Moijan, haha! My spiky ball keeps trying to run away from me along the wall to the door.
Hi Ff. Good luck in your new job. I'm sad for all the seniors at the place where you were working but glad they had somewhere else to go. I'll be thinking about you next week while you wait for results. Bon xx
Hi again Ramade, its hard to keep making yourself shove that spikey ball all over your bum, isnt it when you have noone else around to encourage you?
( Carolyn - are we allowed to say BUM on here when its not an official swear day?)
but getting back to you Ramade....just realised we could get together and practice.....am thinking of going to the Summer Exhibition at the RA tomorrow....if you can meet me there we could 'display' ouselves
demonstrating how to wield the spikey ball.
Ff...yes, good luck. Now xx
Carolyn......ill put this in brackets so the others dont look too closely but
( arent those knickers...THE knickers you wore to that pub on the day we first met -along with our O.Hs?)
I had thought they were some new Devon summer fashion or such like....xx
FF..........all the best with the new job! A fresh start now, and perhaps interesting too. Let us know how you get on.
hi funny face,
just great to read your post and good luck for the future ,,you are my kind of gal as i would have done exactly the same as you ,i once tipped a mop bucket full of water over my manager,[when i could lift it ] then went back the next day to ask him for my wages he owed me ,and received them.
Carolyn, I will need them next week on T,W, and Thursday. Scan T results Th. Do you think they will stick out of my Capri pant legs? It would make quite a statement at my new job!! FF
To all ladies waiting for scan results or having a bad time ..the big girl pants are all washed and ready for you to put on.
Moijan, The spikey ball sounds interesting. It sounds like it might just feel good to roll it around on anything that aches.
Carolyn and Renee, Funny you are talking about carpet cleaning! I just vacuumed and decided to take a break before I got out the carpet cleaner. My Maggie girl had a UTI and had a couple accidents, so it needs a good scrubbing. I really need new carpets but it's not in the budget. Like you Renee, my dog is more important.
To all of you ladies, I have been quiet. Work had me completely dressed out, but the stress is gone. They closed the dementia program I was in charge of! I figured they would let me go and they did. This new director has turned the senior center into a miserable place. She will eventually hang herself! When they told me they didn't have another position for me, I got to have the last word! I got to walk over to my desk and get my resignation letter, signed it and wrote effective immediately! I had it ready bc I had a new job. I had already decided to leave. They were quite shocked!! The board me m bed who was with the executive director when they let me go said to me that I walked out before the director was finished speaking to me. I looked at him and said maybe she wasn't finished speaking but I was done listening and I walked out the door! I go Friday morning to hear more details on my new job and get my start date. I actually think they are going to have me start Monday. After my meeting at the new job, I'm headed to the shore again. There Is 12 of us getting together. I will be able to relax knowing I have a new job to return home too. I didn't realise how stressed out I have been til it was over! The day before I left I was off work and they cut everyone's hours and she hired two of her friends. Lol they didn't cut my hubby 's hours. He doesn't have to deal with her though, since he cleans when the place is empty. Quite a few seniors have left too. There is another center close by that they can attend with their friends. I hate how this lady is treated them.
OK, time to get cleaning and packing! Have a good weekend! FF
Well Moijan and remade will be thinking about you both and your spikey balls tonight ...ha ha
Ramade....this is me today xx
Yes Ramade, btm and hip felt a lot better this am...however, my drive to and from the hospital reset the problem!have moved the car seat again in the hope that it helpsxx
Moijan, your post is interesting, had bad hip pain for weeks. Went to see a physio privately and she found it was the piriformis muscle in bum. Exercises with ball against wall plus stretches.it is improving now but took a little while.
thanks for that ,i am going to speak to my oncologist as dont usually tell him how i am feeling and i dont have a good BCN she doesn't get back to me and only tried her twice in 7 months but nothing.
hi carolyn ,
my carpets are also cream ,except staircase and it's a mixture of creams and browns,but as you say having the dog does not help ,although would rather have her than carpets ,
i am having more bad days than good ,but have my treatment monday and see onco on friday so hopefully he can help,strange disease this ,different every day ,but het i am here to tell the tale ,what tale i dont quite know.
my friend is coming tomorrow so she will cheer me up ,always does .
