Thank you for all your advice and help.
After all that they cancelled on me, my appointment was for yesterday (monday the 12th) they phoned on Friday afternoon to inform me the assessor was ill. So after all that fretting it was a no show after all. I've been waiting for this since August!!!! Its ridiculous.
The person who phoned me from PIP told me that they didn't know when they could rearrange the visit but it would probably be early December. I told them that I am due to have a 2nd mastectomy (to hopefully help with migraines, neck pain and back pain from the weight of the remaining breast no recon), on the 27th of this month which would make it very hard for them to assess me correctly being that I will be in recovery from this operation. The PIP representative asked "how long will you be in hospital? to which I said it was a day case (no beds at my hospital) so have to come home that day with drains!! honestly I am at my wits end.
Apologies for the rant but this is totally disgusting.
I hope the home visit goes okay for you.
I would like to say beware of the closed questions as I think useful information to support your claim can easily be lost. For example, you may be asked whether you do online shopping and you answer no. However, since you have been unwell a friend may be helping/ supporting you with online shopping. You may be asked whether you have adaptations around the house. You answer no. However, you may need adaptations, for example stair rails either side but it is a case you don't have these at the present time. Remember to fill in the gaps when you answer either yes or no.
I can suggest that you start collecting evidence of your additional needs such as receipts for taxis, extra heating costs, etc etc etc. This information can be used at an appeal. 🙂
Well done for writing to your MP. I don't receive or need PIP but I did write to my MP after reading of a member's experience. She's the chair of the Commons Select Committee on Health. She wrote back and one of the things she advised was that claimants should write to their MPs.
Here's a link to the letters that might work:
I am horrified by these posts. I was advised by a hospital councillor to apply for a PIP when I was first diagnosed in 2013. I did have a phone call when I was asked how far I could walk unaided but that was all. When I mentioned the six months rule to my oncologist, his response was “I’m glad the Government thinks I can tell how long my patients’ survival rates are, because I certainly can’t”. In his view everyone with an incurable cancer may only have a few months to live. You shouldn’t have to tell them all about your terrible symptoms - it’s cancer, for heaven’s sake. You could have a negative reaction to a treatment at any time.
I did have to reapply after three years - I had the brass-necked effrontery not to be dead, but “fortunately” the cancer had mutated so they grudgingly renewed it, albeit in a lower amount. As I will die before they have to pay me the pension that I have contributed to for 42 years, I wrote to my MP. Astoundingly, I received a phone call a week later from a very apologetic representative of the DWP saying they had got it wrong and here’s the full amount.
so the lesson is - don’t be terrified, be mad!
I applied for and was automatically given pip nearly 4 years ago when first diagnosed with bone mets. After 3 years I had to re- apply and had a home visit and my pip was turned down. I presume initially they didn’t think I would still be here😡. The home visit was just a man with a laptop who asked me at least 20 questions he didn’t want me to elaborate and was in the main yes or no answers. I look healthy still work can cook and clean I dress myself can feed myself shop walk etc so I pretty much guessed I would be turned down. The man on the day didn’t give me any indication I just had a letter through the post. So it seems I could have blagged it and told him I couldn’t do anything for myself not sure if he would have put me to the test or not?
I really miss the money though as was hoping to reduce my hours at work as obviously the bone mets and medications and fatigue all take its toll.
Hope you have better luck and you get to keep it
I have just had a letter regarding my PIP claim making an appointment for a home visit. Has anyone else on here had a home visit? and if so what can I expect? I am scared about it and already feel like a criminal for just putting in a claim. I was on DLA previously via the DS1500 but as I can happily report I am still here 7 years down the line with both lung and liver mets, I clearly have longer than 6 months to live so haven't applied for it with the DS1500. I do have medical issues and am on continued herceptin as well as hormonals, suffering with various aches and pains as well as other symtoms including joint pain, extreme fatigue, dizzy spells, migraines/nausea, breathlessness, diahrea and constipation. Any advice would be appreciated. Many thanks. xx