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Bone mets - please join in

belinda
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Re: Bone mets - please join in

Sorry to hear your news Val but I hope the rads help and are soon done and dusted. Take Care. x
scottishlass
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Thanks girls, Not great news I am afraid. Suspicious area at back of my head which is also showing up on face and is related to bone mets. ( At least my brain is clear....so glad they found I had one 🙂 Being referred to the radiotherapy Dept for radiotherapy on back of head and face, which will be quite soon. I cannot have new injection Denusunab instead of the Zolidronate infusion I have been having for years as it can cause problems of necrosis of the jaw whhich I already have 😞 But feeloing okay right now. My Dad has problems at the moment and having to help look after him until on his feet again. He thought it was Thursday today ( it is Monday in case you don't know!! 🙂 But since stopping my chemo at end of May I am feeling great and energy is much much better. So this hic-cup will need to be put on the back burner for now. Overcadt and cooler here today. Hope sun is still shining whereever you are. Hugs, Val

Katie2002
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Just wanted you to know Val that I am thinking of you too. I hope all went well with your results xxx

Thumbie
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Thinking of you Val
Ruth x

scottishlass
Member

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Results from CT scan to face/scull tomorrow lunchtime. Will be glad when I know what is what.
Dad worrying me. Not been well but keeps leaving gas on. Will need to talk him into an electric cooker before he blows himself or anyone else up! Phoning his GP tomorrow. Also phoning GP for my husband too. Busy day ahead. X

scottishlass
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Not seen her posting for a while on here or on FB. Will let you know if I hear anything. Anyone else heard from her? Val

trudy2010
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Anyone heard from Broomstick Lady, Nina?

Ramsfan55
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Hi Carrie Anne, I want to say that I am thinking about you too and hope that you get the support, love and treatment that you deserve and need at this difficult time. I've heard so many people say how good hospices are and I hope you to find the right people to talk to. Have you spoken to your breast cancer nurse? Please carry on posting here and stay in touch. Lots of love x
suzanne x
Well it was my turn for scanxiety today. Onc said CT scan was clear (phew), but that my bone mets were much more active. They haven't spread as such but they are eating into my bone more. He wants me to have an x ray tomorrow to see if I need to be referred to osteo people. (?) he is worried about extent of damage. He has also changed me from tamoxifen to letrozole and made arrangements for me to have zometa every 4 weeks instead of 8.
Beginning to wish for a cooler day 🙂

Katie2002
Member

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Carrie Anne - I just wanted to let you know that I have been thinking about you and so hope that you have been able to talk to someone.
xxx

nicky08
Community Champion

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Hi Caron, I'm also sorry to hear that the chemo hasn't worked and that this is such a difficult time for you and your family. I do not have anything to add to what has already been said but hope that you have been able to get some guidance as to what help is available for you all, that you are comfortable with. I know in our area the local hospice can provide care at home or in the hospice but it will all be down to what you feel is right. Thinking of you.
Nicky x

belinda
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I'm so sorry to read your news carrie_anne. Like everyone else I would suggest getting in touch with the hospice, Macmillan and Winston's Wish. Please do use this thread and talk about absolutely anything. You asked about being brave, I want to be brave too. I was with my Mum when she died a few years ago, my brother and sister were there too. We were all glad that we'd stayed until the end.
I hope you are having any chemo side effects or pain issues taken care of. With Love, Belinda..x
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So very sorry to hear your news Carrie/ As the others have said, the best place for a long chat about everything that is troubling you would be your BC nurse or a palliative McMillan nurse. They are very experienced, and they will know your full medical history. We can all help you on here with care and support and please don't fret about letting us know how you feel. Memory boxes have been mentioned, and they are a brilliant idea. Winstons Wish is a charity that helps bereaved children and also might be of some help to you as regards your children.

Hugs coming your way.x
doodlecat
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Caron I am so so sorry to hear your news I had been hoping you would have some improvement. I can't really add to what Val and Ruth have said as it is so personal. I know what I want for myself but have not yet discussed it with anyone. What is right for me may not be right for you. Please do not stop posting on this thread what you are going through is the reality of this disease.

I will be thinking about you.
Sam_BCC
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Hi carrie_anne

As well as the support and advice you are receiving here please do give the helpline a call on 0808 800 6000. Here you share your thoughts and feelings with someone who will offer you emotional support and practical information. The lines are open Monday to Friday 9 to 5pm and Saturday 10 to 2pm.