Well clean carpets .bet u feel nice and refreshed .having a dog doesn't help ..we have cream carpets...aagh spend so much time shampooing them ..going to replace with dark ones later this year ...no excuse as son is a carpet fitter ....
Hope u feel a little more cheerful now ..good days and bad ones ...
hi all ,
not been on here today as felt too down to post ,but had carpet cleaners to do right through house and he cheered me up no end, when he finished i gave him a tip and he said ,,all my tips got to cancer charities which i thought was very nice ,he then produced thank you letters from Mcmillan and cancer research thanking him for various donations,so one nice gent i thought.
rained all day here so very soggy and dull.
hi Chris...never had that, but maybe not anything awful xx
Carolyn, ended up at the gp because latterly got ache over left hip...thought was it a kidney infection but wee test showed nothing....so fingers crossed.
i wanted to share re Cannulas etc,,.at my hosp had to have three scans, so got them all on one day......mri, then bone scan then ct, so the one cannula dealt with all three instead of three cannulas.l.l.try and do that if you need to...have done it three times during the past three years.( oh and none needed back of hand)
I am the worlds worst with veins!
Oh Jellytot!! I hear your pain!!!! They can do it on the hand too. Make sure you drink at least 1pint water beforehand and keep the armhand warm. Also, tell them and thye use a blue needle or butterfly which are smaller. I know that for CT they can't though...
i've got liver mei next week and panicking abiut the canula but they've said to see the girls in onc for them to do it. Might help?
big hugs xxxxx
It's been a week since my oophorectomy and I finish my antibiotics tomorrow, hooray, they have been making me feel so very sick. I'm recovering slowly but I have to remind myself it's only been a week!
Today I had a CT scan to establish baseline results for my trial drug. I had to have a blood test first to check renal function before the scan, 4 attempts later... Plus it was in my arm that was damaged in my oophorectomy by the leaky cannula. Ow ow ow. Then for the CT scan, I had to have a cannula put in the same arm. More ows.
I have two days grace and then on Thursday I have a bone scan (another cannula) and another blood test (for the trial drug) so I shall be like a pin cushion come Friday! Are they able to use feet or anywhere else does anyone know? They can't use my left arm because of lymph node removal. I don't need a picc or port as I'm not having regular IV drugs other than my zometa but that's every 6 weeks.
Hugs to everyone that needs one,
NO my friend you are definitely not the only hypocondriac on this site ,as this is one replying to you.
Yes, I itch too but skin flakes off and is red underneath esp on hands and corner of eyes. Nearly drives me mad - its the little things that get to me. I also imagine all sorts of horrible things things! Presently waiting for scan results.
Julie, welcome back, I missed you too.
Suze, big congrats so happy for you. I feel you shot out of here like a bat out of hell and I don't blame you. I deliberately waited a while to post as if you really are out of here you prob won't be reading this. I've mulled over this a while. I certainly (and possibly some others here) just occassionally indulge in the thought that the diagnosis is wrong (onc puts me right immediately and 99.5% of the time I accept the diagnosis) but it is wonderful to see that it actually happens sometimes! You have returned to the "real world" and returned to work though still I think with your symptoms (which I do hope get better) and you now have tremendous insight into what is is like to be stage 4. My personal opinion is that you have earned your place on this site and maybe are in a position to contribute something valuable as some of us return to work (and I speak for myself here as I am struggling to explain or not explain to various colleagues and bosses what has happened to me and what I can and cannot do and then cope with their reactions, and I struggle with all of this). What I am trying to say is that to leave the forum is great and I wish you all the best for the future and don't want to try to drag you back here or burden you in any way but if you did return I would welcome you back!
Hello ladies, sorry I havenn't posted for ages but I do still read your posts even if I don't always comment, Welcome to all the new members, I see you have been well looked after by the lovely women on this thread. It's rotten any of us have to be here but thank goodness we have each other for support!
I'm still on Zometa. Denosumab is the new kid on the block and is now considered the 'gold standard' treatment as was Zometa when it first came into use. I was offered D but as I have a port which would still need flushing and as Z has kept me stable for 7 years I saw no point in messing around with something that was working. I can't comment on D but I know that Z can give you achey joints. I have know people on Examestane who say they have aches and pains with tht at times. I think these aches and pains are often a mixture of the medications, the way we might hold our bodies differently etc and the mets themselves. Sometimes our bodies adjust, sometimes the pain comes and goes and sometimes we have to take pain meds regularly. I would say to anyone suffering, talk to your medics and see if they can help, don't just go on suffering when you could be more comfortable - I have pain patches which I supplement when necessary with co-codomol.
