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Bone mets - please join in

vercors
Member

Re: Bone mets - please join in

Carolyn, 

The charity is called Second Hope http://www.secondhope.org.uk/ 

 

The interview can be seen here. 

http://www.itv.com/lorraine/health/charlie-brooks-and-her-friend-lorna-on-secondary-breast-cancer-ch...

 

Private message me if you want to find out more about the online support group she is referring to . 

Carolyn52
Member

Re: Bone mets - please join in

Hiya Sarah Louise and all.

Im in Devon so a long way away from Oxford . Dont think there are many ladies that live this far down so Im glad of the site  !

It sounds like your first chemo has been very easy to tolerate and that you are fit and active which is good. Ginger tea is very good during chemo and if you do get a sore mouth - I found ice lollies very helpful.

Back weeks ago there was a posting on the thread about having a glass of tonic water before bedtime and I tried that last night and wow ...slept for 6 hours without a wee or sweat etc. so thank you. ( Of course I would have preferred a splash of gin to compliment it but never mind !!) 

Just watching Lorraine Kelly on breakfast tv this morning and there was a nice lady on it also with secondary bc for 4 years and has set up a website for support so I think you have to go on Breakfast tv website to find the thread. Might be another source of support for us elite ladies with bone mets etc !!

 

Carolyn xxxxxxxxxxx

 

 

julzd
Member

Re: Bone mets - please join in

Good luck for today Sharon ❤ X x

Sarah Louise
Member

Re: Bone mets - please join in

Thanks Vercors... I'll take a look ☺ x
vercors
Member

Re: Bone mets - please join in

Hi Sarah Louise, i don't post here very often but follow the thread closely. 

I am also at the Churchill. Breast Cancer Care has a monthly meet up on the first Thursday of every month. There are a few ofus who are local in the group. There is info on BCC website. 

I have recently changed treatment due to progression. Still I did well 4 years on letrozole and Hercpetin. Letrozole has been switched for Exemastane. Glad to report that I have had no side effects. Will know in April if it works. 

Sarah Louise
Member

Re: Bone mets - please join in

Thanks for the lovely replies ladies!

Carolyn- I'm being treated at the Churchill Hospital in Oxford. Anyone here local to me?!

As for excercising does anyone have any tips on what I should be doing? I'm meeting with my consultant tomorrow so I'll ask him too. Before I was diagnosed I attended Bootcamp 3-4 times a week and was very fit. Since being diagnosed I've not done much apart from walking to and from the school 😕

Supplements - I've just started taking Ginseng tablets. They boost your immune system and apparently slow the growth of tumours. I'll let you know how I get on with them!

Mint-tea thanks for the little pointer about the article.... wow what an inspiration!!!!

Sarah xx
Glo
Member

Re: Bone mets - please join in

I was told the "normal" was below 25. When I was first diagnosed with secondaries from the start mine were 12!! When I had progression they gradually crept up to 67. Not very high I know but every time I had progression they match with an increase in TM. End of Dec they were 14, end Jan 19 and due again tomorrow. Hopefully no further jump in them, but im not that hopeful as being feeling very tired recently!

stresshead
Member

Re: Bone mets - please join in

Hi Glo..you mentioned in yor post that your tumor markers had gone right back down to normal...what is 'normal'?

I havge skin mets which are very dificult to monitor as they dont show on scans etc so i asked for my TM's to be done....wish i hadnt now as they have gone steadily up from 37 to 51. Onc Dr told me not to worry about small jumps but i had been hoping for a little drop after starting different treatment...just something else to stress over now!

