very glad that her daughter has the memory of her Mum getting her ready for the prom that will be priceless for her.

This is all just so crap isn't it ......  . Love to all xx

[Carolyn52]

Hello marie
Nice to hear from you and I too have a scan due soon and so anxiety begins again but hey hoo we all hold each others hands and cope on this thread.

I'm sorry to have to tell you but lovely Racer ( lisa) passed away last week but she did make it to see her daughters prom at the end of June. It's such a vile disease ando hopefully better treatments coming along will help more.
I've just had a cuppa tea and dunked some custard creams so think my hangover is passing ...yes it was nice a couple of proper grown up drinks after so long !!
Hugs xxx

[Rose47]

Oh Carolyn, how awful that you feel rubbish this morning but did you enjoy the processco last night as you drunk it.... hold onto the feeling of how nice it tasted at the time :).  We had 3 solid hours of thunder and lightning in the east early hours of this morning so everyone, dog included is a bit tired and touchy this morning !!  Its still hot and sticky this though.

I hope everyone is busy getting on with things and that scans, treatments etc are being kind to you all.  I have a scan coming up on 1st Aug so getting a little worried but I know you all understand those feelings.

Not sure if I have missed any posts but was just wondering if anyone had heard any news from Racer.  I know she was busy planning her daughters prom and I had everything crossed that she was well enough to enjoy the excitement of the day with her  xx

[Carolyn52]

Oh dearie me ..why did I have two glasses of prosecco last night with my meal ? Been up all night so I guess I need to stick to tonic water ...I want my old life back! ! Self inflicted so no sympathy being asked for ....
Renee ...hope your back and tummy is better as it's not nice having such pain.
What about the thunder and lightning last night ..anyone else outside of Devon get it? But it's cooler now and so sweaty Betty here is much more comfy.
Hugs xxx

[jazmia]

hi carolyn,

hope you enjoyed your meal out ,,but sorry to hear about daughter in laws mum .

i am sure you will be a great help to her and yes hopefully she will join the forum ,when the shock wears off a little .

reneexx

[Carolyn52]

Hello ladies
Well just been out for a family meal and I'm sat here like a big fat Buddha and feeling bloated and I didn't even have a dessert ...
My daughter in laws mum has just been dx today with bc ..and memories of 13 years ago when I had my primary came back ...the shock, and fear etc I'm hoping she will use the forum and get support from the primary ladies there once she gets her head around it all ..but things have moved on ..loads of scans and a lot more planning now ....
Hope everyone is feeling OK ( ish) ...
Hugs xxx

[Carolyn52]

Oh jellytot that looks sore but hopefully it will settle down. .I'm sure in a day or two you will be back to your normal self again.
Best of luck with the new drug. ..hopefully you will find it easier to tolerate than chemo ..
Hugs xxx

[jellytot83]

PMOL, sorry I meant to say I haven't started ribociclib yet. I have scans next week, then some tests (vitals, weight, bloods etc) and then I should be good to go xx

[jellytot83]

PMOL, it's ribociclib I'll hopefully be having.

I'm feeling a bit battered and sore today. My poor arm where the cannula leaked is very sore (noticed I wrote saw yesterday, must have been out of it!). It's bright red, hot, swollen and painful. I ended up at the GP in the end and got antibiotics as it just didn't feel right. I have 7 days worth xx

[PMOL]

Hi Jellytot!! Glad you are home!!! There's nothing like one's own bed/home.  Make sure you rest plenty. Have you started with palbociclib? Let me know how you get on as my onc will try to get me into the trial. Xxxxx

[funnyface]

Jellytot, Glad you are home. Now, rest up and treat yourself well!! FF

[Carolyn52]

Hiya jellytot
Well it's done now so hopefully you will feel better for some relaxation.
Assume this is instead of the monthly injection that some ladies have.
Hugs xx

