Hi Sarn sorry to here about the bad diarrhea I have a friend who started on e/e combo and spent quite alot of her first month down with it so they reduced the doze and still it continued. She hasn't been on the everolimus for about 6 weeks and it still continued but this week it seems to be stopping. Exemestane can also cause diarrhea and we wondered if that can be the cause of her trouble she will see the onc today so I hope she will ask her. I have been pretty good in that department and although I have had the odd occasion I still have the same box of tablets they gave me nearly 12 mth ago. Don't get me wrong it is not always normal I do go often and fire bullets rather than normal stools but I have had very odd constipation days but I never take anything for that because I know it will sort itself out. Hate talking about this subject but I hope it helps you out and anyone else in this position. Goodluck Sarn and if I can be of anymore help let me know xxx
Fantastic news that you are now back home Helen you will be able to rejoin your crazy gang at the Cafe we have all missed you xxx
Helen you must be so happy to know that you are surronded by such love. Hope you dont mind a newby adding her good wishes. Going back to school next week. Looking forward to seeing everyone. I have taught 40 years and although I retired officially last year I have done some examination work this year. Time now to find other things to enjoy. Enjoy the sunshine. Hugs to you all. Sue xx
Morning ladies, another glorious day here, it's soooo warm but I'm not complaining we have to make the most of it!!
CT today.....so hunt the vein begins 😣
Enjoy the sunshine ladies but take care
Hugs Janette xxxxxxx
PS 👋👋 quick wave to our lovely Helen xx
yes, welcome home miss catlady. so glad to hear you are coming home. i think we all miss you here xxxxxx
That is great news, take care Helen, put your feet up and watch Wimbledon (if you like it, that is). xx
Yeyyyy!!! That's fab news Chocs, thanks for letting us know, looking forward to her posts soon.
Hi to everyone hope you are all enjoying this glorious weather.....not looking forward to bed time though might have to kick the other half into the spare room 😉
Hugs Janette xxxxxxx
Marirose. I feel for you the waiting time is hard to live with. Sending you hugs. Hoping for a positive outcome. Sue xx
Thanks Chocolates we are all grateful to you for information about Helen it is good she knows we are sending her our love.
Sunday I went for a CT scan I was due for one it will be 12 months now on e/e my other 3 scans have all been stable but I have an awful feeling this one is not going to be the same I have felt another lump in the left breast where I had my first in 1996 and then iin 2014 I have a tumour on the chest wall and a another in the breast at the same time it was also noticed I have a met on my sacrem now I get a strange feeling from my back. So now I have to wait 3 week on Wednesday for the results its going to be hard.
To everyone else waiting for results best of luck xxx
Thanks for the update on Helen Chocs...sorry to hear she's down...not surprising though with all she has been through but glad to hear she's getting better care. Please send huge hugs to her.
Bill-Ben....i had docetaxol and capecitebine for skin mets and i have to say it was pretty tough....i had lots of anti sickness drugs as i had been really bad on fec, which really helped but i was still wiped out for almost a week a few days after treatment. Just be kind to yourself and dont overdo things. You may be absolutely fine..everyone reacts differently. I then went on to letrozole but unfortunately this didnt work as my mets returned very quickly. Cant actually say the chemo didnt work as i wasnt allowed to continue with the capecitebine after 10 cycles but as soon as i was off chemo the mets returned which i think stumped my onc..not to mention letrozole having no efect at all. Now on my 3rd chemo, erubilin. Hope it all goes well for you. xx
Hi lalie, i have skin mets and use the thread on treatments and medical issues as well as this one. I was originally diagnosed in 2o11..had chemo, double mx, diep reconstruction, axila clearance and rdiotherapy....everything they could throw at me. In Jan 2014 i noticed a small lump between my 'breasts' and for 5 months it was wrongly diagnosed as a sebaceous cyst so i had no treatment for 6 months. Had more chemo and then letrozoleand told i was in remission and then 2 weeks later i got a red rash on my 'breast' which spread into little lumps and then spread onto my abdomen. So, like you i am on my 3rd chemo in a few years. Had a scan last week which showed no spread to organs and onc says my skin mets have improved. Its very scary though as you become paranoid ...i'm scared to look down in case i see a new 'lump'. Its also tough to know that when the drugs stop working so quickly there isnt an endless supply of new things to keep trying. Vetry disappointing when the hormone therapy didnt work as i have had all 3 usual ones. Please keep posting as i dont believe there are that many of us about. Best wishes. x
Morning Ladies hope you all have the glorious sunshine we have here in N. Devon it is beautiful today. I asked my onc. about TM's but was told my hospital don't do them as they are not as reliable as scans. Personally I want scans blood tests and anything else that's going I want to know everything!! Mind she did show me my latest scan pictures of my misbehaving liver and to be honest I didn't have a clue. I'm off to potter in the garden hope everyone has a good weekend xx
Sending big ((((((hugs))))) to 2catlady, the other Helen - I hope you are receiving better treatment this time. Thinking of you, keep smiling
Love to everyone on here,
Delighted for you Dot. The term TM is new to me, suspect I will soon be aquainted with it. Wishing all you lovely ladies a very good wekend. Sue.xxx
Hello Choclates, thanks again for the update on Helen. Glad she is receiving better care this time (couldn't get much worse, really!). Sorry to read she is feeling rather down, though. I hope she feels more like her usual bubbly self soon. Sorry to hear you are so tired, too. Hope you get some rest soon (although still a few weeks until the end of term - my sister was a teacher until she retired last year, and I know how exhausted she was by the end of term (and that's without treatment for cancer!)). Hugs, Barton.x
Morning ladies. I am on here to have a rant so here goes *** ^++++***???:::++****!! That's better. Saw my onc yesterday for results of a scan . My ribs are misbehaving which I thought was the case as I've had some discomfort and my liver has got worse. I've been on Letrozole lately and initially my liver had improved but now it's got worse. Not as bad as when originally diagnosed but worse than it was last scan.I am now having to go back on chemo and having to stop the Letrozole.They are putting me on Docetaxel but I am having to have smaller more regular doses , once a week for 18 weeks, because of the reaction I had to Fec when I stopped eating. I am dreading feeling as I did before when I couldn't eat at all. I don't mind losing my appetite a bit as I have put most of the weight I lost back on but I don't want to go back to throwing up just because of the taste of toothpaste! I shall most certainly be swallowing all the anti sickness drugs this time. Good job I kept all my scarves and hats as the hair will be off again and I was just thinking of getting my hair coloured again so I'll save that money! Last time my hair fell out after I had my brain blasted with radio so was as good as bald by the time the chemo started, I didn't lose hair anywhere else though not even my eyelashes or eyebrows. Anyone of you had Docetaxel that could give any tips on how you got on? Well I feel better for getting that out so onwards and upwards now and love to all of you in the same situation. And love to Helen hope you feel better soon.
