Hi funnyface and all ,
i am not doing so well this week ,have had terrible pain through shoulder and collar bone so going to have to try and sort this out now ,i saw oncologist yesterday and he is seeing me again friday for bloods etc ,its just strange as never had any pain previous to having this radio therapy ,which i have had five sessions so only one to go,many one out there any ideas please,the rads were on my outer breast .
take care all
Hi! I had radio for spine and hip and it hsa helped pain. What they said was that it could be felt either straight away or take a bit of time. For me it made me realise that I got used to living with the pain 😞 - And remember everyone is different so do what feels right for you xxx
Hi Ramade and Renee! You two are doing great with all these treatments. Sending big hugs!
You and Renee are troopers! FF
Welcome TNMTNGAL, I'm sorry I only have 1 bone met and have never had a PET scan. I always thought when the PET scan lit up it was cancer. Ask a lot of questions. Get a second opinion. Don't stop until you are satisfied!! You could have it biopsies. Best of luck. FF
Hi ff, carolyn, all you bone mets ladies. This week I amm having radiation to my spine all week.
the reason is that I have bone mets all down the spine and around hips and around breast bone. However for months I have been having bad pain in my shoulder that radiates down my arm and the side of my body, it was terrible. Anyway the onc sent me for radiation in one in the neck and one in the high back because these were infiltrating spinal nerves, tingling and pain moving around all the time. They said they hoped the radiation would kill this cancer because there was a danger as it was about in infiltrate the spine itself which would not have been good.
The less invasive cancer down the rest will hopefully be tackled by a change in meds. Day 3 tomorrow, pain is expected to get worse next week after it is finshed and them get better. I will report back to let you all know what happens and hope that might help you make a decision.
love to all
Thanks girls. It shows up when they do the CT of my chest. Due the beginning of Nov. for that. Little over a month away. FF
My bone mets first felt like a flutter or a soft pulse, this before I was diagnosed, so naturally I didn't think anything of it. Then I had a pain for a day but this went away and only comes back infrequently mostly when I've been doing too much gardening. So it seems that mets make themselves known in any number of ways. Hope your stinging goes away and you are feeling OK otherwise.
I'm glad that your treatment is coming to an end. Hope you can enjoy a bit of peace and rest now. Wish I could send you a cream tea. I live a bit further down the road from Carolyn. Sometimes Carolyn, Barton and i meet up for lunch or tea. Unfortunately last time i managed to find the place with the worst cream teas in Devon.
Found a garden spider dangling in my bedroom the other day. (Just noticed it's there again this morning). Wrapped my hand around it to put it out the window without hurting it and it bit me so i let go. Will try a different tactic this morning.
love Bon xx
Bone Mets Ladies, I've had one none met in my spine for a few years at T-11. It's never given me a problem. A couple of weeks ago I had a little soreness in the area and some stinging. It went away. Today it started again. It's not really a problem, it's just there. I was just wondering if maybe it's going to start acting up. Has anyone with bone mets in the spine had stinging? FF
i can tell you i am completely shattered with it all and pleased it is coming to an end i hope ,as dont think i can take much more ,serousely i put a brave face on it all ,but drowning in all the treatments at the moment ,i know the onco is doing his best but sometimes wonder is it all going to be worth it in the end and who can answer that NO ONE just hope for the best.
we were coming down to ilfracombe once and and broke down on side of road ,i dont remember exactly what happened or why we ended up in exeter to have it fixed but the rac sorted it all out at this exeter garage so we spent all afternoon looking around exeter and really enjoyed it .
also my mum had a friend from exeter ,moved up to the lake district ,she was a fantastic cook and made all her own cream scones and also pasties ,but never ever lost her accent all the years she was in the north.
i can not eat very much at present but can keep scones with strawberry jam and rodders clotted cream down,also remember the times we have spent on various harbours down there munching on large cornish pasties ,those were the days carolyn.