[jazmia]

hi jellytot83

great news and hope all goes well ,just rest up for a few days and enjoy whatever you like doing most .

good luck

Renee 

[jellytot83]

I'm home lovelies. My incisions sting and my stomach hurts. Issue with cannula as I have crappy chemo veins. It burst and leaked the drugs into my arm so it's swollen and bruised. Throat also hurts from tube, which was already saw from rads so it's kind of compounded the issue. Feel okayish, groggy and a bit disorientated but glad to be at home xx

[funnyface]

It's always devastiting to see another needless loss of life! Racer RIP! Many hugs to your family and friends! FF

[Hayeswen]

Jellytot

Thinking of you today.

Wendy x

[PMOL]

Thinking and praying for you today xxxx

[rosie53]

RIP Lisa (racer) yet another sad loss to this ugly disease, my thoughts go out to her family and friends.
Jellytot, best of luck for tomorrow, sending you cyber (((((hugs)))))
Janette xxxxx

[funnyface]

Thank you ladies for all your kind words!! I got home from camping and found a response to one of my thank you e-mails. I have the one job!! They will be looking at their budget this week to decide the pay and hours. If I can make it work with my budget I will be accepting! FF

[funnyface]

Jellytot, Wishing you the best. Big hugs and holding your hand! Wish I could take this away!! FF

[bonariensis]

Hi Jellytot, holding your hand and giving you a big hug. An emotional as well as a physical river to cross. Hope the pain is not bad and you make a quick recovery Bon xx

[nicky08]

So sorry to hear about racer/Lisa. Another sad loss to this awful disease. My oughta are with her family and loved ones.

Jellytot - we will all be holding hands with you tomorrow. A challenging time but, as you say, for the right reasons. I hope your recovery from the op is quick and not too painful.

Hi to all mets ladies, hoping you are managing to enjoy the weekend wherever you are and whatever you are doing and that treatments are working well with as few Side Effects as possible.

Nicky x

[Carolyn52]

Oh no ..not another lovely lady, mum and wife lost to this vile disease ...racer was more known on the cape threads but was a regular here too.
Rip ..lovely racer ..free from pain

Hugs xx

[redridinghood]

Thank you Moijan. Lisa will be in our thoughts and hearts today.

mo              xxx

[Moijan]

LISA(Racer)

I am sorry to have to report that I recieved a text to say that lovely Lisa passed away last
Weekxx Lisa contributed a great deal on the Forums - You will be missed xx
moijan z

[Carolyn52]

Hiya jellytot
Holding your hand and sending hugs from my special cupboard too ..it will be fine ...
Another step over ....and an excuse to be spoiled rotten ..lots of TV, chocs and comfy pj's on the sofa for a few days maybe.
Xxxx

[jazmia]

hi jellytot83,

i wish you all the luck in the world and i also know you will be receiving loads of hand holding and good vibes,so from me to you ALL THE VERY BEST .

R enee

[jellytot83]

Hello ladies,
I have my oophorectomy tomorrow, can I please ask for lots of hand holding and good vibes to be sent my way. Am very nervous but I know it's for the right reasons however it is going to be really emotionally challenging xx

[redridinghood]

ff........just hoping everything works out for you. My dear parents were in a care home over here for the last 4 years of their lives.........to 97 and 98, and together..........I made sure of that.......and you are just the sort of person I would have have wished for in their care home. You obviously love the job, and love the elderly residents. It's all that matters to them. You go the extra mile, and I know from personal experience that it is noticed and appreciated, even by those with dementia. People with dementia recognise love, and want to share love. It sounds as though your new manager is going to squeeze love out of the atmosphere in her effort to make the home efficient and make more money. If you leave you will be sorely missed by those who matter, but I understand that you must consider your own situation. I am so sorry this has happened but what can you do? Keep strong and remember how much happiness and love you have given the care home over the years. That can never be taken away.

mo       xx

[nicky08]

