Hello funny face. I am new to the forum and indeed to SBC. I have been so encouraged by the remarkable stamina of you ladies. It is so true that ladies are reporting great improvements ,even when things may seem to be failing. I wish you the very best and will be looking out for news of your scan. SSue xx
Hello funnyface, sorry to hear you are currently struggling. It sounds like you are doing the right thing by ringing your Onc to get him/her all set for your CT scan results and to be prepared. Don't rule out your daughter's wedding yet - some ladies on here have had remarkable turn-arounds after a low period. Wishing you all the best. Hugs, Barton.x
Hi girls. I've been away for a few days and seem t o have taken a down hill turn. My O2 levels are fine sitting still but when I move they really drop. They have been dropping at night too. I was already scheduled fir my routine CT on Tues. and chemo Thurs. I'm going to call oncologist in the morning so hopefully he can look at my CT on Tues. and have a plan on Thurs. Very upset bc my daughter's wedding is in 7 weeks. FF
Yeyy Helen great to see you posting again, I check the forum daily to see if you have posted and worry when you are quite 😯
It's good to hear that you finally have someone fighting your corner for you, keeping EVERYTHING crossed for you lovely lady 👍😉 it's about time you had some good results in your treatments!! Sending you a GIGANTIC hug.
Hi to everyone hope you are all keeping well and enjoying the lovely weather.
Hugs Janette xxxxxxx
Helen I'm so pleased to hear that at last you may getting a proper Onc! Thank goodness for K and your other wonderful support team! I hope the Taxol does it's job and when you get transferred to new Onc they will have other ideas for you too. xx
I've been away for a few days and, gosh, there is alot to catch up on. Very sorry to hear the news that lovely Bevlaar has died, like everyone, my thoughts are with her family.
Good to see Catlady posting again, sorry to hear you have had such a rough time xxx
I saw my chief onc yesterday and my tumour markers are now over 3,000, (that's not a typing error!) so i had a 12 minute blast of radiotherapy there and then on a sore rib, and he is starting me on 12 weekly taxol on Monday. Not looking forward to it as had chemo back in 2010, but glad something is being done. Amazing what a difference it makes when you see the top dog. He is a pretty impressive chap.
Now I'm off to see what's happening in the cybercafe...
Hi everyone...so sorry to hear about Bev my thoughts go out to her family, so sad.
Sorry to hear Helen is having such a bad time hope you get on the trial soon. I had a scan yesterday and an onc appmt. I have to stop my bone inj for two months to get my wisdom tooth out. Missing jab tom and August and then get my tooth out hopefully all will be ok. Worried about scan results as last one showed v small progression so this one should tell if e/e combo is working.if not what next? Just had letrozole and e/e so far so I suppose it will be chemo, a bit scared so when I think how Helen must be feeling ...well it must be awful worrying what next!
Has anyone stopped bone inj? What happens, should I expect my bone mets to progress.... onc said he would leave a message on my answer phone with scan results, thinking of not turning it on so I won't get bad news but oh says have to be brave..suppose so.
Very upset to hear Bev has passed. Hard to understand how some people's cancer is so aggressive. It's so unfair.
Sarn, WOW!!!! You have a busy week. Best of luck.
Helen, Happy you are posting. Hoping you feel better soon!
So sad to hear about our lovely Bev, sending my condolences to her family, yet another heartbreaking loss to this ugly disease!!!
Hope everyone is doing okay, good luck to those having scans, results etc
Hugs Janette xxxxxxx
Hi Helen nice to see you posting again hope you are feeling a little better x
Sarn hope you get some good results this week will keep fingers crossed for you. x
Best wishes to all ladies getting results this week x
Seen the bad news about Bev on another site and she has been in my thoughts all day. Rest in peace Bev you don't have to go through that pain any more. Condolences to all Bev's family and friends.xxx
so sad to hear the news about Bev. she too was so kind when i first joined this forum and made me feel so much less panicky about this horrible disease. a kind strong lady. i will miss her very much. condolences to her family. may she rest in peace ss
Oh, Julie! Thank you for letting us know about Bev - so sad! A wonderful lady, who gave me so much advice and help when I was first diagnosed as secondary and put on the Capecitabine. She is sadly missed. Wishing her family all the best and all my sympathy. RIP, Bev. Hugs, Barton.x
Hello, Helen. So glad to see you are home now, but sorry to hear how poorly you have been. Your Onc is a right *#*#*#*, but glad to hear you have people on your side willing to fight for you! Lovely to see you back posting. Hugs and best wishes. Barton.x
So sorry to hear the news about Bev...she was such a help to me from when i first posted. Another beautiful lady lost to this awful disease. My thoughts and condolences go nto her family. Sleep peacefully Bev. xx
Catlady....so pleased to see you posting again but sorry you are having such problems. You are a ray of sunshine..always picking us up even when you are down yourself...such an inspiration. I hope you begin to feel better soon
Feeling a bit low at the moment....halfway through my 4th cycle of erubilin and i am terified that its not working. I don't seem to have had any side efects at all and i am sure i have developed more 'patches' on my skin. The redness all over my 'breast' does not seem to have faded at all. Chemo nurse said this chemo can take a while to kick in but i think she was just trying to pacify me. None of the hormone treatments seem to ahve worked and as far as i know there is only faslodex left and if this chemo doesn't work seems there is gem carb but what after that? it scares me to think that as each treatment fails my time is being cut shorter. The one piece of good news is that my latest ct scan showed internal organs clear so i really should be grateful. I don't seem to believe anything i'm told anymore after all the misdiagnoses i've had.
Sorry to moan..i know there are lots worse of than me but just needed a rant and hopefully a it of advice/reassurance. Thank you lovely ladies. x
Belinda, we have a few short showers here in Brighton. Missed out on the storms and not sure the rain is clearing the air much but ....
I'm afraid I have some sad news for you all, I was on another site thismorning and Bev's(Bevlaar) husband told us that our lovely Bev passed away peacefully last night. It is of course sad news but Bev can now rest peacefully and pain and fear free. Bless you Bev, RIP xx
Oh Helen so nice to see you posting again, so sorry you have been so poorly, it's so unfair you are such an inspiration to us ladies on the forum.
You stay strong lovely lady, sending you a GIGANTIC hug.
Just a quick update my daughter and her friends are walking tonight, they all look pretty and exited.
I like to wish all the walkers very best wishes and hope they enjoy themselves and raise lots and lots of money
for this good cause.
Hi Helen how nice to see you back home you have been reallyreally missed sorry you are a prisoner to the oxygen tanks but as Belinda says they have got one fixed up at the cafe for you so you will be able to join your crazy mates and go mad again. Did you hear the Abba night think it could be heard over the water in France we are still looking for Marie's white platform shoes. Sending you lots of love and hugs xxx
Catlady! so good to hear you are back home. But what a dreaful time you are having. If there is anything I can do re parp trials please just ask. When I next see my Onc ( on the 8th() if you like i can ask him about parp trials and being ill - if you think that will help.
\Take care lovely lady, ss