I have passed on the condolenceslove and support on the BCC site to Lulu's sister and family. As you can imagine there have been lots and lots of people expressing thier sadness and telling how much of a support and inspiration Lulu was. I hope that the outpouring of love will be of some comfort to her family
Hi Julie, thanks for letting us know about Lulu.would you pass on my condolences to her family? She was a very brave strong lady. R.I.P Lulu. Xx
Lynnq, good to have you back and pleased to hear you had a good holiday. Don't overdo the washing, it can wait! Where did you go, what did you do? Glad you enjoyed it and had energy.
I'm afraid I have sad news about Lulu. She died this afernoon. She was at home and had her family around her, she was comfortable and peaceful. She will be missed by many.
Do any of you know that the judge in last night's Poldark was the original Ross Poldark? I didn't know but hubby had seen it somewhere. Xxx
Good grief, Helen! That sounds absolutely disgusting (poogate, I mean). Yeugh!!! Other ladies seem to have been nice, though. Glad someone was treating you as human, not like your Onc! Glad you are home safe. Take everything easy. Chocolates and Marie, how did the pistols at dawn go? Who won Ross? Good luck to anyone having tests, results, treatments, etc. Hugs. Barton.x
Helen, Glad you're home! Gosh what a time you've had. I hope you can find a new oncologist after this mess. You deserve better treatment! Rest up and get some strength back. Gentle Hugs! Funnyface
So sorry for all having a bad time, you are in my thoughts and prayers. Good luck to all getting results this week.
However, I must say that Ross Poldark is mine, I have loved him since I was 15 . I will only share the books, they really are a good read.
Take care, I will have my angry eyes polished and ready if needed.
Just wanted to wish you all the best with treatments, thinking of us all with this horrible disease, and especially Chris, Lulu, Bev, Sheila & Helen at this time.
Pleased you had a good break away in Italy Nicky08 - catch up with you very soon.
Big ((((hugs)))) all round, love Helen xx
Hi Helen so glad to hear you are home and despite everything you still sound up beat. I had radiotherapy at the start of my treatment it was a bit painful at first but since then it is a miracle cure, no pain for 18 mths now. Are you able to change your onc? I had a registrar for a while she was nice but when I told her I was in pain she asked how long I said a few weeks and she said she wouldn't do anything unless I had been in pain for a few months. I wondered if she would like to be in pain for months! Anyway my brilliant breast care nurse sorted it out for me, but it does make you wonder!
Hello all. Just a quick note to say to Helen glad she is home safe. Sorry you are still in pain, but hopefully the rads will sort you out. Hope everyone else is doing well (but so sorry to hear about Chris and Lulu). Bev, I hope you have a good time in Tenby and get to recharge the batteries. Chocolates, thank you for your updates on Helen, and I hope you have a good time with Mr Poldark (but treat him gently as it seems everyone else wants to borrow him too!). I am of the age when I still fancy Robin Ellis as Poldark (no-one else -male, that is - can carry off a pony tail like him! Sorry, I'm really annoyed that I can't see any other posts, and chemo brain means I can't remember what stage other people are currently at/going through, but all my best wishes to everyone. Barton.x
Hello New Friends,Glad to hear that Helen is home, I changed my onc early on as recieved upsetting mews in a letter instead of being told face to face. My new onc is good and the letters only say exactly what has been said in consultation. So change your Onc if you are not happy.
This is probably very old info, but while shopping for England this morning I found a bcc bra, no jooks etc. This means I can wear it to my next pet scan and not get undressed.Hooray. I seem to be constantly taking my clothes off to be examined.
I have been worrying that I will go into a room mis hear what someone says and start taking my clothes off LOL
Have had a better week no tears, thank you.
Wishing you all a good restful weekend. Marie
Helen, lovely to know you're home.
My thoughts and prayers go out to Chris and Lulu.
Havent posted for a few days but hope everyone else is well and coping.
I have just had pet scan following end of treatment and so am at the dreadful 'waiting' stage. All omplicated now by pulmonary embolism. my mind is in overdrive. I'm terrified the embolism is due to the cancer spresding and that if it has gone elsewhere they wont be able to treat me. Has anyone else had this problem?
Not sure how i'm going to get through to Thursday and beyond. x
Helen, so glad you are home!😊 I'm sure that makes you feel much better too. I was so miserable when I was in last year. There were a couple of scary nurses then who you tried to avoid asking for anything!
I'm sure you will feel much better in a few days. Glad to have you back on here. Xxx
Lemon drizzle, I managed to choose some new glasses. Have had prescription since Jan. And I bought a couple of new tops but then I felt faint in Boots and had to sit down. I thought I was going to be sick and the staff were very good. They brought me a bin and said I could go in a cubicle for privacy if I wanted but the sickness wore off so we went home. I am OK today..
Hope you are OK and everyone else. Lots of love Sheila xxx
Great to see you posting Helen. Hang on in with the radiotherapy. I had 5dqys of radiotherapy to a collapsedmvertebra in my back(touching spinal cord)4 years ago and going strong......hope the pain settles quickly.xx.
It is so good to see your post and to know you are home! I´m sure you've lots of tales for us. At the moment just rest and enjoy being home. Welcome back! xxxxxxxxxxxxx<3 xxxxxxxxx
Thanks Chocs for update, I am so angry at Helens Onc, right back at the start of her pain I was worried about compression so why on earth wasn't her Onc!?! I hope when she is better and has the strength that she will make a complaint and definitely move to a a different Onc, Julie's Onc sounds much better. Big hug to Helen and hope she is home SOOOON!! xx
Sheils gla you haven't got long to wait, roll on Monday, the sooner you start the sooner you finish. Hopr you enjoyed your shopping trip.
Bev, have a good time in Tenby, recharge your batteries and come back renewed and strengthened for treatment.
Hope everyone is doing as well as possible
Did anyone see the eclipse? Too cloudy here on South Coast and couldn't even see the sun! |iut did get darker, colder but nothing to see.
Will you pass my love onto Helen please. I can't believe how awful she has been treated by the medical staff. I hope the Rad's sort it out. She must be in agony! Are the rads being done today? When she is feeling better she should put in a formal complaint.
Hope you are OK. I'm glad to hear all is well at the moment. I didn't know you had mets on your lung. Mine haven't gone any worse in three and a half years and I have no symptoms. Hope yours are the same.
Chocs, I saw the onc yesterday and my treatment starts Mon for 2 weeks. I've posted on the brain mets and it's quite a long "waffle". I've gone in more detail. You're right about my onc though. He is fab!
Hope everyone else in coping and I hope you all have a good weekend. I am off shopping later with my daughter before I get too tired from wbr. You know what they say? " when the going gets tough--------"
Love to everybody. Sheila xxx