FF - I can't believe how the new director has acted, both to you and all the seniors that attend the centre. Why on earth does she want to do this job as she seems totally against anything that may help people in the twilight years of their life. Grrrrrrrr. People like her make me so angry. Although I'm sure you won't want to have to deal with any more pressure is there an organisation you can report her to? Or the charity's head office? Presumably it is a charity as its a not for profit organisation? In the UK I'm sure someone like her would be reported although we do seem to have some badly run senior homes from what I've read so it's not easy I'm sure. As to how well you're doing your job etc you obviously love it and are good at it otherwise you wouldn't have volunteered for so many years. You have a heart of gold so don't let any stupid jumped up director tell you any different. I hope you have been able to step away from the situation by going camping, a good plan with no wifi! And that you get one of the other jobs you have gone for. They will surely miss you when you leave, as you will them, but you have to do what's right for you and the new director will cause you so much stress it won't be worth it.

Nicky x

[rosie53]

Oh FF, how awful for you, This woman is a disgrace!
You can sleep at in the knowledge that you are a lovely, kind caring person......she most certainly cannot! You are not too soft you are a compassionate selfless human being, I soooo hope things work out for you as I know you love your work.
Take care, hugs Janette xxxx

[bonariensis]

Ff. How did that woman get the job? I'm devastated for you and sad for all who attend the senior centre. We all know what a caring person you are, what a loss you will be to them all. Hope you can enjoy the weekend.

Bon xx

[Srilata03]

Dear FF ,
Your new director is definitely not fit for the centre and also not a nice person. She is not able to understand your caring and concern for the seniors. Instead of behaving rudely she should take suggestions from you and make use of your experience. You have put so much effort and done such wonderful work for the centre which I am sure everyone will appreciate. I am sure you will find another job which as good and satisfying as this one. Of course you have been with the centre for 21 years, a long time and it is difficult to get over the attachment. Meanwhile enjoy your camping. Love and best wishes.

[Babsy]

Oh FF, my heart goes out to you. She obviously has real personal issues and a lack of self worth if she feels like she has to push her weight around, making sweeping changes for the sake of it. You are a kind and caring  person who deserves better, don't ever forget that. The Universe will be kind, perhaps this will be a new pathway for you.  

Anyway you are a beautiful person, go camping and try to chill. Xxxx

[Carolyn52]

Well ladies ..I did it ..got up at silly o'clock for Next sale ..it always used to be my thing ( they always joked about burying me in next sale queue !!) Before this cancer lark hit me 2 years ago, I just wanted to see if I still had the gusto to do it! Proud of myself for disturbing hubby oops (and neighbours as I leaned on the car horn by mistake)
There was a lady there ..still in her pj's and hair curlers. .standards please ladies !
Hugs xxxx

[jazmia]

Hi funnyface

please do not put yourself down by saaying you are too soft ,as that is not the case ,the way i read it is you are a wonderful caring person and there are not many around i can tell you,so please go away and enjoy your break ,dont even think about this evil parasite that is taking over ,and i am sure you will find your time and effort worthwhile in some other job which i hope will come to you soon .

i do know exactly how you feel as have gone through same myself .

take care 

renee

[funnyface]

Carolyn, We both get disability which is bc we are disabled and not old enough for social security. Once you reach full retirement age the disability payment then becomes social security. You still get the same amount you just don't have to prove anymore that you are disabled. Hubby gets a small pension. The carpenter union punishes you for retiring early. They keep 60 % of your pension every month for life 30% for retiring early and 30% for not having worked for two years before retiring. The reason he wasn't working was bc the economy had clashed and there was hardly any work. Many if the carpenter had lost their homes. I was a stay a t home mom and then a school bus driver. No pension.  Luckily for Ross he cleans the center while it is closed. He is the only one there and doesn't have to deal with her BS! I am going to try and relax!  I guess my heart is just too soft! FF

[Carolyn52]