Best wishes Sam, Facilitator

Thumbie
Member

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Do you have a Macmillan nurse or hospice nurse you can talk to Carrie Anne? They will know your circumstances and be able to have a face to face dialogue about what you can expect and the choices for you. Perhaps they will be able to give support to yourself and your family. Ask about pre-bereavement counselling for your children and other loved ones, and counselling for yourself to help you make the decisions which are best for you. I've heard of people making memory books. Doing stuff like this might help you to feel more in control.
I feel for you Carrie Anne, and humbled by what you are going through. I will be thinking of you. If you don't mnd I will say some prayers. Please keep coming on here as much or as little feels a bit helpful. We are far enough away and yet close enough, maybe, for you to be able to say what can be so difficult to say.

Ruth

scottishlass
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Hi Caron, I am sorry that you are worried about the future and what you should do. I think you need to discuss this with someone professional. Do you have a Maggie Centre near you as they have been marvellous when I have been anxious about anything. The McMillan Nurses are a great source of help and support too and I am sure they would talk to you about your worries and especially about your children. The Breast Care Nurses are also very helpful so you could give them a call or you could ring the BCC advice line and I am sure they will be able to help you there too.
There is so much to consider and think about but sometimes it is good to speak to someone that is NOT your closest friends and family. We can talk you through it but we are not the professionals. I know what I would like to do at "end of life" but everyone is different. Some people have a religeon which can help at times like this and I am sure their would be someone at your church/chapel or whatever who would come to the house to guide you. ( I am not religeous so cannot help you in that area).
Are you talking to anyone about this? Or bottling it up? Please talk to us and tell us how you feel. It is something all of us have thought about but are concerned about what our "end" will be like. Let us know how you are honey. Don't bottle it all up. A huge hug. Val

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Hi lovely ladies
Firstly i would like to express my sadness at the passing of Sarah Cromercrab and the realisation of how terrifying this disease is.
Secondly my sincere congratulations to Helen on your recent achievement attained during your illness.
Thirdly thank you to everyone for all your kind words and wishes.
Fourthly my heartfelt support and positive thoughts to you all with your treatments and side effects.
Finally an having the Carboplatin chemo x3weekly. Next week will be my 3rd and last one. I think it has prolonged the symptoms and radiotherapy will not work so it will only be a matter of time. Can anyone tell me how to be brave about dying for my childrens sake? I cannot even decide between home or hospice? Family say it is up to me and my choice and looking to me for direction but i dont know what it will be like. Will i be so out of it on meds that i dont know where i am when the time comes? I have no experience of anyone dying you see. I dont want to upset anyone here so should i start posting on another thread? Its just that having bone mets for 2 years i feel i know you all here but dont want to interfere with the positiveness on this site.
Take care alll of you and your advice is much appreciated xxxx
dawnhc
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Congrats Helen. What an achievement! to be coping with bc and secondaries yet still able to focus on your studies like that. Liz & Buffy it is great to read your good news. It is always so unsettling with scans because we never know what they are going to show up. The CT I had this week was not really for my bc - but requested by the London Hospital for Neurology. It was a CT of my whole spine and I was taken 'downstairs' to a different CT scanner to the usual one. They said it gives a better definition of that area than the other machines. The radiographer was just lovely - she realised that to lie me flat was going to give me so much pain, and was so caring and gentle, and worked as quickly as she could. It was interesting - there was a man there who was supposed to me getting me placed on the scan bed and he was clearly just wanting to get me there as quick as he could until the radiographer intervened and even reprimanded him in not being sensitive to the patient's needs. He told me I couldnt have the knee pad they usually put under your knees, or a pillow under my head!!! there was no way I was going to be able to lie down like that. She told him he had to work around the patients' needs and had sometimes to compromise! Thank goodness she was there.
I do wonder if the marsden oncs check the scan out first to see if there is anything they ought to be looking at. I must remember to ask for a copy of the report. I suppose the next step willl be if the London Hospital want to see me.
Dawn

Ramsfan55
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Lovely to hear everyone's good news!
I would also like to ask for some advice please. I have a pain in my right kidney area which startled a couple of days ago. It could be my lower ribs as I have bone mets. It doesn't throb it's just there all the time, except when I go to sleep at night. It starts as soon as I get up in the morning! I am taking naproxen and co dydramol which gives me some relief, but I can still feel it in the background. I have also iced it and now using some heat massage. Is this what a bone met feels like??
Suzanne x

