Morning ladies, well back to miserable wet weather.....typically weekend weather I should say!!!
Hope everyone is okay, oh I just watched the video of Holleys Kitchen how touching, it even brought a tear to my hubby's eye, I don't tend to go on the other threads, I just jump on here to keep up with everyone that's why I have only just seen it.
Hope you all have a lovely weekend
Hugs Janette xxxxxxx
If that doesn't work go to living with secondary cancer and look for The Cyber Cafe welcome all mets ladies .....click on that link See you there later! x
Sorry, I'm new to forums so thought I was replying to individual comments! Just want to say thank you and I am so glad that I foiund this forum and speak to people that can understand. I am at the griefing for the loss of the life I thought I would have and I think about my beautiful young children. But I know I will move on from this stage and lkike you say discover a new normal. I am currently trying to pursuade my husband to buy a caravan so we can have more quality time together as a family. I am still recovering from a corpectomy and hip replacement but hope to be out of the brace in a couple of months and then I can drive and resume a morw normal existence. Thank you for all your lovely comments and advice. Hugs xxxxxx
Thank you. It is lovely to hear from someone in a similar situation. I think that is what I am finding the hardest- being a mum to two young children. I know it is raw and I will move on from this stage at some point. I am so glad I found this forum where I can speak to people that really understand. Sending big hugs xxxxx
Thank you. That's what my family keep telling me that there is always hope as new drugs are coming out all the time. Were you initially doagnosed with secondaries in the liver and lungs? hugs xxxx
Hi everyone and the newbies, sorry you are here, but this forum is a great inspiration as to life expectancy we do have to take it one day at a time and I must admit (was diag double whammy 18mth ago) that is qute hard sometimes. at first I felt my future had been taken away from me. I do have down days but have learned to be thankful for the time I have. I am 65 which I thought was young until I hear how young some people here are.
My lovelh Dad died from Cancer at age 63 ..30 yrs ago now they didn't even have chemo then and if they did he would have lived so much longer..time has moved on and my bcc nurse told me because of the hugh womens movement against bc ther are new treatments coming thick and fast so there is hope so just hang on , live your life to the full while you can and you never know......x
Hi guys just discovered this thread and would love to be part of the bony group! Three weeks since diagnosis, still coming to terms and thinking how to look after myself. Got residual weakness from bone breakdown in back but determined to beat that into submission!!!
Morning ladies, yet another glorious day here today 😎
Hope you are all keeping well, injection day for me today, iv timed it so I get them both done on the same day so I don't have to think about them for a month.
Lynn, glad your scan was better than you expeted, can't believe you have to wait 6 weeks for your results though, when I had to have one the other week because of my shoulder pain I got the results the same day! If it's causing you more pain or worry get on the phone and push for your results even if it is just for peace of mind.
Take care ladies enjoy the sunshine, Janette xxxx
hi second time and duck girl. i asm sorry you have both been diagnosed with seondaries but i would just like to say what all the other ladies have said. i was diagnosed with secondaries to liver 4 years ago and thought i would be dead in 2 years time. 4 years later I am still fit and well, working full time in a demanding job. It has not all been easy going and I have gone through dark patches when I have been very afraid. But I never thought that, 4 years after diagnosis, I would feel so well. ( i have secondaries to liver, bones and lungs now). I am on an experimental trial with a drug called parp inhibitors. I saw the Onc last week and he said he was not worried about me as there are so many new drugs coming up now and the future looks promising. So, it is scary and horrible but it is not nearly as bad as i thought it would be. Much love going your way SS
Thank you everyone. I think I have been thinking about the future too much and having the onc say 5 years was a big shock. even though she did say no one really knows. I would love to live until the children are into adulthood which is another 9 years. Here's hoping that I do. I think I have been thinking about everyone's life going on without me (including my husband) and I am definitely griefing for a life that I thought I would be leading well into my 80s. It seems like a tough disease as you never know how long you will live for. I guess I can just hope for the best and try to move on from thinking about the future too much. Big hugs xxxxx
As far as I understand it no one can say how long a treatment will work, or what is coming through from research. No one and I'm not just talking about sbc knows what lies ahead. Don't be too hard on yourself, grab the good days. We all have the Mad cancer days , but they do pass. Please grab a glass and all newbies please join us in our cyber cafe. I know its only thursday , but I'm declaring the start of the weekend. Oh no Chocolates has got the microphone, HELEN PLEASE HELP ME.