Scratch...good luck for Thursday...scanxiety is truly awful...i even got it before i had pre op tests which didnt even include a scan.!

scratch
Member

Re: Bone mets - please join in

Thanks glo.im halfway thru docetaxol scan on Thurs so full of anxiety at the moment.thanks Sharon.
Glo
Member

Re: Bone mets - please join in

Hi Sharon,
I was on paclitaxel from last June- August (12 weekly treatments in all). I had reduction shown on scan after 9 sessions, then further reduction on scan in Oct, after finishing chemo mid Aug and taking tamoxifen afterwards. I am still taking tamoxifen, tumour markers dropped right down to normal and continued to do so up until end Jan (due again tomorrow so we'll see what they are now!) Due another scan soon so see if tamoxifen still doing its job!! Not sure it is as feeling quite tired again and Onc did say you get about 6-9 months out of each chemo treatment!!!
Glo xx

mint_tea
Member

Re: Bone mets - please join in

Sarah Louise 

 

I know you have had lots of lovely replies, but for a little bit of inspiration,  have a look on the "but doctor I hate pink" Facebook page.  There is a link to an item on a USA news show where 18 years ago a lady was given 18 months to live - 17 treatments later (over 18 years obviously) she's still living a great life!

scratch
Member

Re: Bone mets - please join in

Hi glo .regarding yr liver Mets.glad you had reduction.i was wondering what chemo you are on .thanks Sharon.
Carolyn52
Member

Re: Bone mets - please join in

Im all for anything that makes life less painful and will be interested in keeping up to date with how you do on Devils Claw though. Please keep posting on your progress.

 

I have bone mets in hips pelvis and knees and am not sure if its the Letrozole causing me so many aches and pains or the actual cancer !!  BUT needs must and if this little pill daily keeps control of the bone mets I will keep taking it !!! Hopefully, in years to come they will find the magic bullet that doesnt cause any side effects and cures us !!! If not in time for us - maybe the next generation of women will get more advanced treatment, 

 

My Mum had breast cancer in 1968 and just had a basic masectomy .. no rads or chemo afterwards but managed to keep going to 1975 when she died. She did lots of trials near the end of her life - early chemo and a trial where they took away the pituary gland in an attempt to stop the cancer spreading. Back then breast cancer was very rare and not talked about  Forty years later the survivor rates are so much better and treatments so much more advanced.

 

Carolyn xxxxxxxxxxxxxxxxx

London1
Member

Re: Bone mets - please join in

I asked my onc before starting it and she was fine with it. Always safer to ask your onc before you start any supplements! She said that there was no scientific proof that it works but that there would be no harm to me to try it as it might help a bit. I've only taken it for two days now and there does seem to be a very slight reduction in stiffness but that might just be wishful thinking!
Carolyn52
Member

Re: Bone mets - please join in

I have just googled devils claw and although Im a great fan of vitamins - dont think I would risk it with the cancer drugs some of us are taking as it does seem to have side effects that could interact with our treatment . 

It says that it should not be used if you are taking warfarin - when I had my PICC line in for chemo back in 2004 I took warfarin to stop blood clots and its a hidden danger along with heart probs etc. 

Please excuse me if Im speaking out of turn.

 

Carolyn xxxxxxxxx

London1
Member

Re: Bone mets - please join in

Stillhere, I know Devils claw is used for horses!! I know one who is on it now and his on and off lameness is sorted, it was with a wry smile that I saw on a random page somewhere that it could be used for humans too! Hope it works as well on me as it has done on Sam!
Stillhere
Member

Re: Bone mets - please join in

Hi Sarah Louise, I'm also doing well after primary in 1995, recurrences in 2009, 2011 and a secondary diagnosis in July 2013. I've never been given a prognosis either, just told that I can be treated, probably for years. I've had no further progression since then on Capecitabine and Fulvestrant.

At the moment I am fit and well, gave up work after my secondary diagnosis and am lucky to have a lovely outdoor life with 2 horses, 2 dogs, a wonderful supportive husband and 4 kids between us in their 20s who have all left home.

I have down days as we all do but I also feel blessed.