MaraUk
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Congratulations Helen that's brilliant
so glad didn't you give up
Mara
Buffy3
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Fantastic news Helen. Good to hear your good news to Liz. I had good news re my scan results too, stable bone disease no evidence of new disease, clear elsewhere. Even talk of removing my lump that is now hard for onc to find.
Also returned to work on a phased return and have been loving it. Having said that have picked up a stomach bug or I poisoned myself with cooking so have been off for a couple of days.
Cyber hugs heading your way. xxx
belinda
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Glad to read your scan results were good Liz..x
Well done Helen. A fantastic achievement..x
doodlecat
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Helen huge congratulations. Definitely need to celebrate. xx
Katie2002
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Helen - that is fantastic! Congratulations!!! Hope you are going out to celebrate?
xxx

Katie2002
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Helen - that is fantastic! Congratulations!!! Hope you are going out to celebrate?
xxx

scottishlass
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Helen, If I had a "Like" button Iwould like your post.
Congratulations on this marvellous achievement. Well done. You should be proud of yourself. A hug, Val

scottishlass
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Helen, If I had a "Like" button Iwould like your post.
Congratulations on this marvellous achievement. Well done. You should be proud of yourself. A hug, Val

helen44
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Hi everyone, i just wanted to share some good news about me - I managed to get a First Class BA Hons in Education today!!! Am so pleased considering I was all ready to give up studying when diagnosed last December. BC will not beat me! This has really lifted my spirits.
To reiterate what Liz said - I do hope everyone is as well as possible.
Helen x
lizcat
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Just to say, been for check up today and scan shows stability - yay!! That' after 4 months on exemestane, everolimus and denosumab. Back again next month to check all is ok and collect next month's pills.

Hope everyone is as well as possible.

Liz x

belinda
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I tried Gone Girl but I couldn't get on with it....The Little Stranger, Sarah Waters I started it today...lovely, I'm drawn into it straight away. I have a room full of books. My bookshelves create a booky cavity wall insulation so I'm probably saving on the fuel bills.
Good for you for rocking at rounders Katie. x
Katie2002
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Dawn - I hope everything went well today and you have got some answers. Thank you again for your advice. I have now written down my questions and I will ask to speak to the onc on my next visit. x
Doodlecat - I loved the ending of Gone Girl. Let me know what you think! I can picture it as a great film! I am now just reading a MC Beaton - Agatha Raisin book. They are very formuliac but an easy read. I am waiting for some books from Amazon to arrive - the new Jeffrey Deaver(Lincoln Rhyme series) eing one. I love new books - especially crime fiction. I have kindle and an ipad but I enjoy holding a book. If I had money I would have a library in my house. My hubby thinks books are clutter so even if I won the lottery I don't think I would get one.
Thanks Belinda for your words of wisdom - I won't tell a soul about the socks with crocs.:) It could be a game though couldn't it - a bit like Where's Wally, but spot the secondary lady on oral chemo!
Well I may have secondaries but I am not out - I amazed myself let alone my class of 7 year olds today when I scored 2 rounders! God knows how but I managed to wellie ( a Northern saying for hitting the ball hard!) the ball. To be honest it was the first time they had ever played and their fielding was shocking- so a fast walk got me round the bases. But still - I rock!!!!!!!
xxx

dawnhc
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Katie sorry to come back at this again but do remember it is your body and you do have a say in what is being done to it! I think I have probably been a patient too long now and have been known at times to argue/disagree with the oncs!!!! You could try chatting to your nurse, although she might be wary of giving an opinion. Maybe even ask your onc if can delay going on the chemo until there is a more obvious reason for doing so, after all you are already on herceptin which is a good preventative. As I said in previous message it has kept mine which was very aggressive, reasonably stable for nearly 10 years! I wasn't sure whether to post this reply or not as obviously the way bc affects us all is so different. On your next clinic appointment could you ask to see the consultant instead of a registrar? I know at the Marsden where I am treated it is o.k. to do that.
Dawn

doodlecat
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Katie, I was fue to start Capecitabine last month after my tumour markers tripled and I had changes to my breast (primary tumourstill there). It was cancelled when I had to change Oncs. I read that thread Val mentioned and it would appear that a lot ofus can vope with it very well.

