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Is it back?

10 REPLIES 10
nicolah24
Member

Re: Is it back?

Oh bless you ,

you must feel petrified and also a bit angry .

i was fobbed off for months before I finally got a scan , bloody long story but it’s in my spine . I had a 7 hour op to take it out and I’ve got loads of pins and plates in my neck now- 

then the diagnosis

its so so hard to comprehend, and that’s exactly it when you’re head feels like it’s gonna explode!!!

this is good to vent here and like you say it helps-getting it out.

i hope you’ve seen a doctor since you wrote this and are hopefully having a few answers to calm you a little .

sending you a massive hug xxx

nicola x

basilsmum
Member

Re: Is it back?

Hi @Mateface67 

I had the bone scan Thursday and they said the results are taking around 3 weeks at the moment because of covid staff pressures. This is the worst but for me - I hope you’re doing ok, the pain just feels like it is getting worse and I’ve never ever felt so exhausted. I can’t stop thinking of the worst case scenario. I do hope you get your results quickly and are coping ok. It’s so rubbish. 

Mateface67
Member

Re: Is it back?

Thank you for asking. Having PET CT scan today and MRI on Monday. Then more waiting for results. How are you doing?

basilsmum
Member

Re: Is it back?

Hi @Mateface67 just checking in to see how you are, I hope ok xx

Mateface67
Member

Re: Is it back?

So sorry to hear you’re in the same position. The waiting for results is excruciating. Like you I’m not coping well at the moment. Can’t seem to put a stop to my negative thoughts gate crashing my every waking moment. I’m alternating between red wine and sleeping tabs at night to get me through. So exhausted though. Next step for me is a PET scan to see if if it’s in bones only. Another agonising week’s wait. I’ll be thinking of you over the next couple of weeks and sending you big hugs. 

basilsmum
Member

Re: Is it back?

Hi @Mateface67 

im in a very similar boat - bone scan tomorrow. I have pain in my back ribs which is getting worse, I keep trying to tell myself it may be muscular or a trapped nerve but it is a pain unlike anything I’ve had before, more persistent and gnawing and just doesn’t let up. The oncologist said results will take at least three weeks because of staff shortages and my anxiety is through the roof. I can’t sleep because of the pain and the anxiety kicks in particularly at night. I’m 52 next Saturday and have two children, 17 and 20 and just can’t cope. Sending big hugs and hoping you getting better news soon. 

basilsmum
Member

Re: Is it back?

Hi @Mateface67 

im in a very similar boat - bone scan tomorrow. I have pain in my back ribs which is getting worse, I keep trying to tell myself it may be muscular or a trapped nerve but it is a pain unlike anything I’ve had before, more persistent and gnawing and just doesn’t let up. The oncologist said results will take at least three weeks because of staff shortages and my anxiety is through the roof. I can’t sleep because of the pain and the anxiety kicks in particularly at night. I’m 52 next Saturday and have two children, 17 and 20 and just can’t cope. Sending big hugs and hoping you getting better news soon. 

Blonde123
Member

Re: Is it back?

Yea I felt dreadful in fact I think I thought I was dying it was all anxiety. Still getting my head around it all but getting there now. I just sat in the car park waiting for my 3 month scan so very nervous. Please feel free to message me privately as more than happy to chat. I didn’t tell mine until I had the scan results so I hear you on that one. 
karen xx

Mateface67
Member

Re: Is it back?

Thanks for taking the time to reply. The wait until I find out what I’m dealing with is agonising. I can’t sleep and my stomach is constantly churning. Did you feel like that too? I hope you are doing ok now. I’ve decided not to say anything to the kids until I know what we’re dealing with. 

Blonde123
Member

Re: Is it back?

Hi 

Thiught I would reply as you have had no response so far. I am too 54, with an 18, 21 and 23 year old. I feel your fear, hopefully they will give you answers soon so you know what you are facing. I have secondaries after a long period of time cancer free, but hopefully yours won’t be. I just wanted to send you a virtual hug xx

Mateface67
Member

Is it back?

Hello lovely ladies,

I was diagnosed with stage three breast cancer with four lymph nodes involved in January 2012. I thought I was going to celebrate ten years cancer free this month- and then today happened. 
I have been getting leg pain for the past year. I mentioned it to my oncologist back in May and he did some blood tests that came back normal. He did a physical exam and couldn’t feel anything untoward. He said to contact him again if pain got worse. I asked my GP for an X-ray of my spine because of lower back pain. This came back as showing degeneration of the discs (wear and tear basically) and actually stated that there was no sign of any metastatic disease.  The pain continued so I got referred to an orthopaedic surgeon. He thought I might have a trapped nerve. He asked for an MRI to be done and this happened in earlyNovember. I wasn’t able to get an appointment with him to get the results until today. He had literally only seen the scan five minutes before I went in. Thinking it was a trapped nerve I didn’t ask my husband to come with me. The consultant then said that there was no trapped nerve but that some of the spinal disks looked black and opaque on the scan whereas the normal ones looked translucent. Basically, he thinks the cancer is back in my bones. 
I’m absolutely terrified. My head feels like it’s going to explode. I’m angry at myself for not pressing my oncologist for a scan and convincing myself it was a trapped nerve.  I’m also gutted that two months have elapsed when I could have found out what I’m dealing with and started treatment of needs be. I’m not bricking it in case it’s spread everywhere. I’ve got two kids- 18 and 20 and am 54. I be decided not to tell them anything until I get a firm diagnosis. 
sorry this is so long, but somehow writing it down gives me some relief and 8 can’t get to sleep anyway. It all feels so surreal. 
mateface67