Oh Helen , so wonderful to see your little picture. So sorry you have had a rotten time and yet your humour still shines through. Please come in the cafe, I believe as well as Wimbledon there is is also a video of last week's Mamma Mia Madness. Hugs to all xxx Marie
PS resting up today, taking part in the ribbon walk tonight .
Have been away and just got home to be greeted by the good news that you are now home Helen. Rest and let others look after you as you gather strength. Am thinking of you.
Gentle hugs, Tink x
Thanks Mariose, you know what it's like you always think the worst! I have been on denosub since the start..22 months now and up to now have had aches but it is working well for me. Hopefully it is a se xxx
Hi edwina are you on Densumab? Last year I had sciatica the onc prescribed paracetamol and codeine. So I took them regular and dropped the codeine off I really didn't think paracetamol would work so well but they need to be taken regular. The reason I mention Densumab is because I was reading the se's a few months ago and realised it is a se. I dont know if this will help you but I hope you soon are free of it I know it really is painful best of luck xxx
Hi everyone good to here Helen has made her escape and is back home just in time for hot sun, wimbledon and strawberries! Feet up and enjoy Helen x
I am on e/e combo since Nov and still not sure if its working for me as had slight progression last scan, next scan on tuesday so we will see, but got new back pain and sciatica , painful to drive so wondeting if this is a new bone cancer problem....as you do! Anyway as for diarrhoea I do get this when I go but only once a day so not too bad. I get very tired though but I hope its working !
Hi Sarn I spoke to my friend apparently her Liver met has grown the e/e has not caused her diarrhea and she has been taken off both. I do hope your scan goes well tomorrow will keep my fingers crossed for you. I wish I could ask my breast nurse but it seems she works at a different hospital and as I see very little of her or any of the other BCN's I am reluctant to ring them and so I will wait 3 weeks to find my CT results. You take care love Rose xxx
Hi Sarn sorry to here about the bad diarrhea I have a friend who started on e/e combo and spent quite alot of her first month down with it so they reduced the doze and still it continued. She hasn't been on the everolimus for about 6 weeks and it still continued but this week it seems to be stopping. Exemestane can also cause diarrhea and we wondered if that can be the cause of her trouble she will see the onc today so I hope she will ask her. I have been pretty good in that department and although I have had the odd occasion I still have the same box of tablets they gave me nearly 12 mth ago. Don't get me wrong it is not always normal I do go often and fire bullets rather than normal stools but I have had very odd constipation days but I never take anything for that because I know it will sort itself out. Hate talking about this subject but I hope it helps you out and anyone else in this position. Goodluck Sarn and if I can be of anymore help let me know xxx
Fantastic news that you are now back home Helen you will be able to rejoin your crazy gang at the Cafe we have all missed you xxx
Helen you must be so happy to know that you are surronded by such love. Hope you dont mind a newby adding her good wishes. Going back to school next week. Looking forward to seeing everyone. I have taught 40 years and although I retired officially last year I have done some examination work this year. Time now to find other things to enjoy. Enjoy the sunshine. Hugs to you all. Sue xx
Morning ladies, another glorious day here, it's soooo warm but I'm not complaining we have to make the most of it!!
CT today.....so hunt the vein begins 😣
Enjoy the sunshine ladies but take care
Hugs Janette xxxxxxx
PS 👋👋 quick wave to our lovely Helen xx
yes, welcome home miss catlady. so glad to hear you are coming home. i think we all miss you here xxxxxx
That is great news, take care Helen, put your feet up and watch Wimbledon (if you like it, that is). xx
Yeyyyy!!! That's fab news Chocs, thanks for letting us know, looking forward to her posts soon.
Hi to everyone hope you are all enjoying this glorious weather.....not looking forward to bed time though might have to kick the other half into the spare room 😉
Hugs Janette xxxxxxx
Marirose. I feel for you the waiting time is hard to live with. Sending you hugs. Hoping for a positive outcome. Sue xx
Thanks Chocolates we are all grateful to you for information about Helen it is good she knows we are sending her our love.
Sunday I went for a CT scan I was due for one it will be 12 months now on e/e my other 3 scans have all been stable but I have an awful feeling this one is not going to be the same I have felt another lump in the left breast where I had my first in 1996 and then iin 2014 I have a tumour on the chest wall and a another in the breast at the same time it was also noticed I have a met on my sacrem now I get a strange feeling from my back. So now I have to wait 3 week on Wednesday for the results its going to be hard.
To everyone else waiting for results best of luck xxx
Thanks for the update on Helen Chocs...sorry to hear she's down...not surprising though with all she has been through but glad to hear she's getting better care. Please send huge hugs to her.
Bill-Ben....i had docetaxol and capecitebine for skin mets and i have to say it was pretty tough....i had lots of anti sickness drugs as i had been really bad on fec, which really helped but i was still wiped out for almost a week a few days after treatment. Just be kind to yourself and dont overdo things. You may be absolutely fine..everyone reacts differently. I then went on to letrozole but unfortunately this didnt work as my mets returned very quickly. Cant actually say the chemo didnt work as i wasnt allowed to continue with the capecitebine after 10 cycles but as soon as i was off chemo the mets returned which i think stumped my onc..not to mention letrozole having no efect at all. Now on my 3rd chemo, erubilin. Hope it all goes well for you. xx
Hi lalie, i have skin mets and use the thread on treatments and medical issues as well as this one. I was originally diagnosed in 2o11..had chemo, double mx, diep reconstruction, axila clearance and rdiotherapy....everything they could throw at me. In Jan 2014 i noticed a small lump between my 'breasts' and for 5 months it was wrongly diagnosed as a sebaceous cyst so i had no treatment for 6 months. Had more chemo and then letrozoleand told i was in remission and then 2 weeks later i got a red rash on my 'breast' which spread into little lumps and then spread onto my abdomen. So, like you i am on my 3rd chemo in a few years. Had a scan last week which showed no spread to organs and onc says my skin mets have improved. Its very scary though as you become paranoid ...i'm scared to look down in case i see a new 'lump'. Its also tough to know that when the drugs stop working so quickly there isnt an endless supply of new things to keep trying. Vetry disappointing when the hormone therapy didnt work as i have had all 3 usual ones. Please keep posting as i dont believe there are that many of us about. Best wishes. x
Morning Ladies hope you all have the glorious sunshine we have here in N. Devon it is beautiful today. I asked my onc. about TM's but was told my hospital don't do them as they are not as reliable as scans. Personally I want scans blood tests and anything else that's going I want to know everything!! Mind she did show me my latest scan pictures of my misbehaving liver and to be honest I didn't have a clue. I'm off to potter in the garden hope everyone has a good weekend xx
Sending big ((((((hugs))))) to 2catlady, the other Helen - I hope you are receiving better treatment this time. Thinking of you, keep smiling
Love to everyone on here,