I have had rad therapy to rib and hip areas without any pain flare up afterwards. However i had a single session to my lower spine which did result i an increase in pain. My main concern was that i hadn't been warned about this by the onc or the radiotherapy unit, so it took me by surprise and nearly sent me round the bend! Be aware and be prepared with proper pain killing meds and don't delay and try to tough it out before calling for help. If i had known i'd have been straight on to the onc unit or the PCT. I think it's all very personal and individual but be prepared anyway! Good luck. xxx
Val I haven't been on the forum for ages as I hated the changes they made to it and couldn't cope with it. When I first posted on her, on the old old forum! You and some of the other ladies were so nice and gave me so much courage and hope at a time when I was reeling in shock.
I am so glad to see that you are still here and still full of life and kindness and inspiration to others.
Letrozole and zometa have stabilised my bone mets for two years now. Never dreamed two years ago that I'd still be well. Sure, the letrozole is a bugger and makes every joint feel about 230 years old instead of 56 but I can cope with that as long as it's working on the lesions.
I am away to catch up on all the posts I have missed over the last year or so. All the best to you an everyone else on here, xxx
Hi Buffy, lovely to read you were, at last, able to celebrate your first wedding anniversary in such a beautiful place. 🙂
I'm on Arimidex, again, a break from chemo so understand how you feel. I last had Arimidex 2004-2008. I'd forgotten how ancient I'd felt on it. Fine when I'm on the move but getting out of the armchair, bed I feel 101. Hope Letrozole is working well for you. And despite moaning a little I hope Arimidex is working well for me. 🙂
oops seem to have pressed the wrong something and lost a long reply ! So...................... welcome all to the new look forum. Watch this space.
Hello Mema23, My goodness lass you have been through the mill! What a lot to deal with. I am on Zolindronate and was on Letrozole too but now on Tamoxifen instead. I have been having treatment for secondary bone mets for a ong time now, 14 years and first had BC 24 years ago. I am glad your family have rallied round to help you and as you say losing a bit of weight feels quite nice. Keep posting to let us know how you are doing, Val
Hi all, oh dear I don't think I like this new forum. Just wanted to make sure our thread was still here. I shall miss the latest posts page I used to catch up with any news via latest posts.