I am about two thirds of the way through Gone Girl and I am really enjoying it. Just hoping the ending doesn't disappoint. xx
belinda
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Hope the scan goes smoothly and it helps to find out what's causing the problem Dawn.
Hi Katie, I had Capecitabine, for bone mets, for nearly 5 years. It was my first chemo but to be honest I never really treated it as a chemo. My bloods remained good all cycle through, I had no real tiredness. In some ways I found it easier than Arimidex. I kept all my hair and all my family would have the usual winter coughs, colds and I'd be fine. I did have some foot problems but recommend using creams daily and swapping them round often, I used Udderly and Eucerin creams. Because of the foot problems I lived in Crocs with Socks....but please don't tell anyone.
Katie2002
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Hi Dawn - Good luck with your scan tomorrow. Let us know how you get on. I do hope they can sort you out!
The Registar seemed to be going back and forth to Onc today. The man himself didn't come and see me. I never really thought to ask if they thought the 'abnormality' was a real threat. At first I was told by registrar they would keep an eye on it and scan me in 3 months to give them a clearer picture. Then he went to Onc, came back and said Onc thought it wasn't cancer but gland damage or something and that due to my age saw no reason to scan for a year. He doesn't like to over scan. Then Registrar mentiioned going on Ibronic acid (I know I've spelt that wrong) as I finished my 6 shots of zometa (as per Christie policy). He went back to Onc came back and said they thought putting me on oral chemo would be the way forward as a preventative measure. The Ibronic acid wasn't mentioned again! I think I was just so taken aback I didn't know what to say. My nurse - who is a star - and is my regular at giving me herceptin said I had to go away thinking that both my bone and ct scan results were very good. I don't know what to think! I always go by myself for treatment now and with hindsight could've done with someone with me to ask the questions I don't think of at the time. Oh I did have radiotherapy on the side the tissue is showing but seemingly it was showing there on original scan.
I will write my questions down for next time though! Thank you for helping me to think things through. I just feel like I have got some normailty back in my life and then this comes along. Hey ho!
On a completely different note - I have just finished a brill book for those who like a good thriller - Gone Girl by Gillian Flynn. It was recommended in Good Housekeeping and was a cracking read!
Hello to all - sorry for not posting of late. Will try harder! xxx

dawnhc
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Hi Katie :), Like Val says, it is nice to see you posting again too. I haven't been posting much because I find when I am not feeling too good it is hard to even find the effort to put words together :(. Everything I do seems to take so long. Have you asked your onc to explain clearly why he thinks it is necessary for you to go on a chemo at this stage. If Herceptin is working well for you it seems such a shame to use up another option. I think however well we cope with chemos they do take a toll on our bodies and I know I would want a very good explanation as to why. Do they think the 'damage' the CT scan has shown up again is a threat? Have you had rads to that area at your original primary diagnosis - and is it a possibility that has caused the damage. I know it can damage the lungs - and in the early days of my bc it frequently showed up on scans. Since I went on herceptin back at the beginning of 2004 I have been so fortunate in that I have not needed any chemo to control the cancer. (Dawn has fingers firmly crossed behind back! figuratively speaking - cos I'm not typing with my toes LOL) I have a CT scan coming up tomorrow - but this one has been requested by the London Hospital of Neurology as part of the investivation as to why I struggle to hold myself up straight now and what is happening to the muscles down my spine.

Dawn
xx

Katie2002
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Hi Val - thank you for replying. The registrar said to think about going on it as preventative measure. He did also say that herceptin seemed to be working for me. I suppose with feeling ok I wasn't expecting him to suggest going on something else. My onc doesn't 'do tumour markers'! Or so I have been told. I am glad really they are trying to be pre-emptive (if that's the right word - my vocab has shrunk since all this began!) I will try it - anything to keep the uggers at bay. I will look up thread too - thanks. As for hair thinning - just getting used to having some. Have had it dyed blonde but yet to have more fun! Am putting weight on like I can't believe. I don't look anything like my original picture - I must get round to changing it.
Thanks again Val.

scottishlass
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Did they ask you to choose to go on Capecitabine Katy? I was put on it as my TMs were rising and I wasn't feeling quite as good. . I had it for 6 months then had a break from the tablets for 18 months. I started again for 6/7 months and then had a break for over 2 years, Then when the markers started rising and I wasn't feeling quite so good I was put on it again. I found it an okay chemo. No loss of hair although it thinned a bit. I was recently on Taxol and I lost my hair and I found it much harder on that chemo regime. There is a good thread on here that I posted on. (Let me know if you cannot find it)
All in all I think you had really encoutaging results and I am glad you are enjoying being back at work. I have met other ladies in my hospital who contined to work on Capecitabine. Sometimes it can cause painful hands and feet and that happened to me. So they reduced the dose and after that things improved. But my feet were really painful. Not everyone seems to suffer from that though.
Glad to see you posting agaoin Katy. Have missed your posts but I know you have been a busy lady. Much love Val

