Morning ladies, Jam I hope you managed to get some sleep love, it's bad enough trying to get some sleep at the best of times whilst in hospital without keep being disturbed for treatment.
Funnyface, bet your so looking forward to the wedding and I'm sure when the time comes you will be feeling fine with everything sorted.
Well spent most of yesterday looking for a holiday for September, it started off exciting then by early evening I was losing the will, the prices have shot up for the canaries (after the Tunisia thing) a friend mentioned Crete to us but neither of us have been there so we are dubious about it,.
Hugs to all Janette xxxxxxx
Welcome back from vacation, Marie. Jam hoping you get home over the weekend. Girls the wedding is Aug 29th. Four weeks! I can't believe it's that's close. Glo, my son had his meniscus repaired too. I know the recuperation is pretty quick. I'm just hoping I can get it squeezed in before the wedding. I'm sure they are going to want an EKG and probably won't like the condition of my lungs. I just want to get fixed. FF
It's ok now Lucy I'm just pleased to be back I am not very good with computers and I know I was to blame through my ignorance alls well that ends well Thankyou x
Just quick text still in hospital calcium is up and down. But at least I'm having zometa this afternoon. Then more fluids. Just wish I knew what's causing it. FF hope your leg's improving xx
I am sorry that you experienced some problems getting back onto the forums we are working hard to get everything sorted so thank you for you patience
Hi everyone so nice to be back on the site had so much trouble I was ready to throw this computer out of the window I couldn't bare to be without my Cyber Friends.
Orse I was so pleased to read your news I wish my skin mets would reduce I seem to have aquired more tiny ones. I've been on Denosumab 2yrs now don't think I have had any se's but last year I did get sciatica didn't think any more about it until a couple of month ago I was reading the se and that was one of them but not sure if it was denosumab.Anyway may your good news continue x
FF so sorry to hear about your knee it sounds nasty I do hope they can give you some relief for the wedding maybe a simple walking stick could be more use to you I use one for my MS and it gives me stability I hope it goes well for you x
Jam sorry to hear you have been in hospital over your calcium levels I do hope it gets sorted out for youx
Well love to everyone I'm sooo glad to be back xxx
FF - I think that sounds a good plan for the wedding. It's really important to fit this awful disease around what you want. I really hope your leg improves quickly so you can manage on the big day. How long to go now?
jam - so sorry to hear you are back in hospital. Fingers crossed the calcium levels have come down so you can have treatment today.
busy day today - one of our kittens is unwell so off to the vets with that one and then off to the hairdressers later to try and make sense of this mop on my head. Bless them they always try but I have such a frizz at the front that whatever you do it looks pretty awful. I must confess I'm not the best kept person and don't really bother to much with appearance so it's not too bad - and of course I do have some hair so for that I'm grateful. After losing it twice to chemo I'm just relieved it grew back again.
have a good day ladies, thinking of you all xxxx
Just seeing if I can post now. After I signed up again I couldn't post. Seems to be working now!
Bel, Me too! I tried crutches and just going across the living room one time with them made my other knee hurt. The next day the inside of my upper arm was all bruised too. I decided it's easier to limp and have one leg hurt. My son asked me what pain killers I'm taking. I told him they're called grin and bear it. I have to be desperate to take them. I started the femara so far so good. I start the new drug ibrance on Monday. I wanted to start one at a time. I also will be off the ibrance the week of the wedding. You take it 3 weeks on 1 week off. Oncologist wanted me to start it last week and I said no that it could wait 1 week so I would be off of it for the wedding. My breathing has improved since I came off the gemcitabine. I haven't had to use the O2 . I think if I went somewhere and walked fast I would need it. I won't be doing that with my knee. I'm hoping to get it repaired before the wedding. It probably will depend on what tests they decide I need before surgery. Lol walking on thus painful leg has to be more stressful than a short surgery repair. FF
FF I'm so sorry to hear about your knee. I hope this is something resolved quickly.
And I hope you are soon home Jam.
Had real problems re registering on the site so if I disappear you will know why. X
Back in hospital again calcium gone back up. It's going to be a long night 😞 but hopefully this will sort it out and I'll be able to have zometa tomorrow. Hope it's just a blip and the letrozole and zometa are still working. xx
Omg I just read about Helen. Even though I don't post here much but Helen usually PM to support me through the last 18 months. Condolences to her family and friends. We all here will missed her very much. She was such an inspirational to me with her fight of this disease. She always encouraged me to see the bright side of things even though I am in the downward spiral. Rest in peace now and hope you are in a better place. RIP Helen. Kenni x
Tore the meniscus in my knee. MRI tomorrow to make sure I don't have any cancerous lesions and to check the ACL too. Monday see the surgeon to set up surgery. It hurts mire in the back of my leg than the knee. Trying to get scheduled and healed before my daughter's wedding. FF
So very sad to hear about Helen. She was always one of the first to welcome people to this site with words of friendship and encouragement. A bright star in the sky tonight. Thinking of her family and sending strength. X
Have just come on and read the devastating news about Helen (thank you Chocolates that must have been so hard) - she really was one in a million and helped so many ladies (me included) She was so kind, funny and supportive even when she was having a difficult time herself. It has been a privilage to be part of her cyberworld.