London 1, I haven't tried Devils Claw but, don't laugh, it's a tried and tested supplement for equine arthritis! It's been very effective as an anti-inflammatory for one of my horses xx

Carolyn52
Member

Re: Bone mets - please join in

Hiya Sarah Louise .... So glad you have had a good response on this board as there is a wealth of knowledge and kindness here. 

I think you are very brave to try the cold cap but the success rate is very good from what I have been reading and you will feel better with some hair !!! I think you might loose a little hair but Im sure they recomend that you have it cut short, dont wash it or brush it too much . As your immune system is going to be low - you need to avoid public places and you know the biggest source of germs ? Library books and Gym Equipment ... thats a big surprise but its true. As you are so young Im sure your treatment plan will be the very best that they can offer ...where abouts are your receiving your treatment to ? ( dont answer this if you dont want your location known ) 

I would say to avoid too much googling on breast cancer as there is so much quacky stuff posted from various people that it gets very confusing. The one thing I do find interesting is the blog from Victoria Deryshire ( she is a bbc presenter) and going through chemo now with the cold cap and that might be worth a little visit.  

Apart from  my cancer pills I do take vitamin C and cod liver oil tablets everyday - one to try to keep colds away and the other to stop my bones cracking !!!!  

Not very sure that this posting is very helpful but I thought it better to post some twaddle so you know there is support for you out there then not post at all . You will probably think " oh no not her again " 

 

Carolyn xxxxxxxxxxxxx

Glo
Member

Re: Bone mets - please join in

Hi Sarah Louise,
I was diagnosed with secondaries from start in Sept 2010, lung mets. Had 4 years of letrozole which cleared them completely! Progression in sept 2014 with liver mets added in, e/e combo, further progression March 2015, now add in bone mets too, onto capecitabine, then onto IV chemo in June 2015. As of Oct 2015 there had been reduction in all mets. Due another scan shortly! Had various complications along the way (pleurodesis after pleural effusion, arthritis and mets in hip and a hip replacement being considered but 51/2 years on I am still here and going nowhere soon!
If you are ER+ you will probably respond well to hormone treatment, it kept me stable/improving for 4 years!
Good luck with treatment and keep checking in here, if only to read and get reassurance.
Glo xxx

London1
Member

Re: Bone mets - please join in

Sarah Louise, I too was told that if lucky I would have two years but by the BC nurse not the consultant. That was over two years ago! I was diagnosed with BC 20th Dec 2013, then with liver and bone mets soon after. I have had two lots of iv chemo (intravenous) with tamoxifen after the first chemo which didn't work, now on Letrozole which has kept me stable for over 8 months to date. I also have Denosumab every 6 weeks with no se (side effects) for the solitary bone met. I am very well too, no pain, the Letrozole does make me very stiff and achey but as I am 54 chances are I would have been stiff and achey as part of 'standard' menopause symptoms too.

I recently came across new research from Jan this year saying that survival in stage 4 breast cancer is improving, notably so in patients treated initially surgery. (From cancer therapy advisor)
I was originally told that surgery wasn't an option for me and after the first chemo had scans done to ask for a second opinion when the first one said no. Unfortunately the scans showed progression in the multiple liver mets hence 2nd lot of chemo. But if they tell you that surgery to remove the primary cancer is not possible there is now evidence to say it helps!

Since I am stable I have also asked to be considered for surgery again. So let's see how that goes!

Tips for living with horrid disease is keep exercising and giving yourself treats and try to enjoy yourself on your own AND with family as often as possible! I cry a lot too but in the circumstances I think that is just fine! Crying after all has always been my way of relieving emotional stress! So I live with this as best I can. I don't often post but knowing that the forum is there has always been a source of comfort.