Katie2002
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Hello everyone,
Just got back from having my herceptin and just need to pick your brains please. I got my bone scan results 3 weeks ago and the Registrar was over the moon saying that my bone mets had reduced which he said was rare. The remaining mets in spine were stable. Today I got the results from my CT scan - again the good news was that my organs are clear. However there is an area between my heart and chest wall that showed up on last scan a year ago (which I wasn;t told about) which showed up again. Soft tissue density which has slightly increased. He went to speak to Onc and came back saying that the Onc thinks it isn't cancer but gland damage. Ok - I am going with Onc says as it suits me. The Registrar then says that I have to think about going on capecitabine. He will talk to me after my holiday in August and gave me some info. From what I can gather its a preventative measure.
I suppose I just wanted to know if any of you were on it for such reasons? How do you find it? The word 'chemo' scares me - I had EC and Tax and don't want to go thro that again. Can you carry on working on it?
This may sound daft ( and hopefully without tempting fate) I actually feel fine. Been keeping busy - enjoying being back at work.
I know I am very lucky at the moment and my thoughts are with those who aren't doing so well.
It was nice to see Val and Dawn posting again! Will be adding to gormless thread soon.
Thank you x

Ramsfan55
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Glad to see you posting Val! I hope that holiday has done you a power of good. It has been such a difficult time over the past few weeks with Sarah's passing and lots of our friends going through very challenging times. There are times when the realities of this damned disease seem to knock us for six, but we must stay strong for each other, I am sure that Sarah would want that. It's easier said than done at times like this but hopefully we will prevail.
Lots of love to everyone and let's keep this magic thread going. It is a life line to so many people and Val, Dawn and others do so much to keep us positive.
Sending positive thoughts to Nina and her family ❤️
Suzanne x

scottishlass
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I have just seen a post on Facebook that Nina's (Broomsticklady)'s husband has submitted telling us that Nina is not well and has seen a new doctor. I don't want to say anymore than that but as her last post on here (2 pages back) explains she has not been well for quite some time. I am sorry to read that your sight has deteriorated Nina but hope that someone can read this out to you . I just wanted to tell you that we are all rooting for you and am sending all the strength I can muster through cyberspace. Huge hugs from us all, Val
Dawn I hope thet they can get soe answers to your recent problem shen you see the new doctors. I too have a stoop and was shocked when I saw my spine in the mirror when I was trying on my new swimsuit. I look as if I have been starving for months....not a pretty sight.
I am still reeeling from the shock of the sudden demise of lovely Sarah ( Cromercrab). I had no idea that things were so bad and really thought that she would be back home with her family once they got things sorted for her. I will miss her cheery posts and her sense of humour and common sense. Condolonces to her friends and family.

dawnhc
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So glad to see a post from you Val. I had forgotten you were on holiday and was beginning to worry like Ramsfan. It does sound like you have been losing such a lot weight if the latest loss is 2.2kg! I too have gone down to a size 10 but nothing like the loss you have had. My weight had been slowly creeping up and went from around 8.7 up to 10.4!!! I had never been that heavy before and had certainly not been eating more than usual. I now have a choice of wardrobes depending on what size I am. Having been a 12 and going up to a 14 then back down to a 10 and hovering between 10 & 12 I now seem to have settled at a 10 and am waiting to see if they reduce my herceptin. It got increased when I hit the 10st.
I seem to have developed something they think may not be related to the bc! The Prof sent off my scans to the London Hospital of Neurology for an opinion on why I have developed quite a stoop over the past 6 months. The opinion came back within a week and said something about the muscles down my spine having atrophied and a possible myopathy (please no one googling that tell me what it is about - I started to then quickly decided not to go there!). At first I couldnt bear the thought of having to attend yet another hospital - and yet more driving for my poor OH. Then the onc said we were dealing with something possible quite unusual and it would be better to get an expert opinion on it. After discussion the Marsden agreed to do the scans the London Hospital want so I won't have to make unnecessary journeys up to London :). I know it is possible they won't be able to do anything to help but it is better now to find out in case there is something that can be done. I have found these wheelie things really helpful after the hospice loaned me one so am looking to buy one for myself. At least it will save me bumping into lamposts LOL.
It was so sad to read of Sarah's passing
Dawn