She will be so greatly missed - my thoughts and prayers with her family.
Rest peacefully Helen x
I have mine in my leg had a rash for a while but used hydromol cream and it went they wanted to change me onto an iv one but I said can we not just wait and see if I get used to it and I did xxx
Joining everyone here to say how sad I am that Helen has passed on (hopefully to somewhere better, without pain and worry). Devastating news. She was so helpful and funny, and cheerful, even when she herself was going through hard times. She helped me a great deal, too, when I was first diagnosed with mets. All my best wishes to her family, and to you, too, Chocolates, as you were obviously so close to her. She will indeed be very much missed. Huge Hugs, Barton.x RIP Helen.
Orse, that's great news!!! I have denosumab injections, can't say I have any side effects, I use to have it in my arm but started to get a lot of pain in that arm which led to something called a rotator cuff injury it was so painful and I had to have a cortisone injection which has done the trick and it's fine now but I always have my denosumab in my stomach now.
Hugs to all Janette xxxxxxx
Orse, that is good news, thank you so much for sharing. Mets shrinking is really good - fingers crossed it continues. I'm on denusomab, it's an injection given in the arm or tummy. I have mine in my tummy and to be honest not many se's, slight bone ache two to three days after but nothing to worry about. Some people who have it in the arm complain about it hurting and pain after for a few days so if you get an option opt for the tummy.
good luck to anyone else receiving treatment/scans/ results this week.
so so sad to hear about Helen. She was a lovely lady, and as many others have also said she was very supportive to me when I first was diagnosed.
Love and thoughts for her family, and also for you Chocolates...it must have been difficult for you.
Oh no..the news we were all dreading. I dont know what to say......i can only echo everyone else's thoughts and comments. Helen helped me so much right from the start of my secondary diagnosis. Even though most of us are just names to each other it is like losing a loved one. Helen you were an inspiration to us all. God bless.
Chocs..thank you for keeping us informed....so sorry for your loss.x
I would like to add my tribute to Helen who was a wonderfully supportive member of the forum.....There was long time last year when I came to the forum each morning anticipating Helens first post of the morning saying "good morning ladies!" with real pleasure and missed it terribly when she managed to get away on her trip to America (although I was clearly delighted she managed to go on her dream holiday and really enjoyed it). I will really miss looking in to read Helens warm posts. Deepest sympathies to Helens closest friends and her familyxx
Oh no! I just read about Helen. I'm so sorry that her effort to try taxol failed. She gave it her all. She seemed to be quite a character. I enjoyed her posts. RIP dear Helen. FF
Thank you Chocolates for passing on such sad news, I know how hard it is so send you lots of love and a big hug.
Helen will indeed be missed. Her cheerfulness and sense of fun was infectious. My thoughts are with her family and friends.
Rest peacefully Helen. Fly high and free xx
Thank you Chocolates for passing on the sad news about Helen. Would you be so kind as to pass on to her family and friends our sincere condolences from everyone here at BCC. Helen was a well liked and valued forum user for some time and will, I am sure be missed by many.
Our thoughts are with you all tonight. Take care,
So sad to hear the news about Helen....she had a positive impact for all of us on this forum and I can't quite believe she has left us so soon. My heart goes out to her family they should be so proud of her. Free from pain and worry now god bless you xxx
I don't contribute very often to this thread but I get email alerts and read every single message.
Today, I need to come and add my voice to the tributes to Helen. Indeed, for the many years I have been on this forum, she has always been a great support at the time of my secondary diagnosis when I was trying to get my head around this horrible disease.
Helen, we will miss you greatly. Fly free, painfree away from this wreched disease. xxx
What a shock to read Chocolates post I burst into tears Helen was really loved she was an inspiration to many of us here she was always there with her knowledge to help others it will seem very strange to visit this site without her being here.
Helen I am glad you are no longer in pain may you rest in peace and condolences to all her family and friends and thankyou Chocolates for being there for Helen and Forum friends xxx
Oh nooooo!!! This is the the worst news, I have been praying our truly wonderful Helen would be able to find the strength to get through this latest set back.
I am truly devastated for her and her family, she was an inspiration to us all on the forum always there to lend her support and cheer us up with her cheeky humour, i feel privileged to have been part of her cyber family.
Helen god may you rest in peace 😇
Off to join Chocolates sing Let it Go
Hugs to all on this very sad day