Hi All! I’m Anna from Essex. I’ve not long arrived at the hotel my husband dropped me off because of the train strikes and has just headed back again to the kids (daughter Evie 15, and son Max who’s 11).
I’m 41, diagnosed straight to Stage IV in Jan 2020 as it had already spread to my liver. I’m on my second line of treatment as it spread to my skin 18 months later. Currently on a trial at the Marsden which is going pretty well so far.
Bit nervous about wandering down for breakfast in the morning but I’m sure it’ll be fine 🙂
probably a bit late now but I’ve just arrived if anyone is still up! Do they serve food in the bar this late?
Just before introducing myself a bit, I've arrived at the hotel and am wondering if anyone's around / fancied a cuppa or something to eat?
I was diagnosed de novo just before lockdown in March 2020, had about a year of treatment and am currently stable. I live with my husband Keith and little show cocker spaniel Millie in South West London.
Looking forward to meeting everyone soon,
Hi, I'm Alex. I'm coming from Essex on 23rd. I can't wait! I was diagnosed with triple positive secondary breast cancer in July 2019. I have been very fortunate to have had a complete response to chemo and have been stable since then. I have Phesgo every 3 weeks and denosumab 6 weekly plus letrozole. I'm 40 and I have 4 kiddiewinks and a husband.
Just wanted to let you know there is a swimming pool at the hotel...for anyone interested in a few lengths!
hello everyone looking forward to meeting you all.
can you post a scdule please ive lost what is happening and whenthank you
Looking forward to the Secondaries Together event in a couple of days time. I think like most of you travel plans have been thwarted so I'll be driving down, arriving on Thursday night.
So, a bit about me....I'm Becky, 42 and live with my boyfriend and dog in Bedfordshire. I had a primary diagnosis in November 2015, subsequent double mastectomy and 6 months of chemo. In May 2020 I found out it had spread to my liver. After about 6 months of paclitaxol, I'm now on capecitabine.
Looking forward to meeting you all 🙂
my name is Orla, Im from Northern Ireland. EasyJet may have cancelled my flight but hopefully that isn’t going to stop me as I’ve booked another one!
Im 40 newly diagnosed de novo and just throwing myself into learning all I can about MBC.
Looking forward to meeting you all and sharing our experiences.
Safe travels all xx
Hi Everyone I’m Alison 👋
I too am struggling with the train strikes so will have to drive. I’m coming from Blackburn and heading down the M6 so if anyone wants to join me I’m happy to pick up on my way.
Oh Amy! I get it. I have extensive bone mets too and ended up with a full right hip replacement at diagnosis and rads to spine and pelvis too. I believe mine had been there from primary but I was never scanned as there’s no way they could be this extensive in the time from finishing chemo and being diagnosed secondary although it was 8 months and I was on tamoxifen.
my mobility was bad for a long time but it did dramatically improve. I’m due for another surgery on my other hip soon to take some pins out from an old surgery - the cancer has accelerated arthritis and therefore one pin is being a bit of a bugger!!
I saw your little lifts vid ages ago and now I know who it is!! 😃❤️ I was in the make 2nds count fighting to be heard campaign last year.
Ooh Natalie what a good idea including insta Handles. Mine is amyparkins3. I did a speech at the littlelifts hall last month which is on there if anyone fancies a watch ☺️
i also didn’t include anything about my diagnosis in my original post. I was told last april that I had MBC and that actually it was likely there from the start (I was diagnosed in August 2020 and the mets were picked up by my radiotherapy planning scan) I started off with a tiny lesion on my L2 and a 9mm lesion on my femur. in April this year I found out that I had Progression… it had grown to the entire vertebral body and spread to the L1 and L3, new areas on my sternum, new lesion in one of my lungs and the femoral lesion had grown too. I had radiotherapy to my spine and femur (which landed me in hospital for 3 weeks but I’ll bore you with that story next week). My mobility has been severely impacted, although I am now getting around with a stick instead of a wheelchair which is a big improvement. It’s a huge adjustment to make at 35, but we all live on with hope don’t we ☺️
Hi I am Magdalene (Mag). Can’t see how to create my own message too so am replying to Kaluvvly!
I live in Orpington, Kent with my husband and 2 teenagers children Erin (14) and Caden (15)
I have Stage IV oligometaststic to a lymph node in my lung. Just finished 6 cycles of Docetaxel in May 2022 and have started Zoledex injection yesterday.
I will refund my train ticket and will be driving from Orpington, Kent instead on 23 June. If anyone lives nearby, I am happy to give you a lift.
Will love to know how everyone is coping with treatments and what other complementary therapies you have tried.
See you all soon.
looking forward to meeting you all 🙂
im 41 ( living in Dorset) diagnosed with liver mets in Jan 2022. Have a 15 year old son and a partner who has been a rock and is driving me down.
see you all soon x
I’m Natalie, 36 from Warrington- Mum to George 9 and Henry 7 and I have been secondary since Nov 2020 - extensive bone mets with immediate hip replacement.
looking forward to meeting you all so so much! I was going to train it too but I think I will drive now. Coming on the Thursday night.
I’m hormone positive
if anyone is on instagram I am natalieannew85 xxxx
Im having to reply on Amys comment as I cannot work out how to post my own!
im 36 and I have 2 boys aged 6 and 2 and am Married.
I live in Staffordshire, not far from Stoke on Trent (in fact if anyone is travelling down from this way please let me know as I could now do with a lift! Thank you train strikes!!)
I was diagnosed with brain mets at the beginning of April following 1 year NED from TNBC. Looking forward to meeting some ladies around my own age hopefully with children too to share advice with.
Hi all! I’m Amy, I’m 35 and mama to a 6 year old daughter, furmama to a cocker spaniel pup and fiancée to my partner Steve (he recently realised I was worthy of marriage so put a ring on it). I am so looking forward to the event next week…less so about the travel but my dad is kindly driving me down to avoid the strikes. Can’t wait to meet everyone in person 🙂
Feedback has said how helpful it was to talk on the Forums beforehand and this thread is a chance for you to say hello and “meet” others attending the event. I will check in regularly and if you have any questions do let me know and I will do my best to answer them.
Look forward to meeting you next weekend