Hi Beth, really sorry to hear about your dx, but I want to welcome you to the forum, we are a friendly bunch and a huge support to each other. Like you I had never heard of mets til I was dx with them last year...huge shock!! With regards to your doctor saying that you are looking at 5yrs I really would not read too much into this, every one of us are individual and no one truly knows, my onc has never said anything to me about my prognosis. There are ladies on here who are 10yr plus from secondary dx.
Take time to absorb things Beth and try not to let your mind wonder to far ahead.
Hugs Janette xxxxxxx
hello 2ndtimeunlucky, if you are new to the diagnosis I can understand your shock. I didn't even know about mets until 8 weeks ago. I hope you are managing okay. sending hugs xxx
Hello, I just wonder how long it takes for people who have been living with mets to get over the diagnosis and get on with living their lives? I am finding it very difficult as my kids are so young and the onc said she hoped I would live for 5 years. That seems like too little time. How did everyone manage to cope with their original diagnosis? Beth xx
I think I have got the correct link? I was recently diagnosed with breast cancer 10 weeks ago and the following the routine scan found out I had secondaries in my bones. I've since had a corpectomy and a hipe replacement. I still have 2 broken vertebra so I am in the brace for the foreseeable future. I am 41 and a mother of two beautiful children who are 9 and 11. I am struggling to come to terms with the diagnosis and to move on and start to lead a normal life. My cancer doctor says I should live for 5 years but I think it is the uncertainty of life span which is awful and also being a mum to such beautiful children. I feel like I am currently mourning my life, as I always thought I would be with my husband until well into my 80s. I just wondered how people learn to cope with the diagnosis. I have always been a very positive and happy person but I guess I am struggling with this situation. I hope this is the corrrect thread for the bone mets. Thanks, Beth
Thanks all for your replies. Its been a bit of a rollercoaster week. Lots of hospital visits and a full bone scan done on Monday, just waiting now for the results of that. Kinda scared at Chemo too as I didnt go through that last time. Sooner the better though for it to start. I hope to be on here lots and share the experience and be good to chat to people in the same but unfortunate situtation. The sun is shining today, long may it continue xxx
Hi everyone I went for my routine appointment with my onc yesterday. Whilst I was waiting to go in I saw several ladies wiping away tears as they came out. By the time I went in I was feeling very sad for them and all of us. This week there has been a lot of positive news about cancer,a new radiotherapy bullet treatment, immune therpy treatment and breast cancet treatment to stop metastases. This probably won't help me but maybe will help our daughters or grandaughters so trying to be poditive now.Cancer is a bummer though!
I can understand your worry, it's only natural. It sounds like your medical team are being very watchful and proactive which is good, though a bit scary for us. As the others have said, try not to read too much into it, it could be something completely unrelated to cancer. I know it's imposible not to worry, when I'm in such situations I try to prepare for the worst but hope for the best, if that makes sense. Will be thinking of you and sending positive vibes for a good result xx
Sorry you are having to join us but welcome to the thread. You are bound to be feeling scared and overwhelmed at the moment, there's a lot to take on board and try to assimilate and deal with. It does get easier and most of us find that once we have our treatment plan and it's underway we start to feel a little less anxious as there is something being done. You've had a tough time, and this is a big shock so try to be gentle with yourself and come and talk to us whenever you want xx
Hi Lynn, thanks for all the pm help. so sorry to hear about your pain, hope it gets sorted asasp.
Take care Marie xxx