Back in hospital again calcium gone back up. It's going to be a long night 😞 but hopefully this will sort it out and I'll be able to have zometa tomorrow. Hope it's just a blip and the letrozole and zometa are still working. xx
Omg I just read about Helen. Even though I don't post here much but Helen usually PM to support me through the last 18 months. Condolences to her family and friends. We all here will missed her very much. She was such an inspirational to me with her fight of this disease. She always encouraged me to see the bright side of things even though I am in the downward spiral. Rest in peace now and hope you are in a better place. RIP Helen. Kenni x
Tore the meniscus in my knee. MRI tomorrow to make sure I don't have any cancerous lesions and to check the ACL too. Monday see the surgeon to set up surgery. It hurts mire in the back of my leg than the knee. Trying to get scheduled and healed before my daughter's wedding. FF
So very sad to hear about Helen. She was always one of the first to welcome people to this site with words of friendship and encouragement. A bright star in the sky tonight. Thinking of her family and sending strength. X
Have just come on and read the devastating news about Helen (thank you Chocolates that must have been so hard) - she really was one in a million and helped so many ladies (me included) She was so kind, funny and supportive even when she was having a difficult time herself. It has been a privilage to be part of her cyberworld.
She will be so greatly missed - my thoughts and prayers with her family.
Rest peacefully Helen x
I have mine in my leg had a rash for a while but used hydromol cream and it went they wanted to change me onto an iv one but I said can we not just wait and see if I get used to it and I did xxx
Joining everyone here to say how sad I am that Helen has passed on (hopefully to somewhere better, without pain and worry). Devastating news. She was so helpful and funny, and cheerful, even when she herself was going through hard times. She helped me a great deal, too, when I was first diagnosed with mets. All my best wishes to her family, and to you, too, Chocolates, as you were obviously so close to her. She will indeed be very much missed. Huge Hugs, Barton.x RIP Helen.
Orse, that's great news!!! I have denosumab injections, can't say I have any side effects, I use to have it in my arm but started to get a lot of pain in that arm which led to something called a rotator cuff injury it was so painful and I had to have a cortisone injection which has done the trick and it's fine now but I always have my denosumab in my stomach now.
Hugs to all Janette xxxxxxx
Orse, that is good news, thank you so much for sharing. Mets shrinking is really good - fingers crossed it continues. I'm on denusomab, it's an injection given in the arm or tummy. I have mine in my tummy and to be honest not many se's, slight bone ache two to three days after but nothing to worry about. Some people who have it in the arm complain about it hurting and pain after for a few days so if you get an option opt for the tummy.
good luck to anyone else receiving treatment/scans/ results this week.
so so sad to hear about Helen. She was a lovely lady, and as many others have also said she was very supportive to me when I first was diagnosed.
Love and thoughts for her family, and also for you Chocolates...it must have been difficult for you.
Oh no..the news we were all dreading. I dont know what to say......i can only echo everyone else's thoughts and comments. Helen helped me so much right from the start of my secondary diagnosis. Even though most of us are just names to each other it is like losing a loved one. Helen you were an inspiration to us all. God bless.
Chocs..thank you for keeping us informed....so sorry for your loss.x
I would like to add my tribute to Helen who was a wonderfully supportive member of the forum.....There was long time last year when I came to the forum each morning anticipating Helens first post of the morning saying "good morning ladies!" with real pleasure and missed it terribly when she managed to get away on her trip to America (although I was clearly delighted she managed to go on her dream holiday and really enjoyed it). I will really miss looking in to read Helens warm posts. Deepest sympathies to Helens closest friends and her familyxx
Oh no! I just read about Helen. I'm so sorry that her effort to try taxol failed. She gave it her all. She seemed to be quite a character. I enjoyed her posts. RIP dear Helen. FF
We got you Rosie, Orse and Still here!
Thank you Chocolates for passing on such sad news, I know how hard it is so send you lots of love and a big hug.
Helen will indeed be missed. Her cheerfulness and sense of fun was infectious. My thoughts are with her family and friends.
Rest peacefully Helen. Fly high and free xx
Thank you Chocolates for passing on the sad news about Helen. Would you be so kind as to pass on to her family and friends our sincere condolences from everyone here at BCC. Helen was a well liked and valued forum user for some time and will, I am sure be missed by many.
Our thoughts are with you all tonight. Take care,
So sad to hear the news about Helen....she had a positive impact for all of us on this forum and I can't quite believe she has left us so soon. My heart goes out to her family they should be so proud of her. Free from pain and worry now god bless you xxx
I don't contribute very often to this thread but I get email alerts and read every single message.
Today, I need to come and add my voice to the tributes to Helen. Indeed, for the many years I have been on this forum, she has always been a great support at the time of my secondary diagnosis when I was trying to get my head around this horrible disease.
Helen, we will miss you greatly. Fly free, painfree away from this wreched disease. xxx
What a shock to read Chocolates post I burst into tears Helen was really loved she was an inspiration to many of us here she was always there with her knowledge to help others it will seem very strange to visit this site without her being here.
Helen I am glad you are no longer in pain may you rest in peace and condolences to all her family and friends and thankyou Chocolates for being there for Helen and Forum friends xxx
Oh nooooo!!! This is the the worst news, I have been praying our truly wonderful Helen would be able to find the strength to get through this latest set back.
I am truly devastated for her and her family, she was an inspiration to us all on the forum always there to lend her support and cheer us up with her cheeky humour, i feel privileged to have been part of her cyber family.
Helen god may you rest in peace 😇
Off to join Chocolates sing Let it Go
Hugs to all on this very sad day
Oh my! I so hate knowing that so many of us are having difficult scary times. We all do so well when it's smooth sailing and seem to get on with our lives, but when that boat gets rocked and we get thrown overboard, those life jackets seem sparse. I feel like I didn't get one of the life jackets this time. I got a chunk of a styrofoam cooler to stay afloat, I've been trying to paddle and kick my way back to the boat. Maybe my next scan in October will show me the styrofoam cooler was good enough to get me there. Meanwhile I'm waving to those of you in the boat and if you're out here bobbing around with me, kick on over for a hug! Helen, sending you big hugs!!! FF
Adding my best wishes for Helen to everyone elses! Hoping the Taxol works, Helen, and that you are well enough on Wednesday for your next dose. Hoping it treats you gently! Hugs (gentle ones), Barton.x.
Hi Jam and everyone...still gave a numb lip and chin and waiting for a scan date. Feeling very low at the moment as it could be very serious and not knowing is a bit of a nightmare! Keep prodding my lip and chin every 5 mins to see if it had improved...mad! Tooth still niggiling . See onc next Tues to get cape for the 1st time it feels like I am waiting forever. I have lots of questions but not sure I want the answers! Anyway I am sure you all understand ,oh says we should try to live for today as worrying about tomorrow spoils what we have now, its true but so difficult....hope everyone is doing ok good news please ladies that helps alot x
Thankyou Chocolates for the information regarding Helen lets hope the Taxol works for her.
Sending Helen lots and lots of best wishes via cyber vibes
C good luck with your results on Wednesday I went through what you are going through last week I was convinced they would change my treatment but every thing was stable so I hope it is good news for you. My skin mets vary from being very red and angry to settleing down to reducing in size wish they would go away but no chance of that I have had them 18 month now apparently yhey don't show on the scans so someone said in another thread. Again good luck xxx
Rosie your e/e drugs are everolimus and exemestane I have had 14 courses and still stable but it is hard at the start let us know if you go on this treatment xxx
Love to everyone else xxx
Thank you Chocolates, keeping everything crossed for our lovely Helen.
Hugs Janette xxxxxxx