Vicky, it took quite a few weeks, probably months to settle after the radiotherapy, and even now a year later I occasionally feel a kind of throb at the bottom of my spine, where I had it. I walk alot and I think that helps - just walking my dogs or into town, nothing major, but about 3-4 times a week. I like to think any twinges are healing response to the rads, and my scans since have showed healing, so I think that's about right. When I had the rads it was a horrible time and all a shock. One of the lovely drs at the time said the rads won't be a cure but can keep it at bay "for years" - I was desparately reading more into everything they said at the time and I misheard her so I said "four years? Have I got four years, then?" "No, for years, we don't know how long"...anyway I'm ok for now.
Dot good luck today, I had my four weekly review and denosumab yesterday and my TMs are still rising fast - 1,700 last time, 3,000 now! they assure me that scans trump TMs so as those show stable I'm staying on same treatment, with regular scans (yuk I hate them). I have asked to see the chief onc for a review though.
Helen, so much love and hugs to you, you are so funny on here and keep us all smiling, hope you will be back in the cyber-cafe very soon.xxx
Morning all! Its my appt with my onc this afternoon..not really expecting a great deal as I havent had any scans, did have my bloods done about 3 weeks ago for TMs...thats the only thing I'm concerned about even though I haven't any new pains to report, last time I had them done they were gradually dropping, so am hoping thats still the case..we shall see, I will post later this afternoon.
Hope Helen is ok and will get home soon, I don't know her but I feel like I do, I have followed her posts for a long time.. she does make me chuckle sometimes with the things she says 😄 I send her my best wishes ♥
Hope everyone else keeping well....x Dot
Belinda. Walking on one stick and trying in the house to walk unaided. I am reassured that progress is likely to be slow. My bone was pinned. I take over the counter painkillers. Thanks for your help. Sue
Chocolates thanks for the update on our lovely Helen, I think of her often.
It sounds like there is quite a lot of pain out there, please join us in the cafe . The weekend starts on Thursdays . Hugs Marie xxx
Have any of you ladies ever suffer from a brokeen femur. I am 12 weeks post operative and still in a good deal of discomfort. Would my healing be slower as a result of the bome mets. Thanks you all. I am so encouraged by your courage and caring attitude. Love SSue
Hi again Lalie there is a thread in treatments and medical issues that may help you it helped me. I am not too good with computers I hope you fiind it xxx
Hi Lalie it sounds as though you have skin mets or cutaneous mastatic mets. I was told very little when I first got them 18 month ago I had 11 spots suddenly appeared under my breast when I asked what are they I was told they had come from the cancerous tumour BN said some ladies had lost theirs and that was my education lesson over. So I googled it and saw pictures just like mine. I asked the new onc if I was right and she said yes. I do hope this will help you xxx
Hi Edwina, aww toothache that's rotten! Can you not get in touch with your onc or bcn to ask what they advice??
My daughter is a dental nurse and I have actually got an appointment this morning for a check up do you want me to ask her and my dentist if they can shed any light on it?
Hi to everyone hope you are all keeping well.
👋 big wave to Helen stay strong hun you will soon be sipping presecco in the cyber cafe.
Hugs Janette xxxxxxx
Hi everyone I need some advice plesse. Well I have got toothache in my wisdom tooth and the dentist said because of having denosimub I gave to go to hosptual to have the tooth extracted. He said my jaw bone was thinning. I think you have to stop your injection for a while whil
st you gave treatment....anyone had this? Wonder how long you have to wait...toothache is a bummer!
I think it was about 10 days. I don't drive so my partner took me. I think a lot depends on how far your hospital is. I know people who have driven themselves so it's perfectly possible. They did give me steroids and anti sickness for the first longer set of rads, though I didn't actually feel sick. I did use aquas cream and aloe vera gel on the area as I remembered from my primary that they helped me feel more comfortable, though the rads for mets didn't burn or make me sore like the primary did but primary rads were everyday over six weeks so much longer. It's quite normal routine to give anti sickness just incase you feel sick as we all react differently. Best wishes x