Feeling scared about secondary breast cancer

[Tartuscy]

Thanks love. Good of you to reply. A smoke for anxiety sounds good about now but I'm not giving in to temptation... all the best to you. Xxx

[Daylightdancer666]

Good luck hun with kkved biopsy 

Ive gor zoladsx injection nee years eve snd depending in blkkd test results geg snotjef injection on 8th for bones

Full cold today nose streaming fot hit chesty cough brother and gf have it his daughter came up with soee throat sje feeling fine now so my sisted bringing mg neice over to hang about teagan ss josh not well. 

Ive just been out for lunch dont think smoking helping mt chest but it helod with bjt  anxiety you knowxxxx

[Tartuscy]

Looks like I'm right where you are although I didn't even get finished my 17 rounds of herceptin so they are a bit astounded at my 2cm lesion on liver and 1cm lesion on lung. So having a liver biopsy on 7th Jan to see what happens next....

[GiulianaB]

me too i am scared.

Big Hug

Gx

[Daylightdancer666]

Merry Christmas all 😃

Update from little olf Cazzy here scsn results showed shrinkage liver deposits can't be seen bones looking better.

Went to consultant regarding back pain she refrrrrd mr grt radiotherapy on osrt mt bsck dhkeed nr the huge wedge which was crushed vertebrae emailed spinal consultant who got back to her few hours later eho dsidnhebiff rest of the week but he wants a MRI doing thrn see if he can do anything 

Hope rvrryonr having lovely day I've come back to bed due to psin xxxxxxxxxxx 

[Michu]

Hi Merry Xmas , I hope that you are feeling better .

inhave been diagnosed with mestastic breast cancer in my liver , can you share your story with me 

[Nellie]

Hi thanks for thinking about me. The appointment went as well as it could have and left me and my husband feeling positive. The biopsy showed ER positive as before but the HR result hasn't come back yet. Meds and injections will start if that's HR- So hopefully that will be the case. The onchologist said he's 99% sure it will be. I live in Cornwall so hospitals few and far between. But if meds and injections I can have these at my GPs which will keep life normal as possible. Im 60 now, don't feel old, want to be around d for my gorgeous daughters and granddaughter.  Hope all goes well for you both. Lots of love x

[Daylightdancer666]

Hi Ruby 

That's true I can watch rubbish TV never thought of that 😃

However there has been up date with my appointment my consultant secaterry rang up and changed my. Appointment to half one didn't mind thought right okay.. Then few hours later changed it to four because originally my consultant registrar couldn't fit me in at 16.50 hut now. Its changed to four as my consultant wants sees me personally I'm trying to rationalise thinking like I know I'm un stable with calcium being low and also I rather my consultant give me my scan results but you know when mind goes wander and even though I'm 32 and live with parents they just gone away for the weekend so I'm bit on own only tonight though as got the girls Christmas meal then drink or two then gotta go home sort hello fresh delivery out feed cat then staying at my sisters not mention some. How fit nap in sorry I'm rambling xxxx

[Ruby2016]

Hi Cazzy,

Like you I sincerely hope that Nellie’s appointment goes well.

I too am on tablets - was briefly on Prozac many years ago and have been on venlaflaxine for over 10 years as this does help me with anxiety. However, it’s taken years to get the dosage right.  Anxiety is a toughie and I can only imagine how high your anxiety levels must be at mo.  Being polite, but what a pain having an appointment so late in the day on Wednesday - easy for me to say but are there any ‘go-to’ things which work for you, i.e. a distraction. Listening to music, one of my faves is watching what I call ‘rubbish t.v.’! I can happily watch the shopping channels (occasionally buy things ☺️!) or reality stuff like ‘Real Housewives’ which I genuinely find fascinating. If there’s lots of arguing I stop watching it though..

I would suggest walking but from what you’ve said, mobility and pain is an issue but even a few moments of fresh air can help.

You take care and thanks again 😘

[Daylightdancer666]

Hey Nellie I'm Cazzy I want to wish you luck for results today, 

I was very much in denial about my condition think still am in sense I've only cried twice but thst may be because my anri depression tablets but they don't stop anxiety and I have my first lot of ct results next Wednesday since diagnosis and think as silly sounds it's ten to five Wednesday evening so waiting round thsf say gonna drive me nuts

Hello Ruby ha spoke to you before good luck for results Monday xxdd

[Ruby2016]

Good to hear you’ve had a better day 👍🏽.

Thank you for your good wishes xxx

[Nellie]

Thank you Jefner, it is a difficult time but a better day today. Thank you for your kind wishes. Take care 💕x

[Nellie]

Thank you Ruby. I've had a better day today a d feeling ok. Hope your CT goes well on Monday. ❤💕x

[Jefner]

I was diagnosed in January 19 with MBC and remember the daily horror of waking up with that knowledge.  It's hard going, especially with all the tests and waiting for results.  But it can get easier with time and life can be enjoyable again.  Do what you can to manage your thoughts so that some light gets in there, give yourself plenty hugs and time out, breath deeply and hang on in there Nellie.  My fingers are crossed for you for tomorrow's results. x x

[Ruby2016]

Hi Nellie,

i just want to reach out to you and let you know I ‘hear’ you. Time does feel like it stands still - at the moment I feel like friends who live locally to me are getting excited about and ready for Christmas and I feel isolated and not wanting to bring people down.

When you finished your hospital treatment, it’s natural to think that part of your life is over. I am truly sorry that you are now having further tests and as you’ve said, now waiting to find out results.

I am here if you want to chat, I always used to think that I had a lot of patience but I am seeing my oncologist on Monday to get CT scan results and I am like a bear with a sore head at the mo. 

Whatever the results for you on Friday, I sincerely wish you well and that you have someone with you to help absorb the information. Sending you a virtual hug and I am here if you ever want to talk.

[Nellie]

Hi I was diagnosed on the 31st of October and since then it feels like life has stood still. Original breast cancer was in Nov 2017. Lumpectomy and radiotherapy then letrozole followed. All was ok it seemed except letrozole made me ache a lot as did the zoledronic acid infusions every 6 mths. I had a bone scan a year ago to check pain was wow bro letrozole and when that was clear I was told by onchologist not to worry. Just meds. Then about 6 weeks ago I woke up with pain I  my stomach. It felt bad but went the next day. My family pushed me to check with my GP. He said it's the meds. But would like an ultrasound to check my gallbladder. There it was. 3 small tumours on my liver. St s an followed and found a spot o  lung and tummy too. Oncho,list said it's treat me for years and hopes it's hormone as the first one. Then meds not chemo. I've since had a full body bone scan and liver biopsies yesterday. Results on Friday. Feeling really scared 💕