Hi Chocolates, I'm sorry you are feeling so unwell. I hope you get something that helps. Why don't you phone the nurse hotline. They might be better than your GP. Have you had your bloods done recently? Maybe your white cells are low. I am on injections for mine at the moment and I do feel better than I did last week.
Let us know how you go on won't you?
Get well SOON! Thinking about you.
Lots of love Sheila. Xxx
Had a nice week last week, two pub Christmas lunches! One with some SBC friends and one with my sisters and parents. only problem is I've picked up the horrid virus that seems to be going round. Bad throat, coughing,phlegm ......Just hope it clears by Christmas.
I did have some good news a couple of weeks ago, had CT and bone scans brought forward due to pain but both showed me stable so can relax over the festivities.
I hope those of you waiting for results get good news too.
It's been quiet on live chat the past few weeks, would be lovely to see some of you there tomorrow but if you can't make it I'll share a mince pie with you on Christmas Eve.
Farawat I agree with the others, your employer has no right to ask such questions I hope you get it sorted and they are made to feel ashamed of themselves.
Best wishes to you all and strength to those suffering xx
Hi Faraway just a quickie about your employers. Their behaviour stinks. I would definately go to the CAB and Macmillian but I would also try ACAS as well. They have helped my son's girlfriend with her equally awfull employers .
Hi everyone. I was give e/e for two wweks 10m dose. Due to horrendous mouth ulcers and a rash I have had ro give up, having two weeks off and then going on 5m dose. The thing is I still can't eat or speak due to ulcers and the rash which started on my chest is now slowly popping up all over , it is very dry and has blisters and is weeping oh joy! I am beside myself but don't get to see onc untill new year due to christmas. Anyone recommend what helps with the rash. Tried aloe vera cream , eurax itch relief and e45itch relief but hasn't helped at all. I am scared of going back on the treatment at all as side effets so severe anyone tried then lower dose ? I havent been able to eat anything for three weeks now and been off the treatment for a week any ideas how long it will take to get rid of ulcers and rash. Husband said he will liquidise christmas dinner ugg!!!
Thank you Belinda. I remember seeing posts from funny face in the past but can't remember where they were now.
Try not to worry about your appointment with your onc. I was terrified last week but came home happy! I'm sure you will or as happy as you can be living with this awful disease. Have a fantastic Christmas.
Love Sheila. Xxx
Congratulations Lynnq. Stable is good! I was so pleased when my scan showed stable. Good news for Christmas. Have a lovely time! Xxx
Thanks,honestly think I have been too optimistic.
Today I had to keep lying down to rest my back it is so painful I have to lie down... Just grinned and beared it standing making and icing gingerbread men with Ellie. I am so, so tired!! Liver mets troubling me too.
To hell with it-I am determined to enjoy myself, but right now I really need a hot bath!!
See you gals tomorrow!!
You are not alone in struggling with your emotions at this very special time. I have had worrying news Tuesday that my liver mets have grown and spread, and my treatment (Capecitebine) is no longer working after 9 months, so they have switched treatments. So waiting and hoping once again. This living with uncertainty, constantly having to re set the dial in terms of expectations really takes it out of you.
Oncologist as I was leaving, said 'but dont let it spoil your Christmas' No s..t Sherlock
I felt like saying would you like to take it for Christmas then, with all the pain, discomfort, fatigue stress and insomnia that accompanies it, and I can relax properly for the first time since my diagnosis and actually fully and completely enjoy myself! Of course he wouldn't.
Like us all, I am trying really hard to take things one day etc. But it is there lurking in the back of my mind and comes back to bite me, usually when I get the symptoms back. I have liver pain and back pain and quite a bit of bloating, and am now fully aquainted with liquid morphine. I havent wanted to be its friend for 7 months, as it makes me think I am 'really ill'. LOL. Now I know I need it to try to keep on top of the pain.
I had my works party yesterday which I didnt feel well enough to go to,.and they texted that they missed me, so we started up a text conversation that my colleague was relaying to the team, and they were laughing their heads off. We toasted each other exactly at 9pm, and they said it was like I was there with them! Another cyber party. Enjoyed it!!
We are putting the tree up today, (one week later than normal) and having a massive party tomorrow with all of my sons friends, and my friends and our family. Its going to be mental-I dont know how I will be able to hold out. He has gone all out with a smoke and bubble machine accompanying speakers and sound system borrowed from a friend who uses it for the frigging local village fair outdoors in the summer!!! Going to be very loud. 🙂 We have invited all the neighbours so they cant complain!!
We have hired marquees to go out in the front garden to extend the space. I am cooking-after my son announced what lovely food guests could expect on FB! There will be candles lit all over the downstairs, fairy lights twinkling in the marquee, kitchen and dining room (dancing room) and my beautiful girl Ellie is making Xmas Gingerbread men and decorating them.
All of her ingredients are waiting for her to come home from her part time job at Sainsburys Local.
Christmas cards hung all round the room. Mulled wine and champagne, and hopefully lots of laughs and fun. I have shopped on line as much as possible this year. Still more to do, feet still red and sore But I will get there!!
Desi, you are among friends. You will be fine. Please dont worry about your symptoms, theres nothing you can do until you see your onc. on january. So make sure you stay pain free, and you go enjoy a wonderful Christmas with your loved ones, and hold them close. I know that's what I am going to do..
Loads of love
Just wanted to share my 2 year 'cancerversary' today with you (bone & liver mets) & to thank everyone who has kept me going. I am currently on my 3rd cycle of docetaxol and (touch wood) coping quite well so I am really sorry to hear of some of your horror stories of this drug - I hope & pray that it will get better for you all.
Take care, love Helen xx
Just wanted to say Hugs to those who are struggling at the moment whether physically or emotionally, particlarly Bev and Desi. x