Hello ff
OMG. .that is horrible and I know you love the job too ..hope you get another one soon where they appreciate you and hubby ...I expect you are in between age that you don't get your state pension yet ? In the UK they move the age gatepost all the time ..mine was at 62 ..but some ladies have to be 66 ..not sure what US offers for you ..pension wise

It's miserable for you as you are living with cancer and side effects. .the stress is not good but neither is having no income. .
I worried when we retired how we would survive on less money but it's surprising how much I saved by not buying office suits, buying lunch daily, petrol and buying ready meals and convenience foods.
Anyway. .forget about it and enjoy your weekend.
Xxxx

[funnyface]

Hi Girls! Sorry I've been quiet.Life at work has been miserale. They fired our director of the senior center. He was a wonderful person but terrible at the finances. This is a non profit and he wasn't getting the funds. Move on new director! She came in told me my work was preschool, that I don't do enough work and asked if I was even capable of looking anything up on line!! She also said she didn't understand the Circle of Care program I was running and was closing it. I tried to explain the program to her and she said she didn't care. I explained to her that the things that looked pre-school to her was the best work of the dementia clients and they were proud if their work. That they had as much right to display their work as the seniors who do fine art work. She said NO! She said it gives the senior center a bad reputation. The next day when I came in she had ripped down their stuff and had thrown it away! As far as not doing enough work I was furious! The day she said this to me I had done a fund raiser for the center. I shopped the day before (on my day off) for supplies. Hubby works at the center too. He is the janitor. He shopped with me.Donating his time too! Then we sliced up all the onions and tomatoes for the hoagies (you probably call them subs). We got the production line ready fir the next day. Hubby got up early and drove to a bakery in the city to get good rolls. I got up early and went the opposite direction to get potato chips. Then we made the hoagies. Then I worked my shift. I spent 8 hours of volunter time plus worked my shift. Ross did the same! We made $500 dollars for the center! Mind you she didn't show up to help. She also said that if the seniors don't like her changes they can leave. It is their center not hers. She keeps throwing things away without asking what they are used for. We have a l day in a motorized wheel chair. She said she is going to tell her she needs a a smaller chair! She set up a little table inside the doorway  and stated she doesn't care if they trip over it and fall. They are seniors and will fall anyways  she says! We have a table of seniors who don't join many activities, but are happy chatting. They come their to socialize. This is the purpose if the center. It is so they are not home alone! She said she plans on getting  rid of them bc they make the place look bad with their inactivity. She speaks highly to our board of her love for the seniors.How she wants to make an amazing place for them. If the circle of care program failed, I was to be made director of programs. This was the old executive director's plan. She knowsew this and discussed it with me. On Monday she brought in a new lady and introduced her to me first telling me this lady was director of programs.She has succeeded to make me feel like a nobody! She is nothing but nasty to me. Other employees have said they can't believe how she threats me. I even had presented her with ideas for a diversity program I created, a free senior bullying program I found, a community give back program (making and filling stockings to be given out at a community Christmas dinner), and a community outreach program to put our more active seniors in the public eye. She said, no to all of them. Then that's when she told me I don't do enough work.I certainly don't know what I should be doing!! I have applied for two jobs. I'm positive I got the one. Sure hope so. I think she is going to fire me and I don't deservd it. I have volunteered fir the center for 21 years. I have worked there 4 years. The center and seniors are a big part of my heart! The way she is read ing the place apart is ripping me apart. I desperately need out, but need my money too. Please cross your fingers for me. I've been crying every day!  I won't be in for a couple days, going camping! No internet there!

[rosie53]

Hi Jellytot, what strength of co-codamol are you taking? Do you know there are 3 strengths of it?
8/500mg
15/500mg
30/500mg
I'm the same if I take 30/500 I'm fit for nothing, so I either take 15/500 or 8/500 along with a naproxen 500mg.
Hope this helps, hugs Janette xx