scottishlass
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Yes, Ramsfan I am still here!
I was away on holiday for three weeks and got back on Tuesday evening. We went to France and my daughter and her man came to visit us in the countryside and then we spent a few days with them in the city.
I had hoped to go swimming every day to improbe my muscles and to try to gain some strength after the chemo and other stuff going on. But I could no longer swim which came as quite a shock to me. I just am not strong enough. No muscles. So I just went into the pool and walked up and down and then help on to the side to exercise my legs. I managed a few strokes after the 3 weeks were up!
I had my Zolidronate on Thursday. I have lost a lot of weight but since I was at the hospitla in May I have lost another 2.2kilos and am now weighing about 8 stone 12 or 56 kilos. I am wearing size 10 trousers and it isn't a great look! So they are going to keep an eye on me and meanwhile I have to eat as much as I can including the stodgy cream cakes.
I am working hard on the red meat ( made a beef rRogan Gosh last night) and am back on the red wine again. My HB is also lowish and gone down to 9.4 so want to avoid another transfusion if I can. I am not breathless and feel better than I have for a long time. Making a curry from scratch is something I have not managed for many months so it feels great to be able to give my dear husband a rest from cooking all the meals. I even spent a little time in the garden today pulling up weeds!
However I did have a terrible upset tummy while I was away but now realise it may have been the result of being on anti-biotics for 4 weeks when I had that infection in my mouth ( necrosis of the jaw). I am now waiting for a CT Scan to be arranged for my face and another appointment to see my Consutant again. One of my TMs had gone down but sadly the other was rising. Hope I can stay off the chemo for the summer months. My hair is making an appearance. I went bare headed while on holiday but still put my short wig on when I go to the Bank or the shops. On Thursday the car park attendant at the hospital said he liked my new hairstyle ( well I have been going to the hops for 24 years now!) so I asked him if he would like to borrow it ( he had a very short haircut) . He siad he thought it was my own hair growing in! hee hee
Thanks everyone for all your support on this my favourite thread. Hugs to you all. Val

Ramsfan55
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Just wondering if anyone has heard from our Bone Mets Queen Val? Hope she's having a holiday or something, but would like to know she is ok 🙂

finty
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Suzanne, I had a similar pain but just in one leg. It started when I had to take a break from pilates (my intructor went travelling for three months) but happily disappeared when I restarted the exercises a few weeks ago. Of course in the meantime I had convinced myself it was something sinister.

So very sad to hear about Sarah.

finty x

belinda
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I just wanted to thank you vercors for starting the 'In Memory' thread for Sarah..x I've just logged on and read the sad news. Take Care everyone..x
vercors
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Cromercrab (Sarah) had stopped contributing to this thread for a while. This is were I met came accross her. Her humour, upbeat attitude were amazing. she sadly passed away yesterday. Fly with the Angels Sarah. We will miss you.

Ramsfan55
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Re: Bone mets - please join in

Thanks Lucinda for your reply, I do hope that you can get those meds sorted soon. I went to my osteopath this morning and explained the pain I was suffering and she said that it was referred pain from my back (lumber) region that she has been treating me for. She then did some massaging of the back, hamstrings and front thighs. She told me to continue icing my back and keep pottering around to stay mobile. She also gave me some very light exercises to do. As soon as got up off that couch I felt so much better! Since then the pain in my groin has gone and although I still have some discomfort in my right hip, I am so much better and can walk!!
a good osteopath is worth looking for And paying for!!
Suzanne x

lucinda
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Re: Bone mets - please join in

Hi Suzanne
I had the same sort of pain (plus pain down the leg) for over a year.They got so fed up of me complaining...the pain became so bad they sent me for x-ray in case there was a fracture.Also had bone/ct/mri but nothing looked untoward...oddly th opposite leg/pelvis has a lot of mtastaric activity showing but it had not bothered me (it has started giving me problems in the last few weeks).The problem was that I have as much arthritis in right hip as I do mets, but they eventually agreed to 5 blasts rads which I had a couple of months ago. The pain in the groin has gone but obviously the arthritis remains, and so do the walking problems and aches and pains. I really need to get my meds reassessed as my gp gave me gabapentin for the nerve pain, which I no longer have, and anti inflamatories the hospital gave me do seem to work better. Hope you get it sorted soon.

L xx

Ramsfan55
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Re: Bone mets - please join in

Thanks Belinda and Vercors, I am due to have CT and bone scans soon so hopefully they might shed some light on the problem. However I am also seeing my osteopath later this morning so will see what she has to say. thanks for your replies, it helps to know that others have had similar problems and that they have been resolved x
suzanne x x