i have noot seen a daddy long legs as yet this year ,but lots of spiders with tiny bodies and great long stringy legs ,all over and like you had one visited me in bed
finished my first two weeks of cape and feel ok ,but is feeling ok good or bad sign ,will soon know as seeonco friday for bloods etc ,plus only have two R T left tomorrow and next week ,i do have pains in my collar bone and shoulder but putting that down to RT i hope thats it anyway.
i keep meaning to ask where abouts do you live exactly carolyn ?,just curious no other reason ,but i am nosey and always have been
slinging it down here so horrible
Hi xxamandaxx and welcome to the forum. There are a lot of informed and supportive ladies on here, most of whom have bone mets so you have come to the right place for information.
It is quite likely that you oncologist will suggest a chemotherapy treatment if your scan results show that letrozole is no longer working. However this can be a tablet form, Capecitabine, which is generally kinder, less harsh and has less side effects that IV chemo. It will depend on what your oncologist orefers to be honest as there doesn't always seem a set pattern to these things. I went onto Capecitabine after anastrozole had stopped being effective and got a good 18 months from it, other ladies have been on it for much longer than that so its not a chemo that has a defined number of cycles.
Although it is difficult not to worry, as we all know, I've found over the years that I've often been thrown a curve ball and something has been suggested that I hadn't even thought about and therefore I have stressed about something that I didn't need to. So try to carry on until your appointment, after that you will know a bit more and can prepare yourself for what you know you will be having, it may also stay the same with no changes.
Thank you to any ladies who have posted since my original Thank you about my girl, Maggie. I'm doing good. I've made if through the weekend without any tears. I miss her, but know she us in a better place. FF
Babsy, Are you strong enough to repeat treatments. You can try "revisiting" some treatments! Also, if I had no treatments left and felt strong enough I would try something non traditional.Good luck!
Thank you for your kind words on my doggie! It's hard letting go! FF
It's so sad when you lose a member of the family. We had two dogs and one of them just became ill really quickly and she was the same age as her sister and we had to put her to sleep, so sad.
On a personal note, I've now come to the end of the treatment road so am now struggling to find my positivity. I am going to a two day conference at Birmingham on Saturday and Sunday called , I Can Do it, look it up on internet. It is all hayhouse authors, including Anita Moorjani. I'm sure I will leave there much more positive. I have got a spare ticket cos my husband refuses to see the " quacks" so I have a spare ticket if anyone is interested
Hi ff, so sorry to hear about your dog, 5hey are really a member of the family and you feel the loss terribly. Thinking of you
ramade xx hugs
Hello Bon, so glad you had a lovely time in the Scilly Isles! One of my favourite places ever. I had forgotten about the brave sparrows on Tresco - they are so friendly. Never had a thrush eat of my hand, though! Hope yoy enjoyed the gardens.
I know Carolyn doesn't like being plagued by wasps but we found a new pest when trying to eat outside whilst on holiday - extremely bold and persistent sparrows on Tresco.
I also had my first experience of a thrush eating out of my hand.
FF I'm so sorry that you have lost Maggie, the house must seem empty without her. But she's out of pain now and she must have been frightened about what was happening to her. When the shock is over you will have happy memories of her and the other family dogs are very lucky to have you as their dogsitter.
Thank you ladies! I'm OK. We adopted Maggie when she was about 2. My hubby thought I was depressed from my dx of Mets. I was at 2 years and he thought I needed something special. He offered me Maggie or silver pearl necklace from Tiffany 's. That was an easy choice! I always thought Maggie would out live me. Yesterday when we were at the vets I looked at him and said right at this moment I wish I had chose the pearls, then this wouldn't be happening.!
We will see what happens, but right now we both feel we aren't getting another dog. Mostly we don't want the responsibility. We also can get our pet fix from babysitting grand doggies. Lol, I said we will see, bc we had made that choice before Maggie, too.
By the way Maggie was allergic to beef. It gave her skin allergies. I cooked her a big old steak yesterday morning before she went to the vet. She gobbled it up! FF
Funny face, I just couldn't read and run, I am SO sorry for your loss, hugs to you and your hubby. It is so hard to lose a beloved doggie, ours are 10 and 13 and I'm dreading the day it happens but we have to do the right thing as responsible owners don't we?
