Palbociclib & Fulvestrant

[brenda.edge]

Same here, on it since Dec 2020. Can have occasional drink gin, wine etc, but mostly drink herb teas hot or cold. With fatigue feel like 75%, mornings better, evenings want to go to bed at 9! Still as long as stay stable!

[brenda.edge]

Thanks for your reply.

I've just started cycle 15 and waiting for Pet scan to see if still stable. Side effects, dry eye, wet eye; cold sores due to low immunity; fatigue. But worth it if working! Ling may it continue to work for you!

[Spikey]

I’m on this cocktail and my liver met has almost disappeared, 18mm to indiscernible at my first 3 month scan, lung mets shrunk but not by as much so it seems to be working for me. I have a glass or two of wine once a week, red wine gives me hot flushes but I can cope with that for 1 night. My side effects have been minimal, hair thinning and dry eyes but that’s all. I was told I could take paracetamol if I needed any but I didn’t ask about any other meds as I don’t take any.

Good luck and hope the treatment works for you

Spikey x

[Spikey]

I’m on this cocktail and my liver met has almost disappeared, 18mm to indiscernible at my first 3 month scan, lung mets shrunk but not by as much so it seems to be working for me. I have a glass or two of wine once a week, red wine gives me hot flushes but I can cope with that for 1 night. My side effects have been minimal, hair thinning and dry eyes but that’s all. I was told I could take paracetamol if I needed any but I didn’t ask about any other meds as I don’t take any.

Good luck and hope the treatment works for you

Spikey x

[Catmets]

Hi,

I'm on cycle 5 and I've noticed the achy-ness in back has come back after a few hrs standing.  Fine in the morning etc. Can I ask are you similar,  any advice? Bit worried.  Also liver function cam go high so I'm afraid to take painkillers! Thank u 💓 

[tibblek]

Hello, I’m on palbo. Have been since Dec 2020. You can have a glass of something every so often. I had 2 or 3 last night as I was celebrating and that wasn’t a good idea as I feel awful today and have a busy day ahead. I generally find that I don’t like to drink alcohol as I’m already functioning at say 10% so to add alcohol to the mix doesn’t really help me. You do what feels good for you though.x

[Stoney]

I'm on this treatment over 2 years, bone mets, bit I'm finding my bones/joints so achy...but I think that  is just my condition.. everything has remained stable . 

[brenda.edge]

Thanks so much for your positive reply. long may you continue to be stable.

[Lesley123]

Hi I am on Palbociclib & Fulvestrant have been for 12 months, I have been lucky so far hardly any side effects, I am on Morphine patch and oral Chemo the only thing I get is tiredness I have 3 monthly scans so far all is stable no shrinkage but a bit of healing to the spine.Good luck.

[brenda.edge]

Hi 

Anyone on these drugs. I'm on cycle 1 and wonder if alchohol is a no no. Do you find side effects increase over time? Are you able to take any non prescribed drugs with it, eg berberine, ashwanghanda, indol 3 carbinol? I have bone mets ribs & sternum. Anyone found that mets have reduced?

Any useful info welcomed