Ladies, can anyone help me with my latest problem.....finished cape 2 weeks ago and have been on letrozole since. Have ha lots of aches and pains but for the last two days have had terrible chest pains, hurts to breathe in or move....felt like i was having a heart attack. have been to gp and she has done blood tests to check for pulmonary embolism and am having chet x ray this afternoon. Something else i am now terrified about. Has anyone else had any similar experience?
Thanks Janette, will let you know results. Yes I am fed up with feeling rubbish but hopefully this summer will be a good one! Hope you get your scan brought forward. Waiting and wondering causes so much anxiety. Good luck.
Hi Helen, you sound more like your old self. Hope you are OK. I do feel that the watery eye is due to se but once something is put in your mind..,....
Eye isn't running now but is still a bit sore sometimes. When it was running it would just pore down my face. Onc had me going to A&E as he was worried my cornea would get damaged. Have appointment at eye clinic in just over a week as they wanted to know scan results first.
Wishing everyone well. I think it's beginning to feel a bit like spring!
Lots of love Sheila xxx
I agree Bev, the cakes weren't appetising at all last night. I did think of having a go at the pork pies myself but probably won't now! I like MC too. Will be watching and wishing I could cook like that. Love Sheila. Xx
I finished my chemo 4weeks ago. Am now on faslodex. Hope it is working.
I bet you are watching Paul Hollywood at the moment.😀
Lots of love Sheila. Xx
Hi chocolates, just checking in for roll call! Feeling OK but still get very tired. How long as it taken anyone to get over chemo fatigue?Have had my bloods done today ready to see the onc tomorrow and have picked up prescription for faslodex inj. A bit anxious at the moment as I had a head scan last week because of runny eye. Onc doesn't think there is anything suspicious but wanted to make sure so will get results from that tomorrow. I have done some research and apparently some chemos can cause this. My eye is better than it was so here's hoping?
Helen, I'm so glad your pain seems to have been sorted and you managed to get some sleep last night. Thanks for the info about the colouring books. I may get one and thanks Belinda for suggesting the secret garden. I was thinking of that one but not sure.
Hope everyone else is OK and that any scan or treatment results are good.
Lots of love Sheila. Xx
hello everyone. off to start my trial today with the parp inhibitor. Can't wait. Saw my onc yesrerday and he put me on steroids for my worsening breathing. Seems to have kicked in already as feel so much better today and as a result so much more positive.
Cat Lady - great to hear you are feeling better.Really, made my morning I know it must be a silly question and i am sure you have already looked into it but can you not swop hospitals from Fawlty Towers? Glad your GP seems so on the ball thorugh.
don't worry too much about your markers going up - they do tend to go up and down. Keep strong and keep your nerve (thats is the advice I tell myself and then just ignore).
ps lovely day here in suunny west london
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I was on EE for a while too - but found the side effects of the higher dose intolerable. I too then was on alternate days, 10 and 5, apparently they dont do a 7.5 tablet! Found this dose much more tolerable. Since then have had 2 chemos - in the midst of second one now. Its very quiet on this thread the last couple of days, I do hope everybody is as well as they can be and Helen I hope you manage to get your pain sorted today and that you are not suffering too much with the side effects of chemo. xx
Hi tiger feet it was interesting to hear from someone getting the same treatment as me. I am on 10m one day and 5 the next as full dose side effects were interolable. I have put on 2kilos since the start of the lower dose
But couldn't eat before due to loads of mouth ulcers. I have spots and a few ulcers now and chubby but who cares if it works! I have been on it since christmas as well lets hope it's working! I hope your appitite returns soon although some food tastes bitter. Good luck!
Hi everyone hope you are all doing ok. Good luck Helen with the new treatment hopefully once you know it's working you will feel so much better. I am on a new treatment (e&e) plus denosunab. Bones seem to be more achy so my mind is doing overtime about progression and treatment failing. Getting a scan at the end of March so I guess i'll know then. I get my denosunab at a local hospice and they are great at advice re pain and wellbeing ask your breast nurse to put you in touch with your local hospice or maybe she could help with pain relief. Best wishes x
Lynne, have a fantastic holiday. Will be thinking of you with envy! Good news as well! Enjoy your take away. Xx
Hi helen...hope the chemo's not too harsh on you and not many side effects. Lets watch this one kick cancers butt!! Hope you have a good weekend xxxxx
Good luck miss catlady. Its iribuiln isn't it? I have heard great things about it. Fingers crossed. Look after yourself I'll keep you up to date with the parp inhibtor trial i am going on - starts next wednesday, its always good to have a couple of options. Please do not suffer with your pain. The hospital has to sort it out for you! They have excellent pain management strategies now. xxx
Good luck today Helen and I do hope as the others have said you can get some pain mamagement sorted for you as you should not have to suffer as you are. But hopefully you will get such amazing results ( I know others who have) from the new regime which will make you feel better almost straight away. big hug xx
Wishing you well today. It is always scary starting a new chemo. I think it is fear of the unknown! I'm sure you will cope well with it and that it will work really well.
Hope they can get your pain under control too. You have suffered too long. Maybe they can refer you to a pain management team.
Thinking of you. Lots of love Sheila. Xxx
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