Pelvic mets

[Cool Nanny]

It's certainly helped me Jools.  Thank you.

Jayne x

[Aimee84]

That's brilliant to hear, thank you for sharing your positive story. 

Aimee xx

[hjjourneaux]

Hi I’m same lung,  liver , breast , and bone mets my treatment is ribocyclibib , monthly injection densnsuab , daily hormone tablet and monthly injection zoladex to stop ovaries , all good meds Keeping it at vat 2 years now. X

[Aimee84]

Hi @Jools-50 ,

Thank you so much for taking the time to reply to my thread and sharing your experience.  Posts like yours are helping me so much at the moment.

Starting on the same combination as you on Tuesday plus the f infections can't remember their name 

Aimee xx

[Jools-50]

Hi Aimee

I have bone mets, spine, sternum pelvis and left femur. I've been on palbociclib letrozole and denosumab since diagnosis 24 months ago and am doing well on this combination of meds. Working full-time and living life normally in and around the appointments. Hope this helps 

Jools xx 

[Aimee84]

Thank you for your advice, I will look into the honey. 

Having things to look forward to is definitely sound advice too.

Have these new drugs been approved? I hope they can find something to help us all.

Thanks and again and any other advice welcome. Glad to hear you're doing ok also 

Aimee xx

[willowbee]

Hi Aimee

I’ve gone through all the hormonal treatments , so now onto Chemo which sounds scary but is in some ways easier!

capecitipine didn’t work for me, and there is some discussion with my oncologist about some new drugs coming out  Enhertu and Sacituzimab  

As far as supplements, B6 , immumistem, Life Mel Honey though it’s getting very expensive  I think any good honey is good for your immune system really! 

I also think planning things to look forward to helps a lot! And rest as much as you can. 

willowbee  

[Aimee84]

Hi, 

Thank you so much for sharing how things are going for you, i really appreciate it 

Aimee xx

[LadyAvalon]

I was told I had bone mets in my hips, ribs and sacrum.

I have CT scans every three months and bone scan every year.

All stable atm, not much pain.

I take ribociclib, anastrozole and denosumab.

I get tired but the mets don't really give me any problems.

The meds are doing their stuff, cancer is stable and has been for the whole time.

I've had a couple of changed of meds but doing ok.

Hope it goes well for you.

Suzanne

[Aimee84]

Thank you for your reply, and good to know you are doing well.  Did you start on that treatment? Or did you have another first?

They said tablets, back to zoladex monthly instead of three monthly and another injection for me. No radiotherapy as I'm not in much pain, its more pf a nerve pain sometimes. I did a 7 mile walk yesterday and was fine.

Any other advice would be welcome please, do you take supplements etc?

Aimee xx

[Aimee84]

Thank you so much for your help, will have a read

Aimee  xx

[willowbee]

Hi Aimee

i have had secondary bone mets including my pelvis. The hopefully positive news is

that the pelvic ones have retreated and not showing up on my scans, though I still have some in my spine. Currently am on long term paclitaxol but I’ve had breast cancer since 2007 and secondary from 2018. Overall am living a good life and managing to stay fairly active! I’m in my mid 60’s  

Feel free to ask questions, and I wish you all the best possible xxx  willow bee 

[Charys]

I don't know if this is of any use to you Aimee, but you can do a Secondary forum search for 'Pelvic mets' and then change the date to show the threads with the most recent at the top. I know its not the same as having personal replies from those who have first hand experience, and I'm mindful that one diagnosis isn't the same as another and wouldn't want you to be more worried reading some threads - but there could be some help there ? You can also ring the helpline, which of course you will know, and they will have stacks of advice from the medical perspective. (Ha ha - I've also change the title on this post to see if it prompts anybody onthe 'Latest posts' list at the bottom of the page)

https://forum.breastcancernow.org/t5/forums/searchpage/tab/message?filter=location&q=Pelvic%20mets&l...

[Aimee84]

thank you for bumping it for me, would really like to speak to someone who has experience with this 

Best wishes

Ajmee x

[Charys]

Hey Aimee,

Sorry you've had no replies so far, replying to bump your thread back up for you 🙂 (Sorry, can't help with the Pelvic mets query as have no experience)

[Aimee84]

Hi everyone.

I've posted on here whilst waiting for bone and ct scans.  Confirmed pelvic mets yesterday! Would like to speak to anyone who has had this diagnosis?

I'm 38, not really in pain at the min and treatment of some tablets and injections start the week after next.

Any advice appreciated 

Aimee x