Bone scans use radioactive dye and give a more detailed pictre of the bones, abnormal areas absorb the dye faster and so any problem areas show up as 'hot spots'. .Not all hotspots are necesaarily cancer though.So for diagnostic purposes bone scans are often used as well as CT scans.
I will try to resume my regular postings and am sorry I've been a bit abscent, life sometimes gets in the way . Have as good a week as possible and hold on to hope. xx
nothing to do with bone scan ,but just thought i would let you know my lap top has been playing up for days ,so decided to buy a new one ,then grandson came and took it right back to factory settings,hey ho its as good as new,just wanted to say i am still here .
I had bone scan and CT scan on diagnosis. CT scan doesn't really show the bone mets very well, bone scan is significantly clearer but no good for soft tissue mets. Just had my second CT scan, but they have not suggested a second bone scan, I think it's because it's easier to spot changes in the CT scan when they know which area to look at.
can I ask if anyone else here with bone mets has had a bone scan. I also don't understand how this would show up anything different to a ct scan.
thanks in advance
Hi Sylvie and welcome. I am another lady with now extensive bone mets and the hip pain you decribe I really sympathise with, I find it difficult to walk and so the impact on life is huge. I agree with Carolyn about hotties and heat packs, also take paracetamol which is pretty harmless. I found slowing down really hard and fought against it with all my mighty might ....and felt worse, now I have had a big talk to myself about that silliness. Take a little walk when you feel you can, if it's a really good day maybe nice shopping trip if you can, it perks me up no end. I am also very confused about whether the pain is from treatment or denoumab or cancer, I don't think anyone knows. Anyway you've come to the right place, people here are all going through the same thing and are the kindest, most helpful people, I wish you all lived next door as I can always manage to put the kettle on.
hope this helps and big hugs to you
Here is always a good place to post, you will always find a listening ear and a hand reaching out though we may sometimes feel at a loss to know what we can say. Your poor mum, and poor you having to watch her going through all this. You must wish there was one person who was in charge of all her problems that you could speak to. Hugs Bon xx
Last time I went for a denosumab injection I talked to the nurse about denosumab and zoledronic acid. She said how much better d was than z because it was easier and less invasive to administer and probably had fewer side effects. I said that I knew of people on z and said this was probably because it was cheaper. She said it was probably because they had been on it for some time from before d was approved. But it seems that patients are still being prescribed it.
My s/es from d were really noticeable this month (but I have been on it for 18 months) - hip pain that made my hip collapse for about 3 days but then it got better. It's hard to separate the s/es of denosumab and exemestane as they seem to be much the same so I assume the ones that get worse at certain times of the month are down to d.
I'm afraid I'm a bit of a pill popper but nothing too strong so far.
Hugs to all Bon xx
Hi I'm new here, diagnosed with secondary bone only breast cancer in Feb.
Been having Examestane (no side effects) and Zometa (Zoledronic acid) and getting more and more pain in my hips (where the cancer has been treated with radiotherapy back in March)
Is there anything we can do for the aching and stiffness?
Anyone use Glucosamine?
Any advice gratefully received.
Fab Jellytot, just be careful if doggy pulls though - sure it's better behaved than my naughty pair used to be (gone to doggy heaven now as were very old ladies)- they nealy did me in when I had my op. LOL.
Glad you're feeling well enough to get out and about. Bit bracing here in not so sunny Merseyside (as anyone watching the golf will see).
Hope you continue to improve.
good on you jellytot and keep up the good work ,if you feel up to it of course .
you are getting there and wish you luck .
After feeling pretty rubbish for the past few days, I have just managed a half hour walk with my doggies! Shattered now but feeling accomplished 🙂 Xx
hi again ,
i have had no mails through from this site since thursday evening ,dont know why as this one came through ok.
i have a feeling some ex servicemen would look nice in sparkling heels and fluffy slippers if some of us ladies were with haha