Ps I have just started taking Devils claw tablets as a way to eliviate the se of Letrozole. My onc said I could try it, there is no scientific evidence that it works but anecdotally it does seem to help some people. Early days for me and no real change yet but wonder if anyone else has tried this or other natural treatment to help?
scratch
Member

Re: Bone mets - please join in

Hi Sara Louise.i had mx
Fec chemo and radiotherapy In 2004.then I had 9 years remission.then diagnosed with widespread bone mets and peritoneal.the consultant said 3months.i remember thinking oh I'll die at Xmas then...well I went on capecitabine chemo which helped my bones and cleared completely the peritoneal.then the capecitabine stopped working.and I was given letrozole for about ten months.this didn't work got peritoneal back and liver mets.bones going well on demusamab. Now I'm halfway thru docetaxol and hoping it works scan on Thursday.i lost all my hair un 2004 but on this using a paxman cap and so far so good.not much lost...so these prognosis are out of date...so many treatments for us.sleep loss seems to accompany our illness.must be our minds doing overtime...best wishes Sharon.❤
nicky08
Community Champion

Re: Bone mets - please join in

Hi Sarah

I get really annoyed that consultants quote figures like that, as others have said, as they are often out of date and don't take into account new treatments that are currently being used. Grrrrr. It really doesn't help anyone other than make us, the patient, anxious and scared. As I've said to you on another thread I have been living with mets for 8 years now so 'statistically' I should have been dead for 6 of those!

Hi Lynn, how lovely - a walk on the beach 😊 And I'm glad you are having such a lovely time, it will certainly re charge your batteries, enjoy the rest of it.

Nicky x

rosie53
Member

Re: Bone mets - please join in

Hi Sarahlouise, please don't think too much about what onc has said about your prognosis, quite honestly nobody knows he/she is just going off statistics!!!!! Which due to new treatments these are now outdated. Cancer is so individual and no one person is the same, my onc has never mentioned the word prognosis all she told me on my first consultation was it cannot be cured but can be treated. 

Hugs Janette xxxx 

Lynnq
Member

Re: Bone mets - please join in

Hi Sarah Louise

 

I am on holiday at the moment so not been posting much.   We are having a lazy evening so just thought I would catch up.

 

i was diagnosed Oct 2012, primary and secondary at the same time.....I have only ever had Letrozole as my cancer is strongly ER+.   

 

Had secondaries in spine and peritoneal area and skin.   Was told a prognosis of 2-3 years, and the peritoneal

may be a little less.  My peritoneal mets are no longer showing and my bone mets have remained stable, and/or healed.  The one skin met I had was removed and never recurred, so these Prognosis they give us are just numbers....here I am more than three years later - still get anxious and have sleepless nights but proof that they are often inaccurate....

 

hi to everyone else...due to fly home on Thursday, had a wonderful time, went for a lovely long walk on the beach today - can't believe how well I feel

 

best wishes to all, 

 

 

Tournesol
Member

Re: Bone mets - please join in

Hi Sarah Louise,

Welcome to the board although sorry that you've had to join us. Re the prognosis, so much depends on how your cancer responds to the various treatments that they really can't tell at this stage, so please don't take it as a given. I think 2 or 3 years is some sort of overall average but that doesn't tell you how you will do. All the best with your treatment.

Tournesol x

Sarah Louise
Member

Re: Bone mets - please join in

Thanks ladies, it's so nice to hear your stories and to know I'm not alone with this. Unfortunately at the moment it's all I can think about, morning noon and night. I'm not taking anything for granted and spending as much time as I can with the children and husband. I find myself getting teary when the children do something lovely and I have to quickly stop myself before they realise that Mummy is upset.
When the consultant told me the cancer had spread he said my life expectancy is around 2 yrs. Was anyone else told this? It almost felt as if i had neen given up on! I had the knee jerk reaction of " no way, I'm not giving up that easy" and have continued to have this attitude most days. I say most days as of course there has been a few days where I have felt absolutely rubbish and just cried all day.

