Hello Lovely Ladies,
I do agree that this illness is as much to do with our minds as it our bodies. I was a bit messed about this week with appointments and it does make me quite anxious. To everyone waiting for results this week I am on full positive vibes. To those having a difficult time, please be kind to yourselves and have the odd bacon sandwich. Marie
Please remember ladies that I am now with child, so no more lusting after Ross. Thank you for all who are cyber knitiing ; it is very kind of you. My corset is getting a little tight , not sure if it is the cyber pregnancy or the delicious Cornish cream teas. Ross sends his regards
love Marie Poldark.
Belinda, Sorry you are so tired and need a transfusion. Hope it puts some pep back in you. I have a CT on April 7th, very short of breath. Not sure if chemo failed or is causing it. FF
Hi Everyone, been following the posts here, but felt I had nothing to add but a boring Hello. Notice Macie from your post re Cape, there has been many comments.I am now on Cape after Taxol and Everolimus caused too many side effects.I am experiencing less side effects and now putting on weight again Deo Gratias, initial Cape dose was too high and was rested for a few weeks now on 1000mg a day for 14 days and then 1 week off, my last scan showed everything stable and cancer markers are down, also following Keto Diet for Cancer with Patricia Daly Nutritionist.
Because of grand age of 80 and Secondaries having trouble getting insurance for abroad,the cost is dearer than the Holiday, so holidays un UK will have to suffice.
Helen lovely to hear life is improving,Bev you will cope with your new treatment I am sure
Love and Light to you all you are amazing with your support xx
Dearest ladies..hope no one is suffering too much at the moment. Just wanted to share a bit of good news for a change...
went for scan results yesterrday and they hadnt been passed on to my oncologist, which tipped me over the edge before i'd even seen him. He got the report faxed over but no scan pics. He told me there was NED and that i was in remission. He was sure the lumps i can see/feel are scar tissue and is seeing me again in 3 months so it seems the docetaxol/cape worked. I asked if i would be having another scan and he said no for the cancer but would do a lung scan for the pulmonary embolism. Whilst i am really pleased the caution part of my brain is still bothered about the fact that i am now relying solely on letrozole: i am trying hard to look on the positive side and enjoy this time.
Sending love to those who are expecting results.xx
Hello Macie, I'm on Cap since about last July. I had 7 cycles of 4000mg per day, but found I had terrible breathlessness and tiredness that had gradually built up, so Onc gave me a 6 week break (which ended up being 8 weeks, as the 6 weeks started at the end of my rest week, and another week at the end because they didn't know if I wanted to go back on it or not ("stable" result from CT scan following break), so hadn't ordered in tablets for me. It did me a huge amount of good - and I came back on a slightly lower dose of 3600mg per day, which is working well so far (although tiredness is gradually building again). Hands and feet no-where near as bad as first 7 cycles, and am now on the last 2 days of tablets on my 10th cycle. Feel free to join us on the Xeloda/Capecitabine thread on the Treatments & Medical Issues board with any other queries, etc. Hugs, Barton.x
I'm sorry to hear of Lulu' s passing. This disease never stops breaking our hearts! Saddened, Funnyface
Lynnq, We did a big tour back in October. We did Indianapolis, Indiana..Albuquerque, New Mexico...Santa Fe New Mexico, ....Carl's Bad Caverns, Bid Bend Park, and the Alamo in Texas, then to New Orleans, Memphis, and Nashville. Hubby drove all if it. We saw a lot of beautiful country, but was glad to get home. My favorites were Carl's Bad Cavern, jeep tour of Big Bend, hot air balloon festival in Albuquerque (500 balloons), and air boat ride in the swamps of New Orleans. I hope you had a good time Lynqq! Funnyface
I am new to this group and NE caught my eye. Im going through the threads trying to make sense of what this means for me. I have only just had diagnosis and no idea what to expect but such an active forum looks positive. Guess this is a hello from me..
Hi lynnq. The tiny mets didn't show on the ct scan. That's why they thought I could have stereotactic radiotherapy but they did show on the MRI so have to go with that. Onc says he has several pts who have had wbr 4 and 5 years ago and they are still doing fine! I'll go with that! Lots of love Sheila. Xx
Hi lynnq, had my first wbr tx yesterday. Apparently a have some tiny mets as well as the ones pressing on the facial nerve so could not have stereotactic tx.
Anyway, I feel OK today. Had a nose bleed last night and a slight headache but nothing too bad...,.,...yet. Very tired though but have been for a while really.
Hope you had a lovely holiday.
Lots of love Sheila. Xxx