Yes, getting that diagnosis of 2ndry breast ca is devastating, I remember it well, it was Xmas 2016. I had a bit of pain which got a bit worse, had 1 dose radiotherapy and by July 2017 went back to work full time on my feet all day and have continued to work ful ltime. Can't run/won't run most people think I'm old and grumpy. It took me quite a few months to go a day without thinking about the diagnosis but I do now. With bone only disease some folk go on a long time ?18 years. Once I got sorted out in July last year I live pretty much the same as I always have except that most weeks I have a treat or two with the kids. This is actually a life improvement for me.
We had an Easter egg hunt yesterday. It's surprising how quickly the slugs get there but the eggs were well wrapped up. My son gave me an egg but I didn't feel like eating it. My son and daughter in law are expecting their first child so we all sat swapping childbirth stories. Nothing too offputting though.
A Happy Easter from me as well 🐰😊🍫enjoy your chocolates or whatever else you fancy - a guilt free day and ditch any diets. Im not a great chocoholicbut enjoy a few Wispa bits so eldest daughter got me a bag of those and hubby bought me a few small things from Hotel Chocolat which I do like but I had to let him down gently about the Flakes he got me. As we’ve had numerous discussions on here before they are not the same any more, never mind he did his best.
So a special day for me as it is 10 years ago that I was dx with mets and I’m still here which is such a bonus. Lots of ups and downs on the way but still able to get on and live my life pretty much as well as I can. Spent the day with family including our baby grandson which is another bonus.
Welcome to all newbies, a lot of activity on here recently with the return of our very own chocolate lover Carolyn 😊 apologies for not having the time to read over the last few days worth of postings but welcome to all and Hi to all tthe ‘old hands’
Cuddles and kisses yesterday from my granddaughter. Today is my daughter's birthday. First time it has been on Easter. The big footed bunny left some chocolate. I must say that this 1 1/2 years of dieting has changed me. I bought the chocolates and couldn't wait for today to get them.Well, the day is here and I ate one piece and really looked at the rest of it and don't want any. Yesterday at my daughter's for dinner I had a small piece of ice cream cake. Really didn't want any of the other desserts. Loving this change! It will help me keep it off. Happy Easter all! Enjoy your families! FF
Just to say Happy Easter to everyone! Hoping you are all ok today, and enjoying a few choc eggs! I know dear carolyn will have one on her lap for sure!
Sorry to hear your treatment isn’t working. Cape didn’t work for me at all. After 5 cycles they put me on Eribulin, that was July last year. I’m now on cycle 13. It has started to heal my bones and my liver mets are not reported on scans any more. One of my liver mets was 4 cm!
i have never had sickness, it’s the fatigue that is the worst for me but only on certain days. Just had another scan and it’s still ok.
I didn’t loose my hair, it just thinned and now with special shampoo I have a full head of hair.
It is a very mild chemo compared to some I’ve had I’m hoping it keeps working.
You will be fine on it.
Great to hear from you, have been thinking about you. Hope you get to see your family at Easter.
Here is a link to the eribulin thread:
I haven't been on it myself but there are some encouraging stories to be read there. Sorry cape has stopped working for you.
Hope you have a wonderful family celebration.
Just adjusting to the news that my liver cancer has grown, so now abandoning capecitibene, after 9 months of a good quality of life. I do have pretty advanced liver mets and things were looking very bleak this time last year. 8 sessions of taxel saved my life and then I have been kept stable on capecitibene.
Now they are doing various tests to see if I'm suitable for Eribulin. If so, I will start on 10th April. Managed to get a date after next weekend when we have a big family celebration for my son and husband's birthdays!
I remember seeing some posts from other ladies on eribulin but couldn't find them today.
Is anyone else still on this and how are you finding it?
Lyndyloo, Thanks for the good wishes. No, the cataracts aren't from my treatments. They run in our family. My brothers had them in their 40's. My first cataract was done 7 years ago. This one was to the side of my eye back then and slowly worked its way across.
Crossing my fingers the E & E is still working.
Happy Easter! FF
don't worry Carolyn, 5mg should be very doable,i found i was whereas i couldn't stay on 10mg because of side effects. it seems sensible your hospital have started you on lower dose,
hugs ramade xx
Don't worry Carolyn, i found the 5mg very doable.
So glad you're back. the bone thread wasn't the same without you.
love ramade xx
Hi Carolyn, I just wanted to chip in and wish you luck for tomorrow, I think it's your first E/E? Hope it goes well. Also FF, good luck for your scan and results, you get a speedy service across the pond at least...having a CT scan next week also, I think it will be "goodbye trial" time. Have a very Happy Easter everyone and eat LOADS of chocolate!! xx
Chemo. is undeniably the pits!! Is this your 2nd. time around?
How much longer do u have?
Bonariensis, Cataracts run in my family. I had my other eye done 7 hears ago. My brothers had theirs done in their mid forties. I can't wait to get it done. Glares are driving me crazy! Glad yours is working out good already! FF