I feel sure that Maggie is running free over Rainbow Bridge and you'll meet up again some day xxx
Sending hugs, FF. It's always so hard seeing a pet suffer then making the decision to send them over the rainbow bridge. We've always had cats & had to let our 2 year old go last year following an awful injury which was too big to heal without prolonged & invasive treatment. Ironically, we were both going to hospital daily at the time, me for radiotherapy & Lola to the vets.
Maggie's had a lovely life & is now free from it all, in doggy heaven.
Oh Funnyface I am SO sorry to hear this, and having a little weep myself for you, and remembering when I had to make that decision for my old dog, and a number of cats over the years, and how it just doesn't get any easier no matter how many times you have to face it. It will take time to adjust to Maggie not being there any more but take comfort from the fact that she had a good life with you and a good death - you knew when the time was right. The death of a pet is every bit as distressing as the death of a human in my view- you've lost something that was loved- and need to grieve. xxx
Sending lots of hugs to you FF, it is so sad when our lovely furry friends have to leave us and we feel such a huge hole in our lives. Although we have not had dogs as pets we have had cats for most of our married life and I have been heartbroken when one of them has passed on either from old age or in one case a car accident. A similar thing that happens to Maggie also happened to one of our elderly cats and it is so distressing to see them trying to move. But she, our cat, had had a wonderful life so it was right to treat her well and do the right thing for her. Take time to grieve, as it is grieving, and remember the good times. Plus you know Maggie is out of pain and stress now, as Renee has already said.
oh my goodness FF ,
i do feel it for you ,so sad when something like this happens to our beloved pets,please just try and think of the good times you had togetehr and also all the love given to you by the animal,its just exactly the same as using a human being ,although i know some people would disagree with me ,but all my animals have been treat like humans.
i do hope you can soon pick yourself up from this part of your life and just remember there is no pain now just peace for MAGGIE.
all my love reneexx
Bad day today! We sent our yellow lab, Maggie over the Rainbow Bridge! Since Spring her walking was slowly getting worse. We had a couple episodes of her back legs collapsing, but we though she had stumbled. In the last week she went down hill suddenly.Her hind legs keep collapsing. They become paralyzed for a few minutes and she trembles in fear and drags her legs trying to get up. It has been awful to watch. Hubby tried to stand her up 3x in a row yesterday and she would collapse each time. He finally was able to get her up. We decided it was better to let her go sooner than later. The vet said one day soon all her limbs would collapse with her. She was 75 lbs. and I don't have the strength to pick her up. If hubby wasn't home I wouldn't be able to do it. All I could picture is her laying in snow freezing bc I coukdn't get her up. We didn't want to have to carry her into the vet unable to move. My heart is broken! FF
Hello girls - sorry I've been 'away' - after my lasr post had my sister and niece coming to stay for a fortnight, then eldest daughter came down with pneumonia and then school started! Back to work (dont work in school may I add!) and then husband's best friend came from Canada for a few days which was great to see him but also for my lovely husband to talk to osomeone else that knows us and can understand a bit of what's going on.
anyway, today had radiotherapy appointment which was good because as the treatment seems ti have worked, they are not going to keep calling me but when it becomes too painful to let them know and I can have an aopt at short notice 😊 Plus with everything else that is going on doesnt want to add to my schedule! 😂
Tomorrow I have the gynae for the oopherectomy so we'll see what they say. Next week is the oncologist and not sure what we'll talk about but guess it might be a review although we havent done a new ct since august...
i'll keep you posted.
hope everyone is ok and ready for winter... heating has been back on and thick duvet too! Xxxx
Welcome Sandy! You and your OH got this!! You are doing great with your positive thinking. Life nee p s moving and you have to move with it and enjoy what you have! We all have our bad days, but learn how to get through. I wish you many years. FF