Hi to everyone I think, I'm sure I've been told this in the past, most of us with bone mets probably have some skull mets and I know I've had some mets or met in the bones of the spine, skull area for many years. They are just treated the same as my bone mets elsewhere and having skull mets does not have any connection to developing brain mets.
I've had a nice busy week so just like your pastry Val I've been resting today. Are you watching Mary Berry and the new Bake Off series?
Good morning, sorry to hear you have scull mets too Livlassie. I have just put that on the back burner ( as the saying goes) although it did give me a scare until my Consultant told me I had had them for years (cannot believe no one thought to tell me) so nothing was really changed.....I just didn't know they were there! Hope that makes sense. If not can I blame the scull mets 🙂
I was baking again yesterday. I made short cut pastry and while it was "resting" in the fridge I went to the local shop and bought the ingredients I needed to make a quiche lorraine. Twas delicious too as I haven't made one this year at all. It feels good to be able to complete a task at long last but I do have to rest inbetween which I didn't used to have to do. Not sure if it is old age or BC that causes the tiredness. Suppose it is a bit of both and I do not want to give in!
Got a phonecall from GPto get bloods redone as calcium level a bit high. But the hospital had the same results form last week and never picked it up. I was told to continue with my calcium tablets but I have been remiss and haven't been taking them for weeks anyway which makes me wonder if it is the BC bone mets misbehaving. Will just have to wait and see.
Have just booked our flights to fly over to see our daughter for 12 days. Got two return flights, (including the £10 extra that you need to pay) for the TOTAL sum of £61. Yes that is TWO tickets for TWO of us. Could hardly refuse could we! Hope all boney ladies have a pleasant weekend. Sun shining here so better go get ready and go outside to absorb that sunlight. Hugs Val
Thanks for that Jo. It does seem to be much improved so far. Well done for that! xx
Hi Val. Thanks for the nice words of welcome. I did some reading of the posts i'd missed and was so sorry to hear about your recent issues. I have skull mets too - a couple at the place where my spine joins my skull, i think. They are the scariest ones, aren't they? You've also had the osn to deal with and that must be tough. Think you are right to cautiously wait and see, if the osn isn't actually causing you any difficulties at the moment. The chocolate roulade sounds yummy and well done for doing it in the morning too. I'm useless before noon-utterly useless! I think you are bloody marvelous! xxx
Hi Livlass, Glad you have come back to join us on the best thread on the whole site! Keep in touch and let us know how you are doing.
I have had a lovely day sitting in our garden with friends and having a glass of wine and something to eat with very old friends. I made a chotolate roulade this morning before they arrived at mid-day. I haven't managed to do that for a while so early in the day! Love to all boney friends. Val
Welcome back to the forums, and hope that you find our very new forums easier to navigate than the last one! I'm sure your fellow forum users will offer their support and friendship.
I have had rad therapy to rib and hip areas without any pain flare up afterwards. However i had a single session to my lower spine which did result i an increase in pain. My main concern was that i hadn't been warned about this by the onc or the radiotherapy unit, so it took me by surprise and nearly sent me round the bend! Be aware and be prepared with proper pain killing meds and don't delay and try to tough it out before calling for help. If i had known i'd have been straight on to the onc unit or the PCT. I think it's all very personal and individual but be prepared anyway! Good luck. xxx
Val I haven't been on the forum for ages as I hated the changes they made to it and couldn't cope with it. When I first posted on her, on the old old forum! You and some of the other ladies were so nice and gave me so much courage and hope at a time when I was reeling in shock.
I am so glad to see that you are still here and still full of life and kindness and inspiration to others.
Letrozole and zometa have stabilised my bone mets for two years now. Never dreamed two years ago that I'd still be well. Sure, the letrozole is a bugger and makes every joint feel about 230 years old instead of 56 but I can cope with that as long as it's working on the lesions.
I am away to catch up on all the posts I have missed over the last year or so. All the best to you an everyone else on here, xxx
Hi Buffy, lovely to read you were, at last, able to celebrate your first wedding anniversary in such a beautiful place. 🙂
I'm on Arimidex, again, a break from chemo so understand how you feel. I last had Arimidex 2004-2008. I'd forgotten how ancient I'd felt on it. Fine when I'm on the move but getting out of the armchair, bed I feel 101. Hope Letrozole is working well for you. And despite moaning a little I hope Arimidex is working well for me. 🙂
oops seem to have pressed the wrong something and lost a long reply ! So...................... welcome all to the new look forum. Watch this space.
Hello Mema23, My goodness lass you have been through the mill! What a lot to deal with. I am on Zolindronate and was on Letrozole too but now on Tamoxifen instead. I have been having treatment for secondary bone mets for a ong time now, 14 years and first had BC 24 years ago. I am glad your family have rallied round to help you and as you say losing a bit of weight feels quite nice. Keep posting to let us know how you are doing, Val
Hi all, oh dear I don't think I like this new forum. Just wanted to make sure our thread was still here. I shall miss the latest posts page I used to catch up with any news via latest posts.