As for chemo, I asked to wear the cold cap. It was uncomfortable to start with but became more bearable as time went on and so far so good. If my hair does fall out I will be devastated, not just for me but for children. The hospital where I am being treated has a wig shop so I can pop in there if needed. Carolyn.... you really made me laugh tonight when I read about your wig disasters!! 😂
I'm really glad I've found such a welcoming place to talk to others. Thanks ladies xx
Waffles
Member

Re: Bone mets - please join in

Hi Sarah Louise, I've was only diagnosed with SBC in pelvis and spine 7 months ago and, at the time of diagnosis, and for a few months afterwards, I was in a lot of pain and quite depressed. However, the pain is much less now (due mainly to bone strengtheners and radiotherapy)and, to be honest, I'm much happier and don't think about cancer all the time any more. I think that seems to be the pattern with most of us after the initial shock.
I had been on anti hormonal medication for about 8 y years when my cancer came back so it doesn't work anymore for me as the cancer has become resistant. However, hopefully, once your initial chemo is over you will find that the anti hormonal medication will be very effective for you as you haven't had any exposure to these drugs. These treatments are usually much easier than IV chemo. I certainly had very few side effects. Although, to be honest, IV chemo wasn't too bad for me either when I had it 10 years ago.Like Carolyn, I found the hair loss hard to cope with. I think when I go on to chemo again I might go on one of those Look Good Feel Better courses. At the moment I' m on tablet chemo (xeloda) which I'm not finding too bad at all and it doesn't make your hair fall out.
As everyone has said you get great advice here and everyone is so kind. Keep posting. All the best xxx
Carolyn52
Member

Re: Bone mets - please join in

Hiya Sarah Louise , Think by swapping to bone mets board you will get a lot more support from ladies that have a huge amount of knowledge and kind hearts too,

 

 

I think the one thing in common between all of us is " CHEMO"   most of us have had to go that route sometime in our journey. I had mine in 2004 - FEC/CMF which was 12 sessions but if I remember I was ok through it apart from the hair loss which if you are like me - vain -  I hated . Not sure if you have decided to have the cold cap ? a lot of the ladies here have used it and managed to keep some hair and dignity !! I had a nightmare with the wigs .first one I opened the oven door and it caught fire almost . Second one I got paint on when I decided ( chemo brain) to paint the garage doors and the third one the dog ate. BUT by this time the hair had started growing and so I didnt need to risk a fourth one !!!!

 

I first joined this board in 2004 with the primary BC and met a lovely lady called Sue who was living in Spain and very scared being in a foreign country and we became daily e mail buddies for 7 years and I even went to Spain a couple of times to stay with her . I rejoined in October 2015 when I got the dx of bone mets but  I must confess didnt visit here for many years in between  as I think I just thought I needed to move on and had beaten this deadly thing. 

 

During the chemo dont be afraid to ask for help from friends and family especially with the kids etc and please use this board at any time when you are feeling down as most of us dont really sleep much and someone will reply to you at any time of the day. Im very familiar with silly night time tv and doing candy crush type games at silly o clock too.

 

Love Carolyn xxxxxxxxxxxxxxx

stresshead
Member

Re: Bone mets - please join in

Hi Janette..i took arimidex for 2.5 years  until it stopped working bt apart from usual se's...aches and fatigue iy was fine. Hope it works for you should you go ahead.x

rosie53
Member

Re: Bone mets - please join in

Hey scoubiesue your exactly the same as me!! 7 year from primary now have mets in my hips/pelvis ribs and spine and mine also hormone dependant I also had radio on my left hip around 18 months ago. 

