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Mum

4 REPLIES 4
ClaireW2020
Member

Re: Mum

Thanks Pawsome. Yes she has bloods pre every cycle so yes they are keeping a close eye as already she had an extra week off on the previous cycle. So good to hear you are coping well and working full time

Thanks for replying xx

Pawsome
Member

Re: Mum

Hi, I’m on the same meds as your mum and as AnnieJ says different people tolerate them differently. My oncologist said right at the start to expect a bit of a rocky road initially whilst they tweak the dose and / or rest period to find out what your body can tolerate. As your mum is only on cycle 3 she should be seeing her Onc monthly to have her bloods checked and pick up her next course of Ibrance so I would definitely tell her to talk to her team and let them know she is struggling. My team always want to know if I have any symptoms. I’m on the second week of cycle 9 of Ibrance / Palbociclib and am still on the full dose and am tolerating it well now and mostly feel pretty normal. The first 3 months are the worst as it takes your body time to get used to. I felt quite poorly at times but speaking to other ladies I was told that after the first 3 cycles things tend to improve and that was certainly the case with me. I’m 42 and am still working full time and am pretty fit and active. X 

ClaireW2020
Member

Re: Mum

Hi Anniej

Thanks so much for responding. Shes approaching her week off and starting to feel a but better. The hospital in Sheffield have been great, calling her over the last few days etc. Think the shaking is anxiety so the GP to help with that. Thanks for your message

Claire x

Anniej
Community Champion

Re: Mum

Hi a late, I’m sorry no one has replied. As you are probably aware, the same diagnosis and treatment works very differently on each individual as we are all unique. I am on the same combo of drugs as your mum, but was unable to tolerate the Ibrance . My neutrophils crashed, I picked up every little germ and I was hospitalised almost monthly. However, my Onco saw what was happening, talked me through possibilities and altered dosages and rest periods. It did take nearly a year to get me stabilised but I’m motoring along....or I was until the pandemic! I’m on 75mcgms, 2 weeks on and 2 weeks off. I’m 73.
I guess what I’m trying to say is, this is a conversation for you to have with your mums Onco . She really doesn’t sound wonderful and I know I would have phoned before now fir help. Best wishes. X

ClaireW2020
Member

Mum

Hello. Mum was diagnosed in March 12 years after her original diagnosis. She has a small tumour in her lung and one in her lymph node. She is on Ibrance and letrozole. She is on her 3rd cycle nearing her week off and feels dreadful. Shaky, nervous, sickly. Is this normal? She’s had a good 10 days or so feeling pretty normal and now back in bed. She’s in Sheffield, I live in Oxfordshire and it’s hard. My bestest friend. The news still and I don’t think will ever sink in for us especially after so long since she was originally diagnosed. She’s 75 but looks a lot younger. I know there is a support group in Sheffield but obviously given the current situation isn’t meeting up. I would love to find someone for her to talk to going through the same thing. Thankyou