Hope you are all enjoying your weekend Hugs Janette xxxx 

scoobiesue
Member

Re: Bone mets - please join in

Hi Sarah Louise. I am sure you will fine the ladies very supportive and informative, It's so comforting to be involved in a group where everyone knows exactly how you are feeling. I had BC 7 years ago and thought I was "fixed". In march 2015 SBC was found in my spine pelvis and ribs. So far I have been treated with hormonals and one session of radiotherapy on my femur. Wishing you well . Sue xxx 

KazMOr
Member

Re: Bone mets - please join in

Hi Sarah louise, I have only recently joined this forum too....But since I have it is really helped me, being able to ask questions and read about different treatments too....all the ladies have been so welcoming and it is lovely to know that you can share your worries and concerns with other people going through, or have been through, similar situations. I was diagnosed with my breast cancer in 2011 a couple of months before my 40th birthday. I had a mastectomy, chemo and radio and was put on tamoxifen.....all was well until last november when I found out it had spread to my spine....I have now been put on to Letrazole and Zoladex (to bring on Menapause). In december I also had a surgical procedure on my spine. Am due to start Zometa, to harden bones.....I wish you all the best for your treatment and remember all the ladies on her are very supportive ....Karen x x

scratch
Member

Re: Bone mets - please join in

Hi Sarah Louise.welcome.this site provides answers for most questions.some people have different stages and different treatments but everyone will help you.
As for you take as much help from friends and family to help out with school runs or shopping .you will find the strength to do all this.best wishes with your treatment.sharonx
rosie53
Member

Re: Bone mets - please join in

Hi Sarah Louise, welcome to the forum, sorry you have had to join us but we are a friendly bunch and are always on hand to help/advice and support. my story in brief,  primary 2007, low grade no chemo needed only had radio and tamoxifen, almost 2 yrs ago dx with mets in my hips ribs and spine,  was put on tamoxifen and have zoladex injections (to put me into menopause)  and denosumab injections but last October changed to letrozole. Please feel free to ask any questions, it's very early days for you, and this disease is an emotional roller coaster but you do find the strength to deal with it, take care I hope your chemo goes ok.

Hugs Janette xxxx 

Sarah Louise
Member

Re: Bone mets - please join in

Hello! Just popping in to say hello and introduce myself. I'm Sarah, 34 yrs old and mum to 2 young children. I was diagnosed in late December with breast cancer and more recently been told it's spread to my spine and pelvis. I started chemo last Saturday. The plan is to have 6 sessions of chemo and then an operation to have my overies removed and the cancer is hormone dependant. Would love to talk to people in similar situations xx
KazMOr
Member

Re: Bone mets - please join in

Hi Chocolates, I am based in Essex....but went to Queens Hospital for the Star Ablation Procedure I had on my spine....I am also stuck indoors doing housework today, If you find that magic wand can you let me borrow it please....Hope you all have a good weekend x x
Chocolates
Member

Re: Bone mets - please join in

Hi ladies, some good news on the thread this week. KazMOr, really good news for you.  Can I ask where you are based and where you went for your treatment?  All sounds very positive.

 

Janette, so sorry you are struggling - good idea to go and talk it through.  We shouldn't suffer, and we want a good quality of life.  Fingers crossed you get appt soon and can make a change for the better.

 

had some scans this morning to check internal working of ovaries etc.  All fine as far as she can see, but despite bloods saying 100% post menopause in Dec my ovaries are now back to working normally.  This could be the pattern for a while.  Just got to put up with it I think.  My cancer is not hormone receptive so doesn't have a bearing on that but don't really want an op as in my mind it may upset things if you know what I mean.

 

she scanned my liver, spleen, pelvis, pancreas as well and said all looked normal which was great.  Gall bladder is completely blocked though and not working.  No surprise there considering the pain I had last July.  I self diagnosed that one and cut out chocolate etc from diet and have been pain free since, and lost a couple of stones.  However, I suppose I need to think about that one.  At some point it's bound to flare up - I'll see what my onc says.

 

anyway have a good weekend ladies.  Blustery and wet down here so housework on the agenda today - it's never ending. I wish I could wave a magic wand and it would all be done.

 

lots of love and hugs,

 

hxxxxx

 

 

redridinghood
Member

Re: Bone mets - please join in

Yes.......KazMor.........well done! It's so nice to hear good news, and such interesting good news too. Thanks for sharing with us. Have a good weekend..........but hold onto your hats everyone! Gales!

mo

JulieD
Community Champion

Re: Bone mets - please join in

Great news KazMor! xx

scoobiesue
Member

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KazMor amazing news. Enjoy your celebration Have a lovely weekend ladies. Sue xxxx

Waffles
Member

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Great news KazMor! You must be delighted. It sounds like you are getting very up to date treatment. Best wishes xxx
rosie53
Member

Re: Bone mets - please join in

Hi KazMor, great to read your appt went well, your treatment is something I have made a note of for future reference.
Hi scratch, well I have left a message with my oncs secretary to see if she can get me an appt ASAP to discuss changing my treatment, I really don't think I can continue with letrozole much longer, I am stuck with another horrible headache again today!!
Hugs Janette xxx
scratch
Member

Re: Bone mets - please join in

Hi Natalie.I was on letrozole for about ten months.it didn't work for me.i got progression.so now on docetaxol.but u I just wanted to say I agree with you I didn't feel like me at all.i had same prob as you and I felt I was about 90yrs old and detached from
things good luck for maybe a different hormone
.sharonx
things.good luck for maybe a different hormone.
KazMOr
Member

Re: Bone mets - please join in

Thank you Marirose, I am very lucky to have a great medical team and I am definitely over the moon. I havent celebrated yet but i will do x x
Marirose
Member

Re: Bone mets - please join in

Hi Janette

I don't doubt simvastatin does't work I was clear of cancer then and metformin may work for some maybe it saved me from being worse we will never know.

 

KazMOr what wonderful news for you you must have a good medical team around you I bet you are over the moon congratulations. I hope you celebrated your good news. 

xxx

 

rosie53
Member

Re: Bone mets - please join in

Hi marirose, yes your right about metformin being a diabetic drug and simvastatin is for cholesterol. I have been chatting to a lady on the secret Facebook page who's onc has prescribed simvastatin as part of her cancer treatment. I had never heard of this (and I work in pharmacy) but the Mail's article had some valid points on the treatment of simvastatin with cancer.
Hugs Janette xxx
Carolyn52
Member

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Thank you for posting Marirose - you sound like you have a wealth of knowledge with all these things and I salute you for taking so many pills and being so positive. I hate taking any tablets as whatever I take - I get the side effects !!!! BUT needs must to survive this dreadful shadow we have hanging over us !!

 

Carolyn xxxxxxxxxxxxx 

KazMOr
Member

Re: Bone mets - please join in

Hi Ladies, I had my follow up appointment with my Spine Surgeon Yesterday. He was very pleased with how the procedure went. I even got to see the xrays they took during the procedure, ive even took photos so i can show people....He said that he had managed to zapp quite a lot of the area and filled it with a small amount of cement.....I told him that I had been pain free since the procedure, which he was very pleased with. He has told me that I do not have to go for any more follow-up appointments with him but if or when something occurs, which he could help with, I can go straight back to see him.....All in all a very positive outcome, so I came home in a very happy mood yesterday xx 

Marirose
Member

Re: Bone mets - please join in

Hi Girls

The tablet you are talking about is Metformin 500mg x 2 a day for type 2 diabetes. I read the report on FB I have been taking it for about 10 month now I take it with food. My chemo e/e caused my blood sugar to rise I was only border line before that and it caused me to have to go on this medication. Not helped with the cancer I got 5 more mets before Xmas. I have started on Capecitabine now.

Simvastatin is for cholesterol I have taken this for a number of years until I was changed to antivastatin a stronger tablet. 

Infact it is driving me up the wall taking so many tablets with food before food 10-12 hrs between meals seems to be all I do these days.

 

Best wishes to you all xxx

scoobiesue
Member

Re: Bone mets - please join in

Hi Janette I took arimadex for 5 years during my primary. I tolerated it very well. However lots of people find the aches and pains difficult to manage. Hugs. Sue xxx